going crazy

[Guest guest]

Bill,

You might want to check about phantom shocks. You can find information on

the Zapper home page.

Doug

going crazy

> Your not going to belive what happened over the last 24 hrs.

> yesterday (tuesday) I felt small zaps about 4 times during the day

> along with the hot flash I mentioned before. I went to bed and was

> woken up by 2 more small zaps. being nervous abou this as it is I

> decided to ge to the er just to make sure. When I got there they put

> the interigator on me and found I had no zaps since Monday. That made

> me feel like a real hypochondriac so I went home feeling fine and a

> little foolish. The thing is when I was lying on the bed in the er I

> felt a small zap but big enough to lift my chest a little. the nurse

> saw it on the monitor but when they interigated me it didn't show.

> ANyway now I think I am going to ignore everything unless its a big

> zap or I'm lying on the floor. I might be losng my mind over this:)

> but at least I'm not bored

> Bill S.

>

>

>

> Please visit the Zapper homepage at

> http://www.ZapLife.org

>

>

[Guest guest]

Thanks Doug I'll give it a shotDoug Parsons <dparsons5@...> wrote:

Bill,You might want to check about phantom shocks. You can find information onthe Zapper home page.Doug going crazy> Your not going to belive what happened over the last 24 hrs.> yesterday (tuesday) I felt small zaps about 4 times during the day> along with the hot flash I mentioned before. I went to bed and was> woken up by 2 more small zaps. being nervous abou this as it is I> decided to ge to the er just to make sure. When I got there they put> the interigator on me and found I had no zaps since Monday. That made> me feel like a real hypochondriac so I went home feeling fine and a> little

foolish. The thing is when I was lying on the bed in the er I> felt a small zap but big enough to lift my chest a little. the nurse> saw it on the monitor but when they interigated me it didn't show.> ANyway now I think I am going to ignore everything unless its a big> zap or I'm lying on the floor. I might be losng my mind over this:)> but at least I'm not bored> Bill S.>>>> Please visit the Zapper homepage at> http://www.ZapLife.org>>

[Guest guest]

Hi Bill:

There is such a thing called phantom zap. After you get zapped you body puts it in memory and then everytime you're getting anxious or feeling a little out of norm since it is not a pleasant thing your brain tries to get you ready by doing whatever it can(adrenaline or endophines?? don't know). So it is normal for you to get some of these because you are in very deep anxiety i think. Read this article that i am attaching. I don't know who sent it but is a fantastivc one on fear and anxiety. Try to take it easy and make sure you mention your doctor and have him give you some anti-anxiety med. I think you can use it. Remember this is very normal so you're not going crazy. Hang in there bud. It'll pass. TURK

going crazy

Your not going to belive what happened over the last 24 hrs. yesterday (tuesday) I felt small zaps about 4 times during the day along with the hot flash I mentioned before. I went to bed and was woken up by 2 more small zaps. being nervous abou this as it is I decided to ge to the er just to make sure. When I got there they put the interigator on me and found I had no zaps since Monday. That made me feel like a real hypochondriac so I went home feeling fine and a little foolish. The thing is when I was lying on the bed in the er I felt a small zap but big enough to lift my chest a little. the nurse saw it on the monitor but when they interigated me it didn't show. ANyway now I think I am going to ignore everything unless its a big zap or I'm lying on the floor. I might be losng my mind over this:) but at least I'm not bored Bill S.Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Dear Not Normal, Welcome, and please remember not to block the aisles or doorways as there are always many other basket cases waiting to enter. The line is now over 52 billion long and we don't even have a free give away.

Anxiety attacks and phantom shocks are the worst. I once actually fell off my daughters couch from a shock I didn't get but I was sure that I did. I helped my daughter and her husband move into their new home. It was late when we finished so I decided to spend the night on their new sofa. About three in the morning I ended up on the floor I knew that I had been shocked. I was scared stiff so I got up trying not to make too much noise only to be shocked again. I was so frightened that I went running into my daughters bedroom and had a screaming mimic fit. My daughter set up with me the rest of the night at first light I called my EP and they said to come right in so they could get a read. My husband came and we drove to the hospital all the time I am telling how bad these shocks were and how much they hurt I was sure something was very wrong. Well, they read my icd and it had not fired it had not even charged. I was so embarrassed that I could have crawled under the table. They all laughed it off and said welcome to the world of phantom shocks. I didn't think it was a bit funny I had a talk with my doctor who recommended some therapy. I still have phantom shock but after three years I deal with them a little better.

Sharon in Ohio

[Guest guest]

Turk

You and this group came thru again thanks.

by the way , The doc told me that when I felt hot over my body it

was a anxity attack . man those attacks can be a bitch. any way

between you guys and a long talk with the doc yesterday I am feeling

alot better. not normal mind you but better. I don't think I was

ever normal

> Hi Bill:

> There is such a thing called phantom zap. After you get zapped you

body puts it in memory and then everytime you're getting anxious or

feeling a little out of norm since it is not a pleasant thing your

brain tries to get you ready by doing whatever it can(adrenaline or

endophines?? don't know). So it is normal for you to get some of

these because you are in very deep anxiety i think. Read this article

that i am attaching. I don't know who sent it but is a fantastivc one

on fear and anxiety. Try to take it easy and make sure you mention

your doctor and have him give you some anti-anxiety med. I think you

can use it. Remember this is very normal so you're not going crazy.

