Guest guest Posted October 14, 1999 Report Share Posted October 14, 1999 , if it is alternative treatment you are interested in, you should join j jovoonelist Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2001 Report Share Posted May 26, 2001 Dear Kathy in NC-- The Depo Provera shot which lasts 3 months does not take effect immediately. The once a month shot Lunelle does. Atleast that is what my OB/GYN says. And yes, I can understand the condom problem--I'm allergic to latex. Caron Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2001 Report Share Posted May 26, 2001 Well i emailed the good Doc to help me out with this........i need sum help SOOOOOOOOOOOOOOON..........i need another form of birth control........condoms just not gonna cut it too much longer........sooo i called my gyn and ask bout the shot and different things anyone here have the shot? they said i would prolly gain weight i was likke HUHHHHHHHHHHHH!!!!!!!! NO WAY!!!!!!! is true???!!! i need sum help here.........and is the shot immediate??? or waitin period or what? ........i know i sound like im in desperate need here but everytime i stayed off my bc pills for any period of time i got pregnants...(twice to be exact).........dont want anymore rite nowwwwwwwwwwwww............ Kathy in NC Danced with Dr R Val Day 397/370/307/?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2001 Report Share Posted May 26, 2001 , I got an IUD. That is the nexy best method per my obgyn. It is 99 percent good. The pill will not work,it does not absorb correctly . any more questions, let me know, believe me I have gone through this whole thing. I have 1childand do not want another...... Janet mgb12/14/00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2001 Report Share Posted May 26, 2001 Kathy, I gained about 25 lbs on the shot in college right after I got married. Also, you need to go read the manual about hormonal birth control after the surgery. According to Dr R, after surgery with sudden weight loss, only on hormonal birth control, you aren't covered as well as you'd hope to be. IMHO it is too early only to rely on hormonal birthcontrol. My husband has a low sperm count, and we've had sex for years without anything without getting pregnant, but now I've had surgery, we've started using condoms and spermicide. > Well i emailed the good Doc to help me out with this........i need sum help > SOOOOOOOOOOOOOOON..........i need another form of birth > control........condoms just not gonna cut it too much longer........sooo i > called my gyn and ask bout the shot and different things anyone here have > the shot? they said i would prolly gain weight i was likke > HUHHHHHHHHHHHH!!!!!!!! NO WAY!!!!!!! is true???!!! i need sum help > here.........and is the shot immediate??? or waitin period or what? > .......i know i sound like im in desperate need here but everytime i stayed > off my bc pills for any period of time i got pregnants...(twice to be > exact).........dont want anymore rite nowwwwwwwwwwwww............ > > > Kathy in NC > > Danced with Dr R Val Day > 397/370/307/?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2001 Report Share Posted May 26, 2001 Kathy, I took the depo provera shot for many years and I studied, very closely, to see if there was a correlation between the shots and my weight and I found absolutely none, in fact, the week that I got the shot, I always managed to loose a few lbs. It is a WONDERFUL form of birth control as you only need a quick shot 4 times per year. The other side of it is that in the first year, you never know when you will get a " breakthrough " bleeding issue; however, at the end of the first you YOU STOP GETTING PERIODS!!! This part is wonderful. It does work very quickly, but certainly consult your doctor on this. In fact, if I remember correctly (I haven't had a shot for some time as I had a hysterectomy) it is somewhat immediate, but they recommend that you use protection as a backup for a little while. Good luck with this and I highly recommend it. Re: help needed Well i emailed the good Doc to help me out with this........i need sum help SOOOOOOOOOOOOOOON..........i need another form of birth control........condoms just not gonna cut it too much longer........sooo i called my gyn and ask bout the shot and different things anyone here have the shot? they said i would prolly gain weight i was likke HUHHHHHHHHHHHH!!!!!!!! NO WAY!!!!!!! is true???!!! i need sum help here.........and is the shot immediate??? or waitin period or what? ........i know i sound like im in desperate need here but everytime i stayed off my bc pills for any period of time i got pregnants...