Guest guest Posted July 31, 2007 Report Share Posted July 31, 2007 We took tour of emory walden. It looks like a very nice program. But the problem is they don't follow GFCF diet and they don't accept outside snacks except lunch. Which makes it hard to follow GFCF. Is GFCF a must with BioMedical treatment? Thanks Sri > > I would emphasize to the doctor's office that my child was only 17 mos > old...that is an important key..early bio medical intervention. I can also connect > you will moms of children dx'd and treated early that are totally recovered. > These moms are a great resource and willing to help. > > > > > > H Cale > Vice President, Unlocking Autism > www.unlockingautism.org > Manager, ARI Call Center > www.autism.com > 770.463.4475 home office > 866.366.3361 toll free > > > > > ************************************** > Get a sneak peek of the all-new AOL at > http://discover.aol.com/memed/aolcom30tour > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2007 Report Share Posted August 2, 2007 P.A. at Dr. Jeff Bradstreet's office is great. They also have a new doc, Dr. Rossignol. Their whole practice is dedicated to biomedical interventions in autism. Do yourself a favor, go to Melbourne, FL once a year and do the consults via phone. It will be worth it and you will save all the time of trying different local options. Take it from someone who's been there, done that. mom to Owen, 6, ASD, & Jordyn, 3 Get a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 Elissavery complicated questions. we went to a DAN that was a retired peds and now does DAN and allergy specialties so we had to pay up front but were reimbursed about 1/3rd of the cost. We did not need a referral and it was a PPO - dont remember witch one as we have changed jobs and things since then. my biggest help would be to find a DAN that is also a real doctor not just a nutrients etc... if you find some in your area post the names and see if anyone has personal experience and can steer you to or from any one.good luckGretaOn Sep 20, 2007, at 9:20 AM, Elissa Mercado wrote:I want to get Jennah to a DAN doctor to have all of her levels tested, to see exactly what we are dealing with and what supplements/enzymes/detox she needs. For those of you who go to a DAN doctor, does your insurance pay for it? What diagnosis does your pediatrician use when submitting the referral? What insurance company do you have? Thanks!! Elissa Check out my myspacehttp://www.myspace.com/elissamercado Chat in 3Dhttp://imvu.com/catalog/web_invitation.php?userId=12957275 & from=power-email Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2007 Report Share Posted September 27, 2007 Blue Cross PPO seems to cover a lot. We don't have that though, we have a united healthcare PPO. I think PPOs will often cover them as out of network providers, as long as they are a licensed practitioner in your state. We do phone consults with ours, I have yet to find out if my PPO will accept bills for phone consults. We pay the DAN and then submit claims to our insurance company. Insurance has covered prescriptins written by the DAN. Haven't gotten coverage for some of the labs that the DAN writes because they have to be done by a specific lab, and usually the insurance covered lab doesn't offer those kinds of specialized tests. Regular CBCs, liver checks, some other bloodwork, and thyroid panels, etc have been covered. Good luck! Jen > > I want to get Jennah to a DAN doctor to have all of her levels tested, to see exactly what we are dealing with and what supplements/enzymes/detox she needs. For those of you who go to a DAN doctor, does your insurance pay for it? What diagnosis does your pediatrician use when submitting the referral? What insurance company do you have? > Thanks!! Elissa > > Check out my myspace > http://www.myspace.com/elissamercado > > Chat in 3D > http://imvu.com/catalog/web_invitation.php? userId=12957275 & from=power-email > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2008 Report Share Posted November 28, 2008 How do you think your child got the seizures? and do you think there is permanent damage? On Nov 28, 2008, at 9:55 PM, O'Sullivan wrote: > would a DAN doctor take a patient without autism that has > epilepsy? or are we better off sticking with a traditional seizure > doctor. So far they are unable to help our son, so we are looking > for alternatives. All they want to do is try one more seizure med > (this will be his third) and then do the ketogenic which all they > keep telling us is how awful and unhealthy and difficult the diet > is. Like we don't already know that. But some support or optimism > would be nice. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2008 Report Share Posted November 28, 2008 Most doctors are not capable of giving you any support.DAN! doctors are even worse.They are quacks,and charlatans,who take advantage of desperate parents,with worthless,debilitating treatments like chelation.Most have a vested interest,in keeping the myth that vaccines cause autism alive,for their own personal profit. Any parent who takes their child to see a DAN! approved " doctor " ,needs to be reported to the authorities for child abuse! Kulp > From: O'Sullivan <cindyosullivan@...> > Subject: [ ] DAN Doctor > > Date: Friday, November 28, 2008, 8:55 PM > would a DAN doctor take a patient without autism that has > epilepsy? or are we better off sticking with a traditional > seizure doctor. So far they are unable to help our son, so > we are looking for alternatives. All they want to do is > try one more seizure med (this will be his third) and then > do the ketogenic which all they keep telling us is how awful > and unhealthy and difficult the diet is. Like we don't > already know that. But some support or optimism would be > nice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2008 Report Share Posted November 28, 2008 What type doctor are you going to? to help with seizures? Just curious. My dd has frontal love seizures but they only spike at night. During the day she seems OK, but at around 7PM she turns wild and mean. She said her brain is on fire. She never gets tired. The epileptologist wanted us to try B6 because a lot of the siezure meds make her worse. May I ask what your using. Thank You. PS. I am a newbie with a 9 y.o dd. On Nov 28, 2008, at 10:26 PM, and Kulp wrote: > Most doctors are not capable of giving you any support.DAN! doctors > are even worse.They are quacks,and charlatans,who take advantage of > desperate parents,with worthless,debilitating treatments like > chelation.Most have a vested interest,in keeping the myth that > vaccines cause autism alive,for their own personal profit. > > Any parent who takes their child to see a DAN! approved > " doctor " ,needs to be reported to the authorities for child abuse! > > Kulp > > > > > From: O'Sullivan <cindyosullivan@...> > > Subject: [ ] DAN Doctor > > > > Date: Friday, November 28, 2008, 8:55 PM > > would a DAN doctor take a patient without autism that has > > epilepsy? or are we better off sticking with a traditional > > seizure doctor. So far they are unable to help our son, so > > we are looking for alternatives. All they want to do is > > try one more seizure med (this will be his third) and then > > do the ketogenic which all they keep telling us is how awful > > and unhealthy and difficult the diet is. Like we don't > > already know that. But some support or optimism would be > > nice. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 Hi i know how you feel My daughter is 28 with autism and epilepsy. She had brain surgery in september for her seizures that were uncontrolled No doctors treat both they either treat one or the other. Alot of seizure meds made her autism worse. So far I think the Dan Doctors only are interested in proving vaccines cause autism. That is not true with all cases of autism especially my daughters. If ou just want to talk sometime let me know joni From: O'Sullivan <cindyosullivan@...> Subject: [ ] DAN Doctor Date: Friday, November 28, 2008, 9:55 PM would a DAN doctor take a patient without autism that has epilepsy? or are we better off sticking with a traditional seizure doctor. So far they are unable to help our son, so we are looking for alternatives. All they want to do is try one more seizure med (this will be his third) and then do the ketogenic which all they keep telling us is how awful and unhealthy and difficult the diet is. Like we don't already know that. But some support or optimism would be nice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 We have no idea why he is having seizures. he has had 3 MRIs, a spinal tap, probably 100 blood tests, everything comes back normal. He was a little low on zinc and maybe copper but just a point below low normal and the doctors didn't feel that was anything to worry about. It wasn't until recently we even knew he was having seizures, then they put him on keppra and they have just gone crazy. From one or two a month or week, to hundreds a day. He has failed 2 meds so far. We chose to remove him from all meds for a few days which was done in the hospital in case he had a bad seizure. Now we are just waiting to see if he gets a bit better without anything. He had a much better day today, but still had head drops but no where near the frequency the past month. He has been off his meds since Tuesday night so it has been 3 full days. Just keeping our fingers crossed and trying to follow a low glycemic diet as best we can right now. We are having great difficulty getting our doctors to support anything besides meds or the Ketogenic. But we want to try the least evasive and move up when necessary. The meds just seemed to be causing him more harm than good. But I guess only time will tell. He used to be able to walk