Mono

[Guest guest]

In a message dated 8/22/99 10:23:37 AM, SAWalter@... writes:

<< I am also wondering if any of you have

any history of Mono? >>

Yes,I had mono when I was 18 years old!

Diane

[Guest guest]

Hi Diane,

I was 18 too! I just wondered if that was something in common

with those who have the auto immune problems.

Lee Ann

Re: [ ] mono

From: Targa99@...

In a message dated 8/22/99 10:23:37 AM, SAWalter@...

writes:

<< I am also wondering if any of you have

any history of Mono? >>

Yes,I had mono when I was 18 years old!

Diane

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[Guest guest]

I had mono also, at age 15.

Marie

[Guest guest]

Yes I had mono when I was around 14, was out of school for a month

[Guest guest]

Hi Diane,

I was diagnosed with mono at the tender age of 7!

Seems many auto immune sufferers have this in their medical history.

Barbara

Lee Ann Walter wrote:

> From: " Lee Ann Walter " <SAWalter@...>

>

> Hi Diane,

> I was 18 too! I just wondered if that was something in common

> with those who have the auto immune problems.

>

> Lee Ann

>

> Re: [ ] mono

>

> From: Targa99@...

>

> In a message dated 8/22/99 10:23:37 AM, SAWalter@...

> writes:

>

> << I am also wondering if any of you have

> any history of Mono? >>

>

> Yes,I had mono when I was 18 years old!

>

> Diane

>

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> Sponsor ----------------------------

>

> ONElist members: don't miss out on the latest news at ONElist

> Join our community member news update at

> <a href= " http://clickme.onelist.com/ad/newsletter5 " >Click

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[Guest guest]

Can someone tell me what " mono " is?

>From: Barb Larson <barblarson@...>

>

>Hi Diane,

>I was diagnosed with mono at the tender age of 7!

>Seems many auto immune sufferers have this in their medical history.

>

>Barbara

>

>Lee Ann Walter wrote:

>

>> Hi Diane,

>> I was 18 too! I just wondered if that was something in common

>> with those who have the auto immune problems.

>>

>> Lee Ann

>>

>> From: Targa99@...

>>

>> In a message dated 8/22/99 10:23:37 AM, SAWalter@...

>> writes:

>>

>> << I am also wondering if any of you have

>> any history of Mono? >>

>>

>> Yes,I had mono when I was 18 years old!

>>

>> Diane

[Guest guest]

Hi Happy,

I guess I would be the one that is paranoid. Sorry if I upset you. I really

didn't mean to. Its just that I live, eat and breathe Lyme. And due to all

the politics and unreliable tests, and so many ignorant doctors (to this

disease), I just don't trust anything anymore. I know its common for

children to get Mono. And I didn't know you were a nurse. Sorry for my

paranoia. Good to see you say " as I get better " that is wonderful. Can't

wait to start feeling that way. Good luck to you and your son. I recently

dealt with " Mono " , but I guess they don't call it that in adults, I had a

high EBV titer and boy was I exhausted for a few months. And I couldn't even

be within a mile of anyone with so much as a cold, or I'd catch it. As you

know, the only thing you really can do, is wait it out and SLEEP, SLEEP,

SLEEP. Talk to you soon. Take care

Vicki

>From: HapsQuilt@...

>

>Vicki.....Are you trying to make me paranoid??? (Just kidding!!!) My son

has

>mono....classic case and postive labs. I am an ER nurse....(or was).....and

>have seen a zillion kids with it.

[Guest guest]

Ohhh...lets see....when I first became REALLY sick I was positive for:

Mono

CMV

Ebstein barr (or is that the same is mono? lOL)

cat scratch fever

herpes

chlamydia

Parvo

low t cell count.....was told if a person with AIDS had a count as low as

me, they would be dieing...I said " Oh great, so I just FEEL like I'm

dieing!!

I know there is more but I can't remember...for some reason <g>

Anita

[Lyme-aid] Mono

>From: HapsQuilt@...