Hang in there bud. It'll pass. TURK

> going crazy

>

>

> Your not going to belive what happened over the last 24 hrs.

> yesterday (tuesday) I felt small zaps about 4 times during the

day

> along with the hot flash I mentioned before. I went to bed and

was

> woken up by 2 more small zaps. being nervous abou this as it is I

> decided to ge to the er just to make sure. When I got there they

put

> the interigator on me and found I had no zaps since Monday. That

made

> me feel like a real hypochondriac so I went home feeling fine and

a

> little foolish. The thing is when I was lying on the bed in the

er I

> felt a small zap but big enough to lift my chest a little. the

nurse

> saw it on the monitor but when they interigated me it didn't

show.

> ANyway now I think I am going to ignore everything unless its a

big

> zap or I'm lying on the floor. I might be losng my mind over

this:)

> but at least I'm not bored

> Bill S.

>

>

>

[Guest guest]

Hello Bill:When everyone in this group told me things will get normal, I never believed them at first. I'll be honest, because I had a mind like a rock(at least i thought so). Working in wall street for 15 years and seeing all the adverseries i could, i never though, I, myself (my mind that is) would be my worst enemy. I though i was going out of my mind, With the help of this group and some lovely drugs i am ok and NORMAL now. Don't worry time really heals everything, maybe not everything but the feeling of fear and pain lessens. Good luck to you myfriend i hope you feel better soon. Don't forget them drugs and don't forget we'll be here. TURK

going crazy> > > Your not going to belive what happened over the last 24 hrs. > yesterday (tuesday) I felt small zaps about 4 times during the day > along with the hot flash I mentioned before. I went to bed and was > woken up by 2 more small zaps. being nervous abou this as it is I > decided to ge to the er just to make sure. When I got there they put > the interigator on me and found I had no zaps since Monday. That made > me feel like a real hypochondriac so I went home feeling fine and a > little foolish. The thing is when I was lying on the bed in the er I > felt a small zap but big enough to lift my chest a little. the nurse > saw it on the monitor but when they interigated me it didn't show. > ANyway now I think I am going to ignore everything unless its a big > zap or I'm lying on the floor. I might be losng my mind over this:) > but at least I'm not bored> Bill S.> > >

[Guest guest]

I cannot begin to tell you the fear and anxiety that I have had to deal with since my very first icd clear back in the 90's. This fear has gripped me in its palm and brought me to the edge. It has run people out of my life, changed friendships and family relationship. I have had anxiety attacks to the point of forgetting where I was and how to get back home. I have hid from life. Now here I am 57 years old and on my third icd. I hate it. I hate not having control over my own body and life. I hate having this piece of metal in my chest. I hate the shocks, I hate the medicine, I hate the way some of my so called friends treat me as if I am a freak. I hate the stupid questions people ask. I hate the scares on my chest and there are over 16 of them. I was at a point back in 1999 where I thought I would never make it. was one of t hose unlucky people who icd kept mis firing. When the phantom shocks came then I was just done. Now I was going crazy on top of it all. My husband looked at me like I was from outer space. I let myself become isolated. My friends were afraid to be around me alone or to invite me out. My boss was afraid tat I would scare people my office and was concerned he might be liable. My doctors said I would not go through another battle of a serious numbers of misfires. I became what they call a hard start and my jewels were sit higher and higher. I have no warning at all when I go into v-tach it just happens. Most times I pass out instantly but some times I just in lala land.

Then I came to this group heart in had and full of self pity. I learned. I read everything I could get my hands on I learned.

Now here at 57, I have learned the worse thing in life is fear itself. My shrink said that when we are afraid to let go and fear overwhelms us then we are also afraid to live. I am not the most religious person in the world but I have learned to let go and let faith take me. Sometimes I still get caught up in the fear but then I try to focus on something beautiful like the first time I saw my beautiful granddaughter take her first breathe. The look in my sons eyes when he said I do to his Elisha after going through a horrible divorce where his ex took everything including the dog. Rather than wondering if I can conquer the mountain I see if I can get up the hill. When all else fails I remember 9-11 and I am glad that I am alive and that I am an American.

I am off my soap box now.

Love and hugs

Sharon in Ohio

[Guest guest]

Sharon,

While in

the CCU waiting to get my first AICD, the nurses monitoring my vital signs from the monitor at

their station came rushing into my room.

I didn’t feel anything, but they said that I was having a long string of

Vtach. They said that I should

cough very hard, several times.

The Vtach stopped. I was

told that violent coughing causes the lung to put pressure against the heart,

which breaks the Vtach. I have

used this method often. Perhaps, using

that method has stopped the Vtach before the AICD’s set point for firing. If you haven’t heard of this method,

perhaps it’s worth a try when you feel Vtach coming on.

