Re: Thoughts about total loss of control

[Guest guest]

Have you considered endocrine system like thyroid? Hormones ?

+-

From: Jack <jrussell8@...>

Subject: Thoughts about total loss of control

Date: Friday, March 5, 2010, 11:39 AM

 

We have a 5 yr. old son with Asperger's and have been doing biomed for

about 2 1/2 years. GF/CF/SF diet, etc.

We've had a real time in the past few months with him just completely snapping

into fits of rage and aggression in which he seems completely unable to make a

rationale decision or choice that would enable him to calm down or get out of

trouble. It happens a few times a week. It almost seems to build where he is

more and more on edge for a couple days and then just explodes over some minor

incidence when he's gotten into the least bit of trouble or been corrected or

not gotten his way, etc.

Yesterday it happened for the first time at school, starting with a sharing

problem with his twin brother and it was pretty bad. The teachers had not really

believed us, what we were seeing at home because he had always been so good at

school. It started with an incident with his brother but lasted about 45

minutes.

Any thoughts? Over the last six months we had loosened up on the diet a tiny

bit, maybe once a week having chic-filet nuggets with enzymes and didn't really

seem to see anything, at least poop-wise. Some soy lecithin maybe and he's been

getting a lot of junk (suckers with artificials, etc.) at school. Could this be

enough?

It almost seems like he's just not at all himself when he's in one of these

modes, like he literally would not remember it after. Even the teacher said she

had not seen anything like it and that it had to be biological.

He did also report that he had a terrible headache at school because of the

tornado drill. I'm not surprised that bothered him, I knew it would, but could

it trigger this kind of snapping 30 minutes later? What is going on in the

brain when that happens?

We see a new DAN doctor Monday and I was wondering if anyone had thoughts on

what we could ask about.

[Guest guest]

We've had a real time in the past few months with him just completely

snapping into fits of rage and aggression in which he seems completely

unable to make a rationale decision or choice that would enable him to calm

down or get out of trouble. It happens a few times a week.

At our house, aggression has been due to gut bad bacteria overgrowth.

Treating that brings my happy boy back.

Good luck

:-)

[Guest guest]

What jumped out at me was if you had a yeast protocol in place. If not, needed.

Also the Feingold diet, look into. If could be those artificial colorings

enough that does it.

Maybe look into adrenal cortex.

Hair test, chelation?

Tammy

Thoughts about total loss of control

We have a 5 yr. old son with Asperger's and have been doing biomed for about 2

1/2 years. GF/CF/SF diet, etc.

We've had a real time in the past few months with him just completely snapping

into fits of rage and aggression in which he seems completely unable to make a

rationale decision or choice that would enable him to calm down or get out of

trouble. It happens a few times a week. It almost seems to build where he is

more and more on edge for a couple days and then just explodes over some minor

incidence when he's gotten into the least bit of trouble or been corrected or

not gotten his way, etc.

Yesterday it happened for the first time at school, starting with a sharing

problem with his twin brother and it was pretty bad. The teachers had not really

believed us, what we were seeing at home because he had always been so good at

school. It started with an incident with his brother but lasted about 45

minutes.

Any thoughts? Over the last six months we had loosened up on the diet a tiny

bit, maybe once a week having chic-filet nuggets with enzymes and didn't really

seem to see anything, at least poop-wise. Some soy lecithin maybe and he's been

getting a lot of junk (suckers with artificials, etc.) at school. Could this be

enough?

It almost seems like he's just not at all himself when he's in one of these

modes, like he literally would not remember it after. Even the teacher said she

had not seen anything like it and that it had to be biological.

He did also report that he had a terrible headache at school because of the

tornado drill. I'm not surprised that bothered him, I knew it would, but could

it trigger this kind of snapping 30 minutes later? What is going on in the brain

when that happens?

We see a new DAN doctor Monday and I was wondering if anyone had thoughts on

what we could ask about.

[Guest guest]

Bacteria? how do you treat for that?

From: Haks <cathy@...>

Subject: RE: Thoughts about total loss of control

Date: Friday, March 5, 2010, 6:27 PM

 

We've had a real time in the past few months with him just completely

snapping into fits of rage and aggression in which he seems completely

unable to make a rationale decision or choice that would enable him to calm

down or get out of trouble. It happens a few times a week.