unassisted (although he was very ataxic and would fall a lot, with very poor balance and coordination) but now he can't even walk unassisted. So we thought we would try to eliminate the only new thing, which is the meds. As for permanent damage, we have no idea. The doctors don't even know what type of epilepsy he has. He has spiking all day and night in his left temporal lobe. His right side is where we see any twitching/seizure activity and his right side is the weakest and most undcoordinated. He can't even feed himself anymore. The doctors don't know if any damage is permanent but they haven't seen anything on any of the MRIs so far. But I'm sure we will be doing another one soon. Maybe if we ever get his seizures under control. Which right now they are telling us there is only a 4% chance that meds will help and only a 20% chance the keto diet will help at all. > > > would a DAN doctor take a patient without autism that has > > epilepsy? or are we better off sticking with a traditional seizure > > doctor. So far they are unable to help our son, so we are looking > > for alternatives. All they want to do is try one more seizure med > > (this will be his third) and then do the ketogenic which all they > > keep telling us is how awful and unhealthy and difficult the diet > > is. Like we don't already know that. But some support or optimism > > would be nice. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 We have no idea why he is having seizures. he has had 3 MRIs, a spinal tap, probably 100 blood tests, everything comes back normal. He was a little low on zinc and maybe copper but just a point below low normal and the doctors didn't feel that was anything to worry about. It wasn't until recently we even knew he was having seizures, then they put him on keppra and they have just gone crazy. From one or two a month or week, to hundreds a day. He has failed 2 meds so far. We chose to remove him from all meds for a few days which was done in the hospital in case he had a bad seizure. Now we are just waiting to see if he gets a bit better without anything. He had a much better day today, but still had head drops but no where near the frequency the past month. He has been off his meds since Tuesday night so it has been 3 full days. Just keeping our fingers crossed and trying to follow a low glycemic diet as best we can right now. We are having great difficulty getting our doctors to support anything besides meds or the Ketogenic. But we want to try the least evasive and move up when necessary. The meds just seemed to be causing him more harm than good. But I guess only time will tell. He used to be able to walk unassisted (although he was very ataxic and would fall a lot, with very poor balance and coordination) but now he can't even walk unassisted. So we thought we would try to eliminate the only new thing, which is the meds. As for permanent damage, we have no idea. The doctors don't even know what type of epilepsy he has. He has spiking all day and night in his left temporal lobe. His right side is where we see any twitching/seizure activity and his right side is the weakest and most undcoordinated. He can't even feed himself anymore. The doctors don't know if any damage is permanent but they haven't seen anything on any of the MRIs so far. But I'm sure we will be doing another one soon. Maybe if we ever get his seizures under control. Which right now they are telling us there is only a 4% chance that meds will help and only a 20% chance the keto diet will help at all. > > > would a DAN doctor take a patient without autism that has > > epilepsy? or are we better off sticking with a traditional seizure > > doctor. So far they are unable to help our son, so we are looking > > for alternatives. All they want to do is try one more seizure med > > (this will be his third) and then do the ketogenic which all they > > keep telling us is how awful and unhealthy and difficult the diet > > is. Like we don't already know that. But some support or optimism > > would be nice. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 Have you ever done a hair test. Sorry if I asked already On Nov 29, 2008, at 11:37 PM, cindyosullivan wrote: > We have no idea why he is having seizures. he has had 3 MRIs, a > spinal tap, probably 100 blood tests, everything comes back normal. > He was a little low on zinc and maybe copper but just a point below > low normal and the doctors didn't feel that was anything to worry > about. It wasn't until recently we even knew he was having seizures, > then they put him on keppra and they have just gone crazy. From one > or two a month or week, to hundreds a day. He has failed 2 meds so > far. We chose to remove him from all meds for a few days which was > done in the hospital in case he had a bad seizure. Now we are just > waiting to see if he gets a bit better without anything. He had a > much better