Guest guest Posted December 15, 2008 Report Share Posted December 15, 2008 Does anyone know of any doctors in New England who helps to sort through all this stuff? My son is 9 with high functioning asd and gastrointestinal problems, food aversion, food sensitivities, and tics/seizures that just started when we went off of the SCD diet due to not enough caloric intake because is becoming sensitive to everything he eats. Has had an upper endoscopy and has inflammation, bumps, ulcers and flattened villi. Doctors at Children's hospital have not said too much...I'm waiting a month between each appointment and don't know when it will be pulled together if ever. Looking into Celiac, Eosinophilic Gastroenteritis, and going to be seeing a genetisist for a possible Mitochondrial disorder? He is very high functioning and doesn't appear as autistic as he was when he was little but food issues and gi problems continue. I wonder if we are going to get anywhere at Children's. I am discouraged right now. One thing I know is that when we tried an amino acid based elemental formula to get his calorie intake up he went bonkers and developed eye tics that look like possible petit mal siezures, they stopped when we stopped the formula but are starting up again...probably because he is eating tapioca/rice bread which is not SCD compliant. I have never looked into finding a DAN doctor but I am feeling that he needs one. Sorry so long...needed to talk... Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.