Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Hi Drissia. I would immediately remove all grain products and non-fermented milk products. See what the result o fthat is after a short period. When you say it looked like blood....was it bright red or a dark purple color ? In general, my experience has been that anal/rectal bleeding is quite bright red (since there has not been much opportunity for the stool to become absorbed by, and hence mixed with, the stool content ..... this latter event leads often to the purplish color). Are there normally hard or loose stools ? Is there normally some straining with edfacation ? BR J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Bright red like strawberry jello, and a jelled like consistency. I figured it was blood and mucous since that's what I saw later without the red. Normally has applesauce consistency but sometimes more like clay. Sometimes some straining. He has had a chronic problem with constipation, sometimes only going every 3-5 days. The gastroenterologist has prescribed Miralax, but that makes him have problems not knowing when he has to go. Last time he said to use Milk of Magnesia a couple of times a week and Miralax once a week. He hasn't need either for a couple of weeks but then this happened out of the blue. His older brother has ulcerative colitis and they have searched for Crohn's and Celiac but found neither conclusively. The blood test for Crohn's was negative. He had antibodies for Gluten. The ileum valve was locked down during one of the colonoscopies. The only protein he eats is kfc Crispy Strips which they prepare especially for him. When we tried to remove these from his diet, he stopped eating anything and became 25% wasted in short order. Thanks for your input. I'll give it a shot. D. From: greenrazorsharp <julian@...> Subject: Re: Help/stomach issues Date: Monday, November 2, 2009, 12:24 PM Hi Drissia. I would immediately remove all grain products and non-fermented milk products. See what the result o fthat is after a short period. When you say it looked like blood....was it bright red or a dark purple color ? In general, my experience has been that anal/rectal bleeding is quite bright red (since there has not been much opportunity for the stool to become absorbed by, and hence mixed with, the stool content ..... this latter event leads often to the purplish color). Are there normally hard or loose stools ? Is there normally some straining with edfacation ? BR J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 I would bet the antibiotics are related to this. I wonder if they killed off something that was keeping a bacteria or parasite in check and now it's flared up and is causing an infection? If you haven't looked into SCD I would, especially since your other son has ulceration colitis. I know your son is picky though, so obviously this would be tough. I had a problem with suspected bleeding in the stool once, and what they told me is that if it is bright red the bleeding is near the rectum- if it is brown or purple, it is partially digested and coming from farther up. Honestly, it sounds like your son's gut is in really bad shape and getting worse. is there some way to have him in the hospital when trying to switch diets so that he gets nutrition intravenously? I know it sounds really drastic, but it often takes not too long of not having the " addictive " food before they are willing to eat other things. -Sierra > > Bright red like strawberry jello, and a jelled like consistency. I figured it was blood and mucous since that's what I saw later without the red. Normally has applesauce consistency but sometimes more like clay. Sometimes some straining. He has had a chronic problem with constipation, sometimes only going every 3-5 days. The gastroenterologist has prescribed Miralax, but that makes him have problems not knowing when he has to go. Last time he said to use Milk of Magnesia a couple of times a week and Miralax once a week. He hasn't need either for a couple of weeks but then this happened out of the blue. His older brother has ulcerative colitis and they have searched for Crohn's and Celiac but found neither conclusively. The blood test for Crohn's was negative. He had antibodies for Gluten. The ileum valve was locked down during one of the colonoscopies. > > The only protein he eats is kfc Crispy Strips which they prepare especially for him. When we tried to remove these from his diet, he stopped eating anything and became 25% wasted in short order. > > Thanks for your input. I'll give it a shot. > > D. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Some times going on a liquid elemental type formula only diet to get the stomach healed is a way to go. Then adding foods very slow, one by one. Have you done food allergy testing? Tammy Re: Help/stomach issues I would bet the antibiotics are related to this. I wonder if they killed off something that was keeping a bacteria or parasite in check and now it's flared up and is causing an infection? If you haven't looked into SCD I would, especially since your other son has ulceration colitis. I know your son is picky though, so obviously this would be tough. I had a problem with suspected bleeding in the stool once, and what they told me is that if it is bright red the bleeding is near the rectum- if it is brown or purple, it is partially digested and coming from farther up. Honestly, it sounds like your son's gut is in really bad shape and getting worse. is there some way to have him in the hospital when trying to switch diets so that he gets nutrition intravenously? I know it sounds really drastic, but it often takes not too long of not having the " addictive " food before they are willing to eat other things. -Sierra > > Bright red like strawberry jello, and a jelled like consistency. I figured it was blood and mucous since that's what I saw later without the red. Normally has applesauce consistency but sometimes more like clay. Sometimes