>

>Carol......thanks for the " heads up " regarding mono. I also have a high EBV

>and have never had or been diagnosed with mono.....I used to want it when I

>was a teen....it was pretty *cool*....DUH!!!!! My son has turned the corner

>now and is sleeping better and eating well. (Asked for peanuts in the shell

>last night!!!) He has no idea that he may be fatiqued for weeks or months!

>But, I will certainly keep a close eye on his recovery, and my LLD will

jump

>on it if we need to.

>Thanks again.

>Happy

>

>>Send to -Offtopiconelist messages unrelated to lyme, please.

>/archive/lyme-aid

>/archives.cgi/Lyme-Documents

>To unsubscribe, send email to -unsubscribeonelist

>You may substitute " subscribe " , or " digest " or " normal " for

>the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank

both the message and subject header.

>

[Guest guest]

Yeah, I was positive for HHV-6 and EBV (same as mono but different Ig tests

show whether it's new, active, latent, reactivated etc...) when I was

tested, but then again, I was never tested for this stuff before I got

REALLYsick. So who knows? Also, I have/had low NK cell counts. This is the

only thing that seems to bother my doctor and he feels is clearly related to

LD.

beth

>

> Ohhh...lets see....when I first became REALLY sick I was positive for:

> Mono

> CMV

> Ebstein barr (or is that the same is mono? lOL)

> cat scratch fever

> herpes

> chlamydia

> Parvo

> low t cell count.....was told if a person with AIDS had a count as low as

> me, they would be dieing...I said " Oh great, so I just FEEL like I'm

> dieing!!

> I know there is more but I can't remember...for some reason <g>

>

> Anita

>

>

> [Lyme-aid] Mono

>

>

> >From: HapsQuilt@...

> >

> >Carol......thanks for the " heads up " regarding mono. I also have a high

EBV

> >and have never had or been diagnosed with mono.....I used to want it when

I

> >was a teen....it was pretty *cool*....DUH!!!!! My son has turned the

corner

> >now and is sleeping better and eating well. (Asked for peanuts in the

shell

> >last night!!!) He has no idea that he may be fatiqued for weeks or

months!

> >But, I will certainly keep a close eye on his recovery, and my LLD will

> jump

> >on it if we need to.

> >Thanks again.

> >Happy

> >

> >>Send to -Offtopiconelist messages unrelated to lyme,

please.

> >/archive/lyme-aid

> >/archives.cgi/Lyme-Documents

> >To unsubscribe, send email to -unsubscribeonelist

> >You may substitute " subscribe " , or " digest " or " normal " for

> >the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave

blank

> both the message and subject header.

> >

>

> > Send to -Offtopiconelist messages unrelated to lyme, please.

> /archive/lyme-aid

> /archives.cgi/Lyme-Documents

> To unsubscribe, send email to -unsubscribeonelist

> You may substitute " subscribe " , or " digest " or " normal " for

> the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave

blank both the message and subject header.

>

[Guest guest]

EBV and other virals....

there are TWO non-prescription substances that appear to be very effective:

- un-denatured whey (immunepro specifically!) http://www.immunepro.com/

- Olive Leaf Extract (we use east park http://www.eastpark.com )

Both (from experience/studies) are both antivirals and antibiotics. Up attempted to isolate the active ingrediant from Olive Leaf Extract -- and failed to produce a stable marketable form... so the original (health food store) olive leaf extract remains effective...

needless to say, since these are not pharamceticals... the drug company agents will not be telling your MD about them...

IMHO - you have CFIDS or are pre-definition CFIDS...

Ken Lassesen

(doing both, plus antibiotics and anticoagulants - with great CONTINUING IMPROVEMENT)2 @ 2 ft PWC, 2 @ 4ft PWC2 ft PWC: http://www.folkarts.com/idef/4 ft PWC: http://corgi.folkarts.com/Fax: (520) 832-6836 ICQ #: 2122097 (Netmeeting too)

Mono

My doctorsays nothing can be done, but I can't accept that.

