Re: First Post and our Story

[Guest guest]

Welcome to the group. Has the school been informed of his dx? If not, be sure to inform them, then ask for a behavioral analysis and evaluation to be done ASAP. THis will get them on board with his dx and start you down the path toward an IEP that will address his needs both sensory and social ~ and reactive consequences for his teacher to follow..... and what ever else he may require for special services (sounds like a para to scribe may be one of your first expectations). Thanks for your courage to share, we all know how hard it is to find helpful support and understanding! Welcome! Kate

From: bora03 <boramommy@...>Subject: ( ) First Post and our Story Date: Tuesday, February 16, 2010, 2:11 PM

Hello All,I'm the mother of a 5 year old boy with a possible diagnosis of Aspergers. Our story is lengthy, but I'll try and summarize in the interest of time. We have (as I'm sure most of you have) always found our guy to be somewhat "different". We have noticed things since he was 18 months old (which we now know are a result of HFA or Aspergers) He obsessed over things to in depth degrees, he has lengthy meltdowns over things we found well "crazy" for lack of a better word. He would (and does)repeat lines from shows or the computer adnauseum. He would (and does) what we now know as stimming by bouncing on a ball endlessly or jumping and clapping. The things he did just made him "Jordan" (that's his name) to us. We lived life just "Putting up" with these quirks. For years I suspected some type of Autism or PDD-NOS, but he never fit the criteria. He began reading at 18 months, taught himself to

write at age 2 and use a computer. He is VERY high functioning. He is a master at pretend play almost obsessive really. The problem really escalated when he started Kindergarten.It has been an off and on disater. He has trouble listening and following directions or making eye contact with the teacher. He has constant meltdowns where he has had to be carried down to the Principals office that usually stem from him making a "mistake" on his paper and he can't erase it or really any number of (what we now know are Aspie triggers). We've had round tables with the Principal, psycologist etc. it wasn't until Christmas break that I decided to contact my good friend who has a daughter with Aspergers. She brought in two long time ASD professionals to take a look at my son. After spending 3.5 hours with them BOTH said that is was obvious to them that he has High Functioning Autism particularly Aspergers. They recommended that we have him evaluated

immediately. We are now going through the eval process. My hubby and I have poured through books on Aspergers and HFA, our son is so textbook it's not even funny. I've actually begun video tapping him. We were told that his High Intelligence is what throws many off (especially at his school). His teacher is not familar wit Aspergers, so he gets in trouble for "making silly noises" (Jordan hums constantly it's one of his stems) when in fact he can't help it. I don't know what the testing will reveal, but for now we are just taking it one day at a time. Thanks for reading this long winded post!------------------------------------

[Guest guest]

We've been told recently that the new 'catch phrase' at school is: "I suspect my child has a disability," just like if you have someone with mental health problems and they NEED TO BE PUT IN THE HOSPITAL because they are out of control you need to say, "HE/SHE is a danger to himself and others" numerous times (or you are taking them home with you); well, the "I suspect my child has a disability" requires them to test the child. We know a few people who have done this and gotten an IEP and services at school for their autistic spectrum (not just aspies) child, so another idea and suggestion! Ruthie Dolezal

From: katesdishes@...Date: Tue, 16 Feb 2010 13:29:00 -0800Subject: Re: ( ) First Post and our Story

Welcome to the group. Has the school been informed of his dx? If not, be sure to inform them, then ask for a behavioral analysis and evaluation to be done ASAP. THis will get them on board with his dx and start you down the path toward an IEP that will address his needs both sensory and social ~ and reactive consequences for his teacher to follow..... and what ever else he may require for special services (sounds like a para to scribe may be one of your first expectations). Thanks for your courage to share, we all know how hard it is to find helpful support and understanding! Welcome! Kate

From: bora03 <boramommygmail>Subject: ( ) First Post and our Story Date: Tuesday, February 16, 2010, 2:11 PM

