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Jeannette,

Self talk happens in many (probably a majority) of our kids/adults. I don't

know of any articles, but I've watched on the downs lists and I know about Jan

and others. Yes, it is an issue that we work on. I regularly remind Jan of a

young woman she bunked with many times at SO state games. That woman (who had

DS) literally ran a soap opera through ther head and would walk up sto strangers

and say that ' had stolen her purse.' It really disturbed Jan, but she does

serious self-talk herself

The source, as I see it, is isolation. In spite of inclusion or whatever, our

kids feel isolated and have the need for someone the admire to talk to. Jan's

self talk (in so far as I can get her to level with me about who she is talking

to) is with various stong people who don't have to deal with consellors and

advisors. Top of the list are WWF characters and other TV people like Zena.

The list, of course, varies over the years.

I don't know a clear answer. Self talk provides a social outlet that isn't met

by NDA peers, parents, or others. We try to get Jan to stay focused on whom she

is with and to limit self talk to private times. Many of us do a little of it,

but not to the level of those with DS.

The one common element I see is resentment for all the people surrounding our

kids who are 'in charge' and 'bossy' because they are trying to help. Look at

your inclusion environment and see if this is greater or less than a placement

with functional peers. There are no simple answers. Jan is rather clear in

this area. She really resents her younger brother moving to an advisory role.

Fortunately, he understands and has retreated to a 'little brother' role.

BTW, the young woman who had the soap opera running is reputedly much better.

She's moved out of her home where she was isolated for hours with only TV while

her Mom and brother had jobs providing recreation for people with DD's. Now she

is out of that isolated environment and living in a group environment with

peers that she can relate to.

It is all complicated, but sometimes you need to try to see things as your child

does, not as society in general judges them.

Rick ......... dad to 28 year old Jan

ANGEL2COOK@... wrote:

> HI all,

> I am in need of the article on self talk. I know it is posted somewhere but

> can't remember where. The school all of a sudden noticed my 14 year old self

> talks. I guess that's what happens when you finally get him included, they

> notice your kid.

> Please email the group or me.

> thank you

> Jeannette

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Jeannette,

Self talk happens in many (probably a majority) of our kids/adults. I don't

know of any articles, but I've watched on the downs lists and I know about Jan

and others. Yes, it is an issue that we work on. I regularly remind Jan of a

young woman she bunked with many times at SO state games. That woman (who had

DS) literally ran a soap opera through ther head and would walk up sto strangers

and say that ' had stolen her purse.' It really disturbed Jan, but she does

serious self-talk herself

The source, as I see it, is isolation. In spite of inclusion or whatever, our

kids feel isolated and have the need for someone the admire to talk to. Jan's

self talk (in so far as I can get her to level with me about who she is talking

to) is with various stong people who don't have to deal with consellors and

advisors. Top of the list are WWF characters and other TV people like Zena.

The list, of course, varies over the years.

I don't know a clear answer. Self talk provides a social outlet that isn't met

by NDA peers, parents, or others. We try to get Jan to stay focused on whom she

is with and to limit self talk to private times. Many of us do a little of it,

but not to the level of those with DS.

The one common element I see is resentment for all the people surrounding our

kids who are 'in charge' and 'bossy' because they are trying to help. Look at

your inclusion environment and see if this is greater or less than a placement

with functional peers. There are no simple answers. Jan is rather clear in

this area. She really resents her younger brother moving to an advisory role.

Fortunately, he understands and has retreated to a 'little brother' role.

BTW, the young woman who had the soap opera running is reputedly much better.

She's moved out of her home where she was isolated for hours with only TV while

her Mom and brother had jobs providing recreation for people with DD's. Now she

is out of that isolated environment and living in a group environment with

peers that she can relate to.

It is all complicated, but sometimes you need to try to see things as your child

does, not as society in general judges them.

Rick ......... dad to 28 year old Jan

ANGEL2COOK@... wrote:

> HI all,

> I am in need of the article on self talk. I know it is posted somewhere but

> can't remember where. The school all of a sudden noticed my 14 year old self

> talks. I guess that's what happens when you finally get him included, they

> notice your kid.

> Please email the group or me.

> thank you

> Jeannette

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My daughter doesn't do this and none of her friends with DS that I know do

this, I have seen a few adults with DS in their workplace exhibiting this

trait. I have read many articles about self talk and I know it is an issue

for many. Many medical professionals are unaware of this problem and adults

get overloaded with medications because doctors think psychosis is involved.

Joan Medlen of Disabilities Solutions did quite a write up in one of her

issues. Try this link and then search the issues.

<A HREF= " http://www.disabilitysolutions.org/ " >Disability Solutions: A Resource

for Families and Others Interested in Down

Syn</A>

If I remember correctly, the theory is that many people who are self talking

are actually rationalizing out loud. While we think to ourselves, they

don't. Some create a fantasy world and are relating events in that. Perhaps

they are safer there than in the real world. Or perhaps the fantasy world is

more active than their real world. Whatever the case, while professionals

that have studied this feel it is nothing to be alarmed about, I have seen

how uncomfortable the non DS population is when they see it happening. A

habit like this could interfere with social life and jobs. It would probably

be best to encourage your child to limit their self talk to home, if possible.

