Guest guest Posted April 25, 2008 Report Share Posted April 25, 2008 Lynn, My daughter's tourettes was indeed caused by strep. It is a condition known as PANDAS. You have to be careful with GSE because it can cause a bacterial growth ... and in my son ... this causes the aggression that you are describing. Are you giving probiotics to keep the good yeast growing while you are killing off the bad ones... What happened when he was on OLE? If his tics increased initially it could have been that you were starting to drawl out the gut infection of strep ... For my daughter at first things got really bad. But as we pushed through that her tics reduced more and more. Now it is almost inperceptable.... It use to be so bad that she had trouble even holding a glass of water ... but now she is doing great. She use to get made fun of alot... But anymore ... her friends don't even know. Just this past couple of months ago a kid in her Spanish class was making fun of people with tourettes .... and she asked him why. He said they are all such retards. She smiled. She is the top student in the Spanish class and every knows it. She listened for awhile longer ... got back her test scores ... and then said. Hmmm... I guess I am not a retard. He told her of course not. She told him ... I have tourettes. He was silenced ... But her victory was two fold. She had stood up for her integrity ... and for all kids with tourettes ... and she realized for the first time just how much healing had come her way... for this kid to have no clue. We also use virastop ... but haven't gone that high yet. Perhaps we should consider that.. maybe it could help finish her healign. The fact that he had a cold sore ... lyseine often helps kill the virus that causes those. My daughter is also on lyseine. She too takes enzymes. She is also on a strict diet ... gfcfcfsf and free of many other things like yeast, sugar,eggs and tomatos... It has been tough on her ... but she has grown to love her knew life because she is no longer suffering with tourettes. She no longer needs medication to stop the migraines caused by the massive head jerks ... she no longer needs the clonidine to help her body be still... And life is good. That is why I am soo concerned about her trip to NY. Melinda > > My DS has Tourettes Syndrome complicated by some ADHD and OCD, plus > some mood problems (but he is also starting adolescence, so who knows > what is driving this.) He is intolerant of many many > supplements--they either increase ticcing (HNI did this) or make him > aggressive and weepy. He has done very well on Enzymedica Digest Gold > plus Glutenease at meals. I am also in the yeast fight, more on that > in a minute > > I started him on OLE, it was another supplement that he couldnt' > tolerate but in the time he was on it, he developed cold sores and a > wart, both of which we had not seen. The cold sores were gone within > a week, the wart remains. Vitamin C was also not tolerated > > This made me think that he might have viral issues, so I decided to > try 's Virastop protocol. We are up to 6 Virastop and 4 > Candidase, divided into 2 doses, per day. It took us about a week and > a half to get here. He has been a bit happier, less likely to fall > into rages, a bit more able to concentrate. However, his ticcing and > OCDish behavior has increased substantially and increases more as I > increase the dose. So one issue I have is whether the ticcing will go > away after I stop the enzymes or whether it will fail to reverse. > > The second issue is whether or not both ticcing and OCD are yeast > related. This came to a head yesterday when he had a really bad rage > attack. I had been trying to alternate GSE (6 drops twice a day) and > Biocidin (5 drops twice a day). This was on the Biocidin side, and it > sort of appears that either the Biocidin is not sufficiently effective > or is not tolerated. > This is discouraging because so far, of all the yeast fighters, > Biocidin was the only one other than GSE that he could deal with over > time. Biotin, garlic, pau d'arco were all busts. So I gave him GSE > last night and this morning all was happy again. > > The advice I'm looking for is should I keep increasing the dose > despite the ticcing, and is it OK to just give him GSE for the entire > Virastop experiment. Any help is greatly appreciated. Wish there > were better street maps in this country of the spectrum! > > Lynn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2008 Report Share Posted April 25, 2008 > I started him on OLE, it was another supplement that he couldnt' > tolerate but in the time he was on