Guest guest Posted January 13, 2011 Report Share Posted January 13, 2011 I think it is hard to get a DX before the age of 9 for some kids. The reason is that kids play under 9 often is side by side. It will become more apparent by 9 if he can't join in groups, his interests and the way he talks about them stands out as a little professor. How are his motor skills? For now, does he have any anxiety. And anxiety disorder is a diagnosis too for school accomodations. What do think he needs now. You can get a neuropyschological evaluation done. They are the gold standard (standard scores) but my impression was that a lot more tests could be given around the age of 9. The only issue is these tests are expensive ($2000-4000) and often insurance only pays partially. Pam > > Our six year old son was given a diagnosis: > Rule Out 299.80 Asperger Disorder. > Our counselor tells us this means they can not rule out Asperger Disorder but the facts were not 100 % evident. His kindergarten teacher's facts she provided did not support Aspergers. The Psychologist's tests supported Aspergers as well as our reports (parents). This is frustrating to us. We are not going to have any further testing done until before he goes to First grade this fall. Anyone have an experience with this confusing diagnosis? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2011 Report Share Posted January 13, 2011 The doctors my daughter has seen has mentioned a bunch of disorders that she could have , but not a diagnosis of any except anxiety/OCD/depression, which means nothing to the school system. From: jeanarob <jmboase@...>Subject: ( ) Asperger diagnosis Date: Thursday, January 13, 2011, 1:21 AM Our six year old son was given a diagnosis:Rule Out 299.80 Asperger Disorder.Our counselor tells us this means they can not rule out Asperger Disorder but the facts were not 100 % evident. His kindergarten teacher's facts she provided did not support Aspergers. The Psychologist's tests supported Aspergers as well as our reports (parents). This is frustrating to us. We are not going to have any further testing done until before he goes to First grade this fall. Anyone have an experience with this confusing diagnosis? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2011 Report Share Posted January 13, 2011 yes, we are in the middle of ADHD and Autism meaning we have a Dx of PDD-NOS but no one feels comfortable stating AS. I am seeking further testing from a neurpsychologist if I can afford it. If he comes back saying no to the AS, I drop it. But my instincts say differently. Cathleen From: jeanarob <jmboase@...> Sent: Wed, January 12, 2011 10:21:11 PMSubject: ( ) Asperger diagnosis Our six year old son was given a diagnosis:Rule Out 299.80 Asperger Disorder.Our counselor tells us this means they can not rule out Asperger Disorder but the facts were not 100 % evident. His kindergarten teacher's facts she provided did not support Aspergers. The Psychologist's tests supported Aspergers as well as our reports (parents). This is frustrating to us. We are not going to have any further testing done until before he goes to First grade this fall. Anyone have an experience with this confusing diagnosis? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2011 Report Share Posted January 13, 2011 I am a bit confused.... What is the big deal about giving the lable of AS?? It seems like it is almost a prize to be had.... Carolyn From: Cathleen Veloria <cathleen.veloria@...> Sent: Thu, January 13, 2011 12:22:31 PMSubject: Re: ( ) Asperger diagnosis yes, we are in the middle of ADHD and Autism meaning we have a Dx of PDD-NOS but no one feels comfortable stating AS. I am seeking further testing from a neurpsychologist if I can afford it. If he comes back saying no to the AS, I drop it. But my instincts say differently. Cathleen From: jeanarob <jmboase@...> Sent: Wed, January 12, 2011 10:21:11 PMSubject: ( ) Asperger diagnosis Our six year old son was given a diagnosis:Rule Out 299.80 Asperger Disorder.Our counselor tells us this means they can not rule out Asperger Disorder but the facts were not 100 % evident. His kindergarten teacher's facts she provided did not support Aspergers. The Psychologist's tests supported Aspergers as well as our reports (parents). This is frustrating to us. We are not going to have any further testing done until before he goes to First grade this fall. Anyone have an experience with this confusing diagnosis? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2011 Report Share Posted January 13, 2011 I have previously read that a " rule out " diagnosis means that the dr. actually suspects that dx. It is kind of reverse logic. Rather than the dr. saying " your son has Aspergers " (most likely because certain neurological testing wasn't done), your Dr. is saying " the next step is to do neurological testing b/c I suspect Asperger's. " Good luck. > > Our six year old son was given a diagnosis: > Rule Out 299.80 Asperger Disorder. > Our counselor tells us this means they can not rule out Asperger Disorder but the facts were not 100 % evident. His kindergarten teacher's facts she provided did not support Aspergers. The Psychologist's tests supported Aspergers as well as our reports (parents). This is frustrating to us. We are not going to have any further testing done until before he goes to First grade this fall. Anyone have an experience with this confusing diagnosis? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2011 Report Share Posted January 14, 2011 No not a prize, in fact I'd rather my life not be more confused by a new diagnosis. I only ask because the school at our IEP meeting is really stuck on his ADHD only, and therefore think that meds is the only solution for Dylan. Dylan's problems run the gamet and Ritalin is not the answer. I'm getting very frustrated with people who don't want to explore the possibility that Dylan may be suffering and I mean suffering from something else. I want no stone left unturned. Does this sound better? It's not a prize From: Carolyn Weisbard <ccweisbard@...> Sent: Thu, January 13, 2011 11:37:47 AMSubject: Re: ( ) Asperger diagnosis I am a bit confused.... What is the big deal about giving the lable of AS?? It seems like it is almost a prize to be had.... Carolyn From: Cathleen Veloria <cathleen.veloria@...> Sent: Thu, January 13, 2011 12:22:31 PMSubject: Re: ( ) Asperger diagnosis yes, we are in the middle of ADHD and Autism meaning we have a Dx of PDD-NOS but no one feels comfortable stating AS. I am seeking further testing from a neurpsychologist if I can afford it. If he comes back saying no to the AS, I drop it. But my instincts say differently. Cathleen From: jeanarob <jmboase@...> Sent: Wed, January 12, 2011 10:21:11 PMSubject: ( ) Asperger diagnosis Our six year old son was given a diagnosis:Rule Out 299.80 Asperger Disorder.Our counselor tells us this means they can not rule out Asperger Disorder but the facts were not 100 % evident. His kindergarten teacher's facts she provided did not support Aspergers. The Psychologist's tests supported Aspergers as well as our reports (parents). This is frustrating to us. We are not going to have any further testing done until before he goes to First grade this fall. Anyone have an experience with this confusing diagnosis? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2011 Report Share Posted January 14, 2011 Cathleen, I understand exactly what you are saying, the problem also is that school sometimes don't want to turn stones because do not want to find a more complicated diagnosis where they will HAVE to provide for services, so they stick to the ADHD because that can be solved with a medication from your pocket. That is why all this it becomes a fight between the parents and the system. I would advise you to : do not leave any stone unturned like you put it, but I would suggest that you pay your own Neuropsychologist and get a exact and proper diagnosis, remember the school is bias, so do it independently find out who is the best Neuro and have your son tested with him. I did it and I don't regret it. best of luck to you, From: Cathleen Veloria <cathleen.veloria@...> Sent: Fri, January 14, 2011 8:17:05 PMSubject: Re: ( ) Asperger diagnosis No not a prize, in fact I'd rather my life not be more confused by a new diagnosis. I only ask because the school at our IEP meeting is really stuck on his ADHD only, and therefore think that meds is the only solution for Dylan. Dylan's problems run the gamet and Ritalin is not the answer. I'm getting very frustrated with people who don't want to explore the possibility that Dylan may be suffering and I mean suffering from something else. I want no stone left unturned. Does this sound better? It's not a prize From: Carolyn Weisbard <ccweisbard@...> Sent: Thu, January 13, 2011 11:37:47 AMSubject: Re: ( ) Asperger diagnosis I am a bit confused.... What is the big deal about giving the lable of AS?? It seems like it is almost a prize to be had.... Carolyn From: Cathleen Veloria <cathleen.veloria@...> Sent: Thu, January 13, 2011 12:22:31 PMSubject: Re: ( ) Asperger diagnosis yes, we are in the middle of ADHD and Autism meaning we have a Dx of PDD-NOS but no one feels comfortable stating AS. I am seeking further testing from a neurpsychologist if I can afford it. If he comes back saying no to the AS, I drop it. But my instincts say differently. Cathleen From: jeanarob <jmboase@...