(twice to be exact).........dont want anymore rite nowwwwwwwwwwwww............ Kathy in NC Danced with Dr R Val Day 397/370/307/?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2001 Report Share Posted May 26, 2001 Kathy, I'd like to suggest abstinence as a form of birth control. It's really a very good way to prevent conception. And your husband will be so clean from all the cold showers. Flo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2001 Report Share Posted May 26, 2001 LMAO ty FLo i needed a good laff hehe......... At 07:31 PM 5/26/2001 -0500, you wrote: >Kathy, I'd like to suggest abstinence as a form of birth control. It's >really a very good way to prevent conception. And your husband will be so >clean from all the cold showers. > >Flo > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2001 Report Share Posted May 26, 2001 ty janet...the IUD and the shot are the two im lookin into rite now. wonderin if anyone out there is using the shot rite now after the MGB.........puhleeze respond if u are aned lemme know how things are going.......if u recommend it or what......... At 03:11 PM 5/26/2001 -0400, you wrote: >, I got an IUD. That is the nexy best method per my obgyn. It is 99 >percent good. The pill will not work,it does not absorb correctly . any >more questions, let me know, believe me I have gone through this whole thing. >I have 1childand do not want another...... >Janet mgb12/14/00 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 Where is Trish's site? Must have missed it. Bern TX > I would like to send Trish my before and after picture for her site > but I am not sure how to do it with my scanner. If anyone could help > me it would be appreciated. Thanks, Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2002 Report Share Posted May 27, 2002 Hi Elaine, > My entire digestive tract shut down for 3 days. My issue is my > stomach is burning. I'm drinking aloe vera juice, colodial silver, > acidophilis, glutamine. Anyone have suggestions as to what I can do > to help my poor stomach. I think that it is burned and possibly > digested itself. I HIGHLY recommend peppermint tea. It helps nausea, burning any digestive symptoms I have. Also, mullein tea has helped my gut alot. But peppermint with tea, you can't go wrong-it really is the best. By the way, it sounds like you may have gastritis. You may need to let the md take a look (endoscopy). That is how I found I had gastritis (burning, nausea, vomiting, gnawing feeling in my belly, I couldn't take a vitamin C pill without throwing it up!!! ect.). The proper diagnosis really helped me to heal my gut. I hope this helps. God bless, KJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2002 Report Share Posted May 28, 2002 elaine. ive had the same thing happen to me. i found if i completely empty my colon that the material in my stomache will move along. in other words it happens when i get constipated. a couple enemas gives me relief very fast. fred Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2002 Report Share Posted May 28, 2002 It's true peppermint is good for tummy terrors...but if you tend towards reflux, know that peppermint relaxes the esophageal (SP?) sphincter....so you might not want to drink it and then lie down. SaraLou Re: help needed > Hi Elaine, > > > > > My entire digestive tract shut down for 3 days. My issue is my > > stomach is burning. I'm drinking aloe vera juice, colodial silver, > > acidophilis, glutamine. Anyone have suggestions as to what I can > do > > to help my poor stomach. I think that it is burned and possibly > > digested itself. > > I HIGHLY recommend peppermint tea. It helps nausea, burning any > digestive symptoms I have. Also, mullein tea has helped my gut > alot. But peppermint with tea, you can't go wrong-it really is the > best. > > By the way, it sounds like you may have gastritis. You may need to > let the md take a look (endoscopy). That is how I found I had > gastritis (burning, nausea, vomiting, gnawing feeling in my belly, I > couldn't take a vitamin C pill without throwing it up!!! ect.). The > proper diagnosis really helped me to heal my gut. > > I hope this helps. > > God bless, > KJ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2002 