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Hi all... I'm sure by now most of you know that I had my surgery 8

weeks. myotomoy with a partial wrap. I've been doing much better the

last 2 weeks but today I had some trouble swallowing. This was the

first day that things seem to get stuck. Anyone else find they have

days like that after surgery?

I'm a little nervous that it's going to come back full force!

Debbie in NJ

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Debbie - I have had some "stickage" all along. I think I have zero peristalsis. I just drink & it goes down. I am able to drink more now, which helps, too. But I would still put myself at a 90% improvement. Cindi

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---Thanks Cindi,

I know what you mean about the sticking. I've had that too and with

a few sips it went down but today was worse than it's been since the

surgery.

I'm hoping it's just one of those days and tomorrow will be back to

the way it was. I am much improved from before the surgery also. I

think I will be nervous about eating for the rest of my life.

I know I have 0 peristalsis. I was told that after my motility test.

It's just gravity taking the food down now. I just don't want to

address the possiblity of needing another procedure if things start

getting worse.

Thanks for aswering so quickly.

Deb

> Debbie - I have had some " stickage " all along. I think I have zero

> peristalsis. I just drink & it goes down. I am able to drink more

now,

> which helps, too. But I would still put myself at a 90%

improvement. Cindi

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Hi Debbie,

I had the myotomy with a partial wrap well over a year ago, and now

and then I feel like I'm having a bit of trouble swallowing. Every

time I panic, and sart fretting that it's coming back, but I've

learned that you have mostly good days, some bad days, and

invariably, with a glass of water you'll have no trouble!

All the best,

Guy,

Melbourne

> Hi all... I'm sure by now most of you know that I had my surgery 8

> weeks. myotomoy with a partial wrap. I've been doing much better

the

> last 2 weeks but today I had some trouble swallowing. This was

the

> first day that things seem to get stuck. Anyone else find they

have

> days like that after surgery?

> I'm a little nervous that it's going to come back full force!

> Debbie in NJ

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I certainly have anxiety about eating now, too, Debbie. Especially since I can eat more types of foods. For example, I used to love salads, but I have a mental block against them now! lol! I'm working on that.

I certainly think stress aggravates it & I also have worse days when I'm under stress. Hang in there & keep a glass of water nearby. Cindi

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---Hi Cindi,

That's so funny that you mention salad. I've been hesitant to eat

them also. I don't even know why. I had no more trouble with that

than I did with anything else before the surgery. The only things I

found really hard to swallow were sandwhiches and white meat

Chicken. I haven't had that yet and honestly I'm not missing them

much. LOL

I don't go anywhere without a bottle of water. I've done that for the

last 7 years. When I had spasms before (being told it was reflux),

drinking water would make it go away immediately. It just became a

habit. The water doesn't make them go away anymore but, I would panic

without my water bottle. Especially at meal times now.

Debbie

> I certainly have anxiety about eating now, too, Debbie. Especially

since I

> can eat more types of foods. For example, I used to love salads,

but I have

> a mental block against them now! lol! I'm working on that.

>

> I certainly think stress aggravates it & I also have worse days

when I'm

> under stress. Hang in there & keep a glass of water nearby. Cindi

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In a message dated 6/8/2004 8:21:22 AM Eastern Daylight Time, cindiscandles@... writes:

certainly have anxiety about eating now, too, Debbie. Especially since I can eat more types of foods. For example, I used to love salads, but I have a mental block against them now! lol! I'm working on that.

I certainly think stress aggravates it & I also have worse days when I'm under stress. Hang in there & keep a glass of water nearby. Cindi

Cindi,

Gosh, I'm so glad I'm not the only one who has gotten kind of "weird" about not eating things that they used to love. Without any treatment of dysphasia right now, I look at things like salads, fresh fruit and veggies that I used to LOVE and just run in the opposite direction away from them now!

The fear of choking on them or them getting stuck is just too real and frightening.

Even if I were to be diagnosed with achalasia, had a myotomy,etc., I think for the rest of my life, there will be some types of foods I will probably avoid.