some straining. He has had a chronic problem with constipation, sometimes only going every 3-5 days. The gastroenterologist has prescribed Miralax, but that makes him have problems not knowing when he has to go. Last time he said to use Milk of Magnesia a couple of times a week and Miralax once a week. He hasn't need either for a couple of weeks but then this happened out of the blue. His older brother has ulcerative colitis and they have searched for Crohn's and Celiac but found neither conclusively. The blood test for Crohn's was negative. He had antibodies for Gluten. The ileum valve was locked down during one of the colonoscopies. > > The only protein he eats is kfc Crispy Strips which they prepare especially for him. When we tried to remove these from his diet, he stopped eating anything and became 25% wasted in short order. > > Thanks for your input. I'll give it a shot. > > D. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Maybe really consider GAPS or SCD as other s have suggested. If your child has such stomach issues - which is quite normal for asd people - then you probably need to do something like one of those protocols. We have a 4y6m boy who is on GAPS (after doing the Intro protocol). He had never had a solid BM until then. Now he has 1-2 regular motions and we can fine tune him BM's by adjusting the amount of probiotic we give him. How often does he get D ? Does in alternate with the Constipation ? Good Luck n Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 What is GAPS? I have heard the term SCD. Where do I find info? Thanks Again. D. From: greenrazorsharp <julian@...> Subject: Re: Help/stomach issues Date: Tuesday, November 3, 2009, 1:32 AM Maybe really consider GAPS or SCD as other s have suggested. If your child has such stomach issues - which is quite normal for asd people - then you probably need to do something like one of those protocols. We have a 4y6m boy who is on GAPS (after doing the Intro protocol). He had never had a solid BM until then. Now he has 1-2 regular motions and we can fine tune him BM's by adjusting the amount of probiotic we give him. How often does he get D ? Does in alternate with the Constipation ? Good Luck n Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 Sierra, The antibiotics were given over a month ago. I was very careful to always give him the probiotics as well. In fact, he takes probiotics every day. The blood is bright red and last night came back with a vengeance. I think we are in real trouble here and will call the gastro this morning. My older son says this is exactly what happened with him before he was diagnosed at age 22. Stomach problems are common in my family, but never anything to this magnitude. I am certainly willing to try anything at this point and my husband is finally convinced that what is best for him has to take precedence over what he wants. As always, thank you for your input. It has always been well timed. Drissia From: purpledragonmama05 <sierra.ansley@...> Subject: Re: Help/stomach issues Date: Monday, November 2, 2009, 6:33 PM I would bet the antibiotics are related to this. I wonder if they killed off something that was keeping a bacteria or parasite in check and now it's flared up and is causing an infection? If you haven't looked into SCD I would, especially since your other son has ulceration colitis. I know your son is picky though, so obviously this would be tough. I had a problem with suspected bleeding in the stool once, and what they told me is that if it is bright red the bleeding is near the rectum- if it is brown or purple, it is partially digested and coming from farther up. Honestly, it sounds like your son's gut is in really bad shape and getting worse. is there some way to have him in the hospital when trying to switch diets so that he gets nutrition intravenously? I know it sounds really drastic, but it often takes not too long of not having the " addictive " food before they are willing to eat other things. -Sierra > > Bright red like strawberry jello, and a jelled like consistency. I figured it was blood and mucous since that's what I saw later without the red. Normally has applesauce consistency but sometimes more like clay. Sometimes some straining. He has had a chronic problem with constipation, sometimes only going every 3-5 days. The gastroenterologist has prescribed Miralax, but that makes him have problems not knowing when he has to go. Last time he said to use Milk of Magnesia a couple of times a week and Miralax once a week. He hasn't need either for a couple of weeks but then this happened out of the blue. His older brother has ulcerative colitis and they have searched for Crohn's and Celiac but found neither conclusively. The blood test for Crohn's was negative. He had antibodies for Gluten. The ileum valve was locked down during one of the colonoscopies. > > The only protein he eats is kfc Crispy Strips which they prepare especially for him. When we tried to remove these from his diet, he stopped eating anything and became 25% wasted in short order. > > Thanks for your input. I'll give it a shot. > > D. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 Tammy, Thank you. He has never had allergy testing, but takes allergy meds daily. The blood test they did last year showed antibodies for Gluten/Gliaden. He stopped drinking milk on his own years ago. When he did, he laid awake all night laughing manically for weeks on end and paced the floor all day. The only thing he has in that area now is an occasion popsicle. .. The foods he eats are kfc crispy strips, which he is hooked on; probably because of the msg. Some fruits, mashed potatoes, french fries, 1/2 hotdog w/ketchup occasionally, and gluten free french toast. I do have a juicer, but haven't had a lot of luck getting him to drink what I juice. It doesn't look right to him. I can't even imagine how I would implement a liquid diet. This boy is 16 years old. Drissia From: Tammy Kuhn <tkuhn1@...