dana

[Guest guest]

Cheryl,

We're all rooting for you! What a lovely couple you two make. I hope all

sails smoothly and we can continue to enjoy your wonderful stories and lives

together!

Hugs and hopes,

in Ark

[Guest guest]

Dana,

Ahhh then I will never hear the story!!! I intend to stay young and be

THINNER.

Immigration went great. The interviewer was actually nice. We decided it

went so well b/c a) I had all our ducks in a row with so much documentation

of our " co-mingling and cohabitation " that they couldn't question it. we

make a striking couple c)we are educated (unlike many of their apts.) d) we

obviously had the financial means to support Rudie

We hope to have letter of approval in the next week or two.

YEE HI, I get to keep my man in this country!

Still crazy and queenly,

Cheryl

[Guest guest]

Good news! Hope it all goes like you think it should. Keep us posted.

Pat

Re: Dana

Dana,

Ahhh then I will never hear the story!!! I intend to stay young and be

THINNER.

Immigration went great. The interviewer was actually nice. We decided it

went so well b/c a) I had all our ducks in a row with so much documentation

of our " co-mingling and cohabitation " that they couldn't question it. we

make a striking couple c)we are educated (unlike many of their apts.) d) we

obviously had the financial means to support Rudie

We hope to have letter of approval in the next week or two.

YEE HI, I get to keep my man in this country!

Still crazy and queenly,

Cheryl

[Guest guest]

Hello Dana: I haven't forgotten that you said for me to send my lab reports

and you would advise on my Cholesterol. Well. I had my blood drawn about

10 days ago and go to pcp on Monday for the new report. Before I agree on

anything I am going to send labs to you and Dr. R. That will help me decide.

I really do not like to take any meds at all and have worked very hard to

protect this darn liver and baby stomach and sure don''t want to mess it up

now. Hope to get this to you Monday.

I just got back from a cruise to the western Carribean and had a blast. I

ate too much and will have to get that off right away before it finds a real

good place to stick. I think I may have gained 4-5 lbs. My weight

fluctuates so much I am not sure but all the other people who went with us

gained 10+lbs. I will close and let you know Monday my labs. Phyllis

[Guest guest]

Phyillis,

That sounds great. I will help anyway I can,

Have a great rest of the weekend.

Dana

[Guest guest]

Dana: What is this? Ansering medical questions days post-op? Well it is

good to know you are doing well but as you would tell us don't overdo.

Phyllis

[Guest guest]

Hi Dana...the combo treatment, do you mean the Peg combo? That's what I am

to start on.

Did you realize treatment was hurting your heart and lungs or did the doctor

catch it upon examination? What was that like? I can see how it would be

hard for a person that is under weight to begin with. Take care..judy

[Guest guest]

Hi Dana...the combo treatment, do you mean the Peg combo? That's what I am

to start on.

Did you realize treatment was hurting your heart and lungs or did the doctor

catch it upon examination? What was that like? I can see how it would be

hard for a person that is under weight to begin with. Take care..judy

[Guest guest]

Hi Judy,

Actually it was the Reboviron-Intron. I had hard time

with just intron also. But the combo put me

completely in bed. I did it for 3 weeks and that was

it. I could do nothing, had to order meals on wheels

at age 40. And dishes, paying bills, concentration.

Nothing. I could do nothing. They tried medications

for side effects but they only made me worse. My

family is all in Texas and I am a single parent of a

16 year old now that is Bipolar to top it off. She

handles my illness with rage. So that does not help

and refuses to talk about it. I went in to check on

the peg. But they said the side effects were quite

simular plus breathing problems. I take allergy shots

now. Being bed riden for a year just did not seem

like an option. But yes, they could tell by my

breathing. I would get sick and half to have

breathing treatments. I just don't understand it. My

symptoms are so severe without treatment while others

seem to get by okay. I know I have had it for about

20 years. They have me on all kinds of medication and

keep insisting that I have to have a muscle joint

problem on top of it. The only doctor that will treat

me is my nuerologist. All the others are afraid to

give me medication because of all the side effects. I

also bruise very easily, just from shoes or sleeping

with my legs together. They insist I must have a

bleeding disorder. Could not be due to liver since

enzymes are not that high and viral level is at

216,000. now. It keeps going up, but not enough for

the doctors to worry. and enzyms just really fluctuate

but never show that high. My last biopsy was in 98

and I often wonder what it would show now??? It is

madness. And yes, I see a therapist. I have to. It

is just to crazy to try to do alone. Thank you for

listening!!!!

