Help please - eye stim still there

[Guest guest]

Hi,

I am thankful for everyone's suggestions last week about my sons sudden eye

stims. I have tried them all - upping CLO, dropping CLO, taking out almonds out

of the SCDiet (high in oxalates), started Diflucan yesterday, added back in the

Valtrex and glutathione cream. So far nothing.

He has only done this once, 3 years ago, during OT. It was related to work where

she had him spinning, etc. Once in a while he would glance sideways when playing

with cars - but that's it. This time it's violent, for lack of a better word.

Even shaking his head to get more of a stim. I am lost for answers and hoping

someone can suggest something else. It is extremely disturbing to have to look

at him right now - I don't even think he knows he is doing it.

And I don't understand how a kid that had no stims can get one all of a sudden

when he doing so well during recovery?

Thanks so much,

Susi

[Guest guest]

I had a similar experience with my dd. She did have a long history of mild,

PANDAS-related tics. After we got her on a good anti-pathogen protocol and

removed aspartame, her tics disappeared. About a year later, while making

progress slow, steady, recovery progress, she went into a very upsetting epiode

of extreme tics. Instead of a simple throat clearing or hard blink, she was

suddenly jerking her head around, looking at things sideways and even moving her

shoulders in wierd ways. She was also VERY tuned out.

In our case, we had accidentally mimicked the (early version) biofilm protocol.

The culprit was a honey mustard that she had fallen in love with. Over the

course of a few weeks, she had gone from occasional use to every meal. The

honey mustard had edta in it, and dd is very lead toxic. End result -

accidental chelation.

Since it took me a couple of days and lots of muscle testing to be sure what had

happened, it was too late to prevent redistribution. Since I didn't know there

was a chelator in her mustard, I didn't know I needed to " mop up " . If it

happened again today, I'd give her some charcoal or clay to try and soak up

anything I could. Live and learn.

It took about a month forthe big tics to go away, but the acne (which appeared

in full force, overnight, same 48 hour period) is still an issue. That was 18

months ago.

Good luck,

Darla

Help please - eye stim still there

Hi,

I am thankful for everyone's suggestions last week about my sons sudden eye

stims. I have tried them all - upping CLO, dropping CLO, taking out almonds out

of the SCDiet (high in oxalates), started Diflucan yesterday, added back in the

Valtrex and glutathione cream. So far nothing.

He has only done this once, 3 years ago, during OT. It was related to work

where she had him spinning, etc. Once in a while he would glance sideways when

playing with cars - but that's it. This time it's violent, for lack of a better

word. Even shaking his head to get more of a stim. I am lost for answers and

hoping someone can suggest something else. It is extremely disturbing to have to

look at him right now - I don't even think he knows he is doing it.

And I don't understand how a kid that had no stims can get one all of a sudden

when he doing so well during recovery?

Thanks so much,

Susi

[Guest guest]

Susi,

Is your son taking any enzymes, or increased enzymes since the eye stims

started?

Talyna

Enzymedica Education Dept.

www.enzymedica.com

www.agrt.org

>

> I had a similar experience with my dd. She did have a long history of mild,

PANDAS-related tics. After we got her on a good anti-pathogen protocol and

removed aspartame, her tics disappeared. About a year later, while making

progress slow, steady, recovery progress, she went into a very upsetting epiode

of extreme tics. Instead of a simple throat clearing or hard blink, she was

suddenly jerking her head around, looking at things sideways and even moving her

shoulders in wierd ways. She was also VERY tuned out.

> In our case, we had accidentally mimicked the (early version) biofilm

protocol. The culprit was a honey mustard that she had fallen in love with.

Over the course of a few weeks, she had gone from occasional use to every meal.

The honey mustard had edta in it, and dd is very lead toxic. End result -

accidental chelation.

> Since it took me a couple of days and lots of muscle testing to be sure what

had happened, it was too late to prevent redistribution. Since I didn't know

there was a chelator in her mustard, I didn't know I needed to " mop up " . If it

happened again today, I'd give her some charcoal or clay to try and soak up

anything I could. Live and learn.

> It took about a month forthe big tics to go away, but the acne (which appeared

in full force, overnight, same 48 hour period) is still an issue. That was 18

months ago.

> Good luck,

> Darla

>

>

> Help please - eye stim still there

>

>

>

>

>

> Hi,

>

> I am thankful for everyone's suggestions last week about my sons sudden eye

stims. I have tried them all - upping CLO, dropping CLO, taking out almonds out

of the SCDiet (high in oxalates), started Diflucan yesterday, added back in the

Valtrex and glutathione cream. So far nothing.

>

> He has only done this once, 3 years ago, during OT. It was related to work

where she had him spinning, etc. Once in a while he would glance sideways when

playing with cars - but that's it. This time it's violent, for lack of a better

word. Even shaking his head to get more of a stim. I am lost for answers and

hoping someone can suggest something else. It is extremely disturbing to have to

look at him right now - I don't even think he knows he is doing it.

>

> And I don't understand how a kid that had no stims can get one all of a

sudden when he doing so well during recovery?

>

> Thanks so much,

> Susi

>

>

>

>

>

>

[Guest guest]

No,he is not on enzymes at the present time. We are considering restarting them

up.