[Guest guest]

how old are you and how long have you had mono?

steve

[Guest guest]

Hi Steve,

I am almost 29, and I've no idea how long I've had mono. As my doctor said, I'm

having a bad reoccurence, but I never realized I'd ever had mono before. Though

I've read that almost everyone has

the Epstein Barr Virus, and I could have even contracted it as an infant or

child. But I've been feeling very tired and achy for a long, long time, and I

never knew why. I was looking into Chronic

Fatigue Syndrome, and that's why I wanted the Epstein Barr test, but when they

did it, they said that every area of the test was high indicating that I have

mono. At least now I know there's a

reason why I've been feeling so bad, but I want to start feeling better now. I'm

surprised at how the healthcare industry acts like it's no big deal, yet fatigue

is the number one complaint doctors

receive. I guess they think once you've had mono you're immune to it, but my

doctor told me this is the second case she's seen this month of a reoccurrence

of mono. So it's not dormant. It can

continue to act up, and it's miserable. And who knows how many people this is

going on with that haven't been tested.

Steve wrote:

> how old are you and how long have you had mono?

> steve

>

> ------------------------------------------------------------------------

> Best friends, most artistic, class clown Find 'em here:

> 1/4054/4/_/531724/_/958485112/

> ------------------------------------------------------------------------

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

This is an area where the experts disagree so your Dr. may or may not be right

about mono. If he is not a Dr. that has a lot of experience with CFS I suggest

you find one and get a second option. You

also might try a trial of Valtrex or a similar anti viral. My family Dr. thought

Epstien Barr causes chronic fatigue & I had high EBV titers. But many Drs. think

this is just a cofactor. If you could

figure it out you would win the Nobel Prize. So get a second option from a CFS

expert.

good luck

Steve

[Guest guest]

Hi ,

Yes, that dreaded Glandular Feeling I know only too well. I don't know how long I've had Glandular Fever/mono for. I was diagnosed with it last year. It took my GP too long to come up with this explanation and the test for it.

It has never been recommended to me to go on steroids and I wouldn't take them - however I don't know what your situation is so I wouldn't want to presume anything here.

I do get little bouts of glandular fever from time to time and I just listen to my body and rest - and the sore throat - I have found that colloidal silver seems to knock it on the head everytime I get one.

There is also a place in England that sells this product which has herbal extracts in it - I didn't order it or take it as I am a great believer in letting your own body do the work. Since the worst of it is well and truly behind me, I haven't taken this product. I can't remember all its details - but I'll just go and search the web for you now and tell you the website etc very soon.

I'm sure there is a link between Glandular Fever and Candida - maybe the body is in an environment that promotes these two things.

Go and get some sleep and I'll get the website!

Taiaroa.

Mono

Does anyone here have mononucleosis? Last night I had a touchy throat and it got worse as the night wore on. I felt nauseous on and off and was getting acid reflux (great for a sore throat eh!) on and off also. By the time I got up this morning, my throat was raging sore and I could hardly talk: it hurt too much. Eating and drinking was definitely out of the question. I tried to go to work, but after an 1/2 hour I could hardly stand up. Mum and I went home and I went to the doctor. I was certain I developed strep throat, since I get that a lot it seems. The doctor performed a throat culture and told me that it came back negative for strep. He did a blood test under the idea that I've possibly contracted mononucleosis. He mentioned that lots of young people get it. I've got allergy testing in Ottawa with my candida doctor and I'm hoping that I haven't got mono because it may mean that I'd have to go to the hospital to go on steroids. I've been waiting for this appointment in Ottawa (a 6 hour drive!) forever and I hate to cancel it because I'd be going on meds for mono. Has anyone here had mono or know anyone who has? Could anyone offer me some idea of what I could face if I do have it? Dr said that he'd get back to me tomorrow sometime *if* the test comes back positive. Until then, I'm nervous. I've heard that going on steroids can come back to haunt you a year after the fact.Blessed be, :)aim Avalonian Mistaol Northern Rosebudicq 15463404msn shalott76Send blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE !

[Guest guest]

Hi ,

Here are some really useful websites for treatment of mono - all of them are based on natural/herbal remedies. 'Intra' is the name of the product from England but I can't seem to find it on the net at present - however the second website I have listed mentions the use of intra.

http://www.egregore.com/diseases/mononucleosis.html

http://www.gail.swinternet.co.uk/index.html

http://www.glandularfever.com/

Hope this helps!

.

Mono

Does anyone here have mononucleosis? Last night I had a touchy throat and it got worse as the night wore on. I felt nauseous on and off and was getting acid reflux (great for a sore throat eh!) on and off also. By the time I got up this morning, my throat was raging sore and I could hardly talk: it hurt too much. Eating and drinking was definitely out of the question. I tried to go to work, but after an 1/2 hour I could hardly stand up. Mum and I went home and I went to the doctor. I was certain I developed strep throat, since I get that a lot it seems. The doctor performed a throat culture and told me that it came back negative for strep. He did a blood test under the idea that I've possibly contracted mononucleosis. He mentioned that lots of young people get it. I've got allergy testing in Ottawa with my candida doctor and I'm hoping that I haven't got mono because it may mean that I'd have to go to the hospital to go on steroids. I've been waiting for this appointment in Ottawa (a 6 hour drive!) forever and I hate to cancel it because I'd be going on meds for mono. Has anyone here had mono or know anyone who has? Could anyone offer me some idea of what I could face if I do have it? Dr said that he'd get back to me tomorrow sometime *if* the test comes back positive. Until then, I'm nervous. I've heard that going on steroids can come back to haunt you a year after the fact.Blessed be, :)aim Avalonian Mistaol Northern Rosebudicq 15463404msn shalott76Send blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE !

[Guest guest]

On 10 Apr 2001, at 14:06, Brent & Taiaroa wrote:

> 'Intra' is the name of the product from

> England but I can't seem to find it on the net at present

- if you need this and can't find it over there, I'll try to find

some and send it to you. I've never heard of it, and I can't promise

to be able to get hod of it, but let me know and I'll give it a shot!!

Hope you're feeling a bit better today. Rest as MUCH as you can -

you can do yourself a lot of harm by tryng to keep going if you've

got glandular fever.

((( hug )))

Ann

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

http://www.willow-web.net Quality Web Design

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Guest guest]

my ben 17ds was diag. with mono in june. his regular doc didnt seem to have

any real concerns other than no contact sports due to his enlarged spleen.

if you do talk to your ds specialist and learn anything, please pass it on to

me. unfortunately, ben seems to still be really tired. we just had blood

work done again to rule out thyroid etc. on the bright side, his blood work

all looked great.

kerrie mom to ben 17ds and alex 14nda

[Guest guest]

In a message dated 8/15/02 10:18:38 AM Eastern Daylight Time,

writes:

> I have My 5 yr Lacey ( nda) old down with a nasty case of mono. I was sure

> surprised as I thought you had to be older to get it.

> Now my 3 (ds) is having the same symptoms. Does anyone have

> experience with Mono in Ds kids.

Sheila had mono when she was 8 or 9 years old. I then discovered that there

is a very high incidence of mono in the 2 year olds--in day care, elementary

school age child as well as the 17-23 year old age groups. We all know why

the older age group. ;-), but the 2 year olds--because they gum everything

and in the school age it is because many chew pencils and share them. Sheila

slept 20 hours a day the first few days she was acutely ill with it and then

slowly started recovering. She was out of school for two weeks and the first

week back she was pretty tired.

nancy

[Guest guest]

In a message dated 8/15/02 11:13:08 AM Pacific Daylight Time,

NEHolroyd@... writes:

>

> In a message dated 8/15/02 10:18:38 AM Eastern Daylight Time,

> writes:

>

>

> > I have My 5 yr Lacey ( nda) old down with a nasty case of mono. I was

> sure

> > surprised as I thought you had to be older to get it.

> > Now my 3 (ds) is having the same symptoms. Does anyone have

> > experience with Mono in Ds kids.

