Re: Digestive Enzymes and Mold Allergy?

[Guest guest]

,

My daughter is 15. She HAD tourettes ... but it is essentially

entirely gone.

The bottom line for her was we had to sit down and have a good long

talk about her situation. We had to make a plan of action. I

actually had her sign a contract with me that she would give me one

year to attempt to make things better for her and she would cooperate

one hundred percent.

My part of the deal was that I would bend over backwards to attempt

to give her a replacement for all of her favorite foods. So I have

to call ahead to any parties/sleepovers ... etc to find out what they

are having ... and I make sure she gets to choose those things that

she wants. We make them together ... and I even send in extras for

her friends to sample. It has made her feel as though she is special

not different. And allowed her to include her friends into her world

of special diets. Many of her friends have actually loved her foods

more than theirs...

It is work, but it can make a huge difference. I had told my

daughter that at the end of the year if she didn't want to hang with

the diet anylonger than she could quit. It has been 14 months now

and she no longer has any interest in eating her old foods because

she has seen the miracle of her life unfold. She is feeling better,

is no longer made fun of because of tics, and is not reaming through

tons of Kleenex. And a really good thing for her also is her acne is

hugely improved and her weight is finally normal.

Melinda

a

>

> My daughter suffers from Tourette's Syndrome and it was suggested

by

> her doctor to put her on a gluten free diet. She is 16 and this has

> been so challenging. " Mom I went to Mcs, but don't worry I

> didn't eat the bun, I had an apple pie instead (big smile) " Just

> impossible in other words. If she were 5 it would be a breeze. I

find

> her eating Doritto's for lunch (sob) because she doesn't know what

> else has no gluten.

>

> Her doctor said we could supplement with digestive enzymes if she

> goofs. But in reading I find many are made from aspergillus niger

> (black mold) which she is very allergic to. We have tried every

> suppliment combination known to man and had no success. Any

> suggestions?? I have her on nystatin too as I know yeast is an

issue

> for my little Willy Wonka. And sublingual B12.

>

> B6 and fish oil give her more tics. She takes a blood pressure

> medicine called tenex to control them and it does somewhat, but

gives

> her headaches and dizziness sometimes. We all have milk problems.

> She'd be happy to be surgically attached to an udder.

>

> I've run out of ideas. Any would be most welcome.

>

> Thanks in advance,

>

>

>

[Guest guest]

Hi

Yes it is true that many enzymes are grown on aspergillus. That is

what Enzymedica uses to grow their enzymes BUT it goes through an

extensive filtration process so that the end product has absolutely

no aspergillus. So even if she is allergic to it, she can still take

Enzymedica's digestive enzymes. They send out free samples if you

want to try it before buying it.

Alessandra

>

> My daughter suffers from Tourette's Syndrome and it was suggested

by

> her doctor to put her on a gluten free diet. She is 16 and this has

> been so challenging. " Mom I went to Mcs, but don't worry I

> didn't eat the bun, I had an apple pie instead (big smile) " Just

> impossible in other words. If she were 5 it would be a breeze. I

find

> her eating Doritto's for lunch (sob) because she doesn't know what

> else has no gluten.

>

> Her doctor said we could supplement with digestive enzymes if she

> goofs. But in reading I find many are made from aspergillus niger

> (black mold) which she is very allergic to. We have tried every

> suppliment combination known to man and had no success. Any

> suggestions?? I have her on nystatin too as I know yeast is an

issue

> for my little Willy Wonka. And sublingual B12.

>

> B6 and fish oil give her more tics. She takes a blood pressure

> medicine called tenex to control them and it does somewhat, but

gives

> her headaches and dizziness sometimes. We all have milk problems.

> She'd be happy to be surgically attached to an udder.

>

> I've run out of ideas. Any would be most welcome.

>

> Thanks in advance,

>

>

>

[Guest guest]

Hi ,

Have you tried the enzyme line from Houston Neutraceuticals already?

We first got started with the enzymes then slowly worked up to the

GFCF diet.

There is also an enzyme by BIOSET called 'Gluten Digestion'. This one

helped us a lot during the Holidays. Their contact phone number is

877-927-0741.

I think once your daughter starts to feel the benefits of GFCF diet

and enzymes she will never want to go back to wheat and dairy regular.

Wishing you best of health.

Anjana parker

>

> My daughter suffers from Tourette's Syndrome and it was suggested by

> her doctor to put her on a gluten free diet. She is 16 and this has

> been so challenging. " Mom I went to Mcs, but don't worry I

> didn't eat the bun, I had an apple pie instead (big smile) " Just

> impossible in other words. If she were 5 it would be a breeze. I find

> her eating Doritto's for lunch (sob) because she doesn't know what

> else has no gluten.

>

> Her doctor said we could supplement with digestive enzymes if she

> goofs. But in reading I find many are made from aspergillus niger

> (black mold) which she is very allergic to. We have tried every

> suppliment combination known to man and had no success. Any

> suggestions?? I have her on nystatin too as I know yeast is an issue

> for my little Willy Wonka. And sublingual B12.

>

> B6 and fish oil give her more tics. She takes a blood pressure

> medicine called tenex to control them and it does somewhat, but gives

> her headaches and dizziness sometimes. We all have milk problems.

> She'd be happy to be surgically attached to an udder.

>

> I've run out of ideas. Any would be most welcome.

>

> Thanks in advance,

>

>

>

[Guest guest]

> Her doctor said we could supplement with digestive enzymes if she

> goofs. But in reading I find many are made from aspergillus niger

> (black mold) which she is very allergic to. We have tried every

> suppliment combination known to man and had no success. Any

> suggestions??

Have you tried the digestive enzymes, and do they cause problems?

Even if made from aspergillus, most enzyme manufacturers purify it

out, so sometimes mold-allergic kids will still have problems, but

most of the time they don't.

Or, ask the doctor for rx for a pancreatic enzyme, see if that helps.

>>I have her on nystatin too as I know yeast is an issue

> for my little Willy Wonka. And sublingual B12.

At my house, sublingual mB12 was wonderful, but it did need folic acid

and carnitine for proper absorption, and did tend to cause yeast at

first, so watch for that.

Dana