Re: Re: Failure to thrive and ASD: celiac?

July 7, 2009

Hi,

I'm coming late to this discussion, but my first thought when I saw the subject

line was to make sure to check your child for celiac disease, which often shows

up as failure to thrive, from what I understand. This must be done before you

remove gluten from the diet, if you decide to do that, or otherwise the tests

will come out negative even if he has the condition.

Incidentally, while enzymes may help with other issues, if he does have celiac

disease 100% gluten-free diet is the treatment.

Hope this helps.

From: Alessandra <milagros205@...>

Subject: Re: Failure to thrive and ASD

Date: Tuesday, July 7, 2009, 3:35 PM

Hi Ed,

Since failure to thrive can be related to not be able to absorb crucial

vitamins, minerals and nutrients, have you considered changing his diet? I would

recommend going on a gf/cf (gluten free casein free) diet. Even staying away

from corn and soy, while limiting the sugar intake. Diet has a huge impact on us

and we often don't realize it. Also, do some research on hbot. It's a hyperbaric

oxygen therapy. A lot of parents in similar situations, have found that between

that, diet and enzymes that their child has tremendously benefited. And you've

already got the enzyme thing down, right? Adding in some supplementing enzymes

to help with the inflammation (if you find out he does have inflammation) would

be worth a try too.

We all wish we could give you a guarantee solution, but in some way, I really do

hope this helps you and your family out. I wish you guys the best.

Talyna

Enzymedica Education Dept.

www.enzymedica.com

www.AGRT.org

> >

> > Hi ED,

> > Have you had his zinc and copper levels checked.Too high copper nad too low

> > zinc can cause failure to thrive according to Pfeiffer.

> > R

> >

>

------------------------------------

July 8, 2009

Hi ,

Thanks for you input. No one on our " team " (ped, gi, dan dr.)

suspects celiac disease as of yet as there aren't any other symptoms

other than slow growth and of course the ASD stuff. My son was a

micro preemie with a 9 month hospital stay and used to have a g-tube

and be on oxygen. He can learn quite well when the autism stuff

doesn't get in his way. I think our suspicion right now is around

vitamin, mineral and possibly enzyme (and more) deficiencies from

yeast or fungal overgrowth that could be a throw back to my son's

hospital stay and all the antibiotics and other medications he

received. That's not to say that celiac is off the table. We're just

getting started in our efforts to help him. We're also just getting

started with SCD and I believe that will help. I have an older son

who has a number of food sensitivities and might even have ADD so a

big change to the family's diet might help our entire household.

Thanks

Ed

On Tue, Jul 7, 2009 at 7:11 PM, Brattin<sdb2956@...> wrote:

>

> Hi,

>

> I'm coming late to this discussion, but my first thought when I saw the

> subject line was to make sure to check your child for celiac disease, which

> often shows up as failure to thrive, from what I understand. This must be

> done before you remove gluten from the diet, if you decide to do that, or

> otherwise the tests will come out negative even if he has the condition.

>

> Incidentally, while enzymes may help with other issues, if he does have

> celiac disease 100% gluten-free diet is the treatment.

>

> Hope this helps.

>

> From: Alessandra <milagros205@...>

> Subject: Re: Failure to thrive and ASD

>

> Date: Tuesday, July 7, 2009, 3:35 PM

>

> Hi Ed,

> Since failure to thrive can be related to not be able to absorb crucial

> vitamins, minerals and nutrients, have you considered changing his diet? I

> would recommend going on a gf/cf (gluten free casein free) diet. Even

> staying away from corn and soy, while limiting the sugar intake. Diet has a

> huge impact on us and we often don't realize it. Also, do some research on

> hbot. It's a hyperbaric oxygen therapy. A lot of parents in similar

> situations, have found that between that, diet and enzymes that their child

> has tremendously benefited. And you've already got the enzyme thing down,

> right? Adding in some supplementing enzymes to help with the inflammation

> (if you find out he does have inflammation) would be worth a try too.

> We all wish we could give you a guarantee solution, but in some way, I

> really do hope this helps you and your family out. I wish you guys the best.

>

> Talyna

> Enzymedica Education Dept.

> www.enzymedica.com

> www.AGRT.org

>

>> >

>> > Hi ED,

>> > Have you had his zinc and copper levels checked.Too high copper nad too

>> > low

>> > zinc can cause failure to thrive according to Pfeiffer.

>> > R

>> >

>>

>

> ------------------------------------

>

July 9, 2009

Hi Ed,

At some point, look at the Feingold diet (www.feingold.org), especially for your

son with the possible ADD, but the things they avoid, especially the

artificials, are not helpful to anyone, as someone else has stated recently in

one of the posts on this or another group I'm in. If your one son is already not

ingesting gluten it would be hard to test him for celiac, but as it's genetic

and, if I remember right, dominant, maybe checking your other son who has the

food sensitivities (at least if he's still ingesting gluten) would be a good

idea. If 1 person in the family tests positive, all other first-degree relatives

should also be tested).