Re: 9 year old boy diagnosed with PDD NOS and ADHD

[Guest guest]

Enrica,

Some of this sounds like PANDAS to me. ASO titers, sed rate, anti Dnase-B should

point you in the right direction for testing. My 9y grandson's OCD patterns

always respond well to amoxicillin[prescription]. He was a toxic mess as a

toddler with lead and mercury problems. He has recovered from severe symptoms

and the OCD, which comes 3-4 times/year for him, seems to be the only remnant of

his early toxicity. His aunt, my youngest daughter[pdd-nos], also deals with the

strep. She has been on zithromax for almost a year now and titer are slowly

going down. Others on line seem to have had good luck using olive leaf extract

for these kind of symptoms. His dark eye circles probably indicate allergies -

food and environment. For my daughter gluten and casein caused much trouble.

Once we got those and other allergens out of her diet, she looked much

healthier.

IMHO, the school has NO business even asking for such information. Their job is

education! Maybe his parents could keep them a little busier asking for daily

reports of educational endeavors, lesson plans for the coming week, logs of who

he interacted with, implementation of support services on a daily basis in a

written form etc. Do his parents know of support groups in the area that might

help them politely avoid the 'nosy nellies' in the education realm?

>

> I want to thank you all for replying to my question.  Can I ask some more?

>

> My grandson he full of bruises, he constantly hits himself very hard, on the

face, head, temples with his knuckles.  He says that he has to do it.  He tells

me that his brain tells him to do certain thing.  Now he has to drink, a sip of

water or juice, and spit it on the floor because he hears one of us in the

family, clearing out throath.  He has never done this before.

> Since he has started the prescription medications, tried several and like I

said in my previous emails, he is now on Concerta and Paxil, he has developed a

lot of different, either stimmings or OCD, I do not know what to call it.  He is

now biting his lips, his tongue, you can see him doing a " chewing " motion with

his teeth,  needing to touch everything with his hands, and feet.  He looks very

pale and has big dark circles under his eyes.  He does eat very good, but he is

very skinny.  Naturally he has a lot of problems with learning, but he seems to

be an intelligent child.  The school wants to know everything, when he starts a

medication, dates of when a new medication is changed, wanting to have him wear

a headphone with no sound in it, which his parents do not want.

>

> Any suggestions I really appreciate it.   Is there a reason why nothing seems

to work for him.  He has Thalassemia minor, and therefore anemic, now the doctor

says his iron level is down, his ammonia level is up a little.  He also a

Pyroulia ( I do not know if I spelled this word correctly), but he has been

taking Zinc and B6 so the level of Copper is normal.

>

> I stop for now.  Thank to everyone for your suggestion or comments.

>

> Enrica

>

>

>

>

>

[Guest guest]

Enrica,

Some of this sounds like PANDAS to me. ASO titers, sed rate, anti Dnase-B should

point you in the right direction for testing. My 9y grandson's OCD patterns

always respond well to amoxicillin[prescription]. He was a toxic mess as a

toddler with lead and mercury problems. He has recovered from severe symptoms

and the OCD, which comes 3-4 times/year for him, seems to be the only remnant of

his early toxicity. His aunt, my youngest daughter[pdd-nos], also deals with the

strep. She has been on zithromax for almost a year now and titer are slowly

going down. Others on line seem to have had good luck using olive leaf extract

for these kind of symptoms. His dark eye circles probably indicate allergies -

food and environment. For my daughter gluten and casein caused much trouble.

Once we got those and other allergens out of her diet, she looked much

healthier.

IMHO, the school has NO business even asking for such information. Their job is

education! Maybe his parents could keep them a little busier asking for daily

reports of educational endeavors, lesson plans for the coming week, logs of who

he interacted with, implementation of support services on a daily basis in a

written form etc. Do his parents know of support groups in the area that might

help them politely avoid the 'nosy nellies' in the education realm?

>

> I want to thank you all for replying to my question.  Can I ask some more?

>

> My grandson he full of bruises, he constantly hits himself very hard, on the

face, head, temples with his knuckles.  He says that he has to do it.  He tells

me that his brain tells him to do certain thing.  Now he has to drink, a sip of

water or juice, and spit it on the floor because he hears one of us in the

family, clearing out throath.  He has never done this before.