> Sent: Wed, January 12, 2011 10:21:11 PMSubject: ( ) Asperger diagnosis Our six year old son was given a diagnosis:Rule Out 299.80 Asperger Disorder.Our counselor tells us this means they can not rule out Asperger Disorder but the facts were not 100 % evident. His kindergarten teacher's facts she provided did not support Aspergers. The Psychologist's tests supported Aspergers as well as our reports (parents). This is frustrating to us. We are not going to have any further testing done until before he goes to First grade this fall. Anyone have an experience with this confusing diagnosis? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2011 Report Share Posted January 14, 2011 , Your supportive answer is a blessing to me, no exageration. Saying you had no regrets really helps also. That is exactly what I plan to do. You are right, ADHD becomes our problem in finding the right medicine, and costs them nothing. I need a proper dx because no one has provided me an OBJECTIVE one so far. Thanks again, CAthleen From: chris Dunn <christineshello@...> Sent: Fri, January 14, 2011 6:37:07 PMSubject: Re: ( ) Asperger diagnosis Cathleen, I understand exactly what you are saying, the problem also is that school sometimes don't want to turn stones because do not want to find a more complicated diagnosis where they will HAVE to provide for services, so they stick to the ADHD because that can be solved with a medication from your pocket. That is why all this it becomes a fight between the parents and the system. I would advise you to : do not leave any stone unturned like you put it, but I would suggest that you pay your own Neuropsychologist and get a exact and proper diagnosis, remember the school is bias, so do it independently find out who is the best Neuro and have your son tested with him. I did it and I don't regret it. best of luck to you, From: Cathleen Veloria <cathleen.veloria@...> Sent: Fri, January 14, 2011 8:17:05 PMSubject: Re: ( ) Asperger diagnosis No not a prize, in fact I'd rather my life not be more confused by a new diagnosis. I only ask because the school at our IEP meeting is really stuck on his ADHD only, and therefore think that meds is the only solution for Dylan. Dylan's problems run the gamet and Ritalin is not the answer. I'm getting very frustrated with people who don't want to explore the possibility that Dylan may be suffering and I mean suffering from something else. I want no stone left unturned. Does this sound better? It's not a prize From: Carolyn Weisbard <ccweisbard@...> Sent: Thu, January 13, 2011 11:37:47 AMSubject: Re: ( ) Asperger diagnosis I am a bit confused.... What is the big deal about giving the lable of AS?? It seems like it is almost a prize to be had.... Carolyn From: Cathleen Veloria <cathleen.veloria@...> Sent: Thu, January 13, 2011 12:22:31 PMSubject: Re: ( ) Asperger diagnosis yes, we are in the middle of ADHD and Autism meaning we have a Dx of PDD-NOS but no one feels comfortable stating AS. I am seeking further testing from a neurpsychologist if I can afford it. If he comes back saying no to the AS, I drop it. But my instincts say differently. Cathleen From: jeanarob <jmboase@...> Sent: Wed, January 12, 2011 10:21:11 PMSubject: ( ) Asperger diagnosis Our six year old son was given a diagnosis:Rule Out 299.80 Asperger Disorder.Our counselor tells us this means they can not rule out Asperger Disorder but the facts were not 100 % evident. His kindergarten teacher's facts she provided did not support Aspergers. The Psychologist's tests supported Aspergers as well as our reports (parents). This is frustrating to us. We are not going to have any further testing done until before he goes to First grade this fall. Anyone have an experience with this confusing diagnosis? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2011 Report Share Posted January 15, 2011 My six year old son was tested last year and the psychologist ruled out AS because they could not be 1000% sure gave a gifted with social delay diagnosis . This year we had him tested again (by the same psychologist) because behaviors at home and at school lead us to believe that these behaviors were not related to a simple social delay. The result was an AS diagnosis. It was difficult at first to accept, but now I realize that it is such a comfort to know what he is dealing with so we can give him the services he needs. I agree with you that a firm diagnosis is what your son deserves. The PDD-NOS, ADD or other general diagnosis probably