Thanks,

Susi

> >

> > I had a similar experience with my dd. She did have a long history of mild,

PANDAS-related tics. After we got her on a good anti-pathogen protocol and

removed aspartame, her tics disappeared. About a year later, while making

progress slow, steady, recovery progress, she went into a very upsetting epiode

of extreme tics. Instead of a simple throat clearing or hard blink, she was

suddenly jerking her head around, looking at things sideways and even moving her

shoulders in wierd ways. She was also VERY tuned out.

> > In our case, we had accidentally mimicked the (early version) biofilm

protocol. The culprit was a honey mustard that she had fallen in love with.

Over the course of a few weeks, she had gone from occasional use to every meal.

The honey mustard had edta in it, and dd is very lead toxic. End result -

accidental chelation.

> > Since it took me a couple of days and lots of muscle testing to be sure what

had happened, it was too late to prevent redistribution. Since I didn't know

there was a chelator in her mustard, I didn't know I needed to " mop up " . If it

happened again today, I'd give her some charcoal or clay to try and soak up

anything I could. Live and learn.

> > It took about a month forthe big tics to go away, but the acne (which

appeared in full force, overnight, same 48 hour period) is still an issue. That

was 18 months ago.

> > Good luck,

> > Darla

> >

> >

> > Help please - eye stim still there

> >

> >

> >

> >

> >

> > Hi,

> >

> > I am thankful for everyone's suggestions last week about my sons sudden

eye stims. I have tried them all - upping CLO, dropping CLO, taking out almonds

out of the SCDiet (high in oxalates), started Diflucan yesterday, added back in

the Valtrex and glutathione cream. So far nothing.

> >

> > He has only done this once, 3 years ago, during OT. It was related to work

where she had him spinning, etc. Once in a while he would glance sideways when

playing with cars - but that's it. This time it's violent, for lack of a better

word. Even shaking his head to get more of a stim. I am lost for answers and

hoping someone can suggest something else. It is extremely disturbing to have to

look at him right now - I don't even think he knows he is doing it.

> >

> > And I don't understand how a kid that had no stims can get one all of a

sudden when he doing so well during recovery?

> >

> > Thanks so much,

> > Susi

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi,

I'm not sure what biofilm is, but I will research it to see if we have

accidently started it.

My daughter has PANDAS, so at first we thought maybe he has it too - but has

not been ill in the past few months. She is getting much better on the SCD and

enzymes. Tics are almost gone, thank goodness!

He gets no additives, preservatives, etc - so we are totally lost!

Thanks

Susi

[Guest guest]

We never did the protocol on purpose, but (if I remember right) it was a process

of administering enzymes, anti-pathogens, chelators and then something to mop

up, on a timed schedule. When I ran into the info, I realized that I had

mimicked steps 1-3, but not step 4. There was (at that time) very clear

warnings to NOT skip step 4, which I believe was the source of that episode.

I imagine the ever-escalating use of the honey mustard (prior to my

administering steps 1-3 unknowingly) had some bearing on how severely she

reacted. This is the same mustard used by Chic-Fil-A and a couple other fast

food places, and seems to be the same recipe as Ken's Honey Mustard Dressing.

I've since found ca-edta in a lot of condiments, so we just try to limit it.

I think one of the things that helped bring it down for us were magnesium baths.

It's been so long, but somehow I came to a point where I believed she was

experiencing some kind of calcium dysregulation and I must have believed the mag

would help the cal absorb.

I remember healthy oils helping as well, but I used lypo gold to make sure it

could absorb. I noticed in one response you said you weren't on enzymes right

now. Also think you said the oil didn't help? (Sorry if I remember wrong.)

Wondering if you might see more improvement if you add some lipase enzymes to

the oils?

Darla

Darla

Re: Help please - eye stim still there

Hi,

I'm not sure what biofilm is, but I will research it to see if we have

accidently started it.

My daughter has PANDAS, so at first we thought maybe he has it too - but has

not been ill in the past few months. She is getting much better on the SCD and

enzymes. Tics are almost gone, thank goodness!

He gets no additives, preservatives, etc - so we are totally lost!

Thanks

Susi

[Guest guest]

Whoops - I guess we are going biofilm? He's on mB12 shots,Valtrex, glut cream,

probiotics,Diflucan, magnetic clay baths and epsom salts...hmmm.I will think

about getting an enzyme from Kirkman that helps with fat absorbtion. And I do

have charcoal at home - I just wonder if it's too late to start that? Maybe we

did dislodge something.

Thanks again,Susi

[Guest guest]

> I am thankful for everyone's suggestions last week about my sons sudden eye

stims. I have tried them all - upping CLO, dropping CLO, taking out almonds out

of the SCDiet (high in oxalates), started Diflucan yesterday, added back in the

Valtrex and glutathione cream. So far nothing.

Valtrex and glut cream both tend to increase yeast. You might need more

Diflucan, or add something else to it, to control all the yeast.

>>Even shaking his head to get more of a stim.

This was yeast here.

> And I don't understand how a kid that had no stims can get one all of a sudden

when he doing so well during recovery?

Viral die off can cause tremendous amounts of yeast. I would start there.

Dana

[Guest guest]

As always Dana, thanks again! I will up yeast and charcoal. You know your

stuff!Susi