Guest guest Posted December 16, 2008 Report Share Posted December 16, 2008 try dr. lynch in northhampton, MA. he is very good here is the website http://www.northamptonwellness.com/ darshana > > Does anyone know of any doctors in New England who helps to sort > through all this stuff? My son is 9 with high functioning asd and > gastrointestinal problems, food aversion, food sensitivities, and > tics/seizures that just started when we went off of the SCD diet due > to not enough caloric intake because is becoming sensitive to > everything he eats. Has had an upper endoscopy and has inflammation, > bumps, ulcers and flattened villi. Doctors at Children's hospital > have not said too much...I'm waiting a month between each appointment > and don't know when it will be pulled together if ever. Looking into > Celiac, Eosinophilic Gastroenteritis, and going to be seeing a > genetisist for a possible Mitochondrial disorder? He is very high > functioning and doesn't appear as autistic as he was when he was > little but food issues and gi problems continue. I wonder if we are > going to get anywhere at Children's. I am discouraged right now. > One thing I know is that when we tried an amino acid based elemental > formula to get his calorie intake up he went bonkers and developed > eye tics that look like possible petit mal siezures, they stopped > when we stopped the formula but are starting up again...probably > because he is eating tapioca/rice bread which is not SCD compliant. > I have never looked into finding a DAN doctor but I am feeling that > he needs one. Sorry so long...needed to talk... > Quote Link to comment Share on other sites More sharing options...
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