Re: PANDAS help! Biofilm or Antibiotics???

[Guest guest]

Alisa,

My DAN doctor suggested I give my 3.5 year old daughter a new treatment called

KIB500 http://www.kib500.com/. It's a somewhat revolutionary product that claims

to wipe out viruses and yeast immediately. The beauty of it, it requires no

more

than two kits taken over two days and tastes like water. KIB500 was

developed in

the UK. They shipped it to me in Israel within one week. I gave my daughter the

two rounds they suggested only yesterday and the day before and have not

yet shared my experience with the forum because I am waiting to see if her

major

self-stimming behavior, bloated stomach and frequent night wakings improve. I

will also do stool tests again in the next month or two to check

results. There

isn't a huge amount of info about them on the web but I emailed a woman there

called carol.white@....

Good luck and I will keep you posted.

 

________________________________

From: Alisa Ackerman <clarkalisa@...>

biomedheads ; ;

abmd ; beyondgfcf ; taca-usa ;

autism treatment ; RecoveryFromAutism

Sent: Thu, July 29, 2010 12:56:33 AM

Subject: PANDAS help! Biofilm or Antibiotics???

 

Hi all,

I posted recently about a sudden onset of OCD behavior, nightmares and sleep

disturbance, emotional outbreaks, etc.

Some of you smart folks said it sounded like PANDAS and after consulting w/ DAN,

looks like you are right! (no, we haven't tested yet, we will)

Jumping into trying to learn all I can. Scary stuff. Particularly because we are

seizure prone and I feel like I'm also seeing signs of absence seizures --

anybody know if there's a strong connection?

Would REALLY APPRECIATE any words of wisdom re. treatment choices. Our DAN is

recommending an aggressive biofilm protocol as it can eventually kill it off and

will also help w/ yeast. We've been doing a much milder version of this biofilm

for several years with good results. (see below - I listed full details in case

it is helpful to any of you too!)

Choice A/

Low dose antibiotics: He is allergic to penecillin AND all sulfa based drugs, so

that rules a lot out. Are there any antibiotics anybody knows of that are GOOD

for STREP and also not too hard on the tummy? (yeast is a problem here, too)

Choice B/

Increased/aggressive biofilm protocol - 2 x a day:

    1- SPS, PRX, Lumbrokinase, Candex (1 hour after food)

    2- Antiviral botanicals and herbs (w/ a little food) :

    Myrhh

    Skullcap

    Biocidin

    Cats Claw

    Oregon Grape

    Argentyn

    CoQ10

    Cell Food

    Dandelion Root

    Grapefruit Seed Extract

    Boswellia

    Quercetin

    Curcumin

    Olive Leaf Extract

    Imu-Max

    Argentyn

    Pau D'Arco

    D Hist

    Intestinal

    Paracae Forte

    Sinutrol

    Golden Seal

    Garlic

   

    Alternate these 7**

    Plan Tannins **

    Uva Ursi**

    Tricyclene**

    Monolaurin**

    Elderberry**

    Caprillic Acid**

    Neem**

       3- Mop it up with 2 Citrus Pectin & 1 Bicarb / or 2 Activated

Charcoal (1

hour after above)

THANKS FOR ANY INPUT!!!!

Alisa

[Guest guest]

My daughter had pandas.

It went away all by itself. If you have sudden onset whole body

twitching writhing speech shouting etc which you have never had before

then it is just like us and it went away by itself. Google Sydenhams

Chorea for a good description. I was terrified and weeping, it seemed

like the end of our lives.

Came over night. Came for a week and went away. Came for a fortnight and

went away. Went away for six months and came back briefly. Went away for

a year and came back briefly. Went away.

No treatment whatsoever.

I'm always concerned that heavy/aggressive treatments produce changes

and problems in themselves that stop you from seeing what is happening

with the underlying situation.

just my 2 cents

Sally

Alisa Ackerman wrote:

> Hi all,

>

> I posted recently about a sudden onset of OCD behavior, nightmares and sleep

disturbance, emotional outbreaks, etc.

>

> Some of you smart folks said it sounded like PANDAS and after consulting w/

DAN, looks like you are right! (no, we haven't tested yet, we will)

>

> Jumping into trying to learn all I can. Scary stuff. Particularly because we

are seizure prone and I feel like I'm also seeing signs of absence seizures --

anybody know if there's a strong connection?