> Since he has started the prescription medications, tried several and like I

said in my previous emails, he is now on Concerta and Paxil, he has developed a

lot of different, either stimmings or OCD, I do not know what to call it.  He is

now biting his lips, his tongue, you can see him doing a " chewing " motion with

his teeth,  needing to touch everything with his hands, and feet.  He looks very

pale and has big dark circles under his eyes.  He does eat very good, but he is

very skinny.  Naturally he has a lot of problems with learning, but he seems to

be an intelligent child.  The school wants to know everything, when he starts a

medication, dates of when a new medication is changed, wanting to have him wear

a headphone with no sound in it, which his parents do not want.

>

> Any suggestions I really appreciate it.   Is there a reason why nothing seems

to work for him.  He has Thalassemia minor, and therefore anemic, now the doctor

says his iron level is down, his ammonia level is up a little.  He also a

Pyroulia ( I do not know if I spelled this word correctly), but he has been

taking Zinc and B6 so the level of Copper is normal.

>

> I stop for now.  Thank to everyone for your suggestion or comments.

>

> Enrica

>

>

>

>

>

[Guest guest]

Enrica,

Some of this sounds like PANDAS to me. ASO titers, sed rate, anti Dnase-B should

point you in the right direction for testing. My 9y grandson's OCD patterns

always respond well to amoxicillin[prescription]. He was a toxic mess as a

toddler with lead and mercury problems. He has recovered from severe symptoms

and the OCD, which comes 3-4 times/year for him, seems to be the only remnant of

his early toxicity. His aunt, my youngest daughter[pdd-nos], also deals with the

strep. She has been on zithromax for almost a year now and titer are slowly

going down. Others on line seem to have had good luck using olive leaf extract

for these kind of symptoms. His dark eye circles probably indicate allergies -

food and environment. For my daughter gluten and casein caused much trouble.

Once we got those and other allergens out of her diet, she looked much

healthier.

IMHO, the school has NO business even asking for such information. Their job is

education! Maybe his parents could keep them a little busier asking for daily

reports of educational endeavors, lesson plans for the coming week, logs of who

he interacted with, implementation of support services on a daily basis in a

written form etc. Do his parents know of support groups in the area that might

help them politely avoid the 'nosy nellies' in the education realm?

>

> I want to thank you all for replying to my question.  Can I ask some more?

>

> My grandson he full of bruises, he constantly hits himself very hard, on the

face, head, temples with his knuckles.  He says that he has to do it.  He tells

me that his brain tells him to do certain thing.  Now he has to drink, a sip of

water or juice, and spit it on the floor because he hears one of us in the

family, clearing out throath.  He has never done this before.

> Since he has started the prescription medications, tried several and like I

said in my previous emails, he is now on Concerta and Paxil, he has developed a

lot of different, either stimmings or OCD, I do not know what to call it.  He is

now biting his lips, his tongue, you can see him doing a " chewing " motion with

his teeth,  needing to touch everything with his hands, and feet.  He looks very

pale and has big dark circles under his eyes.  He does eat very good, but he is

very skinny.  Naturally he has a lot of problems with learning, but he seems to

be an intelligent child.  The school wants to know everything, when he starts a

medication, dates of when a new medication is changed, wanting to have him wear

a headphone with no sound in it, which his parents do not want.

>

> Any suggestions I really appreciate it.   Is there a reason why nothing seems

to work for him.  He has Thalassemia minor, and therefore anemic, now the doctor

says his iron level is down, his ammonia level is up a little.  He also a

Pyroulia ( I do not know if I spelled this word correctly), but he has been

taking Zinc and B6 so the level of Copper is normal.

>

> I stop for now.  Thank to everyone for your suggestion or comments.

>

> Enrica

>

>

>

>

>

[Guest guest]

, thank you for your reply.    Yes, my boy has some PANDAS issues last year

and was treated with

natural supplements, and yes, again, he has several food and environmental

allergies.

The teacher, the special ED teachers and aide do send a daily report home, and

asking

too many questions about the meds, etc.  The teacher even told my daughter that

there have

been too many and too fast changes of the medications.  Naturally my daughter

did not and could

not change meds without the authorization of the doctor.  Anyway, lets wait and

see.  Thanks again

and good luck to your grandson.

Enrica

 

________________________________

From: mbrookh <mbrookh@...>

Sent: Tuesday, March 24, 2009 1:33:32 PM

Subject: Re: 9 year old boy diagnosed with PDD NOS and ADHD

Enrica,

Some of this sounds like PANDAS to me. ASO titers, sed rate, anti Dnase-B should

point you in the right direction for testing. My 9y grandson's OCD patterns

always respond well to amoxicillin[ prescription] . He was a toxic mess as a

toddler with lead and mercury problems. He has recovered from severe symptoms

and the OCD, which comes 3-4 times/year for him, seems to be the only remnant of

his early toxicity. His aunt, my youngest daughter[pdd- nos], also deals with

the strep. She has been on zithromax for almost a year now and titer are slowly

going down. Others on line seem to have had good luck using olive leaf extract

for these kind of symptoms. His dark eye circles probably indicate allergies -

food and environment. For my daughter gluten and casein caused much trouble.

