Re: Important survey on seizures for ALL ASD kids

[Guest guest]

Are tick, eye rolling and other involuntary movements a type of seizure?

>

> Bradford,

> Would you post this study in the ASA email update?

> Thanks,

> Suzanne

>

> Autism research study - Need input from parents of kids with or without

seizures

>

> I am writing on behalf of Dr. Frye, a pediatric neurologist and

research scientist at the UT Health Science Center in Houston. He has developed

an online survey for parents of children with autism which inquires about

seizures in children on the autism spectrum (see message from Dr. Frye below,

with links to the IRB-approved survey). If you are able, would you please

forward this message to your email listserves, bring to your support group

meetings, post to your website, or include the link in any newsletters that are

published? Thank you for your support, and if you have any questions, please

feel free to email me at lauren.dowell@...

>

> Dowell, M.S.

> Research Associate

> Department of Pediatrics

> UT Health Science Center - Houston

>

> Title: Survey on treatment for children with autism with and without seizures

>

> Dear Autism family,

>

> There is little understanding of the treatments that help control seizures and

seizure-like activity in children with autism. To help understand which

treatments are effective for controlling seizures, seizure-like activity and

subclinical epileptiform discharges in autism Dr. Frye has developed a

relatively easy to complete on-line seizure survey for parents with children

with autism spectrum disorder with and without seizures to complete. It is

important that we obtain information about individuals without seizures, so that

we can determine whether treatments affect individuals with and without seizures

differently.

>

> If your son/daughter (or you) is on the autism spectrum, regardless of whether

you have clinical seizures, subclinical epileptiform discharges or seizure-like

activity, we would like to ask you to fill out a survey created by Dr.

Frye. We think that this very detailed survey will provide a much richer

understanding of the efficacy and possible side-effects of current treatments

for seizures.

>

> Please help us by filling out the survey and by forwarding information about

this survey to other autism groups.

>

> For individuals with seizures, subclinical epileptiform discharges or

seizure-like activity, please use the following link:

http://www.surveymethods.com/EndUser.aspx?EBCFA3B1ECACBAB8

>

> For individuals without seizures, subclinical epileptiform discharges or

seizure-like activity, please use the following link:

http://www.surveymethods.com/EndUser.aspx?92B6DAC895D7C5C2

>

> Thank you very much for helping us find answers to seizures in autism.

>

> Sincerely,

>

> E. Frye, M.D., Ph.D., F.A.A.P.

> Assistant Professor of Pediatrics and Neurology University of Texas-Houston

>

> Dowell, M.S.

> Research Associate

> Department of Pediatrics

> UT Health Science Center - Houston

> lauren.dowell@...

>

[Guest guest]

> >

> > Bradford,

> > Would you post this study in the ASA email update?

> > Thanks,

> > Suzanne

> >

> > Autism research study - Need input from parents of kids with or without

seizures

> >

> > I am writing on behalf of Dr. Frye, a pediatric neurologist and

research scientist at the UT Health Science Center in Houston. He has developed

an online survey for parents of children with autism which inquires about

seizures in children on the autism spectrum (see message from Dr. Frye below,

with links to the IRB-approved survey). If you are able, would you please

forward this message to your email listserves, bring to your support group

meetings, post to your website, or include the link in any newsletters that are

published? Thank you for your support, and if you have any questions, please

feel free to email me at lauren.dowell@

> >

> > Dowell, M.S.

> > Research Associate

> > Department of Pediatrics

> > UT Health Science Center - Houston

> >

> > Title: Survey on treatment for children with autism with and without

seizures

> >

> > Dear Autism family,

> >

> > There is little understanding of the treatments that help control seizures

and seizure-like activity in children with autism. To help understand which

treatments are effective for controlling seizures, seizure-like activity and

subclinical epileptiform discharges in autism Dr. Frye has developed a

relatively easy to complete on-line seizure survey for parents with children

with autism spectrum disorder with and without seizures to complete. It is

important that we obtain information about individuals without seizures, so that

we can determine whether treatments affect individuals with and without seizures

differently.

> >

> > If your son/daughter (or you) is on the autism spectrum, regardless of

whether you have clinical seizures, subclinical epileptiform discharges or

seizure-like activity, we would like to ask you to fill out a survey created by

Dr. Frye. We think that this very detailed survey will provide a much

richer understanding of the efficacy and possible side-effects of current

treatments for seizures.

> >

> > Please help us by filling out the survey and by forwarding information about

this survey to other autism groups.

> >

> > For individuals with seizures, subclinical epileptiform discharges or

seizure-like activity, please use the following link:

http://www.surveymethods.com/EndUser.aspx?EBCFA3B1ECACBAB8

> >

> > For individuals without seizures, subclinical epileptiform discharges or

seizure-like activity, please use the following link:

http://www.surveymethods.com/EndUser.aspx?92B6DAC895D7C5C2

> >

> > Thank you very much for helping us find answers to seizures in autism.

> >

> > Sincerely,

> >

> > E. Frye, M.D., Ph.D., F.A.A.P.

> > Assistant Professor of Pediatrics and Neurology University of Texas-Houston

> >

> > Dowell, M.S.

> > Research Associate

> > Department of Pediatrics

> > UT Health Science Center - Houston

> > lauren.dowell@

> >

>