it, he developed cold sores and a > wart, both of which we had not seen. The cold sores were gone within > a week, the wart remains. At my house, both cold sores and warts were eliminated with lysine. > This made me think that he might have viral issues, so I decided to > try 's Virastop protocol. We are up to 6 Virastop and 4 > Candidase, divided into 2 doses, per day. It took us about a week and > a half to get here. He has been a bit happier, less likely to fall > into rages, a bit more able to concentrate. However, his ticcing and > OCDish behavior has increased substantially and increases more as I > increase the dose. Try increasing the yeast protocol. I used biotin and GSE to control yeast. Viral die off tends to cause a lot of yeast. And one of my kids had tics from yeast. > The second issue is whether or not both ticcing and OCD are yeast > related. At my house, most tics were related to yeast, some to viruses. OCD was about 50% viruses, 20% yeast, and 30% mB12/TMG/folic/carnitine. > This is discouraging because so far, of all the yeast fighters, > Biocidin was the only one other than GSE that he could deal with over > time. Biotin, garlic, pau d'arco were all busts. So I gave him GSE > last night and this morning all was happy again. Definitely consider increasing the GSE. Biotin requires magnesium for proper absorption, so you can try that if you want. > The advice I'm looking for is should I keep increasing the dose > despite the ticcing, and is it OK to just give him GSE for the entire > Virastop experiment. I gave my son daily GSE for over 4 years. With the addition of biotin, after a while the GSE was no longer required. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2008 Report Share Posted April 25, 2008 In addition to looking into strep, you might also want to look into histadelia- high histamine levels in the blood can cause mood swings, OCD, ADHD stuff, and I think tics but am not sure about that. The solution may be pretty simple so it could be worth finding out. You do this with a blood test to measure histamine levels, or for me I tried going on a low histamine diet and was amazed at how quickly I felt better. -Sierra > > My DS has Tourettes Syndrome complicated by some ADHD and OCD, plus > some mood problems (but he is also starting adolescence, so who knows > what is driving this.) He is intolerant of many many > supplements--they either increase ticcing (HNI did this) or make him > aggressive and weepy. He has done very well on Enzymedica Digest Gold > plus Glutenease at meals. I am also in the yeast fight, more on that > in a minute > > I started him on OLE, it was another supplement that he couldnt' > tolerate but in the time he was on it, he developed cold sores and a > wart, both of which we had not seen. The cold sores were gone within > a week, the wart remains. Vitamin C was also not tolerated > > This made me think that he might have viral issues, so I decided to > try 's Virastop protocol. We are up to 6 Virastop and 4 > Candidase, divided into 2 doses, per day. It took us about a week and > a half to get here. He has been a bit happier, less likely to fall > into rages, a bit more able to concentrate. However, his ticcing and > OCDish behavior has increased substantially and increases more as I > increase the dose. So one issue I have is whether the ticcing will go > away after I stop the enzymes or whether it will fail to reverse. > > The second issue is whether or not both ticcing and OCD are yeast > related. This came to a head yesterday when he had a really bad rage > attack. I had been trying to alternate GSE (6 drops twice a day) and > Biocidin (5 drops twice a day). This was on the Biocidin side, and it > sort of appears that either the Biocidin is not sufficiently effective > or is not tolerated. > This is discouraging because so far, of all the yeast fighters, > Biocidin was the only one other than GSE that he could deal with over > time. Biotin, garlic, pau d'arco were all busts. So I gave him GSE > last night and this morning all was happy again. > > The advice I'm looking for is should I keep increasing the dose > despite the ticcing, and is it OK to just give him GSE for the entire > Virastop experiment. Any help is greatly appreciated. Wish there > were better street maps in this country of the spectrum! > > Lynn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2008 Report Share Posted April 30, 2008 Thanks for all the responses, I feel very encouraged! One interesting thing that happened is that last night my son said to me, " Mom, I've been dreaming! " He says he never has before, except nightmares