My feeling

about the AICD apparently varies from the feelings of most of you. I live in a very isolated part of the

country. The nearest ER is 80

miles from home. It isn’t what you

would call “state of the art” either.

With the AICD, I feel like there is an EMT following me around with “paddles”.

I would feel anxiety if I didn’t

have the AICD, as with my condition I could easily have sudden cardiac death if

there was nothing to correct the Vtach . So, my AICD in my chest is a comfort to me.

Norm

-----Original

Message-----

From: IIPistacio@...

[mailto:IIPistacio@...]

Sent: Friday, July 04, 2003 9:20

AM

Subject: Re: Re: going

crazy

I cannot

begin to tell you the fear and anxiety that I have had to deal with since my

very first icd clear back in the 90's. This fear has gripped me in its

palm and brought me to the edge. It has run people out of my life,

changed friendships and family relationship. I have had anxiety attacks

to the point of forgetting where I was and how to get back home. I have

hid from life. Now here I am 57 years old and on my third icd. I

hate it. I hate not having control over my own body and life. I

hate having this piece of metal in my chest. I hate the shocks, I hate

the medicine, I hate the way some of my so called friends treat me as if I am a

freak. I hate the stupid questions people ask. I hate the scares on my

chest and there are over 16 of them. I was at a point back in 1999 where

I thought I would never make it. was one of t hose unlucky people

who icd kept mis firing. When the phantom shocks came then I was just

done. Now I was going crazy on top of it all. My husband looked at

me like I was from outer space. I let myself become isolated. My

friends were afraid to be around me alone or to invite me out. My boss

was afraid tat I would scare people my office and was concerned he might be

liable. My doctors said I would not go through another battle of a

serious numbers of misfires. I became what they call a hard start and my

jewels were sit higher and higher. I have no warning at all when I go

into v-tach it just happens. Most times I pass out instantly but some

times I just in lala land.

Then I came to this group heart in had and full of self pity. I

learned. I read everything I could get my hands on I learned.

Now here at 57, I have learned the worse thing in life is fear itself. My

shrink said that when we are afraid to let go and fear overwhelms us then we

are also afraid to live. I am not the most religious person in the world

but I have learned to let go and let faith take me. Sometimes I still get

caught up in the fear but then I try to focus on something beautiful like the

first time I saw my beautiful granddaughter take her first breathe. The

look in my sons eyes when he said I do to his Elisha after going through a

horrible divorce where his ex took everything including the dog. Rather

than wondering if I can conquer the mountain I see if I can get up the

hill. When all else fails I remember 9-11 and I am glad that I am alive

and that I am an American.

I am off my soap box now.

Love and hugs

Sharon in Ohio

[Guest guest]

hi becca,

i get the same thing from some of my friends...especially about the

weight part of our problem.

my best friend in the whole wide world said. " if i had your

problems id not eat a bite for six months, get new hips and go back to

jogging, ergo, end of problem.

all i replied with, was,,,1-800-yea-rite

those that dont go through it have no clue as to what its all about,

including the medical staff and care givers.

we do what we have to do, and a lot of us deal with everything

differently.

my most fun now comes from driving around the casino on my wheelchair,

beeping at the old ladies (like im a youngster, yep, another

1-800-yea-rite) and saying watch out, big old fat guy rolling through.

watch your feet feet... pah leeze watch your feet.

bob in pa

and my battery is soon to be replaced as well. if i have to go out,

i promise to go out kicking and screaming.. its been a long time

since this group slapped me silly, pulled me out of the mud and saved my

life.

[Guest guest]

In the same boat Norm. My ICD has given me amazing freedom - I owe my life to it in so many ways. I feel really lucky to have it.

RE: Re: going crazy

Sharon,

While in the CCU waiting to get my first AICD, the nurses monitoring my vital signs from the monitor at their station came rushing into my room. I didn’t feel anything, but they said that I was having a long string of Vtach. They said that I should cough very hard, several times. The Vtach stopped. I was told that violent coughing causes the lung to put pressure against the heart, which breaks the Vtach. I have used this method often. Perhaps, using that method has stopped the Vtach before the AICD’s set point for firing. If you haven’t heard of this method, perhaps it’s worth a try when you feel Vtach coming on.

My feeling about the AICD apparently varies from the feelings of most of you. I live in a very isolated part of the country. The nearest ER is 80 miles from home. It isn’t what you would call “state of the art” either. With the AICD, I feel like there is an EMT following me around with “paddles”. I would feel anxiety if I didn’t have the AICD, as with my condition I could easily have sudden cardiac death if there was nothing to correct the Vtach . So, my AICD in my chest is a comfort to me.

