Important survey on seizures for ALL ASD kids

[Guest guest]

Bradford,

Would you post this study in the ASA email update?

Thanks,

Suzanne

Autism research study - Need input from parents of kids with or without seizures

I am writing on behalf of Dr. Frye, a pediatric neurologist and research

scientist at the UT Health Science Center in Houston. He has developed an online

survey for parents of children with autism which inquires about seizures in

children on the autism spectrum (see message from Dr. Frye below, with links to

the IRB-approved survey). If you are able, would you please forward this message

to your email listserves, bring to your support group meetings, post to your

website, or include the link in any newsletters that are published? Thank you

for your support, and if you have any questions, please feel free to email me at

lauren.dowell@....

Dowell, M.S.

Research Associate

Department of Pediatrics

UT Health Science Center - Houston

Title: Survey on treatment for children with autism with and without seizures

Dear Autism family,

There is little understanding of the treatments that help control seizures and

seizure-like activity in children with autism. To help understand which

treatments are effective for controlling seizures, seizure-like activity and

subclinical epileptiform discharges in autism Dr. Frye has developed a

relatively easy to complete on-line seizure survey for parents with children

with autism spectrum disorder with and without seizures to complete. It is

important that we obtain information about individuals without seizures, so that

we can determine whether treatments affect individuals with and without seizures

differently.

If your son/daughter (or you) is on the autism spectrum, regardless of whether

you have clinical seizures, subclinical epileptiform discharges or seizure-like

activity, we would like to ask you to fill out a survey created by Dr.

Frye. We think that this very detailed survey will provide a much richer

understanding of the efficacy and possible side-effects of current treatments

for seizures.

Please help us by filling out the survey and by forwarding information about

this survey to other autism groups.

For individuals with seizures, subclinical epileptiform discharges or

seizure-like activity, please use the following link:

http://www.surveymethods.com/EndUser.aspx?EBCFA3B1ECACBAB8

For individuals without seizures, subclinical epileptiform discharges or

seizure-like activity, please use the following link:

http://www.surveymethods.com/EndUser.aspx?92B6DAC895D7C5C2

Thank you very much for helping us find answers to seizures in autism.

Sincerely,

E. Frye, M.D., Ph.D., F.A.A.P.

Assistant Professor of Pediatrics and Neurology University of Texas-Houston

Dowell, M.S.

Research Associate

Department of Pediatrics

UT Health Science Center - Houston

lauren.dowell@...