Good luck.

Cheryl in VA

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My daughter doesn't do this and none of her friends with DS that I know do

this, I have seen a few adults with DS in their workplace exhibiting this

trait. I have read many articles about self talk and I know it is an issue

for many. Many medical professionals are unaware of this problem and adults

get overloaded with medications because doctors think psychosis is involved.

Joan Medlen of Disabilities Solutions did quite a write up in one of her

issues. Try this link and then search the issues.

<A HREF= " http://www.disabilitysolutions.org/ " >Disability Solutions: A Resource

for Families and Others Interested in Down

Syn</A>

If I remember correctly, the theory is that many people who are self talking

are actually rationalizing out loud. While we think to ourselves, they

don't. Some create a fantasy world and are relating events in that. Perhaps

they are safer there than in the real world. Or perhaps the fantasy world is

more active than their real world. Whatever the case, while professionals

that have studied this feel it is nothing to be alarmed about, I have seen

how uncomfortable the non DS population is when they see it happening. A

habit like this could interfere with social life and jobs. It would probably

be best to encourage your child to limit their self talk to home, if possible.

Good luck.

Cheryl in VA

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still has a group of friends he sometimes talks to but I have

no idea who they are, he just laughs when I ask him, and it is only done when

he is alone, never when others are around. I do catch him at it

occasionally. My daughter (nonds) had some friends from a TV show when she

was little and they were rather weird. One kid was 6 feet tall but could go

under the bathroom door. I always liked that one. Of course, I talk to

animals, trees, garden plants, the cat who walks around on my TV screen,

etc. and sometimes even to myself. So I can't say much. I don't usually do

it in public either. Jessie

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still has a group of friends he sometimes talks to but I have

no idea who they are, he just laughs when I ask him, and it is only done when

he is alone, never when others are around. I do catch him at it

occasionally. My daughter (nonds) had some friends from a TV show when she

was little and they were rather weird. One kid was 6 feet tall but could go

under the bathroom door. I always liked that one. Of course, I talk to

animals, trees, garden plants, the cat who walks around on my TV screen,

etc. and sometimes even to myself. So I can't say much. I don't usually do

it in public either. Jessie

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There are people who do not talk to themselves???

granny

---

" O mankind! We created you from a single (pair) of a male and a

female, and made you into nations and tribes, that ye may know each

other ... " al-Qur'an 49:13

http://www.bspyle.com/granny.html

Re: Re: self talk

> still has a group of friends he sometimes talks to but I

have

> no idea who they are, he just laughs when I ask him, and it is only done

when

> he is alone, never when others are around. I do catch him at it

> occasionally. My daughter (nonds) had some friends from a TV show when

she

> was little and they were rather weird. One kid was 6 feet tall but could

go

> under the bathroom door. I always liked that one. Of course, I talk to

> animals, trees, garden plants, the cat who walks around on my TV screen,

> etc. and sometimes even to myself. So I can't say much. I don't usually

do

> it in public either. Jessie

>

>

>

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There are people who do not talk to themselves???

granny

---

" O mankind! We created you from a single (pair) of a male and a

female, and made you into nations and tribes, that ye may know each

other ... " al-Qur'an 49:13

http://www.bspyle.com/granny.html

Re: Re: self talk

> still has a group of friends he sometimes talks to but I

have

> no idea who they are, he just laughs when I ask him, and it is only done

when

> he is alone, never when others are around. I do catch him at it

> occasionally. My daughter (nonds) had some friends from a TV show when

she

> was little and they were rather weird. One kid was 6 feet tall but could

go

> under the bathroom door. I always liked that one. Of course, I talk to

> animals, trees, garden plants, the cat who walks around on my TV screen,

> etc. and sometimes even to myself. So I can't say much. I don't usually

do

> it in public either. Jessie

>

>

>

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HI

I found all the articles on self talk at www.google.com and typed in self

talk down syndrome.

Thanks to everyone for their help. Yes, the on at disabilities solutions

seemed to be the best and was the one I was looking for.

Granny to answer your question--Why are the teachers even asking about people

that talk to themselves!!

Besides whatever I say to myself IS a private conversation so why are they

listening!!

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HI

I found all the articles on self talk at www.google.com and typed in self

talk down syndrome.

Thanks to everyone for their help. Yes, the on at disabilities solutions

seemed to be the best and was the one I was looking for.

Granny to answer your question--Why are the teachers even asking about people

that talk to themselves!!

Besides whatever I say to myself IS a private conversation so why are they

listening!!

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Re: Re: self talk

> Granny to answer your question--Why are the teachers even asking about

people

> that talk to themselves!!