At our house, aggression has been due to gut bad bacteria overgrowth.

Treating that brings my happy boy back.

Good luck

:-)

[Guest guest]

> We've had a real time in the past few months with him just completely snapping

into fits of rage and aggression in which he seems completely unable to make a

rationale decision or choice that would enable him to calm down or get out of

trouble. It happens a few times a week. It almost seems to build where he is

more and more on edge for a couple days and then just explodes over some minor

incidence when he's gotten into the least bit of trouble or been corrected or

not gotten his way, etc.

The first thing I would try, is increasing the yeast protocol.

>>he's been getting a lot of junk (suckers with artificials, etc.) at school.

Could this be enough?

That would definitely be enough to increase the yeast. Also, the artificials

are high phenol

http://www.danasview.net/yeast.htm

http://www.danasview.net/phenol.htm

Dana

[Guest guest]

My kids both did this and it was caused by high histamine in the blood, which

would be worsened by all of the " infractions " that you listed, and which

ultimately stems from an overgrowth of bad bacteria and/or yeast in the gut.

The bad microbes give off metabolites that clog-up the methylation system, which

also gets clogged by artificial ingredients, ESPECIALLY the preservatives that

they put on chicken nugget type things which is essentially butane (like in a

cig lighter, highly toxic to the liver).

You can take all sorts of things to address dysbiosis, but for my kids we could

only really get past it by not feeding the bad bags in the first place. No

grains, starches, sugar, etc. We did GAPS but lots of people do SCD or at least

start SCD and go to GAPS. My ASD son is off of the spectrum now (has only a

language delay and mild residual anxiety) and my OCD son is no longer OCD at

all, although may have some mild tics still. Also, severe dairy allergy is

healed in all of us now. I would at least go back to the strict diet plus no

artificials and low sugar if noting else.

Hope this stops, I know how trying it is!

-Sierra

>

> We have a 5 yr. old son with Asperger's and have been doing biomed for about 2

1/2 years. GF/CF/SF diet, etc.

>

> We've had a real time in the past few months with him just completely snapping

into fits of rage and aggression in which he seems completely unable to make a

rationale decision or choice that would enable him to calm down or get out of

trouble. It happens a few times a week. It almost seems to build where he is

more and more on edge for a couple days and then just explodes over some minor

incidence when he's gotten into the least bit of trouble or been corrected or

not gotten his way, etc.

>

> Yesterday it happened for the first time at school, starting with a sharing

problem with his twin brother and it was pretty bad. The teachers had not really

believed us, what we were seeing at home because he had always been so good at

school. It started with an incident with his brother but lasted about 45

minutes.

>

> Any thoughts? Over the last six months we had loosened up on the diet a tiny

bit, maybe once a week having chic-filet nuggets with enzymes and didn't really

seem to see anything, at least poop-wise. Some soy lecithin maybe and he's been

getting a lot of junk (suckers with artificials, etc.) at school. Could this be

enough?

>

> It almost seems like he's just not at all himself when he's in one of these

modes, like he literally would not remember it after. Even the teacher said she

had not seen anything like it and that it had to be biological.

>

> He did also report that he had a terrible headache at school because of the

tornado drill. I'm not surprised that bothered him, I knew it would, but could

it trigger this kind of snapping 30 minutes later? What is going on in the

brain when that happens?

>

> We see a new DAN doctor Monday and I was wondering if anyone had thoughts on

what we could ask about.

>

[Guest guest]

My son has emotion regulation issues (just like you describe) when we aren't

helping his methylation pathway and PST (phenols affect that). His gets really

jammed and we have to support it with methyl B12 shots, folinic acid, TMG, and

epsom salt baths nightly. His gut bacteria and phenols contribute to this type

of behavior too, so it sounds like your infractions are too much for his system

to handle. Ask DAN about his methylation labs if you don't already have it done?

Best wishes,

Joanne

www.healingautismandadhd.wordpress.com

> >

> > We have a 5 yr. old son with Asperger's and have been doing biomed for about

2 1/2 years. GF/CF/SF diet, etc.