Norm

-----Original Message-----From: IIPistacio@... [mailto:IIPistacio@...]Sent: Friday, July 04, 2003 9:20 AM Subject: Re: Re: going crazy

I cannot begin to tell you the fear and anxiety that I have had to deal with since my very first icd clear back in the 90's. This fear has gripped me in its palm and brought me to the edge. It has run people out of my life, changed friendships and family relationship. I have had anxiety attacks to the point of forgetting where I was and how to get back home. I have hid from life. Now here I am 57 years old and on my third icd. I hate it. I hate not having control over my own body and life. I hate having this piece of metal in my chest. I hate the shocks, I hate the medicine, I hate the way some of my so called friends treat me as if I am a freak. I hate the stupid questions people ask. I hate the scares on my chest and there are over 16 of them. I was at a point back in 1999 where I thought I would never make it. was one of t hose unlucky people who icd kept mis firing. When the phantom shocks came then I was just done. Now I was going crazy on top of it all. My husband looked at me like I was from outer space. I let myself become isolated. My friends were afraid to be around me alone or to invite me out. My boss was afraid tat I would scare people my office and was concerned he might be liable. My doctors said I would not go through another battle of a serious numbers of misfires. I became what they call a hard start and my jewels were sit higher and higher. I have no warning at all when I go into v-tach it just happens. Most times I pass out instantly but some times I just in lala land.Then I came to this group heart in had and full of self pity. I learned. I read everything I could get my hands on I learned. Now here at 57, I have learned the worse thing in life is fear itself. My shrink said that when we are afraid to let go and fear overwhelms us then we are also afraid to live. I am not the most religious person in the world but I have learned to let go and let faith take me. Sometimes I still get caught up in the fear but then I try to focus on something beautiful like the first time I saw my beautiful granddaughter take her first breathe. The look in my sons eyes when he said I do to his Elisha after going through a horrible divorce where his ex took everything including the dog. Rather than wondering if I can conquer the mountain I see if I can get up the hill. When all else fails I remember 9-11 and I am glad that I am alive and that I am an American.I am off my soap box now.Love and hugsSharon in Ohio Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Thank you Sharon and Bob for sharing... I too am a Happy American and glad to

be celebrating an independant LIFE! Like Norm and , I view my ICD as an

ER or guardian angel to allow me to do the things I want to do without having to

worry about dying.

Gee Sharon, I know you have come through alot uf yucky stuff and so glad we were

all here for you. We have become such a close family.

Happy 4th everyone!

~guin

P.S. This would have been my Grandmothers' 109th Birthday!

RJS wrote:

> > hi becca,

>

> i get the same thing from some of my friends...especially about the weight

part of our problem.

>

> my best friend in the whole wide world said. " if i had your problems id not

eat a bite for six months, get new hips and go back to jogging, ergo, end of

problem.

>

> all i replied with, was,,,1-800-yea-rite

>

> those that dont go through it have no clue as to what its all about, including

the medical staff and care givers.

>

> we do what we have to do, and a lot of us deal with everything differently.

>

> my most fun now comes from driving around the casino on my wheelchair, beeping

at the old ladies (like im a youngster, yep, another 1-800-yea-rite) and saying

watch out, big old fat guy rolling through. watch your feet feet... pah leeze

watch your feet.

>

> bob in pa

>

> and my battery is soon to be replaced as well. if i have to go out, i promise

to go out kicking and screaming.. its been a long time since this group slapped

me silly, pulled me out of the mud and saved my life.

>

> >

[Guest guest]

Louis-

I know how rediculous the state of TRT currently is. If you want

progressive treatment, you will probably have to pay cash like the

rich and famous do. Otherwise, most doctors (not to mention

insurance) are only going to do what is already accepted in peer

reviewed journals, which means either TRT OR hCG, not both. Until

there is a published study about the efficacy of both, 95 out of 100

doctors won't do it, no matter what Dr. Shippen or Chrisler's

experience has shown. If you aren't getting any treatment, you may

want to do what I did. Print out the AACE guidelines and highlight

Page 9 (or 447 in the document) paragraph suggesting intervention at

levels of 319 ng/dl and hand it to the office nurse and say you just

want to feel better. I really wanted to be right and get mad, and

move on to another Dr. but with the above approach, I got perscribed

HRT within 2 hours.

Good luck,

Dan

[Guest guest]

You may try Dr. Hulinsky in CT.

He does not shy away from advanced treatments.

I am using his services and very happy with the results

You will find him on the list of recommended doctors.

> Hi All,

>

>

> Well, I'm still waiting on my June appointment to see if my Endo

will

> deign to give me TRT therapy with hCG. I swear to GOD they drive me

> crazy! You know what the worst thing is? I can, no sweat, order

this

> stuff TODAY off the internet and find relief.But because I try to

do

> things LEGITIMATELY, it's been 6 months and STILL NO RELIEF!!!!!

> YAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA!!!!!!!!!!!!!!!!!!!!!!!!

> It's not like I don't have the lab tests. It's not like I don't

have a

> COMFIRMED DIAGNOSIS!!!

>

> I had an appointment yesterday with another Endo, a fertility

> specialist. He said that 240 wasn't " too low " a value for

testosterone.

> When I told him that that was about right for an 80 year old, he

> proposed putting me on taxominofen " until we conceived " because

> testosterone is " too dangerous " . THEN he gave me a prescription for

viagra!

>

> I DON'T WANT DRUGS!!!! I WANT MY NATURAL HORMONES RESTORED!!!!!!

>

> Does anyone out there know of a doc near VA,NC,SC,MD,DE who will

> prescribe T and hCG for me?