> Subject: Re: Re: Help/stomach issues Date: Monday, November 2, 2009, 8:39 PM Some times going on a liquid elemental type formula only diet to get the stomach healed is a way to go. Then adding foods very slow, one by one. Have you done food allergy testing? Tammy Re: Help/stomach issues I would bet the antibiotics are related to this. I wonder if they killed off something that was keeping a bacteria or parasite in check and now it's flared up and is causing an infection? If you haven't looked into SCD I would, especially since your other son has ulceration colitis. I know your son is picky though, so obviously this would be tough. I had a problem with suspected bleeding in the stool once, and what they told me is that if it is bright red the bleeding is near the rectum- if it is brown or purple, it is partially digested and coming from farther up. Honestly, it sounds like your son's gut is in really bad shape and getting worse. is there some way to have him in the hospital when trying to switch diets so that he gets nutrition intravenously? I know it sounds really drastic, but it often takes not too long of not having the " addictive " food before they are willing to eat other things. -Sierra > > Bright red like strawberry jello, and a jelled like consistency. I figured it was blood and mucous since that's what I saw later without the red. Normally has applesauce consistency but sometimes more like clay. Sometimes some straining. He has had a chronic problem with constipation, sometimes only going every 3-5 days. The gastroenterologist has prescribed Miralax, but that makes him have problems not knowing when he has to go. Last time he said to use Milk of Magnesia a couple of times a week and Miralax once a week. He hasn't need either for a couple of weeks but then this happened out of the blue. His older brother has ulcerative colitis and they have searched for Crohn's and Celiac but found neither conclusively. The blood test for Crohn's was negative. He had antibodies for Gluten. The ileum valve was locked down during one of the colonoscopies. > > The only protein he eats is kfc Crispy Strips which they prepare especially for him. When we tried to remove these from his diet, he stopped eating anything and became 25% wasted in short order. > > Thanks for your input. I'll give it a shot. > > D. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 You need to experiment with all the forms of sensitivities. This website has some great info on what kinds of foods to eliminate in order to help the gut. www.plantpoisonsandrottenstuff.com My stomach was horrible until I went off of those foods containing the chemical salicylate. Also taking hydrochloric acid pills really helped. Antibiotics will destroy the natural flora of the stomach and make the stomach worse. Eating kefir{ if not milk intolerant } and a live sauerkraut can help settle the stomach, but going off of the offending foods is essential. nanci > > > From: greenrazorsharp <julian@...> > Subject: Re: Help/stomach issues > > Date: Tuesday, November 3, 2009, 1:32 AM > > > > > > > Maybe really consider GAPS or SCD as other s have suggested. > If your child has such stomach issues - which is quite normal for asd > people - then you probably need to do something like one of those > protocols. > We have a 4y6m boy who is on GAPS (after doing the Intro protocol). > He had never had a solid BM until then. > Now he has 1-2 regular motions and we can fine tune him BM's by > adjusting the amount of probiotic we give him. > > How often does he get D ? Does in alternate with the Constipation ? > > Good Luck > n > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 Drissia I would get food allergy testing. We've had both blood and skin. I'm only partial to blood because they can test a lot of things at once. Might be worth it. 16, yeah, pretty old to go on a liquid diet. Sounds like keeping the milk out for sure. Many allergic to dairy also have issues with soy, so watch for that. Probiotics, enzymes and looking into chelation, AC protocol. I'm going to try round 1 again with my nt 7 year old with severe food allergies. Many report allergens less with chelation. My hope and NAET. Tammy Re: Help/stomach issues I would bet the antibiotics are related to this. I wonder if they killed off something that was keeping a bacteria or parasite in check and now it's flared up and is causing an infection? If you haven't looked into SCD I would, especially since your other son has ulceration colitis. I know your son is picky though, so obviously this would be tough. I had a problem with suspected bleeding in the stool once, and what they told me is that if it is bright red the bleeding is near the rectum- if it is brown or purple, it is partially digested and coming from farther up. Honestly, it sounds like your son's gut is in really bad shape and getting worse. is there some way to have him in the hospital when trying to switch diets so that he gets nutrition intravenously? I know it sounds really drastic, but it often takes not too long of not having the " addictive " food before they are willing to eat other things. -Sierra > > Bright red like strawberry jello, and a jelled like consistency. I figured it was blood and mucous since that's what I saw later without the red. Normally has applesauce consistency but sometimes more like clay. Sometimes some straining. He has had a chronic problem with constipation, sometimes only going every 3-5 days. The gastroenterologist has prescribed Miralax, but that makes him have problems not knowing when he has to go. Last time he said to use Milk of Magnesia a couple of times a week and Miralax once a week. He hasn't need either for a couple of weeks but then this happened out of the blue. His older brother has ulcerative colitis and they have searched for Crohn's and Celiac but found neither conclusively. The blood test for Crohn's was negative. He had antibodies for Gluten. The ileum valve was locked down during one of the colonoscopies. > > The only protein he eats is kfc Crispy Strips which they prepare especially for him. When we tried to remove these from his diet, he stopped eating anything and became 25% wasted in short order. > > Thanks for your input. I'll give it a shot. > > D. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 http://www.gaps.me and GAPShelp/?yguid=33000090 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Thanks. From: greenrazorsharp <julian@...> Subject: Re: Help/stomach issues Date: Wednesday, November 4, 2009, 8:13 AM http://www.gaps. me and http://groups. / group/GAPShelp/ ?yguid=33000090 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Drissa, That's great that your husband is on board with helping. It sounds to me like a diet change is essential here, but given your son's age and what's happened in the past it sounds like this will be a real challenge. Do you have a nutritionist? If not, I would highly recommend getting in touch with s (she wrote the book " Nourishing Hope for Autism " ). If you google her you will find her website and her contact info. I think she would be good to talk to because there are certainly people who have been in your place before, so there must be some specialized knowledge out there about what to do that is more than what most of us have had to do. Also, does your son's GI doc have particular experience with kids on the spectrum and their gasto issues? If not I would find someone who does- in my experience (I have had serious, chronic gastro issues my whole life, as has most of family), and NONE of us has EVER found a GI who knew enough to do more good than harm. It sounds like you feel this is serious, and I think a mother's intuition is important in these cases. You might contact Dr Kriegsman's office (sp?) and ask for a referral if you can't see him directly (he's in NJ). You can also find a GI wo is willing to consult with Dr Kreigsman over the phone. As for the antibiotics, they can wreak for more havoc than probiotics may be able to hold at bay, especially if your son is already heading for something like Crohn's. Antibiotics kill probiotics too, so it can be hard to use them at the same time with good results. It REALLY REALLY sounds like your son is a tough case and needs really experienced professionals to help. I do think that GAPS is really well suited for your family, however right now it is probably way more than you can think about- it sounds like you have more pressing issues to resolve first. Please keep us posted about what happens! -Sierra > > http://www.gaps.me > > and > > GAPShelp/?yguid=33000090 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Sierra,  Thank you so much for the info and the encouraging words. I will contact these you recommended. I have heard of the book you mentioned but don't have it.   We probably have one of the best or maybe the only pediatric gastroenterologist in this area. He comes out of Charlotte. He is very good with my son and I understand from the hospital that he has many patients with Autism, but don't know any farther than that. We saw him this morning. He is recommending another colonoscopy and a cbc to look for anemia, because of the blood loss.  No, I do not have a nutritionist at the moment. They are hard to come by here. The last one advised me to give him whatever and how much he wanted to eat, because he was wasted. At that time, he was eating fudge popsicles and kfc crispy strips. Her advice was to supplement his diet with complete liquid vitamins. At that point, I realized we were pretty much on our own. Then I found this board and started to read. After a couple of years I started to ask a question here or there. I still do so when I get desperate. Thanks again, Drissia From: purpledragonmama05 <sierra.ansley@...> Subject: Re: Help/stomach issues Date: Wednesday, November 4, 2009, 3:04 PM  Drissa, That's great that your husband is on board with helping. It sounds to me like a diet change is essential here, but given your son's age and what's happened in the past it sounds like this will be a real challenge. Do you have a nutritionist? If not, I would highly recommend getting in touch with s (she wrote the book " Nourishing Hope for Autism " ). If you google her you will find her website and her contact info. I think she would be good to talk to because there are certainly people who have been in your place before, so there must be some specialized knowledge out there about what to do that is more than what most of us have had to do. Also, does your son's GI doc have particular experience with kids on the spectrum and their gasto issues? If not I would find someone who does- in my experience (I have had serious, chronic gastro issues my whole life, as has most of family), and NONE of us has EVER found a GI who knew enough to do more good than harm. It sounds like you feel this is serious, and I think a mother's intuition is important in these cases. You might contact Dr Kriegsman's office (sp?) and ask for a referral if you can't see him directly (he's in NJ). You can also find a GI wo is willing to consult with Dr Kreigsman over the phone. As for the antibiotics, they can wreak for more havoc than probiotics may be able to hold at bay, especially if your son is already heading for something like Crohn's. Antibiotics kill probiotics too, so it can be hard to use them at the same time with good results. It REALLY REALLY sounds like your son is a tough case and needs really experienced professionals to help. I do think that GAPS is really well suited for your family, however right now it is probably way more than you can think about- it sounds like you have more pressing issues to resolve first. Please keep us posted about what happens! -Sierra > > http://www.gaps. me > > and > > http://groups. / group/GAPShelp/ ?yguid=33000090 > Quote Link to comment Share on other sites More sharing options...
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