Report Share Posted August 13, 2002 Thanks Gordon what a nice lifting letter,My wife is suffering so badly,She has HEP-C and a horriable case of posorices all over her body and seratic artheritis she is 46 and has been on S.S.disablaty for 2 years now ,due to the Hep -c she can't take anything that would help her becouse it would hurt her liver even worse.Is there anything we can do ?She needs help!! Hope to hear from you Thanks tommy Wilkens __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2002 Report Share Posted August 13, 2002 Tommy I cleared Hep C a few years ago but still have Cirrhosis. My Primary Dr. has been giving me Darvocet for my aching for a few years now saying I couldn't take anything else. Now my lower back hurts so bad I told her Darvocet not working so she finally referred me to Rhuemy Dr. I ran out of the Darvocet this month in only 2 weeks so I finally started taking my hubby's 800 mg Ibuphron. I've taken a bunch of tests but don't go back to Rhuemy till a week from tomorrow. The Ibuphron actually worked so I e-mailed my Heptolgist and asked him about it. He said if I'm taking it as prescribed my liver should be fine. I did write back to tell him the amount I'm taking though but haven't heard back yet. I've told my Primary and Heptologist there is a questions of quality of life, and I refuse to hurt. If I can't take anti inlammatorys than give me pain pills. Make sure you also talk to her liver Dr. about how much pain she is in they WILL give her something for pain. I have alot of friends with Hep C and Arthritis and they are being treated with at least pain meds. Peace/Love Randi > Thanks Gordon what a nice lifting letter,My wife is > suffering so badly,She has HEP-C and a horriable case > of posorices all over her body and seratic artheritis > she is 46 and has been on S.S.disablaty for 2 years > now ,due to the Hep -c she can't take anything that > would help her becouse it would hurt her liver even > worse.Is there anything we can do ?She needs help!! > Hope to hear from you Thanks tommy Wilkens > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2002 Report Share Posted August 14, 2002 Tommy, Thanks for your reply (and others as well), I know a number of us have been feeling pretty miserable of late and I thought a message of lighter note and peace would help. I am sure the group will respond better than I can to your wife's need for help. This group is such a forum of hope and support. Regards, Gordon Re: [ ] Help needed > Thanks Gordon what a nice lifting letter,My wife is > suffering so badly,She has HEP-C and a horriable case > of posorices all over her body and seratic artheritis > she is 46 and has been on S.S.disablaty for 2 years > now ,due to the Hep -c she can't take anything that > would help her becouse it would hurt her liver even > worse.Is there anything we can do ?She needs help!! > Hope to hear from you Thanks tommy Wilkens > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2002 Report Share Posted August 14, 2002 Randi, I am not an MD (far from it) but I am not sure I agree with your heptologist about the ibuprofen being OK as long as you take it as directed. I took naproxyn exactly as directed and, thankfully my rhuemy does routine liver profiles, and discovered that I had impaired function. It wouldn't hurt to ask your rhuemy at your next appointment. Do you have blood work regularly? Eva in AR Faithfulhope7@... wrote:Tommy I cleared Hep C a few years ago but still have Cirrhosis. My Primary Dr. has been giving me Darvocet for my aching for a few years now saying I couldn't take anything else. Now my lower back hurts so bad I told her Darvocet not working so she finally referred me to Rhuemy Dr. I ran out of the Darvocet this month in only 2 weeks so I finally started taking my hubby's 800 mg Ibuphron. I've taken a bunch of tests but don't go back to Rhuemy till a week from tomorrow. The Ibuphron actually worked so I e-mailed my Heptolgist and asked him about it. He said if I'm taking it as prescribed my liver should be fine. I did write back to tell him the amount I'm taking though but haven't heard back yet. I've told my Primary and Heptologist there is a questions of quality of life, and I refuse to hurt. If I can't take anti inlammatorys than give me pain pills. Make sure you also talk to her liver Dr. about how much pain she is in they WILL give her something for pain. I have alot of friends with Hep C and