>

> Louis

>

>

> --

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.0.308 / Virus Database: 266.9.3 - Release Date: 4/5/2005

[Guest guest]

Hi ,

How are you using Dr. Hulinsky? Does he do phone consultations?

What treatment protocol does he have you on?

Have you noticed any improvements?

If you don't mind join the finasteride group as well, I am sure

everyone would be interested in your progress there.

finasteride_side_effects/

Thanks!

> > Hi All,

> >

> >

> > Well, I'm still waiting on my June appointment to see if my Endo

> will

> > deign to give me TRT therapy with hCG. I swear to GOD they drive

me

> > crazy! You know what the worst thing is? I can, no sweat, order

> this

> > stuff TODAY off the internet and find relief.But because I try to

> do

> > things LEGITIMATELY, it's been 6 months and STILL NO RELIEF!!!!!

> > YAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA!!!!!!!!!!!!!!!!!!!!!!!!

> > It's not like I don't have the lab tests. It's not like I don't

> have a

> > COMFIRMED DIAGNOSIS!!!

> >

> > I had an appointment yesterday with another Endo, a fertility

> > specialist. He said that 240 wasn't " too low " a value for

> testosterone.

> > When I told him that that was about right for an 80 year old, he

> > proposed putting me on taxominofen " until we conceived " because

> > testosterone is " too dangerous " . THEN he gave me a prescription

for

> viagra!

> >

> > I DON'T WANT DRUGS!!!! I WANT MY NATURAL HORMONES RESTORED!!!!!!

> >

> > Does anyone out there know of a doc near VA,NC,SC,MD,DE who will

> > prescribe T and hCG for me?

> >

> > Louis

> >

> >

> > --

> > No virus found in this outgoing message.

> > Checked by AVG Anti-Virus.

> > Version: 7.0.308 / Virus Database: 266.9.3 - Release Date:

4/5/2005

[Guest guest]

He requires an initial visit to his office, after that it is over the

phone.

I am on Clomid 25/day, he said at least 6 to 12 months.

I respond very well to it, my T/e2 holds around 940/34.

He was the only md who heard and used Clomid for treating male HH.

But I know that he has patients on TRT and hCG also.

Btw, he was the only doctor who suggested to find out why all of the

sadden I became hypogonadal at 42.

> > > Hi All,

> > >

> > >

> > > Well, I'm still waiting on my June appointment to see if my

Endo

> > will

> > > deign to give me TRT therapy with hCG. I swear to GOD they

drive

> me

> > > crazy! You know what the worst thing is? I can, no sweat, order

> > this

> > > stuff TODAY off the internet and find relief.But because I try

to

> > do

> > > things LEGITIMATELY, it's been 6 months and STILL NO

RELIEF!!!!!

> > > YAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA!!!!!!!!!!!!!!!!!!!!!!!!

> > > It's not like I don't have the lab tests. It's not like I don't

> > have a

> > > COMFIRMED DIAGNOSIS!!!

> > >

> > > I had an appointment yesterday with another Endo, a fertility

> > > specialist. He said that 240 wasn't " too low " a value for

> > testosterone.

> > > When I told him that that was about right for an 80 year old,

he

> > > proposed putting me on taxominofen " until we conceived " because

> > > testosterone is " too dangerous " . THEN he gave me a prescription

> for

> > viagra!

> > >

> > > I DON'T WANT DRUGS!!!! I WANT MY NATURAL HORMONES RESTORED!!!!!!

> > >

> > > Does anyone out there know of a doc near VA,NC,SC,MD,DE who

will

> > > prescribe T and hCG for me?

> > >

> > > Louis

> > >

> > >

> > > --

> > > No virus found in this outgoing message.

> > > Checked by AVG Anti-Virus.

> > > Version: 7.0.308 / Virus Database: 266.9.3 - Release Date:

> 4/5/2005

[Guest guest]

Hi ,

What did he say about finasteride?

And what kind of damage does he think finasteride has caused?

If I remember right your problems are from the use of finasteride as

well..

Has he had success with the protocol of 25mg of clomid daily, in

regards to treating finasteride patients?

Thanks!

> > > > Hi All,

> > > >

> > > >

> > > > Well, I'm still waiting on my June appointment to see if my

> Endo

> > > will

> > > > deign to give me TRT therapy with hCG. I swear to GOD they

> drive

> > me

> > > > crazy! You know what the worst thing is? I can, no sweat,

order

> > > this

> > > > stuff TODAY off the internet and find relief.But because I

try

> to

> > > do

> > > > things LEGITIMATELY, it's been 6 months and STILL NO

> RELIEF!!!!!

> > > > YAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA!!!!!!!!!!!!!!!!!!!!!!!!

> > > > It's not like I don't have the lab tests. It's not like I

don't

> > > have a

> > > > COMFIRMED DIAGNOSIS!!!

> > > >

> > > > I had an appointment yesterday with another Endo, a fertility

> > > > specialist. He said that 240 wasn't " too low " a value for

> > > testosterone.