does not satisfy you and it should not if you still have concerns. The sooner he is diagnosed properly the sooner you can give him the help he needs to become successful at school and an overall happier little boy. I was a special education for 8 years before staying home, so I am curious if the school has tested him? Check out your rights...www.wrightslaw.com > > No not a prize, in fact I'd rather my life not be more confused by a new > diagnosis. I only ask because the school at our IEP meeting is really stuck on > his ADHD only, and therefore think that meds is the only solution for Dylan. > Dylan's problems run the gamet and Ritalin is not the answer. I'm getting very > frustrated with people who don't want to explore the possibility that Dylan may > be suffering and I mean suffering from something else. I want no stone left > unturned. Does this sound better? It's not a prize > > > > > ________________________________ > From: Carolyn Weisbard <ccweisbard@...> > > Sent: Thu, January 13, 2011 11:37:47 AM > Subject: Re: ( ) Asperger diagnosis > >  > I am a bit confused.... What is the big deal about giving the lable of AS?? It > seems like it is almost a prize to be had.... > Carolyn > > > > > ________________________________ > From: Cathleen Veloria <cathleen.veloria@...> > > Sent: Thu, January 13, 2011 12:22:31 PM > Subject: Re: ( ) Asperger diagnosis > >  > yes, we are in the middle of ADHD and Autism meaning we have a Dx of PDD-NOS but > no one feels comfortable stating AS. I am seeking further testing from a > neurpsychologist if I can afford it. If he comes back saying no to the AS, I > drop it. But my instincts say differently. > > Cathleen > > > > > ________________________________ > From: jeanarob <jmboase@...> > > Sent: Wed, January 12, 2011 10:21:11 PM > Subject: ( ) Asperger diagnosis > >  > Our six year old son was given a diagnosis: > Rule Out 299.80 Asperger Disorder. > Our counselor tells us this means they can not rule out Asperger Disorder but > the facts were not 100 % evident. His kindergarten teacher's facts she provided > did not support Aspergers. The Psychologist's tests supported Aspergers as well > as our reports (parents). This is frustrating to us. We are not going to have > any further testing done until before he goes to First grade this fall. Anyone > have an experience with this confusing diagnosis? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2011 Report Share Posted January 15, 2011 My six year old son was tested last year and the psychologist ruled out AS because they could not be 1000% sure gave a gifted with social delay diagnosis . This year we had him tested again (by the same psychologist) because behaviors at home and at school lead us to believe that these behaviors were not related to a simple social delay. The result was an AS diagnosis. It was difficult at first to accept, but now I realize that it is such a comfort to know what he is dealing with so we can give him the services he needs. I agree with you that a firm diagnosis is what your son deserves. The PDD-NOS, ADD or other general diagnosis probably does not satisfy you and it should not if you still have concerns. The sooner he is diagnosed properly the sooner you can give him the help he needs to become successful at school and an overall happier little boy. I was a special education for 8 years before staying home, so I am curious if the school has tested him? Check out your rights...www.wrightslaw.com > > No not a prize, in fact I'd rather my life not be more confused by a new > diagnosis. I only ask because the school at our IEP meeting is really stuck on > his ADHD only, and therefore think that meds is the only solution for Dylan. > Dylan's problems run the gamet and Ritalin is not the answer. I'm getting very > frustrated with people who don't want to explore the possibility that Dylan may > be suffering and I mean suffering from something else. I want no stone left > unturned. Does this sound better? It's not a prize > > > > > ________________________________ > From: Carolyn Weisbard <ccweisbard@...> > > Sent: Thu, January 13, 2011 11:37:47 AM > Subject: Re: ( ) Asperger diagnosis > >  > I am a bit confused.... What is the big deal about giving the lable of AS?? It > seems like it is almost a prize to be had.... > Carolyn > > > > > ________________________________ > From: Cathleen Veloria <cathleen.veloria@...> > > Sent: Thu, January 13, 2011 12:22:31 PM > Subject: Re: ( ) Asperger diagnosis > >  > yes, we are in the middle of ADHD and Autism meaning we have a Dx of PDD-NOS but > no one feels comfortable stating AS. I am seeking further testing from a > neurpsychologist if I can afford it. If he comes back saying no to the AS, I > drop it. But my instincts say differently. > > Cathleen > > > > > ________________________________ > From: jeanarob <jmboase@...