day today, but still had head drops but no where near the > frequency the past month. He has been off his meds since Tuesday > night so it has been 3 full days. Just keeping our fingers crossed > and trying to follow a low glycemic diet as best we can right now. We > are having great difficulty getting our doctors to support anything > besides meds or the Ketogenic. But we want to try the least evasive > and move up when necessary. The meds just seemed to be causing him > more harm than good. But I guess only time will tell. He used to be > able to walk unassisted (although he was very ataxic and would fall a > lot, with very poor balance and coordination) but now he can't even > walk unassisted. So we thought we would try to eliminate the only new > thing, which is the meds. > > As for permanent damage, we have no idea. The doctors don't even know > what type of epilepsy he has. He has spiking all day and night in his > left temporal lobe. His right side is where we see any > twitching/seizure activity and his right side is the weakest and most > undcoordinated. He can't even feed himself anymore. The doctors > don't know if any damage is permanent but they haven't seen anything > on any of the MRIs so far. But I'm sure we will be doing another one > soon. Maybe if we ever get his seizures under control. Which right > now they are telling us there is only a 4% chance that meds will help > and only a 20% chance the keto diet will help at all. > > > > > > > would a DAN doctor take a patient without autism that has > > > epilepsy? or are we better off sticking with a traditional seizure > > > doctor. So far they are unable to help our son, so we are looking > > > for alternatives. All they want to do is try one more seizure med > > > (this will be his third) and then do the ketogenic which all they > > > keep telling us is how awful and unhealthy and difficult the diet > > > is. Like we don't already know that. But some support or optimism > > > would be nice. > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 Seizures are very common in autism.I have a diagnosis of atypical autism/PDD.and I have three different types of combined seizures,mostly petit mal,and gelastic,without a tumor. The two usually happen together. > would a DAN doctor take a patient without autism that has > epilepsy? or are we better off sticking with a traditional seizure > doctor. So far they are unable to help our son, so we are looking > for alternatives. All they want to do is try one more seizure med > (this will be his third) and then do the ketogenic which all they > keep telling us is how awful and unhealthy and difficult the diet > is. Like we don't already know that. But some support or optimism > would be nice. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2009 Report Share Posted November 12, 2009 How old is your daughter? In any EI programs? Any supplements? Not getting proper food in her? Tammy [ ] DAN doctor Hi, I'm new to this group. My daughter has developmental delays, no other diagnosis(seems no one wants to give her one). I have taken matters into my own hands and started her on the specific carbohydrate diet. I also found a DAN doctor, and we have our first appointment next week. I wanted to know if anyone has any advice for this appointment...like what questions to ask, what to expect? Thanks, Emerson momma to 2 little girls Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2009 Report Share Posted November 12, 2009 Tammy, My daughter is 2 years old. She is only taking probiotics right now because on the SCD, you are supposed to introduce vitamins/supplements slowly. She is in week 3 of the diet. She has been receiving PT, OT, Speech, and a Special Ed. teacher once a week since she was 18 months old...made really great progress with PT(went from crawling to walking well in 2 months), good progress with OT(able to finger feed herself, but still no use of utensils, no pointing, still has some sensory issues), and Speech has yet to really produce any results(still no real words). I started her on the SCD after much research and discovering the " underground " world of biomedical intervention. Even though I don't know what exactly is going on with her(allergies, yeast, etc.), I couldn't wait a whole month before seeing the DAN doc to intervene, knowing that she was suffering. And I have seen good results so far...first formed NORMAL-smelling poop in months, increased eye contact, decreased hyperactivity, and more babbling. Just wondering what other people have experienced, what to expect, and how to prepare myself for our appointment. ANY advice helps! Thanks, Emerson momma to 2 little girls > > How old is your daughter? In any EI programs? Any supplements? Not getting proper food in her? > > Tammy > > [ ] DAN doctor > > > > Hi, > > I'm new to this group. My daughter has developmental delays, no other diagnosis(seems