Arthritis and they are being treated with at least pain meds. Peace/Love Randi > Thanks Gordon what a nice lifting letter,My wife is > suffering so badly,She has HEP-C and a horriable case > of posorices all over her body and seratic artheritis > she is 46 and has been on S.S.disablaty for 2 years > now ,due to the Hep -c she can't take anything that > would help her becouse it would hurt her liver even > worse.Is there anything we can do ?She needs help!! > Hope to hear from you Thanks tommy Wilkens > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2002 Report Share Posted August 15, 2002 Eva, I have an appt. with Rheummy next tues. and yes I will ask for something else. In fact I may see if I can refill the darvocet. My primary gave me 3 refills of 50 and wrote take l every 6 hours and I've needed them every 6 hours. Anotherwards, following drs. scrip I took them as prescribed so its ok to refill now? I'll call my pharmacist tomorrow and check, not sure if its an insurance thing or what. I never did hear back from my Heptologist I'll try him again tomorrow. It just seems that for years now everyone has been so concerned about my liver that they hadn't listened to how much I ached. I finally got through to Primary 6 weeks ago. I see the Rhuemmy on Tues. and the Dermatologist on Wed. They better figure out something I can take. I saw a neurololgist today and had a EMG test done for Neuropathy, I also have numb and tingly toes. They said I had to get results from Rhuemmy hmmm. That test was really different I had never felt anything like it before. Definitely shocking... they like send elec. from your muscle to foot and see how long it takes lol. I'm also waiting to get results of xrays to knees, hips and lower back. I have one fingernail that has a pit, and pssorias on elbows, 2 fingers and I think a little on scalp. I feel like a scab or something but I can't see it. I'm still waiting for official PA diagnoisis or whatever else is causing me so much discomfort. Thanks for letting me ramble Peace/Love Randi > > Randi, > I am not an MD (far from it) but I am not sure I agree with your > heptologist about the ibuprofen being OK as long as you take it as > directed. I took naproxyn exactly as directed and, thankfully my rhuemy > does routine liver profiles, and discovered that I had impaired function. > It wouldn't hurt to ask your rhuemy at your next appointment. Do you have > blood work regularly? > Eva in AR > Faithfulhope7@... wrote:Tommy I cleared Hep C a few years ago but still > have Cirrhosis. My Primary > Dr. has been giving me Darvocet for my aching for a few years now saying I > couldn't take anything else. Now my lower back hurts so bad I told her > Darvocet not working so she finally referred me to Rhuemy Dr. I ran out of > > the Darvocet this month in only 2 weeks so I finally started taking my > hubby's 800 mg Ibuphron. I've taken a bunch of tests but don't go back to > Rhuemy till a week from tomorrow. The Ibuphron actually worked so I > e-mailed > my Heptolgist and asked him about it. He said if I'm taking it as > prescribed > my liver should be fine. I did write back to tell him the amount I'm > taking > though but haven't heard back yet. I've told my Primary and Heptologist > there is a questions of quality of life, and I refuse to hurt. If I can't > take anti inlammatorys than give me pain pills. Make sure you also talk to > > her liver Dr. about how much pain she is in they WILL give her something > for > pain. I have alot of friends with Hep C and Arthritis and they are being > treated with at least pain meds. > > Peace/Love > Randi > > > Thanks Gordon what a nice lifting letter,My wife is > > suffering so badly,She has HEP-C and a horriable case > > of posorices all over her body and seratic artheritis > > she is 46 and has been on S.S.disablaty for 2 years > > now ,due to the Hep -c she can't take anything that > > would help her becouse it would hurt her liver even > > worse.Is there anything we can do ?She needs help!! > > Hope to hear from you Thanks tommy Wilkens > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2002 Report Share Posted August 15, 2002 Hi Eva, I'm new to this site as well, I've posted one message but I've been reading all of this stuff and I have a question. I was diagnosed with PA about four years ago and apparantly went into remission, or whatever it's called, during my last pregnancy. It came back with a vengeance after