>

> Sheila had mono when she was 8 or 9 years old. I then discovered that there

> is a very high incidence of mono in the 2 year olds--in day care,

> elementary

> school age child as well as the 17-23 year old age groups. We all know why

> the older age group. ;-), but the 2 year olds--because they gum everything

> and in the school age it is because many chew pencils and share them.

> Sheila

> slept 20 hours a day the first few days she was acutely ill with it and

> then

> slowly started recovering. She was out of school for two weeks and the

> first

> week back she was pretty tired.

>

> nancy

>

When I had mono in college I slept 2 weeks straight and then went back to

class.

When My sister had mono in High School she was out for 4 months.

[Guest guest]

Kathy,

I am a bit surprised he didn't give you an antibiotic to protect you

from any infections you might incure with the mono. But with being

only on immuran for three weeks, it is most likely you were exposed

before you started or just after, so I don't beleive your meds or AIH

had anything to do with it - they wouldn't have been supressing the

immune system too much yet at the time you were exposed. If I

remember correctly mono can take from two to four weeks to incubate

before symptoms arise, which means you were likely exposed just

before you started the meds. Of course I am no doctor, but that is

what I know of the immuran, pred and mono. Prednisone works a bit

faster, but does not suppress the immune system as much as the

immuran in the long run. But again, I am guessing your exposure to

mono was just coincidence, and had nothing to do with you meds.

BUT! With you still going on on immuran and prednisone, you do need

to watch out for secondary infections. Because now your body won't

fight the mono as it would have with your normal immune system. So

If you find your self not improving in a couple of weeks, or getting

worse and worse, go back to the doc - you will probably need an

antibiotic. Remember you know what is right and what is wrong with

your own body. If you get worse and are scared by it don't think

twice about getting back to the doc. Take care and I hope you are

feeling better soon.

Oh! Almost forgot. You will fight infection much differently than

you are used to too. I have had many a flu and cold in the five

years I have been on these drugs. I never get as sick as my family

does, but then they only suffer with symptoms for three, four days

tops. I will have lower grade symptoms for weeks. It is a pain in

the butt. But watch for those tell tale signs of infection. Fever

is bad, bad, bad when you are on immuran. Also if you are getting

the green mucous get to the doc, or you will be suffering a sinus

infection the likes of which you have never seen. Hope I have helped.

Love,

Carole

[Guest guest]

Hi Everyone,

My grandson needs help fast. He is in first year of college and staying in

dorms in city where he lives and was diagnosed with Mono last week. He is sick

a lot anyway with allergies and such and was doing construction work for a

remodeler and last Wed he was work with polyurethane and came down with a

horrible headache (it does the same thing to me) and than became very tired and

the

University Dr. diagnosed him with Mono yesterday. He is so tired that he can't

go to classes. I bought him 3- 6 pks of liquid drink with vitamins and a

bottle of multivitamins so as to get a little nutrition into him because he will

just lay there and not eat at all. Question: I have an old prescription of

Valtrex that gave me a headache so still have, shouldn't he be taking an

anti-viral? His older sister had Mono years ago and she has CFS now and am

afraid it

will happen to him. He probably wouldn't take them anyway since the Dr. didn't

prescribe anything but just told him that the worse symptoms would be over in

about a week and that he should take it easy for about 6 weeks.

Thanks,

H.

[Guest guest]

Hello unless mono has changed it sure lasted alot longer than a week for me

and took me a whole year after the worst symptoms pased till my body got

back to normal and set me up for getting cfids....pretty common to get it

in college .. he probably needs alot more bed rest more than anything and

some time off from school...... If he goes back to any kind of constrution

work he needs to invest in a high powered mask to protect himself from

chemicals he works/exposed to.

if i did it over again i should have stayed out from

school alot longer than i did , i got ansy being home and went back to work

and then school soon after that...dumb....in retrospect..

will the antiviral strain his sytem and ? prevent him from using it later

if he needs it...

good luck to u all tealk.

