Guest guest Posted April 5, 2010 Report Share Posted April 5, 2010 Has anyone else been told that repeated high porphyrins combined with otherwise unexplained GI symptoms,chronic malutrition or failure to thrive,and ascites,are a possible sign of metabolic liver disease ? I was told this when I went in on Friday.In fact,the doctor went so far as to say,that this might be a " new " type of metabolic liver disease.If this is the case then an awful lot of those with " autism " have the very same thing. When I asked my last Dr. (You know who.) why my porphyrins were so high,he simply shrugged his shoulders,and said " who knows " .I think for many children on the spectrum,with GI disease,and high porphyrins,metabolic liver disease would be a lot more reasonable explanation than mercury in vaccines.It would certaily explain the continued high porphyrins in children who have been on chelation for a while.Somebody once said to me if all porphyrins are consisteinly high,this means a genetic,not environmental,reaon why. I don't think I ought to tell my doctors,that I was chelating,and stopped,and that these more recent test were done weeks after I stopped chelating.Would porphyrins that are caused by metabolic disease respond to chelation,albeit temporarily? I wonder if doctors who have not looked at this as a possible explanation,have not because they are trying to prove,or are going by Wakefield,and antivaccine dogma,conciously or not.Are there those,especially parents,who would oppose or deny this as an explanation of their children's problems,even if it were true,because they are so devoted to vaccines as an explanation? Why would they want to test my blood levels of creatine as well ? I see that autoimmune liver disease can cause " whole body " joint pain,what about metabolic? I was tested years ago for CF and Alpha-1,and I do not have either of them. Quote Link to comment Share on other sites More sharing options...
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