Question for Dana

[Guest guest]

That fact that the behavior is cyclical seems to go with the

bacterial/viral growth cycle. Although our gains were limited until we

fixed his gut permeability issues.

Fri, 2007-08-17 at 09:21 -0400, Sissy Estep wrote:

> I doubt it's seasonal allergies but I suppose it's possible. He

> improves over a 2-4 week period, then regresses and stays in the

> regressed state for 4-6 months. If it were allergies I would think we

> would have longer periods of improvement and shorter periods of

> regression.

>

> We used the high dose vitamin A protocol 2 years ago with absolutely

> no effect. His DAN! doc just told us to cut back on the CLO because

> his serum vitamin A is too high. This would seem to indicate that we

> aren't dealing with a viral issue. His rubella titers are abnormally

> high though and he became autistic after his first MMR. This makes me

> think there is a viral issue. ($#%!) We tried virastop and Kirkman's

> enzymes and my son got such a bad rash and fever that we had to stop.

> It lasted for 2 weeks until we stopped the enzymes. He was literally

> ripping his skin apart from the itching and crying nonstop. We tried

> to add virastop back in a week ago and my son became very aggressive

> and agitated so I stopped it again. I never know when to push farther

> or stop before I hurt my child. I'm considering doing the vitamin A

> protocol again but am hesitant since my son's vitamin A levels are

> high. I don't want to overdose him.

>

> Interestingly, the burst of speech back in April began immediately

> after I started giving him Kirkman enzymes with each meal. After a

> couple of weeks the progress leveled off and then he began regressing

> again even though I was still giving him the enzymes. What the heck

> does that mean? Even our DAN! doc has no clue what to do. I'm so

> frustrated and feel like I'm stumbling around in the dark!

>

> Sissy

>

> Re:Question for Dana

>

>

>

> > Every few months we see improvement and become hopeful only to watch

> Colin

> dissapear again a few weeks later.

>

> Could seasonal allergies play a role? My son is allergic to pollen and

> mold, but to be

> honest I'm not sure what role this plays. In her book " Is This Your

> Child " Doris Rapp has

> some amazing stories of how allergies can affect people.

>

> But I second Dana's suggestion about antivirals. This summer I am

> gradually adding some,

> and in recent days my son has said a few things that have stopped me

> in my tracks:

>

> * " Mommy, wait for me! " (Whoa, was that *my* son???)

> * Yesterday he pointed out that I drove to the wrong supermarket, and

> then teased me

> for it. Seemed totally age-appropriate. (He's 5 1/2.)

> * The other day I told him there were flying pigs outside the window.

> He laughed and

> said: " Nooooo! Pigs don't fly. Airplanes fly. And helicopters and

> birdies! "

> * After dinner the other day he said, " My stomach hurts. " Why?

> " Because I ate too much. "

> He still wanted dessert, though....

>

> This blows me away. Antivirals rock! But keep an eye on that yeast.

> -Ann

>

>

[Guest guest]

We do open the capsules and mix the powder with mashed banana. Did your child

get the rash with virastop and if so, how long did it go on?

Re:Question for Dana

>

>

>

> > Every few months we see improvement and become hopeful only to watch

> Colin

> dissapear again a few weeks later.

>

> Could seasonal allergies play a role? My son is allergic to pollen and

> mold, but to be

> honest I'm not sure what role this plays. In her book " Is This Your

> Child " Doris Rapp has

> some amazing stories of how allergies can affect people.

>

> But I second Dana's suggestion about antivirals. This summer I am

> gradually adding some,

> and in recent days my son has said a few things that have stopped me

> in my tracks:

>

> * " Mommy, wait for me! " (Whoa, was that *my* son???)

> * Yesterday he pointed out that I drove to the wrong supermarket, and

> then teased me

> for it. Seemed totally age-appropriate. (He's 5 1/2.)

> * The other day I told him there were flying pigs outside the window.

> He laughed and

> said: " Nooooo! Pigs don't fly. Airplanes fly. And helicopters and

> birdies! "

> * After dinner the other day he said, " My stomach hurts. " Why?

> " Because I ate too much. "

> He still wanted dessert, though....

>

> This blows me away. Antivirals rock! But keep an eye on that yeast.

> -Ann

>

>

[Guest guest]

We followed the instructions from the enzymestuff website. We've never had

parasites show up in any of our son's tests. Lots of yeast, which is a constant

battle. I wonder if I should try the virastop again or the vitamin A protocol.