Hello All,I'm the mother of a 5 year old boy with a possible diagnosis of Aspergers. Our story is lengthy, but I'll try and summarize in the interest of time. We have (as I'm sure most of you have) always found our guy to be somewhat "different". We have noticed things since he was 18 months old (which we now know are a result of HFA or Aspergers) He obsessed over things to in depth degrees, he has lengthy meltdowns over things we found well "crazy" for lack of a better word. He would (and does)repeat lines from shows or the computer adnauseum. He would (and does) what we now know as stimming by bouncing on a ball endlessly or jumping and clapping. The things he did just made him "Jordan" (that's his name) to us. We lived life just "Putting up" with these quirks. For years I suspected some type of Autism or PDD-NOS, but he never fit the criteria. He began reading at 18 months, taught himself to write at age 2 and use a computer. He is VERY high functioning. He is a master at pretend play almost obsessive really. The problem really escalated when he started Kindergarten.It has been an off and on disater. He has trouble listening and following directions or making eye contact with the teacher. He has constant meltdowns where he has had to be carried down to the Principals office that usually stem from him making a "mistake" on his paper and he can't erase it or really any number of (what we now know are Aspie triggers). We've had round tables with the Principal, psycologist etc. it wasn't until Christmas break that I decided to contact my good friend who has a daughter with Aspergers. She brought in two long time ASD professionals to take a look at my son. After spending 3.5 hours with them BOTH said that is was obvious to them that he has High Functioning Autism particularly Aspergers. They recommended that we have him evaluated immediately. We are now going through the eval process. My hubby and I have poured through books on Aspergers and HFA, our son is so textbook it's not even funny. I've actually begun video tapping him. We were told that his High Intelligence is what throws many off (especially at his school). His teacher is not familar wit Aspergers, so he gets in trouble for "making silly noises" (Jordan hums constantly it's one of his stems) when in fact he can't help it. I don't know what the testing will reveal, but for now we are just taking it one day at a time. Thanks for reading this long winded post!------------------------------------

[Guest guest]

Yes the school is aware and they have started the official evaluation. We are

also having him evaluated through one of the University Hospitals that has a

center just for ASD. I wish I had talked to my friend earlier. By law the

school has 45 days to complete the evaluation. By the time it is complete the

school year will be almost over. We actually have already put in a transfer to

another district and the specific school where the ladies who took a look at him

work. We need him to be where he has access to professionals who know how to

work with him. The school he currently goes to does not have services to that

degree and my hubby and I don't want them " learning " on our son, or having to be

educated, by us etc.

>

>

> From: bora03 <boramommy@...>

> Subject: ( ) First Post and our Story

>

> Date: Tuesday, February 16, 2010, 2:11 PM

>

>

> Hello All,

>

> I'm the mother of a 5 year old boy with a possible diagnosis of Aspergers. Our

story is lengthy, but I'll try and summarize in the interest of time.

>    We have (as I'm sure most of you have) always found our guy to be somewhat

" different " . We have noticed things since he was 18 months old (which we now

know are a result of HFA or Aspergers) He obsessed over things to in depth

degrees, he has lengthy meltdowns over things we found well " crazy " for lack of

a better word. He would  (and does)repeat lines from shows or the computer

adnauseum. He would (and does) what we now know as stimming by bouncing on a

ball endlessly or jumping and clapping. The things he did just made him " Jordan "

(that's his name) to us. We lived life just " Putting up " with these quirks. For

years I suspected some type of Autism or PDD-NOS, but he never fit the criteria.

He began reading at 18 months, taught himself to write at age 2 and use a

computer. He is VERY high functioning. He is a master at pretend play almost

obsessive really. The problem really escalated when he started Kindergarten.It

has been an off and on

> disater. He has trouble  listening and following directions or making eye

contact with the teacher.  He has constant meltdowns where he has had to be

carried down to the Principals office that usually stem from him making a

" mistake " on his paper and he can't erase it or really any number of (what we

now know are Aspie triggers). We've had round tables with the Principal,

psycologist etc. it wasn't until Christmas break that I decided to contact my

good friend who has a daughter with Aspergers. She brought in two long time ASD

professionals to take a look at my son. After spending 3.5 hours with them BOTH

said that is was obvious to them that he has High Functioning Autism

particularly Aspergers. They recommended that we have him evaluated immediately.

We are now going through the eval process. My hubby and I have poured through

books on Aspergers and HFA, our son is so textbook it's not even funny. I've

actually begun video tapping him. We were told

> that his High Intelligence is what throws many off (especially at his

school). His teacher is not familar wit Aspergers, so he gets in trouble for

" making silly noises " (Jordan hums constantly it's one of his stems) when in

fact he can't help it. I don't know what the testing will reveal, but for now we

are just taking it one day at a time. Thanks for reading this long winded post!

>

>

>

> ------------------------------------

>

>