> [Original Message]

> From: <helenw8262@...>

> < >

> Date: 4/13/2004 9:14:43 PM

> Subject: Re: Mono

>

> Hi Everyone,

>

> My grandson needs help fast. He is in first year of college and staying

in

> dorms in city where he lives and was diagnosed with Mono last week. He

is sick

> a lot anyway with allergies and such and was doing construction work for

a

> remodeler and last Wed he was work with polyurethane and came down with a

> horrible headache (it does the same thing to me) and than became very

tired and the

> University Dr. diagnosed him with Mono yesterday. He is so tired that he

can't

> go to classes. I bought him 3- 6 pks of liquid drink with vitamins and a

> bottle of multivitamins so as to get a little nutrition into him because

he will

> just lay there and not eat at all. Question: I have an old prescription

of

> Valtrex that gave me a headache so still have, shouldn't he be taking an

> anti-viral? His older sister had Mono years ago and she has CFS now and

am afraid it

> will happen to him. He probably wouldn't take them anyway since the Dr.

didn't

> prescribe anything but just told him that the worse symptoms would be

over in

> about a week and that he should take it easy for about 6 weeks.

> Thanks,

> H.

>

>

>

[Guest guest]

Aggressive rest is crucial, I believe. I did not rest when I had mono, and

20 years later I am still paying for it. My girlfriend had mono at the same

time, rested for nearly a year, and she is fine now.

Jim

[Guest guest]

mary

i think the first thing you might want to find out is how they

diagnosed him..

but there are probably alot of things you could do.

some people are using isoprinosine which helps strengthen the body's

immune response to viurses.

www.isoprinosine.com

also there is lauricidin which a natural antiviral.

www.lauricidin.com

olive leaf extract, transfer factor.....there are alot. as for

vlatrex, i think it needs to be high doses inorder to work against

EBV. you'll probably need to find a DR to prescribe it and monitor

him because i don't really know much about safety issues.

please feel free to ask me any questions, and keep posting because

now is the time to nip this thing in the bud.

thanks

bill

> Hi Everyone,

>

> My grandson needs help fast. He is in first year of college and

staying in

> dorms in city where he lives and was diagnosed with Mono last

week. He is sick

> a lot anyway with allergies and such and was doing construction

work for a

> remodeler and last Wed he was work with polyurethane and came down

with a

> horrible headache (it does the same thing to me) and than became

very tired and the

> University Dr. diagnosed him with Mono yesterday. He is so tired

that he can't

> go to classes. I bought him 3- 6 pks of liquid drink with vitamins

and a

> bottle of multivitamins so as to get a little nutrition into him

because he will

> just lay there and not eat at all. Question: I have an old

prescription of

> Valtrex that gave me a headache so still have, shouldn't he be

taking an

> anti-viral? His older sister had Mono years ago and she has CFS now

and am afraid it

> will happen to him. He probably wouldn't take them anyway since the

Dr. didn't

> prescribe anything but just told him that the worse symptoms would

be over in

> about a week and that he should take it easy for about 6 weeks.

> Thanks,

> H.

>

>

>

[Guest guest]

I suspect a good number of us, have had a viral exposure at one time

that contributes to our poor metabolic function.

I had scarlet fever, mono as a child, and now hep c.

My younger brother, who is also being treated for thyroid problems

recently found out that he too has hep c.

I believe my youngest brother does too, just by looking at him, but he

hasnt been tested yet.

My mother is going to get tested now to see if she may have passed

it on to us. (she has had thyroid issues for years, and a great deal of

cardiovascular difficulty, primarily plaque)

It is suspected that I got it at age 13 when I had my appendix out, but who

can be sure.

There is a man I work with who has had trouble with his thyroid function, and

now diabetes who found out two years ago that he too has Hep C.

This explains why T4 alone does not help me much..I obviously have a

conversion problem because of my liver. My doctor however will not let

me have any T3. She believes it to be too dangerous.

Considering many viruses lay dormant in us for many years, it is possible

that many of us could have them and not know.