----- Original Message -----

[Guest guest]

Since you saw such a strong reaction the last time I would suggest the

Virastop. Our son never had a yeast problem (he is on a low sugar diet

which we feel keep it in check) but the Virastop really did kick up the

yeast. (So did the die off of the parasite). I would suggest that you

make sure the yeast is under control before starting the Virastop and

have the emergency plan for a full yeast outbreak. You will just have

to be on your toes for yeast and a strong reaction. Sometimes the second

time around it is easier. you know what to expect and look for. It makes

it easier to get the dosing right.

On Fri, 2007-08-17 at 12:55 -0400, Sissy Estep wrote:

> We followed the instructions from the enzymestuff website. We've never

> had parasites show up in any of our son's tests. Lots of yeast, which

> is a constant battle. I wonder if I should try the virastop again or

> the vitamin A protocol.

>

> ----- Original Message -----

>

>

>

[Guest guest]

> We used the high dose vitamin A protocol 2 years ago with absolutely

no effect. His DAN! doc just told us to cut back on the CLO because

his serum vitamin A is too high.

High dose vitamin A is good to eliminate measles virus. If you have

high serum vitamin A, then it did eliminate the measles virus. Once

my son was rid of measles virus, and his body converted carotenes

[which required several supplements], I was no longer able to give any

supplemental vitamin A.

>>This would seem to indicate that we aren't dealing with a viral issue.

I did high dose vitamin A protocol. It eliminated measles virus and

maybe others. Then I did OLE/Virastop, which eliminated even more

viruses. Then I added high dose vitamin C, which pulled out even more

viruses. Then I did high dose lysine, which eliminated even more viruses.

Don't stop at just the vitamin A.

>>We tried virastop and Kirkman's enzymes and my son got such a bad

rash and fever that we had to stop. It lasted for 2 weeks until we

stopped the enzymes. He was literally ripping his skin apart from the

itching and crying nonstop. We tried to add virastop back in a week

ago and my son became very aggressive and agitated so I stopped it again.

I did almost 2 years of OLE before I added Virastop. Try OLE, vitamin

C, and lysine for a while, before trying Virastop.

>>I'm considering doing the vitamin A protocol again but am hesitant

since my son's vitamin A levels are high. I don't want to overdose him.

Based on my son's experience, don't do it again. He doesn't need it.

> Interestingly, the burst of speech back in April began immediately

after I started giving him Kirkman enzymes with each meal. After a

couple of weeks the progress leveled off and then he began regressing

again even though I was still giving him the enzymes. What the heck

does that mean?

The enzymes addressed one issue but not others.

Dana

[Guest guest]

> Hi Dana,

> I thought I read in another post, that you didn't have a DAN Dr.

when you started out with your children (not sure if you ever used one).

Never used a doctor.

> My question is, what tests if any did you do not your kids to

monitor there vitamin levels etc.? Did you pay for private lab test

from Great Plains etc.?

No tests, I just " tested by observation " .

> I give my 6 yr. old non-verbal Autistic son NCD 2x per day (so far

13 drops a.m./12 drops p.m. only adding 1 drop per week)/3 packets of

Threelac per day/just started Trienza Enzymes/will be adding the anti

fungal rotation this week for yeast. (We also do Neurofeedback 2 x

per week for the past 1 1/2 yrs. which has fixed his sleep issues).

> I like to go slow with him.

Not sure if you are asking another question or not. What are his

current issues that you are trying to address?

For speech, I wrote what my son needed here

http://www.danasview.net/issues.htm

Dana

[Guest guest]

Hi Dana,

Thanks for your reply.

I am trying to figure all this out by books and these groups, cannot afford

the DAN Dr. in my area (he wants $1000 before I could even make the appt.) along

with all his private therapies.

I have never given my son any vitamins, I am always nervous about vitamin

toxicity.

His " stim " for the longest time, was tapping two things together, we just

realized that he has cut back on that the past few days (not completely). Now I

noticed he is back to looking at magazines (Motor Trend, National Geographic and

the newspapers) when he is excited, he has been sticking his tongue out and

mouthing with it, then he tends to need to grab someones arm, hand etc. (Aside

from being non-verbal Autistic, he has apraxia).

I also noticed that even though his BM's have been getting more regular, they

are still really dry and thick looking.

I am not sure if this is all due to yeast or if I need to introduce a vitamin.

If I do introduce a vitamin, is there any testing I can do to monitor him?

In your opinion, is a multi-vitamin a good place to start with him?

Thank you!

Kelley

danasview <danasview@...> wrote:

> Hi Dana,

> I thought I read in another post, that you didn't have a DAN Dr.

when you started out with your children (not sure if you ever used one).

Never used a doctor.

