My son will participate in an NIH study

[Guest guest]

Listmates,

I just got off the phone with Black, a researcher with NIH.

They finally called after putting out a request for kids who may have

recovered from autism which I responded to.

They are getting ready to undertake a HUGE research study to try to

understand why some kids respond to certain treatments and why others do

not.

The study will include an intensive diagnostic evaluation, interview with

parents and former providers, past medical records, MRI, EEG - overnight

stay, and blood work to look at potent genetic issues as well.

These results will be compared with kids who have not recovered - who have

done the same types of therapies - and also to normal kids.

This study is funded 100% by NIH and because it is government funded, I

have to admit I am a little wary of their intentions.

However getting all the diagnostic work-up for free will be awesome to

evaluate where he is and what additional things we may need to work on.

Please give me feedback if anyone knows more about this study and or can

offer me any advice.

Thanks,

Lori Knowles

General Manager (and mom to , age 11, recovered)

New Beginnings Nutritionals

7797 Quivira Rd Lenexa, KS 66215

Phone: (913) 754-0458

Fax: (913) 248-7609

Email: lknowles@...

URL: http://www.nbnus.com/