Sounds ridiculous, I know.

But it just doesn't seem worth worrying about. As long as I'd be (hopefully) able to eat most things I miss, like hamburgers and pizza?

Jan in Northern KY

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  • 1 year later...

In a message dated 11/30/2005 7:54:48 PM Eastern Standard Time,

writes:

I have times where it's hard to swallow, and I have times when I

choke, but other times I'm fine.

HELLO, I was having trouble swallowing, and a full/swollen feelling of my

neck in the front.... bloodwork also showed i had LOW IRON, it went away with

iron pills daily.... that is a symptom listed for low iron levels, never

knew.... best to u... c

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In a message dated 12/5/2005 1:08:30 P.M. Eastern Standard Time,

FindItOnTheNet@... writes:

have times where it's hard to swallow

I do this also ..and its scary ...but I never have trouble swallowing food

or something to drink ...but I have to concentrate on the actual act of

SWALLOWING .....sounds silly ...but what I am saying is I can't swallow

sometimes

....just to swallow ....I CAN swallow something ..but its hard to just swallow

spit ! Sorry ...couldn't think of any other way to put it !!! Beating around

the bush is driving me nuts ..so I said it ....SPIT ! lol K

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In a message dated 12/5/2005 11:43:39 P.M. Eastern Standard Time,

planetzz@... writes:

So, hang in there; it should get better with treatment!

Thanks ! It has gotten somewhat better since I've started treatment ,

when it first started it did frighten me ....thanks ! KAT

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I, too have had this difficulty, as has my mother, who also has Lyme. For

me, it's as though I sometimes feel uncertain that I will be able to swallow

properly - there is a lot of fear and anxiety and it then manifests as being

very very conscious of the act of chewing and/or swallowing. It's very

creepy, and has gotten better with treatment. I still have it sometimes,

but it is few and far between compared to how it was a year ago. I used

occassionally choke sometimes, as well. I know that swallowing problems are

an issue for Lyme patients as I've seen it on various symptom

questionairres. So, hang in there; it should get better with treatment!

Re: [ ] Re: trouble swallowing

>

> In a message dated 12/5/2005 1:08:30 P.M. Eastern Standard Time,

> FindItOnTheNet@... writes:

>

> have times where it's hard to swallow

>

>

> I do this also ..and its scary ...but I never have trouble swallowing

> food

> or something to drink ...but I have to concentrate on the actual act of

> SWALLOWING .....sounds silly ...but what I am saying is I can't swallow

> sometimes

> ...just to swallow ....I CAN swallow something ..but its hard to just

> swallow

> spit ! Sorry ...couldn't think of any other way to put it !!! Beating

> around

> the bush is driving me nuts ..so I said it ....SPIT ! lol K

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  • 3 years later...

My son who is 6.5 high functioning PDD-NOS recently developed a

trouble swallowing, stating that his throat hurts. He is on various

supplements including NDF+ for a natural chelation. A couple of

months ago he had a surgery on his head, related to him falling down.

His doctor doesn't see anything wrong with his throat and he eats fine

yogurts, puddings or any liquid.

The problem first appeared after the surgery, but no anywhere near as

severe as now and then went away until about a week ago. We are

thinking it might be psychological.

Did anybody experienced anything similar with their children?

Regards,

Vitaly

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I would look into anything he is ingesting that could be causing acid reflux.

Your son's complaints sound alot like those of a friend's child.

B

[ ] Trouble swallowing

My son who is 6.5 high functioning PDD-NOS recently developed a

trouble swallowing, stating that his throat hurts. He is on various

supplements including NDF+ for a natural chelation. A couple of

months ago he had a surgery on his head, related to him falling down.

His doctor doesn't see anything wrong with his throat and he eats fine

yogurts, puddings or any liquid.

The problem first appeared after the surgery, but no anywhere near as

severe as now and then went away until about a week ago. We are

thinking it might be psychological.

Did anybody experienced anything similar with their children?

Regards,

Vitaly

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