> > > > When I told him that that was about right for an 80 year old,

> he

> > > > proposed putting me on taxominofen " until we conceived "

because

> > > > testosterone is " too dangerous " . THEN he gave me a

prescription

> > for

> > > viagra!

> > > >

> > > > I DON'T WANT DRUGS!!!! I WANT MY NATURAL HORMONES

RESTORED!!!!!!

> > > >

> > > > Does anyone out there know of a doc near VA,NC,SC,MD,DE who

> will

> > > > prescribe T and hCG for me?

> > > >

> > > > Louis

> > > >

> > > >

> > > > --

> > > > No virus found in this outgoing message.

> > > > Checked by AVG Anti-Virus.

> > > > Version: 7.0.308 / Virus Database: 266.9.3 - Release Date:

> > 4/5/2005

[Guest guest]

,

Does he expect that at some point you will no longer need Clomid? Has

taking Clomid improved all of your previous symptoms.

> > > > Hi All,

> > > >

> > > >

> > > > Well, I'm still waiting on my June appointment to see if my

> Endo

> > > will

> > > > deign to give me TRT therapy with hCG. I swear to GOD they

> drive

> > me

> > > > crazy! You know what the worst thing is? I can, no sweat,

order

> > > this

> > > > stuff TODAY off the internet and find relief.But because I

try

> to

> > > do

> > > > things LEGITIMATELY, it's been 6 months and STILL NO

> RELIEF!!!!!

> > > > YAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA!!!!!!!!!!!!!!!!!!!!!!!!

> > > > It's not like I don't have the lab tests. It's not like I

don't

> > > have a

> > > > COMFIRMED DIAGNOSIS!!!

> > > >

> > > > I had an appointment yesterday with another Endo, a fertility

> > > > specialist. He said that 240 wasn't " too low " a value for

> > > testosterone.

> > > > When I told him that that was about right for an 80 year old,

> he

> > > > proposed putting me on taxominofen " until we conceived "

because

> > > > testosterone is " too dangerous " . THEN he gave me a

prescription

> > for

> > > viagra!

> > > >

> > > > I DON'T WANT DRUGS!!!! I WANT MY NATURAL HORMONES

RESTORED!!!!!!

> > > >

> > > > Does anyone out there know of a doc near VA,NC,SC,MD,DE who

> will

> > > > prescribe T and hCG for me?

> > > >

> > > > Louis

> > > >

> > > >

> > > > --

> > > > No virus found in this outgoing message.

> > > > Checked by AVG Anti-Virus.

> > > > Version: 7.0.308 / Virus Database: 266.9.3 - Release Date:

> > 4/5/2005

[Guest guest]

Hi Louis,

Go to the files section here, & download " Finding a Male Hormone Doctor " . You

can

use the tips to find some docs near you, but that doesn't guarantee they're

good.

Some telephone pre-screening can give you an idea of their interest &

competence.

Bruce

> Hi All,

>

>

> Well, I'm still waiting on my June appointment to see if my Endo will

> deign to give me TRT therapy with hCG. I swear to GOD they drive me

> crazy! You know what the worst thing is? I can, no sweat, order this

> stuff TODAY off the internet and find relief.But because I try to do

> things LEGITIMATELY, it's been 6 months and STILL NO RELIEF!!!!!

> YAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA!!!!!!!!!!!!!!!!!!!!!!!!

> It's not like I don't have the lab tests. It's not like I don't have a

> COMFIRMED DIAGNOSIS!!!

>

> I had an appointment yesterday with another Endo, a fertility

> specialist. He said that 240 wasn't " too low " a value for testosterone.

> When I told him that that was about right for an 80 year old, he

> proposed putting me on taxominofen " until we conceived " because

> testosterone is " too dangerous " . THEN he gave me a prescription for viagra!

>

> I DON'T WANT DRUGS!!!! I WANT MY NATURAL HORMONES RESTORED!!!!!!

>

> Does anyone out there know of a doc near VA,NC,SC,MD,DE who will

> prescribe T and hCG for me?

>

> Louis

>

>

> --

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.0.308 / Virus Database: 266.9.3 - Release Date: 4/5/2005

[Guest guest]

I got Diagnosed and perscribed T on the same day! Then, I live in

Ohio :0)

> Louis Nardozi <lnardozi@c...> wrote:

> Hi All,

>

>

> Well, I'm still waiting on my June appointment to see if my Endo

will

> deign to give me TRT therapy with hCG.

> Does anyone out there know of a doc near VA,NC,SC,MD,DE who will

> prescribe T and hCG for me?

>

> Louis

>

>

[Guest guest]

On Thu, 07 Apr 2005 23:56:56 -0000, you wrote:

>

>

>I got Diagnosed and perscribed T on the same day! Then, I live in

>Ohio :0)

>

That's not a good thing if they didn't do the necessary follow up

tests. Did they test you for prolactin, ferritin, E2 before

prescribing T?

- - - -

Just another albino black sheep

[Guest guest]

Hi,

May I make a suggestion that you may not want what you think you want.

There is a specialist, Dr. R. Don Gambrell, Augusta, GA that has

decades of experience treating couples with fertility problems, men

for andropause and women for menopausal symptoms.

