Xpost: Questions for Congress

August 19, 2009

I will have the opportunity to go to a public meeting today to discuss health

care reform with my legislator. I have prepared some questions that I will ask

if given the opportunity, if not I will e-mail them to my legislator after the

meeting. Here are my questions:

1. What are the implications of the proposed legislation

for those who seek out alternative and complementary medicine to treat

conditions that are not very well understood by mainstream medical

professionals such as auto immune disease and autism?

2. Are community and home based services for adults and

children with disabilities who wish to live in their own homes as opposed to

institutional settings addressed in this legislation?

3. I have read in the bill about standards of care being

analyzed and â€œunnecessary treatments being eliminatedâ€. My problem with

this is that my daughter is

very medically complicated and often the standard of care does not work for

her, I worry that this would limit our choices for her care. Are there any safe

guards in place to protect

people who do not fit the definition of standard practice?

-Undiagnosed Asperger's Syndrome

Stay at home mom to 3, Wife to

-6-6-02-Autism Spectrum, the light of my life

Katy-11-19-03-undiagnosed genetic syndrome that includes cleft palate-Pierre

Robin Sequence, scoliosis, heart defects, short stature, low muscle tone,

developmental delay, oral defensiveness, g tube fed part time-working on oral

feeding, slightly dysmorphic features, and my joy

J.D-no issues except he is totally in love with mommy, cutest baby in the world

" If you think my hands are full, you should see my heart! "

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