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Re: Probiotic for PANDAS kid?

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i was recommended Culturelle for my kid who has  suspected PANDAS

http://www.culturelle.com/

From: casandra oldham <cmfitness@...>

Subject: Probiotic for PANDAS kid?

Date: Wednesday, February 3, 2010, 7:22 PM

Hi there,

I know this has gone around but thinking this wasn't my kids issue I've never

read any PANDAS e-mails. Just hit delete and now I just found out both my ASD

kids have this. I remember something about not using certain probiotics. If

anyone could help me with that or anything else that might be importat to know

that would be great.

Thanks, Casandra

 

                         

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We use Klaire Labs Detoxification Support Formula and HLC Mindlinx.

Kerrie

In a message dated 2/4/2010 1:18:08 A.M. Eastern Standard Time,

tanya.yarkoni@... writes:

I know this has gone around but thinking this wasn't my kids issue I've

never read any PANDAS e-mails. Just hit delete and now I just found out both

my ASD kids have this. I remember something about not using certain

probiotics. If anyone could help me with that or anything else that might be

importat to know that would be great.

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Our doc recommended Florastor for the first two weeks and then Culterelle or his

preferred VSL#3 for the balance of the treatment which will be a few more

months.

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> Hi there,

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> I know this has gone around but thinking this wasn't my kids issue I've never

read any PANDAS e-mails. Just hit delete and now I just found out both my ASD

kids have this. I remember something about not using certain probiotics. If

anyone could help me with that or anything else that might be importat to know

that would be great.

>

>

>

> Thanks, Casandra

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> I know this has gone around but thinking this wasn't my kids issue I've never

read any PANDAS e-mails. Just hit delete and now I just found out both my ASD

kids have this. I remember something about not using certain probiotics. If

anyone could help me with that or anything else that might be importat to know

that would be great.

Avoid anything that contains a strep strain. Check labels. Klaire Therbiotic

Detox Support is good. Culturelle is good.

Dana

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  • 3 weeks later...

HI Casandra,

 

How was the Olympics?!!  Did u get an answer to this?  I recall someone saying

there was a strep strain in one of the Kirkmans or Houston Enzymes - you could

probably find it via a search in the enzymes archives....I'll also ask my

son's oncologist as she is doing the NIH trials on IVIG transfusions for

PANDAs. 

 

Donna Shank

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