> > > Sent: Wed, January 12, 2011 10:21:11 PM > Subject: ( ) Asperger diagnosis > >  > Our six year old son was given a diagnosis: > Rule Out 299.80 Asperger Disorder. > Our counselor tells us this means they can not rule out Asperger Disorder but > the facts were not 100 % evident. His kindergarten teacher's facts she provided > did not support Aspergers. The Psychologist's tests supported Aspergers as well > as our reports (parents). This is frustrating to us. We are not going to have > any further testing done until before he goes to First grade this fall. Anyone > have an experience with this confusing diagnosis? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2011 Report Share Posted January 15, 2011 I dont think a dignoses of AS is a prize , thats the last thing i would call it!! It's just what is appropriate for your kid , so keep fighting for what your instincts are telling you to do , its not fair to leave your kid behind if you clearly see he is AS , its honestly sooooo draining tho isnt it , im kind of in the same boat you are with getting my son's diagnosed , and i just sit and go through in my head , what teacher , or doctor i know i am going to have to fight with the next day and what im going to say to try and convince them to see what i see( i havent seen a doctor that specializes in development disabilities yet i will this month) , yadda yadda I dont let anyone walk all over me , but every once in a while im just like " ya know what , fine let me lay down so you can walk all over me" lol Hang in there tho , take it day by day , and dont stop until you feel your son has gotten the appropraite diagnoses , number one because if you feel and see that he has most of the symptoms that other children with AS are struggling with , then to be honest , WHO GIVES A SHIT what some teacher thinks by saying he has "adhd" and needs to be medicated , my goal would be , to get him diagnosed with AS so that he can have the proper help just like all the other kids that have the same exact struggles as he does , but were lucky enough to not have to struggle to just get diagnosed correctly , So actually , ive changed my mind, in my situation , getting a diagnoses of aspergers , would be a prize , because thats last time i have to waste on fighting with a school or a doctor trying to convince them of something i know to be fact! And i can stop wasting time with that , and move on to getting my son the proper help he needs! It saves a lot of time when you dont have to pull out all your teeth just to get your kid diagnosed!!!!! I wish it wasnt that way , but where i live it is! Obviously i only suggest asking for a diagnoses of AS only if your son really does show all the characteristics of the disorder, but im sure you know what AS is all about , i feel for you tho , i truly do , myself and some of my sisters who live near me , had the same exact issues with trying to get a diagnoses! When you see your child suffering and theres nothing you can do about it because no one will recognize what your talking about , its a very alone feeling , but dont give up!! I often wonder sometimes why we have to go through all of this diagnoses mess , and what i can do to help with my son's struggles .For my oldest son especially it is social and sensory i actually am thinking about contacting my church , because i live in a small town and there is no play groups or any kind of monthly activities for kids to get together and do! So i want to see if my pastor will spread the word and maybe let me start a playgroup meeting at the church once a week , or even if he will just pass the words to other moms who would want to participate in something like that for their kids , and get them socialized more to prepare them for school , or even if they are home schooled get them out so they can make some friends and not be lonely!! But we shall see how that goes! Meaghan :)From: Cathleen Veloria <cathleen.veloria@...> Sent: Fri, January 14, 2011 7:17:05 PMSubject: Re: ( ) Asperger diagnosis No not a prize, in fact I'd rather my life not be more confused by a new diagnosis. I only ask because the school at our IEP meeting is really stuck on his ADHD only, and therefore think that meds is the only solution for Dylan. Dylan's problems run the gamet and Ritalin is not the answer. I'm getting very frustrated with people who don't want to explore the possibility that Dylan may be suffering and I mean suffering from something else. I want no stone left unturned. Does this sound better? It's not a prize From: Carolyn Weisbard <ccweisbard@...