Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Hi Folks .. Hoping this email finds all you healthy and happy. First off .. well done Sammy Jo and Elaine on your upcoming LDN book. I am delighted about that. I am also finishing up a book about my Mother. I called it 'Going Nowhere' because although she died, she is still with me and right up until her last breath she insisted she was going nowhere. It took me a while to figure out what she meant. We tested the LDN theory to the absolute limit and beyond with Mom ... We used Metenkephalin or OGF shots like I suggested we might in the last chapter of Up the Creek ... and although my mother died, others are still living with cancer as a result. My issue with the publishing world is that they charge too much for our books. I can see that Elaine has the same problem. I am trying to find a publisher who will run out copies for next to nothing but am finding it is not that easy. Honestly, Up the Creek should cost less than 10 bucks including tax and a coffee. LDN continues to keep Noel stable .. over 5 years now with PPMS on LDN and stable ... but losing muscle tone in his legs from lack of use. Not one new symptom and he looks as handsome as ever. We are working on the muslces in his legs. My uncle with Parkinsons has progressed for certain. His tremors are now throughout his body but we believe he is doing better with LDN than without it. Please keep him in your thoughts and prayers. On another note .. is there a Clare McGee from Cork in the house? If so can you contact me? The Irish Independant might do a serious feature on LDN and the reporter needs to hear from LDN'ers in Ireland and Britain should she get the go ahead. It would spark a huge debate in Ireland if we can nail this one. I will know for sure in a week or so but want to give you a heads up to organize some troops and stories and perhaps invest in a haircut. All the very Best Folks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 , I am in Scotland, would that be any good? I live not too far from Tom Gilhooly and .... Cheers Celia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Perfect! I will get in touch with you should I get the official go ahead! Thanks > > , I am in Scotland, would that be any good? I live not too far from Tom Gilhooly and .... > > Cheers > Celia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 > > Finally got off the needle and my journey with LDN has begun about 30 days ago. > Less brain fog, better balance, some cognitive skills and I feel better than I have felt in years. > s > Now they want to put me on Tysabri!! >============ WELL OF COUSE THEY WANT TO PUT YOU ON THAT POISON. It buys them a luxury lifestyle and keeps your LDN from working sufficiently. Heaven forbid you do well on LDN and NOT need your neuro. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 What is the matter with these doctors, are they nuts or wicked? My first question would be, would you take it? But they would probably lie. Pam > > Hi > If it ain't broke, don't fix it. If you're already feeling better, why would you want to go on Tysabri?????? > I was on Avonex, Copaxone and then Betaseron. I recently looked my Neuro straight in the eye and asked if these meds do anything for any forms of MS besides RRMS. She finally admitted that they don't. She then said that there is one other drug I might want to try. Tysabri. I told her that for 12 years I've taken the CRAB drugs and they've all made me sick in one way or another. I asked what the possible side effects of Tysabri are and she said " death. " OK, nuff said. I don't think this drug is for me. > I'm sticking with diet and LDN. > > Take Care, > Tonette > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 HERE HERE - well Bloody said........Here in Australia they are frantically pushing the approval & distribution of Tysabri......they seem to have over-looked this little side affect of Death - "oh poo poo only 3 or 4 recorded deaths from it worldwide - that's safe enough for us".....I feel for anyone that takes it....I really do.................... Kelli - Australia From: Bren [mailto:TwisterAlley2@...] Sent: Friday, 18 July 2008 4:06 AM To: low dose naltrexone Subject: [low dose naltrexone] Re: LDN Update > > Finally got off the needle and my journey with LDN has begun about 30 days ago. > Less brain fog, better balance, some cognitive skills and I feel better than I have felt in years. > s > Now they want to put me on Tysabri!! >============ WELL OF COUSE THEY WANT TO PUT YOU ON THAT POISON. It buys them a luxury lifestyle and keeps your LDN from working sufficiently. Heaven forbid you do well on LDN and NOT need your neuro. Quote Link to comment Share on other sites More sharing options...
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