> >

> > We've had a real time in the past few months with him just completely

snapping into fits of rage and aggression in which he seems completely unable to

make a rationale decision or choice that would enable him to calm down or get

out of trouble. It happens a few times a week. It almost seems to build where

he is more and more on edge for a couple days and then just explodes over some

minor incidence when he's gotten into the least bit of trouble or been corrected

or not gotten his way, etc.

> >

> > Yesterday it happened for the first time at school, starting with a sharing

problem with his twin brother and it was pretty bad. The teachers had not really

believed us, what we were seeing at home because he had always been so good at

school. It started with an incident with his brother but lasted about 45

minutes.

> >

> > Any thoughts? Over the last six months we had loosened up on the diet a

tiny bit, maybe once a week having chic-filet nuggets with enzymes and didn't

really seem to see anything, at least poop-wise. Some soy lecithin maybe and

he's been getting a lot of junk (suckers with artificials, etc.) at school.

Could this be enough?

> >

> > It almost seems like he's just not at all himself when he's in one of these

modes, like he literally would not remember it after. Even the teacher said she

had not seen anything like it and that it had to be biological.

> >

> > He did also report that he had a terrible headache at school because of the

tornado drill. I'm not surprised that bothered him, I knew it would, but could

it trigger this kind of snapping 30 minutes later? What is going on in the

brain when that happens?

> >

> > We see a new DAN doctor Monday and I was wondering if anyone had thoughts on

what we could ask about.

> >

>

[Guest guest]

Please help if you have any ideas. We also have a loss of control issue here.

The difference is we have a 17 year old son. He has regressed into things he was

doing 5 years ago and we don't know why. His diet is not good but no worse than

it has been. About a month ago he started having meltdowns. He constantly goes

around saying " be quiet " , " no scratching " . He used to have an issue with doors

being open. That's gone and has been replaced with not being able to stand

anybody talking, touching any part of their body, or touching his hair.

 

He was given Allegra for allergies, which made him hyper so we were only giving

him 1 tsp. in the mornings instead of the 2 prescribed. He had been taking

liquid tmg with folinic acid for a long time and seemed to do well. We ordered

some that was powdered w/folinic acid and Mb12. He was taking a probiotic. We

started Trienza which he seemed to do well with.

Almost overnight he seemed to go berzerk. Every afternoon, we would start to

press his nose into the computer screen, mirror, or anything handy. Then he

would beat himself in the forehead with the heel of his hand. If I tried to stop

him, he would attack me. Later he would hold the top of his head and say " oh, my

head " . 

 

Oh yes, I did try one drop of GSE for 3 days, and one day biotin because I

thought he may be having a yeast issue. I took him to the doctor, no strep(even

though he had been exposed), no sinus or ear infection.

 

I stopped everything and started over with the Trienza. He was fine for a few

days so I added back the probiotic he had been taking for a long time. He went

from 1 bowel movement to 4; seemed to have no control(accidents)(leaking). I

read in the FAQ about starting with vitamin b, c, milk thistle, zinc, magnesium,

so I backed off of the Trienza and probiotics and started vitamin b, c, and

rubbed zinc on his feet at night. The violence is gone, but there is still

something really wrong.  What do I do?

 

For the first time in 8 years I am considering drugs.

From: purpledragonmama05 <sierra.ansley@...>

Subject: Re: Thoughts about total loss of control

Date: Saturday, March 6, 2010, 4:53 PM

 

My kids both did this and it was caused by high histamine in the blood, which

would be worsened by all of the " infractions " that you listed, and which

ultimately stems from an overgrowth of bad bacteria and/or yeast in the gut. The

bad microbes give off metabolites that clog-up the methylation system, which

also gets clogged by artificial ingredients, ESPECIALLY the preservatives that

they put on chicken nugget type things which is essentially butane (like in a

cig lighter, highly toxic to the liver).

You can take all sorts of things to address dysbiosis, but for my kids we could

only really get past it by not feeding the bad bags in the first place. No

grains, starches, sugar, etc. We did GAPS but lots of people do SCD or at least

start SCD and go to GAPS. My ASD son is off of the spectrum now (has only a

language delay and mild residual anxiety) and my OCD son is no longer OCD at

all, although may have some mild tics still. Also, severe dairy allergy is

healed in all of us now. I would at least go back to the strict diet plus no

artificials and low sugar if noting else.