>

> Would REALLY APPRECIATE any words of wisdom re. treatment choices. Our DAN is

recommending an aggressive biofilm protocol as it can eventually kill it off and

will also help w/ yeast. We've been doing a much milder version of this biofilm

for several years with good results. (see below - I listed full details in case

it is helpful to any of you too!)

>

> Choice A/

> Low dose antibiotics: He is allergic to penecillin AND all sulfa based drugs,

so that rules a lot out. Are there any antibiotics anybody knows of that are

GOOD for STREP and also not too hard on the tummy? (yeast is a problem here,

too)

>

> Choice B/

> Increased/aggressive biofilm protocol - 2 x a day:

>

> 1- SPS, PRX, Lumbrokinase, Candex (1 hour after food)

> 2- Antiviral botanicals and herbs (w/ a little food) :

> Myrhh

> Skullcap

> Biocidin

> Cats Claw

> Oregon Grape

> Argentyn

> CoQ10

> Cell Food

> Dandelion Root

> Grapefruit Seed Extract

> Boswellia

> Quercetin

> Curcumin

> Olive Leaf Extract

> Imu-Max

> Argentyn

> Pau D'Arco

> D Hist

> Intestinal

> Paracae Forte

> Sinutrol

> Golden Seal

> Garlic

>

> Alternate these 7**

> Plan Tannins **

> Uva Ursi**

> Tricyclene**

> Monolaurin**

> Elderberry**

> Caprillic Acid**

> Neem**

>

> 3- Mop it up with 2 Citrus Pectin & 1 Bicarb / or 2 Activated Charcoal

(1 hour after above)

>

> THANKS FOR ANY INPUT!!!!

> Alisa

>

>

>

>

>

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

>>Are there any antibiotics anybody knows of that are GOOD for STREP and also

not too hard on the tummy?

I eliminated strep here with OLE.

Dana

[Guest guest]

we just ordered some supplements from maxamlabs to go after strep.

BSAID is supposed to go after latent residual viruses. We ordered bioguard

for candida

did you say oil of oregano for candida and olive leaf extract for strep?

Lin

[Guest guest]

Alisa,

Which anti-viral herbs and botanicals did you use? I saw the list of things you

were using...but was unsure if it was part of the days supps or the antiviral

things you were using.

Thanks

Ronni

>

> Hi all,

>

> I posted recently about a sudden onset of OCD behavior, nightmares and sleep

disturbance, emotional outbreaks, etc.

>

> Some of you smart folks said it sounded like PANDAS and after consulting w/

DAN, looks like you are right! (no, we haven't tested yet, we will)

>

> Jumping into trying to learn all I can. Scary stuff. Particularly because we

are seizure prone and I feel like I'm also seeing signs of absence seizures --

anybody know if there's a strong connection?

>

> Would REALLY APPRECIATE any words of wisdom re. treatment choices. Our DAN is

recommending an aggressive biofilm protocol as it can eventually kill it off and

will also help w/ yeast. We've been doing a much milder version of this biofilm

for several years with good results. (see below - I listed full details in case

it is helpful to any of you too!)

>

> Choice A/

> Low dose antibiotics: He is allergic to penecillin AND all sulfa based drugs,

so that rules a lot out. Are there any antibiotics anybody knows of that are

GOOD for STREP and also not too hard on the tummy? (yeast is a problem here,

too)

>

> Choice B/

> Increased/aggressive biofilm protocol - 2 x a day:

>

>     1- SPS, PRX, Lumbrokinase, Candex (1 hour after food)

>     2- Antiviral botanicals and herbs (w/ a little food) :

>     Myrhh

>     Skullcap

>     Biocidin

>     Cats Claw

>     Oregon Grape

>     Argentyn

>     CoQ10

>     Cell Food

>     Dandelion Root

>     Grapefruit Seed Extract

>     Boswellia

>     Quercetin

>     Curcumin

>     Olive Leaf Extract

>     Imu-Max

>     Argentyn

>     Pau D'Arco

>     D Hist

>     Intestinal

>     Paracae Forte

>     Sinutrol

>     Golden Seal

>     Garlic

>    

>     Alternate these 7**

>     Plan Tannins **

>     Uva Ursi**

>     Tricyclene**

>     Monolaurin**

>     Elderberry**

>     Caprillic Acid**

>     Neem**

>

>        3- Mop it up with 2 Citrus Pectin & 1 Bicarb / or 2 Activated Charcoal

(1 hour after above)

>

> THANKS FOR ANY INPUT!!!!

> Alisa

>