Guest guest Posted January 8, 2001 Report Share Posted January 8, 2001 Very much familiar, and probably the single most effective means of relieving any autistic symptoms and seizures Kathy [ ] GFCF Diet Hi Everyone, I just read about a little boy whose seizures have been controlled using this diet. It is also used to help with autism and pdd. Is anyone familiar with it? http://www.gfcfdiet.com/ _ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2001 Report Share Posted January 8, 2001 Hi Kathy, Could you tell me more when you have a chance? I had never heard of it before except for Celiac disease. Thanks, > Very much familiar, and probably the single most effective means of relieving any autistic symptoms and seizures > Kathy > [ ] GFCF Diet > > > Hi Everyone, > I just read about a little boy whose seizures have been controlled using this diet. It is also used to help with autism and pdd. Is anyone familiar with it? > > > http://www.gfcfdiet.com/ > eGroups Sponsor > > > _ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2001 Report Share Posted January 8, 2001 There is much on the vastness of this diet that would or twoud be great for a lot of people, even people with schizo tendancies, autism and of course most neurological dysfunctions, ie even epilepsy and MS etc. The theory being that glutenous grains and cassein proteins are not being broken down in the gut (probably consequences of heavy metals) and therfore are perturbing the Central Nervous system, as in neuropeptides irritating opiod receptors (the same receptors that are " irritated in cocaine addicts " ). No wonder a person can hallucinate, see things, hear things LOL. Not funny really. The point being, there may be several mechanisims for this demise, that being leaky gut, damage of epilethial tissues (from vaccines most likely), mercury poisining, immune system deregulation, sulphar detox pathway problems, malabsorption, nutrient loss, oxidative stress, problems with TH1 and TH2 response (immune pole system), food allergies, pesticides, flouride and the host of other bad food stuffs. Not to mention Candida as the result of all this damage. You can read a lot about it in ketogenic pages etc as well as autism pages. There are also list on egroups for gluten and cassein free dieters. I belive it also disrupts the flow of nutrients and energy to the brain, therefore it's ties to epilepsy. Energy metabolism is major screwed by it as well, resulting in acidosis states etc. Some have even gone so far as to take even lutein out of the diet (see saras diet.com). Kathy [ ] GFCF Diet >> >> >> Hi Everyone, >> I just read about a little boy whose seizures have been controlled >using this diet. It is also used to help with autism and pdd. Is >anyone familiar with it? >> >> >> http://www.gfcfdiet.com/ >> eGroups Sponsor >> >> >> _ >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 Thanks Kathy for all the info. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 <A HREF= " http://www2.mailordercentral.com/glutenfree " >Click here: Gluten Free Pantry</A> <A HREF= " http://www.geocities.com/HotSprings/Spa/4003/gf-index.html " >Click here: Gluten-Free Foods/Products</A> <A HREF= " http://www.geocities.com/HotSprings/Spa/4003/gf-index.html " >Click here: Gluten-Free Foods/Products</A> , these are the two places I know of. Hope they help. Gail does anyone know a good online store to buy gfcf items? just got his blood work back and he is not celiac but does react very high to wheat and diary products so i think i am going to try the diet. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 www.missroben.com is a wonderful site. I just got a bunch of milkfree things there for Rose. Good prices, good selection (with clear ingredient lists), good timing on shipment. CK, Mom to Ian (2/89), (9/90), and Rose (6/94) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2001 Report Share Posted April 20, 2001 > does anyone know a good online store to buy gfcf items? just got > his blood work back and he is not celiac but does react very high to > wheat and diary products so i think i am going to try the diet. Thanks > - what type of blood test did you ask to have to find this out? did the Dr. give you a hard time? Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2001 Report Share Posted April 20, 2001 , I went to a holistic Dr. I wanted tested to see if certian foods might possibly have a factor in some of his behaviors. He had to draw about 3 vial of blood. and it cost 220.00 not paid by ins. but we'll try eliminating the food that he definatly had a reaction to and see what happens. He was off the scale with the gluten stuff and scored high with the dairy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 I have been trying to keep Rochelle off of Dairy for the past month or so. But we've had some mistakes. Does the introduction of Dairy have more side effects if you have been off it for some weeks? She had Pizza and Sherbert at school and she has been up since 1:30 am. She may be coming down with a cold which started the morning after she was mistakenly given chocolate milk at school. I haven't been very militant about the diet but will start packing her lunch starting next week. BTW I told the school Pizza was ok this Friday because we had screwed up all week so I figured we'd start fresh Saturday at home. Just wondering what you all think? Diane (mom to Rochelle ds-5 and Danny 7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 I don't know. sorry I don't have any more infor rebecca --- dben937342@... wrote: > I have been trying to keep Rochelle off of Dairy for > the past month or so. > But we've had some mistakes. Does the introduction > of Dairy have more side > effects if you have been off it for some weeks? She > had Pizza and Sherbert at > school and she has been up since 1:30 am. She may be > coming down with a cold > which started the morning after she was mistakenly > given chocolate milk at > school. I haven't been very militant about the diet > but will start packing > her lunch starting next week. BTW I told the school > Pizza was ok this Friday > because we had screwed up all week so I figured we'd > start fresh Saturday at > home. Just wondering what you all think? > > Diane (mom to Rochelle ds-5 and Danny 7) > > > [Non-text portions of this message have been > removed] > > > -------------------------------------------------- > Checkout our homepage for information, > bookmarks, and photos of our kids. Share favorite > bookmarks, ideas, and other information by including > them. Don't forget, messages are a permanent record > of the archives for our list. > > -------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2001 Report Share Posted December 19, 2001 Thank you for your responses. I'll definitely look into it. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 Hi Rea, A source that I like for diet info is a book titled Feast Without Yeast by Bruce Semon. It makes diet changes in stages and gives shopping lists. Another useful book is Special Diets for Special Kids. Removing vinegar and malt which is Dr. Semon's first stage made a big difference for our son. We are also gluten free with reduced dairy using Kirkman enzymes for dairy and phenols. A+ Kids Tutti Frutti fish oil 1 tsp at night mixed with juice also made a tremendous difference along with the organic chemical free diet. Our son was SO hyperactive and impulsive before we made diet and supplement changes. He is a calmer, healthier, happier child who is able to interact with other children and adults in a way that he was not able prior to " cleaning " our diet. We are working hard at getting the yeast cleared so we can chelate. We are working with a naturopathic physician in Cleveland OH. Be patient with yourself. It is best to make changes one at a time to help you determine what works and what does not work for your child. Things sometimes get worse before they get better. When we started yeast treatment, our son's behavior became very aggressive. Best wishes, > > Hi!!! My name is Rea Im a Stay @ home mom of 3 kids all under 5 , my > eldest , 5 y/o was diagnosed with HFA by the Drake Institute of > Behavioral Medicine although his Pediatrician, Neurologist, > Psychiatrist told us that it is ADHD. I refused to give my son any > medication, i want to try other options before resorting into that. > I've been searching the internet for way on how to help him and i come > across this through one of the group that i joined. I surely will > like to try this , actually im willing to try anything (except meds) > to help my son reach his maximum potential...Any information on the > GFCF diet will be greatly appreciated. > > Thanks, > Rea > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 Congratulations for resisting the pressure to medicate. As Breggin writes in his book " Talking Back to Ritalin " , (paraphrasing) if the attention problem in a child is due to a thyroid condition, then it's not ADHD and should not be treated with Ritalin. It's a thyroid disorder and should be treated with thyroid medication. If it's lead poisoning causing attention problems, then it's not ADHD either and should not be treated with Ritalin and so on and so forth. I believe the same could be said for mercury intoxication. It's a medical condition requiring a medical approach- not a dangerous psych drug based on unproven " genetic brain chemical imbalance theories " . We're really concerned that schools may begin to coerce this option more and more as Teenscreen type programs (http://www.psychtruth.org and http://www.teenscreentruth.com ), which target preschoolers as well as teens, are instituted in many schools. Some schools are telling the program organizers to bug off, but too many are allowing the screening programs in. I believe that ASD is also now a major target of overdrugging since - as I just learned- drug companies may now legally peddle antipsychotics for kids with " symptoms of ASD " (not even the disorder, just the " symptoms " ?). The drug companies are so excited that they're finally beyond indemnity to peddle these drugs for ASD-like traits in kids that they're coming out with truly psycho promotions, like " Risperdal legos " and " Risperdal popcorn " . It's sick. Today our language-delayed toddler just reached the " 1000% improvement " mark on language development in just three months on the GF/CF diet and with just the unprofessional " speech enrichment " support of two affectionate teenage " mother's helpers " who understood that our son had probably been poisoned. And we haven't even begun chelation yet, we're just supplementing and being scrupulous in avoiding dairy and gluten. The change in him was radical and almost immediate once we began the diet. For other kids it can be a slower change, but many parents report huge changes. So congrats also for finding this site. I'm just a beginner in the area of diet/chelation/supplementation but the people here are really well informed and can offer options and reports on current treatments. Best of luck. > > Hi!!! My name is Rea Im a Stay @ home mom of 3 kids all under 5 , my > eldest , 5 y/o was diagnosed with HFA by the Drake Institute of > Behavioral Medicine although his Pediatrician, Neurologist, > Psychiatrist told us that it is ADHD. I refused to give my son any > medication, i want to try other options before resorting into that. > I've been searching the internet for way on how to help him and i come > across this through one of the group that i joined. I surely will > like to try this , actually im willing to try anything (except meds) > to help my son reach his maximum potential...Any information on the > GFCF diet will be greatly appreciated. > > Thanks, > Rea > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2009 Report Share Posted June 29, 2009 Hi , I'm all for trying anything that makes sense and for some of our kids I think the GFCF diet can help. I'm not sure that I agree with you on how many children it helps as my experience has been the opposite. I know of about 8 children who have been on the diet and only 2 groups of parents saw a noticeable improvement. We went the whole DAN Dr. route with testing and supplements as well as diet but for our guy there was little to no improvement. I know this is only a very small number of people and I'm not trying to say the diet doesn't work. It may help, it may not but in my opinion it is worth a shot. I would do it again because you never know if your kid could be one of the ones it helps. Kellie From: nancy cook <endofautism@...