Hope this stops, I know how trying it is!

-Sierra

>

> We have a 5 yr. old son with Asperger's and have been doing biomed for about 2

1/2 years. GF/CF/SF diet, etc.

>

> We've had a real time in the past few months with him just completely snapping

into fits of rage and aggression in which he seems completely unable to make a

rationale decision or choice that would enable him to calm down or get out of

trouble. It happens a few times a week. It almost seems to build where he is

more and more on edge for a couple days and then just explodes over some minor

incidence when he's gotten into the least bit of trouble or been corrected or

not gotten his way, etc.

>

> Yesterday it happened for the first time at school, starting with a sharing

problem with his twin brother and it was pretty bad. The teachers had not really

believed us, what we were seeing at home because he had always been so good at

school. It started with an incident with his brother but lasted about 45

minutes.

>

> Any thoughts? Over the last six months we had loosened up on the diet a tiny

bit, maybe once a week having chic-filet nuggets with enzymes and didn't really

seem to see anything, at least poop-wise. Some soy lecithin maybe and he's been

getting a lot of junk (suckers with artificials, etc.) at school. Could this be

enough?

>

> It almost seems like he's just not at all himself when he's in one of these

modes, like he literally would not remember it after. Even the teacher said she

had not seen anything like it and that it had to be biological.

>

> He did also report that he had a terrible headache at school because of the

tornado drill. I'm not surprised that bothered him, I knew it would, but could

it trigger this kind of snapping 30 minutes later? What is going on in the brain

when that happens?

>

> We see a new DAN doctor Monday and I was wondering if anyone had thoughts on

what we could ask about.

>

[Guest guest]

Culturelle is good for some bacteria (clostridia). Sacc B and a probiotic with

Bifido are also good for some forms of bacteria like pseudo aeruginosa.

Karla

>

> From: Haks <cathy@...>

> Subject: RE: Thoughts about total loss of control

>

> Date: Friday, March 5, 2010, 6:27 PM

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

>

>

>

>

>

>

> We've had a real time in the past few months with him just completely

>

> snapping into fits of rage and aggression in which he seems completely

>

> unable to make a rationale decision or choice that would enable him to calm

>

> down or get out of trouble. It happens a few times a week.

>

>

>

> At our house, aggression has been due to gut bad bacteria overgrowth.

>

> Treating that brings my happy boy back.

>

>

>

> Good luck

>

>

>

> :-)

>

>

>

>

[Guest guest]

Hi,what's GAPS? I've never heard about it before.

,

Todd(pdd-nos)

SCD 02-09-08

Praying for recovery:)

From: purpledragonmama05 <sierra.ansley@...>

Subject: Re: Thoughts about total loss of control

Date: Saturday, March 6, 2010, 1:53 PM

 

My kids both did this and it was caused by high histamine in the blood, which

would be worsened by all of the " infractions " that you listed, and which

ultimately stems from an overgrowth of bad bacteria and/or yeast in the gut. The

bad microbes give off metabolites that clog-up the methylation system, which

also gets clogged by artificial ingredients, ESPECIALLY the preservatives that

they put on chicken nugget type things which is essentially butane (like in a

cig lighter, highly toxic to the liver).

You can take all sorts of things to address dysbiosis, but for my kids we could

only really get past it by not feeding the bad bags in the first place. No

grains, starches, sugar, etc. We did GAPS but lots of people do SCD or at least

start SCD and go to GAPS. My ASD son is off of the spectrum now (has only a

language delay and mild residual anxiety) and my OCD son is no longer OCD at

all, although may have some mild tics still. Also, severe dairy allergy is

healed in all of us now. I would at least go back to the strict diet plus no

artificials and low sugar if noting else.

Hope this stops, I know how trying it is!

-Sierra

>

> We have a 5 yr. old son with Asperger's and have been doing biomed for about 2

1/2 years. GF/CF/SF diet, etc.

>

> We've had a real time in the past few months with him just completely snapping

into fits of rage and aggression in which he seems completely unable to make a

rationale decision or choice that would enable him to calm down or get out of

trouble. It happens a few times a week. It almost seems to build where he is

more and more on edge for a couple days and then just explodes over some minor

incidence when he's gotten into the least bit of trouble or been corrected or

not gotten his way, etc.

