When LDN isn't working...

[Guest guest]

Recently someone that I know who was diagnosed over 12 years ago with M.S. had

been

experiencing relapse after relapse.

Normally, neurologists would just assume that she had progressed from the

relapsing/remitting form of M.S. to the secondary progressive form.

However, this astute neurologist decided to test lactic acid levels as well as

VLCFA levels

(Very Long Chain Fatty Acid levels). Both were over the normal limit. He said

to her, " Even

if you had just finished running 35 miles, your lactic acid levels would not

have been this

high. "

He was testing her for X-linked adrenoleukodystrophy. Since many females who

have this

are diagnosed with M.S. first, it is not surprising that for years she has

thought that she

had M.S.. Usually it takes having a male with X-linked ALD in a family to

figure out that a

female is a carrier.

I am bringing this to the attention of our group because sometimes people

diagnosed

with M.S. have said that they have still continued to progress even while on

LDN.

One can have BOTH M.S. and X-linked ALD, and tests are needed to see whether it

is one

or the other or both.

So if someone is taking LDN, but is still experiencing progression of symptoms,

it is

important to have a thorough work up to rule out inherited metabolic disorders

or other

causes of neurodegenerative diseases.

http://www.greatplainslaboratory.com/test1comp.html

Wishing you all good health and correct diagnoses.