The combination of both drugs may seem correct for you but most wise

patients listen well when they know the doctor has great credentials.

His mentor is Dr. Greenblatt, now deceased, who pioneered in hormone

therapy for both men and women beginning in the 50's. Check them both

out on GOOGLE.

Dr. Gambrell will answer questions and has a web site at:

http://www.members.aol.com/gambr999/

You must have heard you may become sterile if you stay on TRT very

long. Yes us older guys don't mind that and need the benefits for

different reasons than you probably. I think TRT is great and

recommend it but have no experience with the other therapy you mentioned.

Trying to help you.

ernestnolan

> Hi All,

>

>

> Well, I'm still waiting on my June appointment to see if my Endo will

> deign to give me TRT therapy with hCG. I swear to GOD they drive me

> crazy! You know what the worst thing is? I can, no sweat, order this

> stuff TODAY off the internet and find relief.But because I try to do

> things LEGITIMATELY, it's been 6 months and STILL NO RELIEF!!!!!

> YAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA!!!!!!!!!!!!!!!!!!!!!!!!

> It's not like I don't have the lab tests. It's not like I don't have a

> COMFIRMED DIAGNOSIS!!!

>

> I had an appointment yesterday with another Endo, a fertility

> specialist. He said that 240 wasn't " too low " a value for testosterone.

> When I told him that that was about right for an 80 year old, he

> proposed putting me on taxominofen " until we conceived " because

> testosterone is " too dangerous " . THEN he gave me a prescription for

viagra!

>

> I DON'T WANT DRUGS!!!! I WANT MY NATURAL HORMONES RESTORED!!!!!!

>

> Does anyone out there know of a doc near VA,NC,SC,MD,DE who will

> prescribe T and hCG for me?

>

> Louis

>

>

> --

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.0.308 / Virus Database: 266.9.3 - Release Date: 4/5/2005

[Guest guest]

Louis,

I agree with you completely. And would like to add Ohio to your

list... if anyone knows of a doctor in Ohio who would subscribe to

this same treatment therapy.

Larry

> Hi All,

>

>

> Well, I'm still waiting on my June appointment to see if my Endo will

> deign to give me TRT therapy with hCG. I swear to GOD they drive me

> crazy! You know what the worst thing is? I can, no sweat, order this

> stuff TODAY off the internet and find relief.But because I try to do

> things LEGITIMATELY, it's been 6 months and STILL NO RELIEF!!!!!

> YAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA!!!!!!!!!!!!!!!!!!!!!!!!

> It's not like I don't have the lab tests. It's not like I don't have a

> COMFIRMED DIAGNOSIS!!!

>

> I had an appointment yesterday with another Endo, a fertility

> specialist. He said that 240 wasn't " too low " a value for testosterone.

> When I told him that that was about right for an 80 year old, he

> proposed putting me on taxominofen " until we conceived " because

> testosterone is " too dangerous " . THEN he gave me a prescription for

viagra!

>

> I DON'T WANT DRUGS!!!! I WANT MY NATURAL HORMONES RESTORED!!!!!!

>

> Does anyone out there know of a doc near VA,NC,SC,MD,DE who will

> prescribe T and hCG for me?

>

> Louis

>

>

> --

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.0.308 / Virus Database: 266.9.3 - Release Date: 4/5/2005

[Guest guest]

In a message dated 5/25/2006 9:21:20 AM Pacific Daylight Time,

nanlloyd@... writes:

I just want to know what is going on.

____________________________________________________________________________

,

I always say that waiting is the hardest part. I feel like I can tackle

almost anything, but I need to know what to tackle!! Please know I'm thinking

of you.

Hang in there--

Sandi, Mom to --age 13--CVID

[Guest guest]

Please don't give up. You have come to the right place. You will find

lots of support here. Many can offer you advice having already been

through CI surgery and rehab. God bless you. Will keep you in my

thoughts and prayers.

>

> Well alittle bit about myself.I am a single mother of two.I have a

> 17teen year old daughter and a 9 year old son.My hearing loss

> started when my daughter was 3 years old.The doctors have no clue

> why my hearing was going.Since it started my life has been very

> hard.This is something I find very hard to deal with.My left ear I

> have not been able to hear out of for a very long time.My right ear

> I was able to wear a hearing aide.It help up until May 1st,2006.My

> hearing was gone.Imagaine if you will,walking to the laundry room

> and hearing kids playing and then you come out and you hear

> NOTHING.At first I thought it might be my aide.So I put new

> batteries in it and NOTHING.My Whole world died.Right then and

> there.I am still crying over it.I am finding it very diffcult to

> live with.I will never hear my kids laugh or even cry ever

> again.Heck I wont be able to hear anyone break into my house or any

> thing of the sort.I can not sleep at night.I try not to take my

> hearing loss out on people and my family but its very hard and they

> say they understand but they do not have a clue of what im going

> through.God love.I love them more then anything in the world.My

> children have been great. My poor son just has to leran not to yell

> at me when he talks to me.I tell him son no matter how loud you

yell

> at mom I will never hear you.His eyes just swell up with

tears.Along

> with mine.Well,I need and would like someone to help me cope with

> this because it is really taking a toll on me.