>

> Yesterday it happened for the first time at school, starting with a sharing

problem with his twin brother and it was pretty bad. The teachers had not really

believed us, what we were seeing at home because he had always been so good at

school. It started with an incident with his brother but lasted about 45

minutes.

>

> Any thoughts? Over the last six months we had loosened up on the diet a tiny

bit, maybe once a week having chic-filet nuggets with enzymes and didn't really

seem to see anything, at least poop-wise. Some soy lecithin maybe and he's been

getting a lot of junk (suckers with artificials, etc.) at school. Could this be

enough?

>

> It almost seems like he's just not at all himself when he's in one of these

modes, like he literally would not remember it after. Even the teacher said she

had not seen anything like it and that it had to be biological.

>

> He did also report that he had a terrible headache at school because of the

tornado drill. I'm not surprised that bothered him, I knew it would, but could

it trigger this kind of snapping 30 minutes later? What is going on in the brain

when that happens?

>

> We see a new DAN doctor Monday and I was wondering if anyone had thoughts on

what we could ask about.

>

[Guest guest]

> He was given Allegra for allergies, which made him hyper so we were only

giving him 1 tsp. in the mornings instead of the 2 prescribed. He had been

taking liquid tmg with folinic acid for a long time and seemed to do well. We

ordered some that was powdered w/folinic acid and Mb12.

There came a time when TMG, mB12, and folic all were no longer needed. And when

that time came [different times for each of them], they caused problems until I

removed them.

> Oh yes, I did try one drop of GSE for 3 days, and one day biotin because I

thought he may be having a yeast issue. I took him to the doctor, no strep(even

though he had been exposed), no sinus or ear infection.

Was this a throat culture, or a blood test? He might have strep issues that are

only detectable by blood test.

> I stopped everything and started over with the Trienza. He was fine for a few

days so I added back the probiotic he had been taking for a long time. He went

from 1 bowel movement to 4; seemed to have no control(accidents)(leaking).

My son never really did tolerate probiotics, but it also might be that he no

longer needs that probiotic, since you say he has been taking it for a long

time. Try removing it.

>>I read in the FAQ about starting with vitamin b, c, milk thistle, zinc,

magnesium, so I backed off of the Trienza and probiotics and started vitamin b,

c, and rubbed zinc on his feet at night. The violence is gone, but there is

still something really wrong. What do I do?

I would remove everything, then add back the TriEnza because you said he did

well with that.

Then, a week later, add ONE other supplement. Wait a week with the new one to

see if you notice problems. If no problems, add ONE other supp. Etc.

Dana

[Guest guest]

Yes, it was determined by throat culture. He had no fever, but I have an older

son that had strep with no fever or sore throat.

 

Right now he is walking through the house saying " be quiet " about every 15

minutes. This has been going on for about a month and continues to get worse.

Until then he had an issue about all the doors being shut. That is no longer a

problem. This new thing about people talking, scratching, touching their hair or

any body part has replaced it. He is driving us bananas. But there has been no

more violent behavior. He is also sleeping better.

 

Anything that I have changed in the house over the last 6 months, he is moving

back to its original place.

 

D.

From: danasview <danasview@...>

Subject: Re: Thoughts about total loss of control

Date: Sunday, March 7, 2010, 11:19 AM

 

> He was given Allegra for allergies, which made him hyper so we were only

giving him 1 tsp. in the mornings instead of the 2 prescribed. He had been

taking liquid tmg with folinic acid for a long time and seemed to do well. We

ordered some that was powdered w/folinic acid and Mb12.

There came a time when TMG, mB12, and folic all were no longer needed. And when

that time came [different times for each of them], they caused problems until I

removed them.

> Oh yes, I did try one drop of GSE for 3 days, and one day biotin because I

thought he may be having a yeast issue. I took him to the doctor, no strep(even

though he had been exposed), no sinus or ear infection.

Was this a throat culture, or a blood test? He might have strep issues that are

only detectable by blood test.

> I stopped everything and started over with the Trienza. He was fine for a few

days so I added back the probiotic he had been taking for a long time. He went

from 1 bowel movement to 4; seemed to have no control(accidents) (leaking) .

