Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first DAN doc prescribed them, I got them in and couldn't do it. My current doc convinced me and we have been doing it for 3 weeks. It is tough!! We use the lidocaine patch and ice, but he tells me how much it hurts every time (he never complains about anything!).The reason I am posting this is that even through all that, it is SOOOO worth it. He has improved so much I can't believe it. One of his therapists is actually talking about having him reassessed to change his diagnosis from AS to PDD. I know it is not one single thing but everything we have been doing, but WOW! P.S. If anyone has any other ideas of how to get around giving the shot or making it easier, I am open to suggestions! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 The MB12 shots were a disaster here at first w tons of aggression. Neither folic nor folinic acid helped w this. They only seemed to aggravate things. When we switched the folate form to 5methyltetrahydrofolate[also know as folapro]we had success. It took a few weeks of 'loading' - only giving the folapro - before the MB12 was well tolerated. > > > > I have to continually fool around with my MB12 dosing,in order to control my " metabolic strokes " .Initially it made them worse.What kind of a reactions did he have? > > > > > >  > > > ____________ _________ _________ __ > > From: sebrown1126a <sarabrown@ ..> > > > > Sent: Fri, February 12, 2010 6:20:56 AM > > Subject: Re: B-12 shots > > > So might it be possible that MTHFR mutations do not always indicate a need for MB12, but might indicate another problem along the folate pathway? My son did HORRIBLY on MB12. It was actually a nightmare. He was one of the very few who don't respond (but he has responded to other stuff, thankfully!) We threw in folinic acid too, and it got even worse. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 Andy tells us that too much B12 causes aggression. Maybe your son has had his fill. Also, B12 caused a great increase in yeast for my daughter. > > > > I have to continually fool around with my MB12 dosing,in order to control my " metabolic strokes " .Initially it made them worse.What kind of a reactions did he have? > > > > > >  > > > ____________ _________ _________ __ > > From: sebrown1126a <sarabrown@ ..> > > > > Sent: Fri, February 12, 2010 6:20:56 AM > > Subject: Re: B-12 shots > > > So might it be possible that MTHFR mutations do not always indicate a need for MB12, but might indicate another problem along the folate pathway? My son did HORRIBLY on MB12. It was actually a nightmare. He was one of the very few who don't respond (but he has responded to other stuff, thankfully!) We threw in folinic acid too, and it got even worse. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2010 Report Share Posted July 8, 2010 The B12 shots caused serious behavior problems for my daughter (the shot itself is not the problem but the aftermath). So her new doctor suggested trying the transdermal (compounded) mb12, a very small amount at a time and increasing gradually. And oh my gosh, the wonderful changes have me stunned. EVERY day happy, cheery, calm, tuned-in, chatty, not the usual ups and downs. Started with 1 drop in January and just this week have worked up to 5 drops. > > Just want to hear the group's opinion: > Have methyl-cobalamine shots been helpful with your kids? Are this safe on a mercury toxic kid? > Regards, > Isa > > Enviado desde mi oficina móvil BlackBerry® de Telcel > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2010 Report Share Posted July 8, 2010 Hi, If you could tell me (off-list if you prefer) who is your MD and what is the name of the compounded cream//where to get it from? Thank you Isa Enviado desde mi oficina móvil BlackBerry® de Telcel [ ] Re: B-12 shots The B12 shots caused serious behavior problems for my daughter (the shot itself is not the problem but the aftermath). So her new doctor suggested trying the transdermal (compounded) mb12, a very small amount at a time and increasing gradually. And oh my gosh, the wonderful changes have me stunned. EVERY day happy, cheery, calm, tuned-in, chatty, not the usual ups and downs. Started with 1 drop in January and just this week have worked up to 5 drops. > > Just want to hear the group's opinion: > Have methyl-cobalamine shots been helpful with your kids? Are this safe on a mercury toxic kid? > Regards, > Isa > > Enviado desde mi oficina móvil BlackBerry® de Telcel > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2010 Report Share Posted July 10, 2010 sure, hope it helps lots. nancy j a child is diagnosed with asd every 20 seconds From: wiersmak <wiersmak@...> Subject: [ ] Re: B-12 shots Date: Saturday, July 10, 2010, 8:08 AM  Thank You! Karla > > > > > > > > > > > > > > > > > > > > > > > > > > > From: isaguzmandiaz2@ <isaguzmandiaz2@> > > > > > > > > > > > > > > Subject: [ ] B-12 shots > > > > > > > > > > > > > > " Autism mercury group " < > > > > > > > > > > > > > > > Date: Wednesday, July 7, 2010, 8:15 PM > > > > > > > > > > > > > > Just want to hear the group's > > > > > > > > > > > > > > opinion: > > > > > > > > > > > > > > Have methyl-cobalamine shots been helpful with your > > > > > > > > > > > > > > kids? Are this safe on a mercury toxic kid? > > > > > > > > > > > > > > Regards, > > > > > > > > > > > > > > Isa > > > > > > > > > > > > > > > > > > > > > > > > > > > > Enviado desde mi oficina móvil BlackBerry® de Telcel > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > > > > > > > > > > > > > > > > > > > ======================================================= > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2010 Report Share Posted July 10, 2010 Hi , I am sure you can help me in these. Is there any site or place to view previous DAN! conferences and speakers and their presentations(I can buy it too)? Thanks, Sasmita > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > From: isaguzmandiaz2@ <isaguzmandiaz2@> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Subject: [ ] B-12 shots > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > " Autism mercury group " < > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Date: Wednesday, July 7, 2010, 8:15 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Just want to hear the group's > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > opinion: > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Have methyl-cobalamine shots been helpful with your > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > kids? Are this safe on a mercury toxic kid? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Regards, > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Isa > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Enviado desde mi oficina mÃÆ'³vil BlackBerry® de Telcel > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ======================================================= > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2010 Report Share Posted July 10, 2010 If you go to ARI, Generation Rescue, and the other folks who sponsor the conferences, you can search their archives. The usually allow you to download conference info for free since it's old. Also, if you know the docs that presented, ie. Dr. Rossignol, Dr. Kartzinel, Dr. Woeller, etc. you can go to their websites and they usually have papers listed for download too. They are usually free. It's amazing how generous most of the autism specialists are. If you need to pay it will be minimal, maybe $10. nancy j a child is diagnosed with asd every 20 seconds From: Sasmita <sasmitamishra15@...> Subject: [ ] Re: B-12 shots Date: Saturday, July 10, 2010, 4:04 PM  Hi , I am sure you can help me in these. Is there any site or place to view previous DAN! conferences and speakers and their presentations(I can buy it too)? Thanks, Sasmita > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > From: isaguzmandiaz2@ <isaguzmandiaz2@> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Subject: [ ] B-12 shots > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > " Autism mercury group " < > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Date: Wednesday, July 7, 2010, 8:15 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Just want to hear the group's > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > opinion: > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Have methyl-cobalamine shots been helpful with your > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > kids? Are this safe on a mercury toxic kid? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Regards, > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Isa > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Enviado desde mi oficina mÃÆ'³vil BlackBerry® de Telcel > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ======================================================= > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.