from Vitamin B6. These dreams are, he reports, just like real life. I'm up to 8 Virastop per day (slowed down because he is doing standardized tests this week and I don't want to mess that up.) The only other thing I've changed is about a month ago I started Brainchild Nutritionals' Mineral liquid. I wonder what could be happening? Lynn > > > > > > My DS has Tourettes Syndrome complicated by some ADHD and OCD, plus > > some mood problems (but he is also starting adolescence, so who knows > > what is driving this.) He is intolerant of many many > > supplements--they either increase ticcing (HNI did this) or make him > > aggressive and weepy. He has done very well on Enzymedica Digest Gold > > plus Glutenease at meals. I am also in the yeast fight, more on that > > in a minute > > > > I started him on OLE, it was another supplement that he couldnt' > > tolerate but in the time he was on it, he developed cold sores and a > > wart, both of which we had not seen. The cold sores were gone within > > a week, the wart remains. Vitamin C was also not tolerated > > > > This made me think that he might have viral issues, so I decided to > > try 's Virastop protocol. We are up to 6 Virastop and 4 > > Candidase, divided into 2 doses, per day. It took us about a week and > > a half to get here. He has been a bit happier, less likely to fall > > into rages, a bit more able to concentrate. However, his ticcing and > > OCDish behavior has increased substantially and increases more as I > > increase the dose. So one issue I have is whether the ticcing will go > > away after I stop the enzymes or whether it will fail to reverse. > > > > The second issue is whether or not both ticcing and OCD are yeast > > related. This came to a head yesterday when he had a really bad rage > > attack. I had been trying to alternate GSE (6 drops twice a day) and > > Biocidin (5 drops twice a day). This was on the Biocidin side, and it > > sort of appears that either the Biocidin is not sufficiently effective > > or is not tolerated. > > This is discouraging because so far, of all the yeast fighters, > > Biocidin was the only one other than GSE that he could deal with over > > time. Biotin, garlic, pau d'arco were all busts. So I gave him GSE > > last night and this morning all was happy again. > > > > The advice I'm looking for is should I keep increasing the dose > > despite the ticcing, and is it OK to just give him GSE for the entire > > Virastop experiment. Any help is greatly appreciated. Wish there > > were better street maps in this country of the spectrum! > > > > Lynn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2008 Report Share Posted May 1, 2008 Hi Virastop does have to be given on a empty stomach. Most parents find it easier to give them 30 minutes before a meal instead of 2 hours after. But if the snack doesn't have a lot of protein in it, then the virastop won't really affect something like cookies. But 30 minutes before a meal or snack is preferred. Alessandra Enzymedica's Education Department > > > > > > My DS has Tourettes Syndrome complicated by some ADHD and OCD, plus > > > some mood problems (but he is also starting adolescence, so who knows > > > what is driving this.) He is intolerant of many many > > > supplements- -they either increase ticcing (HNI did this) or make him > > > aggressive and weepy. He has done very well on Enzymedica Digest Gold > > > plus Glutenease at meals. I am also in the yeast fight, more on that > > > in a minute > > > > > > I started him on OLE, it was another supplement that he couldnt' > > > tolerate but in the time he was on it, he developed cold sores and a > > > wart, both of which we had not seen. The cold sores were gone within > > > a week, the wart remains. Vitamin C was also not tolerated > > > > > > This made me think that he might have viral issues, so I decided to > > > try 's Virastop protocol. We are up to 6 Virastop and 4 > > > Candidase, divided into 2 doses, per day. It took us about a week and > > > a half to get here. He has been a bit happier, less likely to fall > > > into rages, a bit more able to concentrate. However, his ticcing and > > > OCDish behavior has increased substantially and increases more as I > > > increase the dose. So one issue I have is whether the ticcing will go > > > away after I stop the enzymes or whether it will fail to reverse. > > > > > > The second issue is whether or not both ticcing and OCD are yeast > > > related. This came to a head yesterday when he had a really bad rage > > > attack. I had been trying to alternate GSE (6 drops twice a day) and > > > Biocidin (5 drops twice a