My son never really did tolerate probiotics, but it also might be that he no

longer needs that probiotic, since you say he has been taking it for a long

time. Try removing it.

>>I read in the FAQ about starting with vitamin b, c, milk thistle, zinc,

magnesium, so I backed off of the Trienza and probiotics and started vitamin b,

c, and rubbed zinc on his feet at night. The violence is gone, but there is

still something really wrong. What do I do?

I would remove everything, then add back the TriEnza because you said he did

well with that.

Then, a week later, add ONE other supplement. Wait a week with the new one to

see if you notice problems. If no problems, add ONE other supp. Etc.

Dana

[Guest guest]

what do you use for the bad bacteria, my daughter cannot swallow capsules,

but we do GSE/biotin/ CAndidase and Virastop for yeast. But would like

more for bacteria, it really flares around full moon. behavior is very

defiant and crazy for 4 days leading and following it...

Jen

Re: Thoughts about total loss of control

> My kids both did this and it was caused by high histamine in the blood,

> which would be worsened by all of the " infractions " that you listed, and

> which ultimately stems from an overgrowth of bad bacteria and/or yeast in

> the gut. The bad microbes give off metabolites that clog-up the

> methylation system, which also gets clogged by artificial ingredients,

> ESPECIALLY the preservatives that they put on chicken nugget type things

> which is essentially butane (like in a cig lighter, highly toxic to the

> liver).

>

> You can take all sorts of things to address dysbiosis, but for my kids we

> could only really get past it by not feeding the bad bags in the first

> place. No grains, starches, sugar, etc. We did GAPS but lots of people

> do SCD or at least start SCD and go to GAPS. My ASD son is off of the

> spectrum now (has only a language delay and mild residual anxiety) and my

> OCD son is no longer OCD at all, although may have some mild tics still.

> Also, severe dairy allergy is healed in all of us now. I would at least

> go back to the strict diet plus no artificials and low sugar if noting

> else.

>

> Hope this stops, I know how trying it is!

>

> -Sierra

>

>

>>

>> We have a 5 yr. old son with Asperger's and have been doing biomed for

>> about 2 1/2 years. GF/CF/SF diet, etc.

>>

>> We've had a real time in the past few months with him just completely

>> snapping into fits of rage and aggression in which he seems completely

>> unable to make a rationale decision or choice that would enable him to

>> calm down or get out of trouble. It happens a few times a week. It

>> almost seems to build where he is more and more on edge for a couple days

>> and then just explodes over some minor incidence when he's gotten into

>> the least bit of trouble or been corrected or not gotten his way, etc.

>>

>> Yesterday it happened for the first time at school, starting with a

>> sharing problem with his twin brother and it was pretty bad. The teachers

>> had not really believed us, what we were seeing at home because he had

>> always been so good at school. It started with an incident with his

>> brother but lasted about 45 minutes.

>>

>> Any thoughts? Over the last six months we had loosened up on the diet a

>> tiny bit, maybe once a week having chic-filet nuggets with enzymes and

>> didn't really seem to see anything, at least poop-wise. Some soy

>> lecithin maybe and he's been getting a lot of junk (suckers with

>> artificials, etc.) at school. Could this be enough?

>>

>> It almost seems like he's just not at all himself when he's in one of

>> these modes, like he literally would not remember it after. Even the

>> teacher said she had not seen anything like it and that it had to be

>> biological.

>>

>> He did also report that he had a terrible headache at school because of

>> the tornado drill. I'm not surprised that bothered him, I knew it would,

>> but could it trigger this kind of snapping 30 minutes later? What is

>> going on in the brain when that happens?

>>

>> We see a new DAN doctor Monday and I was wondering if anyone had thoughts

>> on what we could ask about.

>>

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

You might have started to see die off reactions from gut bacteria? Enzymes can

do that and his behavior sounds like OCD, which can be caused by the toxins

given off from bacteria. I agree with Dana at trying only one thing at a time

and giving it a week or so before starting anything new.

Joanne

www.healingautismandadhd.wordpress.com

> > He was given Allegra for allergies, which made him hyper so we were only

giving him 1 tsp. in the mornings instead of the 2 prescribed. He had been

taking liquid tmg with folinic acid for a long time and seemed to do well. We

ordered some that was powdered w/folinic acid and Mb12.