no one wants to give her one). I have taken matters into my own hands and started her on the specific carbohydrate diet. I also found a DAN doctor, and we have our first appointment next week. I wanted to know if anyone has any advice for this appointment...like what questions to ask, what to expect? > > Thanks, > Emerson > momma to 2 little girls > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2009 Report Share Posted November 12, 2009 That helps I think. Sorry, I personally don't use a DAN but do well with support on this board and others. I'm sure someone else can chime in with their experience. If you'd like, mention Dr and location, some one can maybe share good or bad experience. Good luck. Tammy [ ] DAN doctor > > > > Hi, > > I'm new to this group. My daughter has developmental delays, no other diagnosis(seems no one wants to give her one). I have taken matters into my own hands and started her on the specific carbohydrate diet. I also found a DAN doctor, and we have our first appointment next week. I wanted to know if anyone has any advice for this appointment...like what questions to ask, what to expect? > > Thanks, > Emerson > momma to 2 little girls > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2009 Report Share Posted November 14, 2009 A DAN doctor just (finally) moved into my city. I'm going to go talk to her, and I was wondering if you all had any advice on what to ask, what to look for, etc. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 i just started with a DAN doctor in the UK. they will guide you. i had to fill out a massive questionnaire. they will take a look at the kid (in my case he couldn't because i live in israel) and now i am starting lab tests and have started a CF/GF diet. fingers crossed and good luck.  ________________________________ From: West <shanwest@...> < > Sent: Sun, November 15, 2009 3:53:06 AM Subject: DAN doctor  A DAN doctor just (finally) moved into my city. I'm going to go talk to her, and I was wondering if you all had any advice on what to ask, what to look for, etc. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 My problem is that I don't trust doctors. So I want to know what to look for in a good one, and what are warning signs that I've found a bad one. My son has been gf since birth and cf since about 2 years old (he's 3.5 now). So at least that isn't an issue! ----- Receiving the following content ----- From: Yarkoni Receiver: Time: 2009-11-15, 10:21:11 Subject: Re: DAN doctor >i just started with a DAN doctor in the UK. they will guide you. i had to fill out a massive questionnaire. they will take a look at the kid (in my case he couldn't because i live in israel) and now i am starting lab¡¡tests and have started a CF/GF diet. fingers crossed and¡¡good luck. >¡¡ > > > > >________________________________ >From: West > >Sent: Sun, November 15, 2009 3:53:06 AM >Subject: DAN doctor > >¡¡ >A DAN doctor just (finally) moved into my city. I'm going to go talk to her, and I was wondering if you all had any advice on what to ask, what to look for, etc. > >Thanks! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 Oh I don't know,maybe if a doctor refuses to do tests,or tells you that you or  your child is making up fake illnesses and symptoms,or says (Fill in name of medical problem.) is just something that happens with autism,we don't know why,and you have to accept it. These may be signs you have a bad doctor. Another good one is I don't think you have ____________ but I am going to order the test or evaluation just to prove you wrong,and make you look like an idiot.This was just what the doctor at UNMH said to me,before he ordered my autism evaluation.                  From: West <shanwest@...> Subject: Re: DAN doctor " " < > Date: Sunday, November 15, 2009, 2:10 PM  My problem is that I don't trust doctors. So I want to know what to look for in a good one, and what are warning signs that I've found a bad one. My son has been gf since birth and cf since about 2 years old (he's 3.5 now). So at least that isn't an issue! ----- Receiving the following content ----- From: Yarkoni Receiver: Time: 2009-11-15, 10:21:11 Subject: Re: DAN doctor >i just started with a DAN doctor in the UK. they will guide you. i had to fill out a massive questionnaire. they will take a look at the kid (in my case he couldn't because i live in israel) and now i am starting lab　tests and have started a CF/GF diet. fingers crossed and　good luck. >　 > > > > >___________ _________ _________ ___ >From: West > >Sent: Sun, November 15, 2009 3:53:06 AM >Subject: DAN doctor > >　 >A DAN doctor just (finally) moved into my city. I'm going to go talk to her, and I was wondering if you all had any advice on what to ask, what to look for, etc. > >Thanks! > > > > > > Quote Link to comment Share on other sites More sharing options...
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