day). This was on the Biocidin side, and it > > > sort of appears that either the Biocidin is not sufficiently effective > > > or is not tolerated. > > > This is discouraging because so far, of all the yeast fighters, > > > Biocidin was the only one other than GSE that he could deal with over > > > time. Biotin, garlic, pau d'arco were all busts. So I gave him GSE > > > last night and this morning all was happy again. > > > > > > The advice I'm looking for is should I keep increasing the dose > > > despite the ticcing, and is it OK to just give him GSE for the entire > > > Virastop experiment. Any help is greatly appreciated. Wish there > > > were better street maps in this country of the spectrum! > > > > > > Lynn > > > > > > > > > > ______________________________________________________________________ ______________ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2008 Report Share Posted May 1, 2008 Thank you so much, you just saved me a trip to the healthfood store. I was going to take it back today. Thanks so much! Re: Virastop and Tourettes Syndrome Hi Virastop does have to be given on a empty stomach. Most parents find it easier to give them 30 minutes before a meal instead of 2 hours after. But if the snack doesn't have a lot of protein in it, then the virastop won't really affect something like cookies. But 30 minutes before a meal or snack is preferred. Alessandra Enzymedica's Education Department > > > > > > My DS has Tourettes Syndrome complicated by some ADHD and OCD, plus > > > some mood problems (but he is also starting adolescence, so who knows > > > what is driving this.) He is intolerant of many many > > > supplements- -they either increase ticcing (HNI did this) or make him > > > aggressive and weepy. He has done very well on Enzymedica Digest Gold > > > plus Glutenease at meals. I am also in the yeast fight, more on that > > > in a minute > > > > > > I started him on OLE, it was another supplement that he couldnt' > > > tolerate but in the time he was on it, he developed cold sores and a > > > wart, both of which we had not seen. The cold sores were gone within > > > a week, the wart remains. Vitamin C was also not tolerated > > > > > > This made me think that he might have viral issues, so I decided to > > > try 's Virastop protocol. We are up to 6 Virastop and 4 > > > Candidase, divided into 2 doses, per day. It took us about a week and > > > a half to get here. He has been a bit happier, less likely to fall > > > into rages, a bit more able to concentrate. However, his ticcing and > > > OCDish behavior has increased substantially and increases more as I > > > increase the dose. So one issue I have is whether the ticcing will go > > > away after I stop the enzymes or whether it will fail to reverse. > > > > > > The second issue is whether or not both ticcing and OCD are yeast > > > related. This came to a head yesterday when he had a really bad rage > > > attack. I had been trying to alternate GSE (6 drops twice a day) and > > > Biocidin (5 drops twice a day). This was on the Biocidin side, and it > > > sort of appears that either the Biocidin is not sufficiently effective > > > or is not tolerated. > > > This is discouraging because so far, of all the yeast fighters, > > > Biocidin was the only one other than GSE that he could deal with over > > > time. Biotin, garlic, pau d'arco were all busts. So I gave him GSE > > > last night and this morning all was happy again. > > > > > > The advice I'm looking for is should I keep increasing the dose > > > despite the ticcing, and is it OK to just give him GSE for the entire > > > Virastop experiment. Any help is greatly appreciated. Wish there > > > were better street maps in this country of the spectrum! > > > > > > Lynn > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ ____________ __ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. http://mobile. / ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2008 Report Share Posted May 1, 2008 One interesting thing that happened is that last night my son said to me, " Mom, I've been dreaming! " He says he never has before, except nightmares from Vitamin B6. These dreams are, he reports, just like real life. The only other thing I've changed is about a month ago I started Brainchild Nutritionals' Mineral liquid. I wonder what could be happening? Hi Lynn I recall reading once that not being able to remember your dreams was a sign of manganese deficiency. So maybe the mineral liquid has addressed that for your son. :-) Quote Link to comment Share on other sites More sharing options...
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