Dana

--- Judy Mckee <tmckee@...> wrote:

> Hi Dana...the combo treatment, do you mean the Peg

> combo? That's what I am

> to start on.

> Did you realize treatment was hurting your heart and

> lungs or did the doctor

> catch it upon examination? What was that like? I can

> see how it would be

> hard for a person that is under weight to begin

> with. Take care..judy

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hi Judy,

Actually it was the Reboviron-Intron. I had hard time

with just intron also. But the combo put me

completely in bed. I did it for 3 weeks and that was

it. I could do nothing, had to order meals on wheels

at age 40. And dishes, paying bills, concentration.

Nothing. I could do nothing. They tried medications

for side effects but they only made me worse. My

family is all in Texas and I am a single parent of a

16 year old now that is Bipolar to top it off. She

handles my illness with rage. So that does not help

and refuses to talk about it. I went in to check on

the peg. But they said the side effects were quite

simular plus breathing problems. I take allergy shots

now. Being bed riden for a year just did not seem

like an option. But yes, they could tell by my

breathing. I would get sick and half to have

breathing treatments. I just don't understand it. My

symptoms are so severe without treatment while others

seem to get by okay. I know I have had it for about

20 years. They have me on all kinds of medication and

keep insisting that I have to have a muscle joint

problem on top of it. The only doctor that will treat

me is my nuerologist. All the others are afraid to

give me medication because of all the side effects. I

also bruise very easily, just from shoes or sleeping

with my legs together. They insist I must have a

bleeding disorder. Could not be due to liver since

enzymes are not that high and viral level is at

216,000. now. It keeps going up, but not enough for

the doctors to worry. and enzyms just really fluctuate

but never show that high. My last biopsy was in 98

and I often wonder what it would show now??? It is

madness. And yes, I see a therapist. I have to. It

is just to crazy to try to do alone. Thank you for

listening!!!!

Dana

--- Judy Mckee <tmckee@...> wrote:

> Hi Dana...the combo treatment, do you mean the Peg

> combo? That's what I am

> to start on.

> Did you realize treatment was hurting your heart and

> lungs or did the doctor

> catch it upon examination? What was that like? I can

> see how it would be

> hard for a person that is under weight to begin

> with. Take care..judy

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Morning Dana...Everybody is different as how the hep c affects them. I'm

really sorry you are having such a hard time. I am worried as to what I will

go through also.

I have muscle-joint problems also and don't know which is hurting me

whether it be the hep or rheumatoid arthritis or fibromalgia. Then I also

have spinal nerve problems and like you, there are medications I can't take

because of liver damage. My enzymes fluctuate between 200 and 800..have not

been below 200 since last fall.when they go real high I start throwing up

and feeling awful..you know other physical problems do seem to crop up when

you've had hep for a number of years.

It's difficult when you don't have family support..my husband understands

but our grown children just seem to ignore the problem and never talk about

it. Well, I'm hoping for a good day for you anyway..keep watching for the

sunshine and know we are here for you...sending gentle hugs your

way..(((((((((((((((((((((((((((((((((Dana))))))))))))))))))))))))))))))...j

udy

[Guest guest]

Morning Dana...Everybody is different as how the hep c affects them. I'm

really sorry you are having such a hard time. I am worried as to what I will

go through also.

I have muscle-joint problems also and don't know which is hurting me

whether it be the hep or rheumatoid arthritis or fibromalgia. Then I also

have spinal nerve problems and like you, there are medications I can't take

because of liver damage. My enzymes fluctuate between 200 and 800..have not

been below 200 since last fall.when they go real high I start throwing up

and feeling awful..you know other physical problems do seem to crop up when

you've had hep for a number of years.

It's difficult when you don't have family support..my husband understands

but our grown children just seem to ignore the problem and never talk about

it. Well, I'm hoping for a good day for you anyway..keep watching for the

sunshine and know we are here for you...sending gentle hugs your

way..(((((((((((((((((((((((((((((((((Dana))))))))))))))))))))))))))))))...j

udy

[Guest guest]

Dana:

Hang in there. I also have a granddaughter that is manic and refuses to accept

the fact that I am ill. I think escaping is easier for them but unlike us we

cant escape from this horror story. We are the main characters. To bad we cant

get an understudy. My prayers are with you and your daughter. Just hand your

burdens to Christ and He will see you through.

Love In His Light

Sandy

---------------------------------

[Guest guest]

Dana:

Hang in there. I also have a granddaughter that is manic and refuses to accept

the fact that I am ill. I think escaping is easier for them but unlike us we

cant escape from this horror story. We are the main characters. To bad we cant

get an understudy. My prayers are with you and your daughter. Just hand your

burdens to Christ and He will see you through.

