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Anyone with a genetic disorder?

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I am looking to talk to or email to anyone who knows a child or has a child with

a micro deletion relating to Chromosome 13.

 

We found out at Cincinnati Children's Hospital that my son, now 11, has a micro

deletion.  We have thought that he had autism since he was 4 so this is quite a

turn of events.

 

I am looking for support.  He has autistic features but never quite " fit " into

the Autism criteria the way people usually do.  He was always, " well if he has

it, it is very mild " but has seizures and digestive issues and all of that. 

 

Thanks.

April Cullins

aprilcullins@...

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