I had my baby last year. My Dad was diagnosed with pancreatic cancer the month after the baby was born. I've spent this last year trying to save his life and he died last month. I think my flare had something to do with stress. But I've been controlling the pain with 600 mgs of Ibuprofen three times a day for this whole year, except for the two months I was on Celebrex and the one month I was on Vioxx (and neither helped). The rheumy prescribed methotrexate after doing blood work, but before he got the results. I then had an appointment with my endocrinologist who gave me the results of my blood work. He said that the liver enzymes were elevated a little, and that back in 1996 they were also elevated (which no one ever told me), but that they were even higher now. I wonder why my rheumy didn't reconsider the methotrexate. Also, my real question is, could the elevation be caused by the Ibuprofen? If not, what could it be caused by? I'm waiting to get in to see another rheumy so that I can get a second opinion. I have a tremendous family history of cancer and I'm afraid to use methotrexate because I've read that it can actually cause cancer. The rheumy I just saw is at the University of Kentucky and he's all by himself, he doesn't even have a nurse I can call and talk to. I don't know what I should do. My choices of rheumatologists are pretty slim in Lexington, Kentucky so I am trying to find one in a surrounding state. Also, my children are all due for their chicken pox vaccine in September. I'm thinking I can't be on the methotrexate at that time either. So, I don't know what to do about controlling my pain in the meantime if the Ibuprofen is elevating my liver enzymes. Does anyone have any suggestings for any of these complications?! Thanks, Cheryl Re: [ ] Help needed Randi, I am not an MD (far from it) but I am not sure I agree with your heptologist about the ibuprofen being OK as long as you take it as directed. I took naproxyn exactly as directed and, thankfully my rhuemy does routine liver profiles, and discovered that I had impaired function. It wouldn't hurt to ask your rhuemy at your next appointment. Do you have blood work regularly? Eva in AR Faithfulhope7@... wrote:Tommy I cleared Hep C a few years ago but still have Cirrhosis. My Primary Dr. has been giving me Darvocet for my aching for a few years now saying I couldn't take anything else. Now my lower back hurts so bad I told her Darvocet not working so she finally referred me to Rhuemy Dr. I ran out of the Darvocet this month in only 2 weeks so I finally started taking my hubby's 800 mg Ibuphron. I've taken a bunch of tests but don't go back to Rhuemy till a week from tomorrow. The Ibuphron actually worked so I e-mailed my Heptolgist and asked him about it. He said if I'm taking it as prescribed my liver should be fine. I did write back to tell him the amount I'm taking though but haven't heard back yet. I've told my Primary and Heptologist there is a questions of quality of life, and I refuse to hurt. If I can't take anti inlammatorys than give me pain pills. Make sure you also talk to her liver Dr. about how much pain she is in they WILL give her something for pain. I have alot of friends with Hep C and Arthritis and they are being treated with at least pain meds. Peace/Love Randi > Thanks Gordon what a nice lifting letter,My wife is > suffering so badly,She has HEP-C and a horriable case > of posorices all over her body and seratic artheritis > she is 46 and has been on S.S.disablaty for 2 years > now ,due to the Hep -c she can't take anything that > would help her becouse it would hurt her liver even > worse.Is there anything we can do ?She needs help!! > Hope to hear from you Thanks tommy Wilkens > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2002 Report Share Posted August 15, 2002 In a message dated 08/15/2002 11:57:01 AM Eastern Daylight Time, troycheryl@... writes: > Also, my real question is, could the elevation be caused by the Ibuprofen? Hi Cheryl - my rheumy checks my enzymes every 3 months even after being off the MTX because I'm on anti-inflammatories (vioxx), which of course ibuprofen is as well. So I guess it's possible you could have elevated enzymes from that. In my opinion, you do need a DMARD though to protect your joints from further deteriation. Have you asked your rheumy about Remicade? The enbrel still seems to be a problem to get, but maybe he/she could get you on remicade or arava if you are afraid of the MTX. I also have a family history of cancer (I don't think I can name one person on my dad's side who hasn't had it in some form) but I did use MTX for 2 yrs. - Had to go off for my liver elevations. As far as the chicken pox vaccine goes, I believe that if the vaccine is a " dead " vaccine, it can't hurt you if you have lowered immunity - but check with your doctor. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2002 Report Share Posted August 15, 2002 My sympathy to you. My PA started three months after my father was diagnosed with pancreatic cancer. Once diagnosed, I know I had symptoms before then, but never severe. I thought my PA would go into remission once my father's suffering was over--but a few months after his death, my mom was diagnosed with breast cancer. She is now in remission after surgery and treatment. I am working part-time starting this week. I hope the reduction in work load and a healthy family will get me back on track with PA. Good luck. Ks Di Re: [ ] Help needed Hi Eva, I'm new to this site as well, I've posted one message but I've been reading all of this stuff and I have a question. I was diagnosed with PA about four years ago and apparantly went into remission, or whatever it's called, during my last pregnancy. It came back with a vengeance after I had my baby last year. My Dad was diagnosed with pancreatic cancer the month after the baby was born. I've spent this last year trying to save his life and he died last month. I think my flare had something to do with stress. But I've been controlling the pain with 600 mgs of Ibuprofen three times a day for this whole year, except for the two months I was on Celebrex and the one month I was on Vioxx (and neither helped). The rheumy prescribed methotrexate after doing blood work, but before he got the results. I then had an appointment with my endocrinologist who gave me the results of my blood work. He said that the liver enzymes were elevated a little, and that back in 1996 they were also elevated (which no one ever told me), but that they were even higher now. I wonder why my rheumy didn't reconsider the methotrexate. Also, my real question is, could the elevation be caused by the Ibuprofen? If not, what could it be caused by? I'm waiting to get in to see another rheumy so that I can get a second opinion. I have a tremendous family history of cancer and I'm afraid to use methotrexate because I've read that it can actually cause cancer. The rheumy I just saw is at the University of Kentucky and he's all by himself, he doesn't even have a nurse I can call and talk to. I don't know what I should do. My choices of rheumatologists are pretty slim in Lexington, Kentucky so I am trying to find one in a surrounding state. Also, my children are all due for their chicken pox vaccine in September. I'm thinking I can't be on the methotrexate at that time either. So, I don't know what to do about controlling my pain in the meantime if the Ibuprofen is elevating my liver enzymes. Does anyone have any suggestings for any of these complications?! Thanks, Cheryl Re: [ ] Help needed Randi, I am not an MD (far from it) but I am not sure I agree with your heptologist about the ibuprofen being OK as long as you take it as directed. I took naproxyn exactly as directed and, thankfully my rhuemy does routine liver profiles, and discovered that I had impaired function. It wouldn't hurt to ask your rhuemy at your next appointment. Do you have blood work regularly? Eva in AR Faithfulhope7@... wrote:Tommy I cleared Hep C a few years ago but still have Cirrhosis. My Primary Dr. has been giving me Darvocet for my aching for a few years now saying I couldn't take anything else. Now my lower back hurts so bad I told her Darvocet not working so she finally referred me to Rhuemy Dr. I ran out of the Darvocet this month in only 2 weeks so I finally started taking my hubby's 800 mg Ibuphron. I've taken a bunch of tests but don't go back to Rhuemy till a week from tomorrow. The Ibuphron actually worked so I e-mailed my Heptolgist and asked him about it. He said if I'm taking it as prescribed my liver should be fine. I did write back to tell him the amount I'm taking though but haven't heard back yet. I've told my Primary and Heptologist there is a questions of quality of life, and I refuse to hurt. If I can't take anti inlammatorys than give me pain pills. Make sure you also talk to her liver