Once we got those and other allergens out of her diet, she looked much

healthier.

IMHO, the school has NO business even asking for such information. Their job is

education! Maybe his parents could keep them a little busier asking for daily

reports of educational endeavors, lesson plans for the coming week, logs of who

he interacted with, implementation of support services on a daily basis in a

written form etc. Do his parents know of support groups in the area that might

help them politely avoid the 'nosy nellies' in the education realm?

>

>

>

>

>

>

[Guest guest]

Hi,

My 10 yr old daughter has PANDAS, and it started when she was 9. Little things

at first, eye tics, then after 6 months went into severe tics and OCD with

separation anxiety. We tested for food sensitivities (note: Not allergies, the

allergist will laugh when you say food sensitivities)and came back with 25.

Antibiotics didn't work, but supplements have.We did diflucan for yeast, but

nothing

She is now down to a few tics, still fairly severe but she can manage. Her OCD

has leveled off. Separation anxiety is gone. We use:

Taurine

Theanine

Inositol

Calcium

Cod Liver Oil

5 HTP

GABA

Lysine

Enzymes

Bachs rescue remedy

homeopathy

other things as needed

We may try IVIG if we can afford it. Sometimes titers are normal because the

infection was too far out.In any case, try supplements before meds. Sometimes

meds can be the problem. We homeschool, but the school district has absolutely

no right to ask about medications. They are obligated to give you an IEP to help

our grandson succeed!

By the way, noise cancelling headphones are very helpful if your grandson has

yeast. Yeast can make you terribly sensitive to any noise, no matter how quiet

everyone else thinks it is.Maybe he could use them at home.

I wish you every blessing,

Susi

[Guest guest]

Hello, Here is my 2 cents- This sounds like a yeast over growth that will

take months to clear up. The hallucinate drug LSD is derived from yeast.

Yeast is effected by sugar and salt as anyone knows who bakes bread adding to

some good days and some bad days.

I suggest using Canadex http://www.iherb.com/ProductDetails.aspx?pid=3218 & at=0

to avoid a huge die off and sickness that goes with it. Than moving to Rx if

needed and other natural supplement like olive leaf, grapefruit ect.

I also had a thought that this may involve NutraSweet

http://suewidemark.freeservers.com/asp_braindam.htm Please read message # 50651

also.

About the school thing- Before I give any answer to a teacher I remind myself

that this teacher is part of a team that HELPS my son...I believe that this was

an honest question about the well being of this child - not an act of wanting

control , yes maybe wanting understanding of behaviors? I have recently put my

son on Lithium and this is something that should be given at the same time

everyday. Over the last 2 weeks I have finally got the timing right and how

many drops at what time thanks to his teachers help she called to say he was

getting upset really fast the being happy again really fast ( we had been seeing

this at home)- together we decided to put 2 drop of Lithium in his water for

school- MY boy has not had an out burst since. It takes years to build trust -

I would make a real effort to build trust.

Lastly I do not trust that these problem are not side effect by the

prescription medications he is on. My rule now is--- I will try Rx but if I

don't see inprovement in a month my son come off it. This is because of side

effects. You may want to find out what others thought of these treatments

http://www.autism.com/treatable/form34qr.htm

My 2 cents Ann

[Guest guest]

> My grandson he full of bruises, he constantly hits himself very hard, on the

face, head, temples with his knuckles. He says that he has to do it. He tells

me that his brain tells him to do certain thing. Now he has to drink, a sip of

water or juice, and spit it on the floor because he hears one of us in the

family, clearing out throath. He has never done this before.

This can be a few things, but I think I would start by increasing the yeast

protocol

http://www.danasview.net/yeast.htm

>>The school wants to know everything, when he starts a medication, dates of

when a new medication is changed,

The school has no need to know these things, unless you are having the school

nurse give him the medication.

>>He also a Pyroulia ( I do not know if I spelled this word correctly), but he

has been taking Zinc and B6 so the level of Copper is normal.

B6 will tend to increase yeast. Definitely increase the yeast protocol, see if

that helps.

Dana