>autism Sent: Monday, June 29, 2009 3:18:03 PMSubject: Re: tried them all Hi,GFCFSF does not have to be expensive and it's been proven that 91% of spectrum kids improve when we cut out gluten, casein and soy. Go to www.tacanow. org and follow the links for GFCFSF on a budget. It can be done and I can almost guarantee (at least 91%, that is) that it will make a difference. Good Luck Cook, TACAnot professional, just a grandma From: pkuenstleraol (DOT) com <pkuenstleraol (DOT) com>Subject: Re: tried them allAutismBehaviorProbl emsgroups (DOT) comDate: Monday, June 29, 2009, 8:46 AM Well, none of those meds helped Karac either. It sounds like youhave done it all except the diet. Pat K I am frustrated!good morning all. My son, Ricky is suppossed to be up and ready to go to his summer program right now. He absolutely refusing to get up and get ready. It is only 8:10 am and he is already defiant and nasty. I usually have to bribe him in order to get up. That didn't even work this morning. What do you all do when your child refuses to do something? Time out and taking things away don't work. I have made the decision to place him in residential treatment. Fortunately the treatment home is only around the corner from where i live. Thanks if you read this far. I can get kinda wordy sometimes.____________ _________ _________ __Finding the best videos just got easier. Try the NEW Truveo.com. Finding the best videos just got easier. Try the NEW Truveo..com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2009 Report Share Posted June 30, 2009 We did gf/cf on two occaisions for dietry problems (namely constant dirrorhea) and although it did help the dietry probs it did nothing for the autism. We were strict and had few infringements. I only wish it had because it made me feel as though I was doing something usefull. I am frustrated!good morning all. My son, Ricky is suppossed to be up and ready to go to his summer program right now. He absolutely refusing to get up and get ready. It is only 8:10 am and he is already defiant and nasty. I usually have to bribe him in order to get up. That didn't even work this morning. What do you all do when your child refuses to do something? Time out and taking things away don't work. I have made the decision to place him in residential treatment. Fortunately the treatment home is only around the corner from where i live. Thanks if you read this far. I can get kinda wordy sometimes.____________ _________ _________ __Finding the best videos just got easier. Try the NEW Truveo.com. Finding the best videos just got easier. Try the NEW Truveo..com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 My son has been gfcfsf for 4 1/2 years and still his progress is very slow. I read stories of kids speaking in full sentences after the diet, but that was not our outcome. What am I missing? -Undiagnosed Asperger's Syndrome Stay at home mom to 3, Wife to -6-6-02-Autism Spectrum, the light of my life Katy-11-19-03-undiagnosed genetic syndrome that includes cleft palate-Pierre Robin Sequence, scoliosis, heart defects, short stature, low muscle tone, developmental delay, oral defensiveness, g tube fed part time-working on oral feeding, slightly dysmorphic features, and my joy J.D-no issues except he is totally in love with mommy, cutest baby in the world visit my blog http://busiestmommyinamerica.blogspot.com " If you think my hands are full, you should see my heart! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Well, there could be a lot of things. First thing that comes to mind is that GFCFSF is usually considered a " foundation diet " these days, meaning many if not most kids need more modification than that. He may have a problem with oxalates, phenols, amines, or have other food allergies. GFCFSF tends to be high in the refined carbs, and in my son this would negate the benefits- when we went on a version of SCD called GAPS he was catapulted off of the spectrum. We had done a lot to address yeast and other dysbiosis before, and thought we saw lots of die-off and improvement before switching diets, but we were blwon away by how much yeast and other stuff there still was to die-off when we eliminated the starches on SCD. I would recommend reading " Nourishing Hope for Autism " by s, I think it is the best discussion out there about how to tweak the diet to work best for your kid. -Sierra > > My son has been gfcfsf for 4 1/2 years and still his progress is very slow. I read stories of kids speaking in full sentences after the diet, but that was not our outcome. What am I missing? > > -Undiagnosed Asperger's Syndrome > Stay at home mom to 3, Wife to > -6-6-02-Autism Spectrum, the light of my life > Katy-11-19-03-undiagnosed genetic syndrome that includes cleft palate-Pierre Robin Sequence, scoliosis, heart defects, short stature, low muscle tone, developmental delay, oral defensiveness, g tube fed part time-working on oral feeding, slightly dysmorphic features, and my joy > J.D-no issues except he is totally in love with mommy, cutest baby in the world > visit my blog http://busiestmommyinamerica.blogspot.com > " If you think my hands are full, you should see my heart! " > > > > > Quote Link to comment Share on other sites More sharing options...
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