>

> There came a time when TMG, mB12, and folic all were no longer needed. And

when that time came [different times for each of them], they caused problems

until I removed them.

>

> > Oh yes, I did try one drop of GSE for 3 days, and one day biotin because I

thought he may be having a yeast issue. I took him to the doctor, no strep(even

though he had been exposed), no sinus or ear infection.

>

> Was this a throat culture, or a blood test? He might have strep issues that

are only detectable by blood test.

>

> > I stopped everything and started over with the Trienza. He was fine for a

few days so I added back the probiotic he had been taking for a long time. He

went from 1 bowel movement to 4; seemed to have no control(accidents) (leaking)

..

>

> My son never really did tolerate probiotics, but it also might be that he no

longer needs that probiotic, since you say he has been taking it for a long

time. Try removing it.

>

> >>I read in the FAQ about starting with vitamin b, c, milk thistle, zinc,

magnesium, so I backed off of the Trienza and probiotics and started vitamin b,

c, and rubbed zinc on his feet at night. The violence is gone, but there is

still something really wrong. What do I do?

>

> I would remove everything, then add back the TriEnza because you said he did

well with that.

>

> Then, a week later, add ONE other supplement. Wait a week with the new one to

see if you notice problems. If no problems, add ONE other supp. Etc.

>

> Dana

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

You mentioned that he had been exposed to strep. Does he have PANDAS? My son is

a PANDAS kid and just an exposure is enough to set the antibodies (and symptoms)

going wild. Whether or not the strep test comes back positive is not important.

was on a prophylatic antibiotic weekly for close to a year. Now he's off,

and his sister just got strep. Ugh!

But the overnight change is a common PANDAS sign. The PANDAS does make a kid

significantly more anxious so meltdowns would follow. My son would run around

the dinner table 109 times each meal. And he would be highly fearful of the

devil, thinking Satan was behind every curtain and was coming to snatch him away

for " being bad. " Also, a PANDAS sign.

I don't know your son, so of course, I don't know that it's PANDAS, BUT...would

it be worth checking? Absolutely, with the overnight change, the obsessive like

behaviors, and the exposure to strep. This is my " favorite " (I hate PANDAS!)

site: http://e-pandas.com/

Good news is that a nice z-pack could make a huge difference (then some

probiotics, of course).

Sara

>

> Please help if you have any ideas. We also have a loss of control issue here.

The difference is we have a 17 year old son. He has regressed into things he was

doing 5 years ago and we don't know why. His diet is not good but no worse than

it has been. About a month ago he started having meltdowns. He constantly goes

around saying " be quiet " , " no scratching " . He used to have an issue with doors

being open. That's gone and has been replaced with not being able to stand

anybody talking, touching any part of their body, or touching his hair.

[Guest guest]

One other tidbit...just noticed that he's also having accidents. My son, when

PANDAS is flaring, has accident after accident. He seemingly cannot control his

urine (also what happens when he has bacteria or yeast), but coupled with the

other symptoms, checking his DNASE and ASO titers might be worth checking out.

Sara

>

> Please help if you have any ideas. We also have a loss of control issue here.

The difference is we have a 17 year old son. He has regressed into things he was

doing 5 years ago and we don't know why. His diet is not good but no worse than

it has been. About a month ago he started having meltdowns. He constantly goes

around saying " be quiet " , " no scratching " . He used to have an issue with doors

being open. That's gone and has been replaced with not being able to stand

anybody talking, touching any part of their body, or touching his hair.

[Guest guest]

How do I get that checked? Is there a test I need to ask the doctor for? He has

a very good pediatrician(for regular kids), but has an attitude about Autism

that all of this stuff is a waste of time and money.

From: sebrown1126a <sarabrown@...>

Subject: Re: Thoughts about total loss of control

Date: Sunday, March 7, 2010, 10:34 PM

 

One other tidbit...just noticed that he's also having accidents. My son, when

PANDAS is flaring, has accident after accident. He seemingly cannot control his

urine (also what happens when he has bacteria or yeast), but coupled with the

other symptoms, checking his DNASE and ASO titers might be worth checking out.

