Guest guest Posted July 16, 2007 Report Share Posted July 16, 2007 Anybody else been diagnosed with this " itis " . I'm waiting for blood test results and a possible artery biopsy. Help me! I need more info. Sib Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2008 Report Share Posted February 9, 2008 I am taking LDN because I have an unknown autoimmune disorder that has not been yet diagnosed. One of my symptoms is constant cheekbone and eye discomfort. I have done some research and have turned up an ailment called Temporal Arteritis. Does anyone know anything about this ailment? This does not seem to be helped by LDN but it is supposedly an autoimmune disorder. If anyone knows anything about this, please let me know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2008 Report Share Posted February 9, 2008 I think I remember from my days as an OR Nurse that they do a biopsy to diagnose Temporal Arteritis.marlaprendergast <kws11@...> wrote: I am taking LDN because I have an unknown autoimmune disorder that has not been yet diagnosed. One of my symptoms is constant cheekbone and eye discomfort. I have done some research and have turned up an ailment called Temporal Arteritis. Does anyone know anything about this ailment? This does not seem to be helped by LDN but it is supposedly an autoimmune disorder. If anyone knows anything about this, please let me know. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2008 Report Share Posted February 9, 2008 Yes that is correct. I'm just wondering if anyone here has ever had it. I am taking LDN because I have an unknown autoimmune disorder that has > not been yet diagnosed. One of my symptoms is constant cheekbone and > eye discomfort. I have done some research and have turned up an > ailment called Temporal Arteritis. Does anyone know anything about > this ailment? This does not seem to be helped by LDN but it is > supposedly an autoimmune disorder. If anyone knows anything about > this, please let me know. > > > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Mobile. Try it now. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2008 Report Share Posted February 9, 2008 Yes, that is the SED rate. Mine was normal a month ago but I'm wondering if it fluctuates in response to a current state of inflammation. > > I am taking LDN because I have an unknown autoimmune disorder that has > not been yet diagnosed. One of my symptoms is constant cheekbone and > eye discomfort. I have done some research and have turned up an > ailment called Temporal Arteritis. Does anyone know anything about > this ailment? This does not seem to be helped by LDN but it is > supposedly an autoimmune disorder. If anyone knows anything about > this, please let me know > > > They are querying this with me and I just had a blood test so far, ESR I think it was called.... > Celia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2008 Report Share Posted February 9, 2008 Yes but I don't have Graves, I am HYPOthyroid. > > Hi Marla, > > Your symptoms also sound similar to thyroid eye disease, which is related to > Graves' disease but sometimes can accompany normal thyroid levels. Another > term for this is Graves' opthalmopathy. An experienced eye doctor should be > able to tell. Also, a test for thytrophin binding inhibitory immunoglobulin > (TBII) antibodies would tell. This is definitely an autoimmune problem, and > LDN seems to help. > > If it is thyroid eye disease, things that will make it worse include > cigarette smoke, dietary iodine (which is very high in the US), aspartame > artificial sweetener, and stress. I also found that the DLPA that we take to > make the LDN more effective worsened my thyroid eye disease symptoms, > perhaps because it's similar in composition to aspartame. > > Best wishes, > B. > > ________________________________ > > From: low dose naltrexone > [mailto:low dose naltrexone ] On Behalf Of marlaprendergast > Sent: Friday, February 08, 2008 9:01 PM > low dose naltrexone > Subject: [low dose naltrexone] Temporal Arteritis > > > > I am taking LDN because I have an unknown autoimmune disorder that has > not been yet diagnosed. One of my symptoms is constant cheekbone and > eye discomfort. I have done some research and have turned up an > ailment called Temporal Arteritis. Does anyone know anything about > this ailment? This does not seem to be helped by LDN but it is > supposedly an autoimmune disorder. If anyone knows anything about > this, please let me know. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2008 Report Share Posted February 9, 2008 Some people with Hashi's do have thyroid eye disease. And some people with Graves' disease (TSH receptor) antibodies are either euthyroid (normal levels) or hypothyroid, depending on the mix of Graves' antibodies. They all attach to the TSH receptors, and some can make you hypothyroid. This is what happened to me, after an initial phase of hyperthyroidism Strange as it sounds, what you describe does sound similar to thyroid eye disease symptoms and would be worth ruling out, especially because a biopsy is not required. Best wishes, B., whi was hypothyroid before starting LDN ________________________________ From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of marlaprendergast Sent: Saturday, February 09, 2008 9:56 AM low dose naltrexone Subject: [low dose naltrexone] Re: Temporal Arteritis Yes but I don't have Graves, I am HYPOthyroid. > > Hi Marla, > > Your symptoms also sound similar to thyroid eye disease, which is related to > Graves' disease but sometimes can accompany normal thyroid levels. Another > term for this is Graves' opthalmopathy. An experienced eye doctor should be > able to tell. Also, a test for thytrophin binding inhibitory immunoglobulin > (TBII) antibodies would tell. This is definitely an autoimmune problem, and > LDN seems to help. Quote Link to comment Share on other sites More sharing options...
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