> My doctor is the best.She has done so much for me that I feel I owe

> her my life.But on the other hand I am very angry with her.I had a

> doctor appointment and a friend went with me,well after my visit my

> friend had told me that my doctor stated that I would be completely

> deaf in two years.Now if she knew this why didnt she stop it or at

> least try and stop it??She made the statement and then two to three

> months(May 1st)and im totally deaf???My world died and it crumbled.

> Can someone tell me why?

> I had my CI implant on September 26th 2006.I feel it has not helped

> me at all.And yes im still grumpy,bitchy and all thee above.Then I

> finally got to go see my audio guy to get programed in.Well he

> strated with four programs and I still can not figure this stupid

> thing out.I get so upset and so angry that I refuse to deal with it.

> Can someone please email me and help me before its to late.I do not

> want to sound rude but if or who ever helps me please do not

> say.Your not trying hard enough.I am trying very hard because I do

> not want to live in a world of silence.I hope and pray someone can

> help me.God Bless,My name is Joyce.Very nice to meet anyone and

> everyone who is or has gone through what I have gone through.E-Mail

> address is hevenly2you@... you and God Bless

>

[Guest guest]

Hi Joyce,

Losing your hearing suddenly is a shock. It happened to me twice.

Lost the hearing in my right ear in a matter of a week or so. Thought I

was congested, when the " cold " or flu went away, I was deaf. Gone. Zero

hearing in the left ear. 20 years later, I got hit by a car and all the

hearing went in the right ear. Yes, it is frustrating, and yes you cry.

Being deaf in one ear in NO WAY prepares you to be totally deaf.

You have an implant. Step in the right direction. Now, HOW MANY

mappings have you had? Because it takes a lot more than one or 2 to get

the processor set for you to hear.

You need to wear the processor all the time you are awake to allow

your brain to adjust to how you are hearing with it.

You can get books from the librarary and audio tapes to go with them,

and listen to someone reading the book while you read along with it.

That will help your understanding of speech.

If your insurance covers AV (audio verbal) therapy, that will help you

learn to hear and listen. (2 different thing).

You've only had the implant for a few months. If you were implanted

late in September, and turned on probably late in October, you are only a

few month past activation. It takes time. It took me about 3 months to

hear the way I do now, and that was with wearing the processor every day,

every minute I was awake. At first I wondered if I went through all this

to have annoying noises in my head. But my brain finally figured it out.

You've heard for years, so you have auditory memory for words and what

they sound like.

This is a journey back to hearing, not a race. Some people hear and

understand the minute they put the processor on. Most of us do not. Do

not compare yourself to someone else or their progress.

Often hearing loss has no explanation. You were already wearing

hearing aids when your hearing went. Drs sometime try things like

steroid treatments, inhalation and dilation therapy. Sometimes they

work, sometimes they don't. Most don't work very long if they work at

all.

Now, you need to sit down with your processor and the instruction book

and read how to use the processor. Then use ONE map for a few days and

note what you can and cannot hear. If you are hearing at all, then you

have hearing. It might not be understandable, but it IS HEARING. First

step. Getting it to be understandable takes more mappings. You have to

keep going back for the mappings. Getting upset and angry about it

isn't going to help. It's normal to be frustrated, but try to figure out

how to use the processor (instruction book will help) or ASK the

audiologist to show you how when you make your next appt.

You can switch from the first mapping to the 2nd. Find out what he

has set on the different programs. Perhaps he can do just a plain

mapping with none of the fancy ADRO, BEAM or other features yet. Just a

straight ACE program. Take this to him and show him the suggestions.

You should be able to find a program that is better, or at least " not

as bad " as the others. And you work from there. It takes time to get a

good mapping. You need to allow your brain to adjust to this new way of

hearing. Because I know you want to hear your children's voices, and all

the other things you are missing now.

You are willing to try, you just need to know HOW to try. How many

mappings have you had since your first one? Because first mappings just

set a threshold (T) and comfort © level that are very close together.

And the sounds you get are nowhere near where they will be with your

later mappings. You need to hang in there and have PATIENCE,

PERSEVERENCE, AND PRACTICE. I know I was frustrated beyond belief with

my first mappings. But it did get better. And more mappings help, too.

You are NOT alone in this. We've all been there. It is not too

late, and it can be made better. A lot better. Have patience with

yourself. Give it time.

Are you familiar with the Serenity Prayer?

God grant me the Serenity

to accept the things I cannot change

The Courage to change the things I can

And the Wisdom to know the difference?

You cannot change the fact that you lost all your hearing. You can

accept that you have lost your hearing. And you can go back for as many

mappings as it takes to get the cochlear implant working so you can hear

the way the implant will allow you. That's the courage to change the

things you can.

Keep in touch. We're all with you in this.

Can someone please email me and help me before its to late.I do not

want to sound rude but if or who ever helps me please do not

say.Your not trying hard enough.I am trying very hard because I do

not want to live in a world of silence.I hope and pray someone can

help me.God Bless,My name is Joyce