Sara

>

> Please help if you have any ideas. We also have a loss of control issue here.

The difference is we have a 17 year old son. He has regressed into things he was

doing 5 years ago and we don't know why. His diet is not good but no worse than

it has been. About a month ago he started having meltdowns. He constantly goes

around saying " be quiet " , " no scratching " . He used to have an issue with doors

being open. That's gone and has been replaced with not being able to stand

anybody talking, touching any part of their body, or touching his hair.

[Guest guest]

> Yes, it was determined by throat culture.

That test is not accurate if you don't have the strep in your throat. And

PANDAS issues are generally caused by strep located somewhere else in the body,

not the throat.

If you suspect strep, you can try OLE. I eliminated strep with OLE.

Dana

[Guest guest]

> what do you use for the bad bacteria,

OLE and OoO.

>>my daughter cannot swallow capsules,

> but we do GSE/biotin/ CAndidase and Virastop for yeast. But would like

> more for bacteria, it really flares around full moon.

Full moon flares are associated with parasites.

Dana

[Guest guest]

But I cannot get it in her, it tastes horrible, and as many times as we

have read your posts about teaching to swallow capsules, she just can't do

it. So I need ot figure out how to get it in her.... Do you the OLE and

OoO for parasites as well?

Re: Thoughts about total loss of control

>

>> what do you use for the bad bacteria,

>

>

> OLE and OoO.

>

>

>>>my daughter cannot swallow capsules,

>> but we do GSE/biotin/ CAndidase and Virastop for yeast. But would like

>> more for bacteria, it really flares around full moon.

>

>

> Full moon flares are associated with parasites.

>

> Dana

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

How do you dose ole? My son is 90 pounds. How long do you give it? We tried

anti biotics and the tics did get somewhat better. We are done with the

antibiotics and the tics are still present. Better but still there (throat

clearing).

Sorry I didn't mean to jump in on someone else's email.

Thanks

.

Sent from my Verizon Wireless BlackBerry

Re: Thoughts about total loss of control

> Yes, it was determined by throat culture.

That test is not accurate if you don't have the strep in your throat. And

PANDAS issues are generally caused by strep located somewhere else in the body,

not the throat.

If you suspect strep, you can try OLE. I eliminated strep with OLE.

Dana

[Guest guest]

ok thanks. We have been dealing with ocd for a very long time. It seems to get a

little better when he has been on an antibiotic. I would like to try this with

him. What is the lowest recommended dosage? He weighs 100 lbs. but is very

sensitive to everything.

Drissia

From: danasview <danasview@...>

Subject: Re: Thoughts about total loss of control

Date: Monday, March 8, 2010, 10:02 AM

 

> Yes, it was determined by throat culture.

That test is not accurate if you don't have the strep in your throat. And

PANDAS issues are generally caused by strep located somewhere else in the body,

not the throat.

If you suspect strep, you can try OLE. I eliminated strep with OLE.

Dana

[Guest guest]

Just ask for strep titers...ASO and DNASE. It's a blood draw at a regular lab.

>

> How do I get that checked? Is there a test I need to ask the doctor for? He

has a very good pediatrician(for regular kids), but has an attitude about Autism

that all of this stuff is a waste of time and money.

>

[Guest guest]

ok thanks.

From: sebrown1126a <sarabrown@...>

Subject: Re: Thoughts about total loss of control

Date: Tuesday, March 9, 2010, 9:02 AM

 

Just ask for strep titers...ASO and DNASE. It's a blood draw at a regular

lab.

>

> How do I get that checked? Is there a test I need to ask the doctor for? He

has a very good pediatrician( for regular kids), but has an attitude about

Autism that all of this stuff is a waste of time and money.

>

[Guest guest]

> But I cannot get it in her, it tastes horrible, and as many times as we

> have read your posts about teaching to swallow capsules, she just can't do

> it. So I need ot figure out how to get it in her....

Buy the tincture and rub it on her feet, then cover with socks overnight. I

know this works for OoO, not sure about OLE.

OLE will mix well into an Italian meal.

>>Do you the OLE and

> OoO for parasites as well?

Black walnut is good for parasites. I don't know about OLE or OoO.

Dana