Love In His Light

Sandy

---------------------------------

[Guest guest]

Judy,

Thank you so much for the email. You are the first

one I've heard say arthritis or fibrymiagia. Thank

God, it's not just me!!!! Did they tell you you had

fibromyalgia and arthitis around the same time as

diagnosing you for Hep C. My Doctor told me Hep C

usually test positive for arthrites. And this

Fibromyalia, I just don't know. They don't even have

a test for it?

hugsssss Dana

--- Judy Mckee <tmckee@...> wrote:

> Morning Dana...Everybody is different as how the hep

> c affects them. I'm

> really sorry you are having such a hard time. I am

> worried as to what I will

> go through also.

> I have muscle-joint problems also and don't know

> which is hurting me

> whether it be the hep or rheumatoid arthritis or

> fibromalgia. Then I also

> have spinal nerve problems and like you, there are

> medications I can't take

> because of liver damage. My enzymes fluctuate

> between 200 and 800..have not

> been below 200 since last fall.when they go real

> high I start throwing up

> and feeling awful..you know other physical problems

> do seem to crop up when

> you've had hep for a number of years.

> It's difficult when you don't have family

> support..my husband understands

> but our grown children just seem to ignore the

> problem and never talk about

> it. Well, I'm hoping for a good day for you

> anyway..keep watching for the

> sunshine and know we are here for you...sending

> gentle hugs your

>

way..(((((((((((((((((((((((((((((((((Dana))))))))))))))))))))))))))))))...j

> udy

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Judy,

Thank you so much for the email. You are the first

one I've heard say arthritis or fibrymiagia. Thank

God, it's not just me!!!! Did they tell you you had

fibromyalgia and arthitis around the same time as

diagnosing you for Hep C. My Doctor told me Hep C

usually test positive for arthrites. And this

Fibromyalia, I just don't know. They don't even have

a test for it?

hugsssss Dana

--- Judy Mckee <tmckee@...> wrote:

> Morning Dana...Everybody is different as how the hep

> c affects them. I'm

> really sorry you are having such a hard time. I am

> worried as to what I will

> go through also.

> I have muscle-joint problems also and don't know

> which is hurting me

> whether it be the hep or rheumatoid arthritis or

> fibromalgia. Then I also

> have spinal nerve problems and like you, there are

> medications I can't take

> because of liver damage. My enzymes fluctuate

> between 200 and 800..have not

> been below 200 since last fall.when they go real

> high I start throwing up

> and feeling awful..you know other physical problems

> do seem to crop up when

> you've had hep for a number of years.

> It's difficult when you don't have family

> support..my husband understands

> but our grown children just seem to ignore the

> problem and never talk about

> it. Well, I'm hoping for a good day for you

> anyway..keep watching for the

> sunshine and know we are here for you...sending

> gentle hugs your

>

way..(((((((((((((((((((((((((((((((((Dana))))))))))))))))))))))))))))))...j

> udy

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hi Dana..I was diagnosed with Osteoarthritis in 1976, which may have been

hep joint pain because it was also the same time I was feeling so bad and

hurting in the liver area. That was also the first time I was checked for

gallbladder and they said it was all normal. Then I was diagnosed with

rheumatoid arthritis in 1993. The rheumatoid doctor diagnosed me with

fibromalgia just this last Feb. I never mentioned the pains to him or

suspected fibro because how could a person tell with all I had going on. He

checked the tender points and I thought he was going to kill me before he

stopped and it was then he said I had fibro. He also xrayed my knees and

said my right knee needs a total replacement but no surgeon will touch it

now. He said because my liver was so inflamed.

I just don't understand why things are moving so slow with my doctors. I

was diagnosed with chronic hep c the 26th of Dec.had the biopsy in March and

more labs and got results of those labs a couple of weeks ago, talked with

the gastroenterologist April 11th when the treatment was decided and I'm

still waiting..take care Dana...hugs.judy

[Guest guest]

Hi Dana..I was diagnosed with Osteoarthritis in 1976, which may have been

hep joint pain because it was also the same time I was feeling so bad and

hurting in the liver area. That was also the first time I was checked for

gallbladder and they said it was all normal. Then I was diagnosed with

rheumatoid arthritis in 1993. The rheumatoid doctor diagnosed me with

fibromalgia just this last Feb. I never mentioned the pains to him or

suspected fibro because how could a person tell with all I had going on. He

checked the tender points and I thought he was going to kill me before he

stopped and it was then he said I had fibro. He also xrayed my knees and

said my right knee needs a total replacement but no surgeon will touch it

now. He said because my liver was so inflamed.