> My question is, what tests if any did you do not your kids to

monitor there vitamin levels etc.? Did you pay for private lab test

from Great Plains etc.?

No tests, I just " tested by observation " .

> I give my 6 yr. old non-verbal Autistic son NCD 2x per day (so far

13 drops a.m./12 drops p.m. only adding 1 drop per week)/3 packets of

Threelac per day/just started Trienza Enzymes/will be adding the anti

fungal rotation this week for yeast. (We also do Neurofeedback 2 x

per week for the past 1 1/2 yrs. which has fixed his sleep issues).

> I like to go slow with him.

Not sure if you are asking another question or not. What are his

current issues that you are trying to address?

For speech, I wrote what my son needed here

http://www.danasview.net/issues.htm

Dana

---------------------------------

You rock. That's why Blockbuster's offering you one month of Blockbuster Total

Access, No Cost.

[Guest guest]

> Dana I need your advice. My son about a month ago had canker sores in

> his mouth and I posted and you said to give him lysine. I did and they

> seemed to go away.

I had to give lysine for 8 months. The mouth sores went away within

the first week or so, but the rest of the herpes virus took longer to

leave.

Also, you might need to increase the yeast protocol. Lysine causes

herpes die off, and that tends to cause yeast.

Dana

[Guest guest]

Hi Dana-

My son is going through long episodes again, of high pitched screaming

while covering his ears, combativeness, and spitting. He is currently

on Trienza, P5P, mitococktail, Vital Spectrum (multi), Carnitine, TMG,

magnesium, folic, biotin, and GSE. You suggested in a recent message to

me to consider increasing his biotin b/c of his reliance on GSE. I

increased him to 1000 mcg (500 mcg twice a day) two days ago. I still

need to remove his GSE (he is currently on 6 drops twice a day.). Do

you think that his episodes reflect that bad bacteria has taken over b/c

of being on GSE too long? I saw that you mentioned OLE as something

that could help with this, on another message. Do you think this is

something to consider? Could you explain me what OLE is and what

kinds of things it helps with? Where can you get OLE?

I have looked at the Culturelle (sp?) at the stores, but I only can

find the product with dairy and soy in it. Is there another form of it

that does not contain these ingredients?

Also, do you think I should increase his carnitine intake to help with

his spitting. Right now he gets 1.27 g (1,270mg) per day. He is 51 lbs.

How much do you think he should/could take?

I also was considering pulling out the Virastop for him to see if it

would help.

We seem to have a pattern: things start improving, then he regresses and

we have to shift in another direction. I guess that's just the nature

of what we are dealing with.

Sorry for all the questions, but everything you suggest seems to help

him to improve. :-)

Thank you so much,

Leigh

[Guest guest]

> Hi Dana-

> My son is going through long episodes again, of high pitched screaming

> while covering his ears, combativeness, and spitting.

At my house, the first symptom meant yeast overgrowth, combativeness

was caused by a few things, and spitting [and playing with the saliva]

was caused by carnitine deficiency.

>>He is currently

> on Trienza, P5P, mitococktail, Vital Spectrum (multi), Carnitine, TMG,

> magnesium, folic, biotin, and GSE. You suggested in a recent message to

> me to consider increasing his biotin b/c of his reliance on GSE. I

> increased him to 1000 mcg (500 mcg twice a day) two days ago.

Be sure to consider increasing the magnesium also.

I still

> need to remove his GSE (he is currently on 6 drops twice a day.). Do

> you think that his episodes reflect that bad bacteria has taken over b/c

> of being on GSE too long?

Possibly, except for the ear covering. He might have both yeast

overgrowth AND bad bacteria overgrowth.

>>I saw that you mentioned OLE as something

> that could help with this, on another message. Do you think this is

> something to consider? Could you explain me what OLE is and what

> kinds of things it helps with? Where can you get OLE?

OLE is anti-viral and anti-bacterial, so if he has a bad bacteria

problem, OLE can help. I used Natural Factors brand from my local

health food store.

> I have looked at the Culturelle (sp?) at the stores, but I only can

> find the product with dairy and soy in it. Is there another form of it

> that does not contain these ingredients?

Culturelle contains trace amounts of milk. However, for bad bacteria

problems, it is the best probiotic. If you can't use it tho, you need

to find something else.

> Also, do you think I should increase his carnitine intake to help with

> his spitting. Right now he gets 1.27 g (1,270mg) per day. He is 51 lbs.

> How much do you think he should/could take?

You can try increasing it and see if that helps.

> I also was considering pulling out the Virastop for him to see if it

> would help.

You can try this, or just reduce the dose for a week, see if things

get better.

Dana