Dr. about how much pain she is in they WILL give her something for pain. I have alot of friends with Hep C and Arthritis and they are being treated with at least pain meds. Peace/Love Randi > Thanks Gordon what a nice lifting letter,My wife is > suffering so badly,She has HEP-C and a horriable case > of posorices all over her body and seratic artheritis > she is 46 and has been on S.S.disablaty for 2 years > now ,due to the Hep -c she can't take anything that > would help her becouse it would hurt her liver even > worse.Is there anything we can do ?She needs help!! > Hope to hear from you Thanks tommy Wilkens > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 Thanks so much for the replys. I'll see what I can do. Cheryl Re: [ ] Help needed In a message dated 08/15/2002 11:57:01 AM Eastern Daylight Time, troycheryl@... writes: > Also, my real question is, could the elevation be caused by the Ibuprofen? Hi Cheryl - my rheumy checks my enzymes every 3 months even after being off the MTX because I'm on anti-inflammatories (vioxx), which of course ibuprofen is as well. So I guess it's possible you could have elevated enzymes from that. In my opinion, you do need a DMARD though to protect your joints from further deteriation. Have you asked your rheumy about Remicade? The enbrel still seems to be a problem to get, but maybe he/she could get you on remicade or arava if you are afraid of the MTX. I also have a family history of cancer (I don't think I can name one person on my dad's side who hasn't had it in some form) but I did use MTX for 2 yrs. - Had to go off for my liver elevations. As far as the chicken pox vaccine goes, I believe that if the vaccine is a " dead " vaccine, it can't hurt you if you have lowered immunity - but check with your doctor. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2003 Report Share Posted June 24, 2003 Hi I am Ray Kennedy in the UK. Send and E Mail to Bob at acts@... and he will talk to you about alternative treatments, they are not expensive. Ray Kennedy [ ] HELP NEEDED THANK YOU FOR AN EXCELLENT FORUM. I HOPE SOMEONE OUT THERE CAN BE OF ASSISTANCE. I HAVE READ OF A THERAPY THAT COULD BE OF GREAT USE, NOT AS A TREATMENT, PER SE, BUT TO HELP STIMULATE THE IMMUNE SYSTEM AFTER RADIATION OR CHEMO. THE THERAPY IS RELATIVELY CHEAP, BUT THE PROBLEM IS THAT A PRESCRIPTION IS NECESSARY FOR IT. UNFORTUNATELY, I AM DISABLED AND CAN'T AFFORD TO SEE AN ALTERNATIVELY MINDED DOCTOR, WHO WOULD BE OPEN TO PRESCRIBING THIS. I LIVE ON LONG ISLAND, IN NEW YORK AND WOULD BE VERY APPRECIATIVE TO ANYONE WHO COULD HELP. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2003 Report Share Posted June 24, 2003 I heard of a so called recent breakthrough devised here in Australia where they block the production of sex hormones in the body, and this is said to lead to stimulation of the immune system. You and I can probably forget it though for two reasons: 1. A course of treatment is reported to cost $2000AUD, 2. Given the cost of treatment, it must involve the use of drugs, and thus would have unacceptable side effects. If your MD is not " open " , wouldn't it be nice if we were able to pries them open. Good luck in finding someone to write that script. Les Catterall -- mal19782002 wrote: > > THANK YOU FOR AN EXCELLENT FORUM. I HOPE SOMEONE OUT THERE CAN BE OF > ASSISTANCE. I HAVE READ OF A THERAPY THAT COULD BE OF GREAT USE, NOT > AS A TREATMENT, PER SE, BUT TO HELP STIMULATE THE IMMUNE SYSTEM AFTER > RADIATION OR CHEMO. THE THERAPY IS RELATIVELY CHEAP, BUT THE PROBLEM > IS THAT A PRESCRIPTION IS NECESSARY FOR IT. UNFORTUNATELY, I AM > DISABLED AND CAN'T AFFORD TO SEE AN ALTERNATIVELY MINDED DOCTOR, WHO > WOULD BE OPEN TO PRESCRIBING THIS. I LIVE ON LONG ISLAND, IN NEW > YORK AND WOULD BE VERY APPRECIATIVE TO ANYONE WHO COULD HELP. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 I just completed six applications of Rituxan and had no side effects whatsoever. I am 66 and had six rounds of chemo before the Rituxan. I even had a low WBC (2,300) when getting my last application. Hope your husband comes through as easily as I did. Dave ----- Original Message ----- From: jackie liddell Nov 13 My husband was diagnosed with non curable non Hodgkin's lymphoma in September. ....Next Tuesday he starts on a course of rituxin...Can anyone suggest anything I can use or do to minimize the toxic effect of the rituxin. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.