Darn right! Same thing is true for our kids! Me? I think better when I think

out loud. I'm sure does as well.

granny

---

" O mankind! We created you from a single (pair) of a male and a

female, and made you into nations and tribes, that ye may know each

other ... " al-Qur'an 49:13

http://www.bspyle.com/granny.html

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Re: Re: self talk

> Granny to answer your question--Why are the teachers even asking about

people

> that talk to themselves!!

Darn right! Same thing is true for our kids! Me? I think better when I think

out loud. I'm sure does as well.

granny

---

" O mankind! We created you from a single (pair) of a male and a

female, and made you into nations and tribes, that ye may know each

other ... " al-Qur'an 49:13

http://www.bspyle.com/granny.html

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  • 1 year later...

This is very common among our kids/adults with down syndrome. The

challenge is to keep it within acceptable bounds. No, it isn't a sign

that our kids are crazy or hallucinating. Many of us without DS also

occasionally self talk, but we are more discrete.

That said, there are extremes. I know one young woman who literally had

a soap opera running through her head. She was the daughter of a very

involved Mom and brother who made their cause working in recreation for

the developmentally disabled. That unfortunately left the young woman

living at home and very isolated with many, many days having only TV to

socialize with. I understand that she is much better since she got into

a day program and may have moved into a group home.

Jan does a lot of self-talk and talking to the TV. Our challenge is to

see that her behaviour is approprate when she is with others. Reminding

Jan of the above young woman helps because they were roommates at S.O

summer games a number of times and the self-talk upset Jan. Still, when

Jan is in her apartment by herself, she's the one in control.

Like it or not, many of our kids live more isolated lives than is we'd

like for them (isolation can happen in families or in school or almost

anywhere). Many of our kids self-isolate in their behaviour because

they aren't comfortable dealing with social activities. There's been a

good discussion of that in the last couple of days.

The challenge we all have is the balance between spending all of our

lives in their support and allowing both us (and them) to have some life

of our own as well.

Rick .... dad to 30 year old Jan

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OK..I will admit to this. When I was working with my SIL I would be left

by myself allot of the time. Being a social person I LOVE to talk..... (

just ask Gail hehehe :) ) so I would find myself chatting back to the radio.

When I am " void " mode, you know when your brain goes sorta dead?, well

anyway, when the newsman on the tele says hello or goodnight, I

sometimes answer him.Makes my hubby laugh.....

I also apperently talk allot in my sleep, and I Also talk to myself

allot..........BJ has an imaginary friend that he talks to.

>

>

> Jan does a lot of self-talk and talking to the TV. O

--

Leis....mum to 5 & Natasha 11 months

The time you enjoy wasting is not wasted time.

Bertrand (1872 - 1970)

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I think everyone in our house talks to ourselves. My daughter had

imaginary playmates for a long time. I talk to pets, of course, trees,

furniture, the TV almost anything you can think of. Pets respond pretty

well. used to come home, sit down and look around, then say, " Hi,

Guys " . I'd ask about the guys but he would just grin. He still does it some

but not in public, so it's not a problem. Certainly not around here.

Jessie

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  • 3 months later...
Guest guest

> Did that really work?? Saying things like that out loud to

yourself?

> Hmmmmmmm - -

>

> Believe me - BFL made a HUGE difference in my life - I have lost

> about 30 pounds using the techniques Bill teaches. WHile there IS

> room for improvement on my part - maybe some aspects of the look I

> think I want are not realistic and maybe I am being TOO hard on

> myself. I am trying to get that through my thick skull - but man is

> it hard!

>

> Thanks for posting what you did - I don't feel so much like a

weirdo

> anymore!

>

> B

It really helped! I remember years ago reading some diet book and it

was saying how we always tell ourselves " I won't eat chocolate..I

won't... " And it suggsted instead thinking or saying " I will eat

good, I will stay on plan " and it helps focus on the positive

aspects.

Colleen

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  • 6 years later...
Guest guest

Hi Folks, my son (3 yr on ASD) has been self talking and pretending something

all the time. Right when he gets up, he just starts on his own. Sometimes we can

understand as it's from one of those cartoon shows, but sometimes no idea what

he is doing. It's extremely difficult to make him focus on anything.

What could be the issue? Is it yeast, parasite or viral issue? or is he lacking

somemthing in nutrition. He is on all the enzymes, probiotics, supplements, GSE.

Thanks,

Rishi

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Guest guest

> Hi Folks, my son (3 yr on ASD) has been self talking and pretending something

all the time.

> What could be the issue? Is it yeast, parasite or viral issue?

For my son, this was eliminated with anti-virals, anti-fungals, and B12.

Dana

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Guest guest

B12 shots or pills?

> > Hi Folks, my son (3 yr on ASD) has been self talking and pretending

something all the time.

> > What could be the issue? Is it yeast, parasite or viral issue?

>

>

> For my son, this was eliminated with anti-virals, anti-fungals, and B12.

>

> Dana

>

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