I just don't understand why things are moving so slow with my doctors. I

was diagnosed with chronic hep c the 26th of Dec.had the biopsy in March and

more labs and got results of those labs a couple of weeks ago, talked with

the gastroenterologist April 11th when the treatment was decided and I'm

still waiting..take care Dana...hugs.judy

[Guest guest]

Dana.you said you were taking a multi vit.I hope not one with iron..the

liver has problems filtering iron and will hold too much in your body...judy

[Guest guest]

Dana.you said you were taking a multi vit.I hope not one with iron..the

liver has problems filtering iron and will hold too much in your body...judy

[Guest guest]

What is with the iron? My doctor is giving me vitamins with iron for low

hemogobin. Is this wrong?

Judy Mckee <tmckee@...> wrote: Dana.you said you were taking a multi

vit.I hope not one with iron..the

liver has problems filtering iron and will hold too much in your body...judy

[Guest guest]

What is with the iron? My doctor is giving me vitamins with iron for low

hemogobin. Is this wrong?

Judy Mckee <tmckee@...> wrote: Dana.you said you were taking a multi

vit.I hope not one with iron..the

liver has problems filtering iron and will hold too much in your body...judy

[Guest guest]

Check different sites on the internet.iron is hard on the liver as also too

much protein..

RE: Dana

What is with the iron? My doctor is giving me vitamins with iron for low

hemogobin. Is this wrong?

Judy Mckee <tmckee@...> wrote: Dana.you said you were taking a

multi vit.I hope not one with iron..the

liver has problems filtering iron and will hold too much in your body...judy

[Guest guest]

Check different sites on the internet.iron is hard on the liver as also too

much protein..

RE: Dana

What is with the iron? My doctor is giving me vitamins with iron for low

hemogobin. Is this wrong?

Judy Mckee <tmckee@...> wrote: Dana.you said you were taking a

multi vit.I hope not one with iron..the

liver has problems filtering iron and will hold too much in your body...judy

[Guest guest]

Hi Judy,

Sorry it took so long to get back to you. I forgot to

mention I was going on a mini, I NEED TO GET AWAY, I

AM TOO STRESSED OUT, VACATION. Just got back and am

beat. But am going through some of my mail now. You

sound like you've got as many disaters and waiting

periods as myself. The first time I went on

treatment, I was the one who pushed for it. If I had

not of, I don't think that silly doctor would of ever

put me on treatment. Now they are talking about the

peg. But the combo frightened me so bad that I am

afraid of trying the peg. I have to go to the

hematologist on Monday and get a second opion AGAIN,

on my liver in July. I just am so afraid of those

treatments now after going through it 3 times. I wish

I could wake up one day and this would all be a dream.

I know they have many treatments in the works that

have not been approved yet. I just don't like all the

side effects. I think I am in bad shape now, until I

go on treatment. They say something triggers

Fibromyalgia. Do you think that it could possibly be

Hepatitis that did it for us? I think I have decided

before I go on any other treatments, I may have

another biopsy done first. I know everyone is

different on treatment. Some don't have that hard of

a time and some do. I think that the liver will have

to frighten me enough to go back on treatment again.

And they can't tell me that without a biopsy. Hugs!

Good Luck and Pray that your treatment is easier and

heals you. Dana

--- Judy Mckee <tmckee@...> wrote:

> Hi Dana..I was diagnosed with Osteoarthritis in

> 1976, which may have been

> hep joint pain because it was also the same time I

> was feeling so bad and

> hurting in the liver area. That was also the first

> time I was checked for

> gallbladder and they said it was all normal. Then I

> was diagnosed with

> rheumatoid arthritis in 1993. The rheumatoid doctor

> diagnosed me with

> fibromalgia just this last Feb. I never mentioned

> the pains to him or

> suspected fibro because how could a person tell with

> all I had going on. He

> checked the tender points and I thought he was going

> to kill me before he

> stopped and it was then he said I had fibro. He also

> xrayed my knees and

> said my right knee needs a total replacement but no

> surgeon will touch it

> now. He said because my liver was so inflamed.

> I just don't understand why things are moving so

> slow with my doctors. I

> was diagnosed with chronic hep c the 26th of Dec.had

> the biopsy in March and

> more labs and got results of those labs a couple of

> weeks ago, talked with

> the gastroenterologist April 11th when the treatment

> was decided and I'm

> still waiting..take care Dana...hugs.judy

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________