> Sent: Thu, January 13, 2011 11:37:47 AMSubject: Re: ( ) Asperger diagnosis I am a bit confused.... What is the big deal about giving the lable of AS?? It seems like it is almost a prize to be had.... Carolyn From: Cathleen Veloria <cathleen.veloria@...> Sent: Thu, January 13, 2011 12:22:31 PMSubject: Re: ( ) Asperger diagnosis yes, we are in the middle of ADHD and Autism meaning we have a Dx of PDD-NOS but no one feels comfortable stating AS. I am seeking further testing from a neurpsychologist if I can afford it. If he comes back saying no to the AS, I drop it. But my instincts say differently. Cathleen From: jeanarob <jmboase@...> Sent: Wed, January 12, 2011 10:21:11 PMSubject: ( ) Asperger diagnosis Our six year old son was given a diagnosis:Rule Out 299.80 Asperger Disorder.Our counselor tells us this means they can not rule out Asperger Disorder but the facts were not 100 % evident. His kindergarten teacher's facts she provided did not support Aspergers. The Psychologist's tests supported Aspergers as well as our reports (parents). This is frustrating to us. We are not going to have any further testing done until before he goes to First grade this fall. Anyone have an experience with this confusing diagnosis? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2011 Report Share Posted January 15, 2011 Usually "rule out" means that they think this is the dx and will do testing to try to rule it out. It's kind of backwards from how you would think but it provides a map for the evaluators to follow. If the only testing that did not agree is from the teacher, then I would suggest someone go to observe the child in the classroom. I wish this were done more often, really. Many times, teachers may not consider some thing a problem because it does not personally bother them or is not upsetting the routine. If he was throwing chairs, she'd be singing a different tune. But a kid who is not doing well socially or who is having problem with handwriting (especially in that young of a grade) can easily be dismissed as a little immature or not even considered a problem. But if he does have AS, we know those problems are most likely going to need intervention. Roxanna "I predict future happiness for Americans if they can prevent the government from wasting the labors of the people under the pretense of taking care of them." - Jefferson ( ) Asperger diagnosis Our six year old son was given a diagnosis: Rule Out 299.80 Asperger Disorder. Our counselor tells us this means they can not rule out Asperger Disorder but the facts were not 100 % evident. His kindergarten teacher's facts she provided did not support Aspergers. The Psychologist's tests supported Aspergers as well as our reports (parents). This is frustrating to us. We are not going to have any further testing done until before he goes to First grade this fall. Anyone have an experience with this confusing diagnosis? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2011 Report Share Posted January 15, 2011 You need to focus the team/staff on his needs and problems. Even if it were "just ADHD" causing the problems, they still need to be appropriately addressed. As for meds, I don't believe they are qualified to prescribe meds. My dh once asked a teacher if she was a doctor on the side because she was stuck on "he needs to take meds." I would listen to what they are telling you because it's all valuable information. But you can certainly let them know what the med situation is and now you want to focus on supports to work on these issues. As well, meds to do not fix the problem even with ADHD. There are still skills that need to be taught and supported regardless. Roxanna "I predict future happiness for Americans if they can prevent the government from wasting the labors of the people under the pretense of taking care of them." - Jefferson ( ) Asperger diagnosis Our six year old son was given a diagnosis: Rule Out 299.80 Asperger Disorder. Our counselor tells us this means they can not rule out Asperger Disorder but the facts were not 100 % evident. His kindergarten teacher's facts she provided did not support Aspergers. The Psychologist's tests supported Aspergers as well as our reports (parents). This is frustrating to us. We are not going to have any further testing done until before he goes to First grade this fall. Anyone have an experience with this confusing diagnosis? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2011 Report Share Posted January 15, 2011 I feel I have to chime in here just a little. NO, while an AS diagnosis or any diagnosis is by no means a "prize", it is better than not knowing what your child's problem derive from. My son had an ADHD diagnosis from K-4th grade. There for many of his issues were not dealt with properly. Him hiding under the table in 1st grade when it came to reading was considered bad behavior instead of the fact that he couldn't read and was using this behavior as a way of avoidance!! Or in second grade when he would hide in the corner by the book shelves because he was trying to get away from on the noises or when he would get bumped into in line he would over react and he was called "aggressive" and "misbehaving". His 2nd grade teacher literally said "he just needed a firm hand". Guess in her opinion, if I just beat him enough his issues would go away!! He was diagnosed with SID in 2nd grade and everyone was like "OH!" But he was considered as "oppositional" and was treated as such, which is NOT the way to address issues of someone with AS, as we all know. When we finally got the correct diagnosis when he was in 5th grade, again it was an "Ah ha" moment. Not just for some of his teachers but for us too. It helped us to understand him better and to fight for the right services to address his needs. When he just had the ADHD diagnosis his teachers and the school as a whole too often blew us off when we tried to point out that he needed certain things. They acted as if he had a CHOICE as to whether his AS affected him or not. Like he could just turn it off at will. They would assume that if he had a good day one day, and if he didn't the next, that it was HIS fault. He was CHOOSING" to have to have sensory, social and language deficits. I'm just saying, that I would give any amount of money in the world to NOT have my son "labeled" or rather for not NEEDING to be labeled in the first place. But however you look at it, a correct diagnosis is critical any time you are dealing with any problems your child has, whether it's medical or psychological. In an ideal world you should be able to get the help your child needs regardless if he/she is diagnosed with anything as long as it's been shown that your child needs it. But this is not an ideal world and many schools will do nothing and just rather label your child as oppositional, bad, lacking effort, or "choosing" to be the way they are. So, my advice is to follow your gut with regard to YOUR child. No one knows your child better than the parent. Seek the proper diagnosis that fits your child. Not because we enjoy having our children "labeled" but because it's a tool to help you and your child. Sorry, guess I chimed in more than just a little. Hope I didn't/don't offend anyone. :-) Just my opinion....ne>> No not a prize, in fact I'd rather my life not be more confused by a new > diagnosis. I only ask because the school at our IEP meeting is really stuck on > his ADHD only, and therefore think that meds is the only solution for Dylan. > Dylan's problems run the gamet and Ritalin is not the answer. I'm getting very > frustrated with people who don't want to explore the possibility that Dylan may > be suffering and I mean suffering from something else. I want no stone left > unturned. Does this sound better? It's not a prize> > > > > ________________________________> From: Carolyn Weisbard <ccweisbard@...>> > Sent: Thu, January 13, 2011 11:37:47 AM> Subject: Re: ( ) Asperger diagnosis> >  > I am a bit confused.... What is the big deal about giving the lable of AS?? It > seems like it is almost a prize to be had....> Carolyn> > > > > ________________________________> From: Cathleen Veloria <cathleen.veloria@...>> > Sent: Thu, January 13, 2011 12:22:31 PM> Subject: Re: ( ) Asperger diagnosis> >  > yes, we are in the middle of ADHD and Autism meaning we have a Dx of PDD-NOS but > no one feels comfortable stating AS. I am seeking further testing from a > neurpsychologist if I can afford it. If he comes back saying no to the AS, I > drop it. But my instincts say differently.> > Cathleen> > > > > ________________________________> From: jeanarob <jmboase@...>> > Sent: Wed, January 12, 2011 10:21:11 PM> Subject: ( ) Asperger diagnosis> >  > Our six year old son was given a diagnosis:> Rule Out 299.80 Asperger Disorder.> Our counselor tells us this means they can not rule out Asperger Disorder but > the facts were not 100 % evident. His kindergarten teacher's facts she provided > did not support Aspergers. The Psychologist's tests supported Aspergers as well > as our reports (parents). This is frustrating to us. We are not going to have > any further testing done until before he goes to First grade this fall. Anyone > have an experience with this confusing diagnosis?> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2011 Report Share Posted January 16, 2011 I couldn't agree more ne and I applaud you for posting that. I have two children on the spectrum and getting that diagnosis in writing really helped me as far as getting help for them and making sure the had the appropriate services in school. As someone who has training in special ed laws and regs, and used to be a paid advocate but now does it as a volunteer, I can certainly attest to the fact that although needs (not labels or eligibility categories) are supposed to drive services, not all schools do things that way. I've seen it way too many times. Debra "Each day of our lives we make deposits in the memory banks of our children." - Swindell -April is Autism Awareness Month! 1 out of every 110 children is diagnosed with Autism. 2 of them are MINE! 9:1-3 >> No not a prize, in fact I'd rather my life not be more confused by a new > diagnosis. I only ask because the school at our IEP meeting is really stuck on > his ADHD only, and therefore think that meds is the only solution for Dylan. > Dylan's problems run the gamet and Ritalin is not the answer. I'm getting very > frustrated with people who don't want to explore the possibility that Dylan may > be suffering and I mean suffering from something else. I want no stone left > unturned. Does this sound better? It's not a prize> > > > > ________________________________> From: Carolyn Weisbard <ccweisbard@...>> > Sent: Thu, January 13, 2011 11:37:47 AM> Subject: Re: ( ) Asperger diagnosis> >  > I am a bit confused.... What is the big deal about giving the lable of AS?? It > seems like it is almost a prize to be had....> Carolyn> > > > > ________________________________> From: Cathleen Veloria <cathleen.veloria@...>> > Sent: Thu, January 13, 2011 12:22:31 PM> Subject: Re: ( ) Asperger diagnosis> >  > yes, we are in the middle of ADHD and Autism meaning we have a Dx of PDD-NOS but > no one feels comfortable stating AS. I am seeking further testing from a > neurpsychologist if I can afford it. If he comes back saying no to the AS, I > drop it. But my instincts say differently.> > Cathleen> > > > > ________________________________> From: jeanarob <jmboase@...>> > Sent: Wed, January 12, 2011 10:21:11 PM> Subject: ( ) Asperger diagnosis> >  > Our six year old son was given a diagnosis:> Rule Out 299.80 Asperger Disorder.> Our counselor tells us this means they can not rule out Asperger Disorder but > the facts were not 100 % evident. His kindergarten teacher's facts she provided > did not support Aspergers. The Psychologist's tests supported Aspergers as well > as our reports (parents). This is frustrating to us. We are not going to have > any further testing done until before he goes to First grade this fall. Anyone > have an experience with this confusing diagnosis?> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2011 Report Share Posted January 18, 2011 Because a school doesn't follow the law doesn't mean we should just agree to do it a different way or let them do it that way. That is why parents need to learn the rules . And that is what having an advocate would be for - to make sure they are following the law. Roxanna "I predict future happiness for Americans if they can prevent the government from wasting the labors of the people under the pretense of taking care of them." - Jefferson ( ) Asperger diagnosis > > Â > Our six year old son was given a diagnosis: > Rule Out 299.80 Asperger Disorder. > Our counselor tells us this means they can not rule out Asperger Disorder but > the facts were not 100 % evident. His kindergarten teacher's facts she provided > did not support Aspergers. The Psychologist's tests supported Aspergers as well > as our reports (parents). This is frustrating to us. We are not going to have > any further testing done until before he goes to First grade this fall. Anyone > have an experience with this confusing diagnosis? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2011 Report Share Posted January 18, 2011 I never suggested giving in. That was my whole point. Sometimes it's a necessary fight and in some cases having that diagnosis is necessary too. I never said to let the school just do it their way. Debra "Each day of our lives we make deposits in the memory banks of our children." - Swindell -April is Autism Awareness Month! 1 out of every 110 children is diagnosed with Autism. 2 of them are MINE! 9:1-3 >> No not a prize, in fact I'd rather my life not be more confused by a new > diagnosis. I only ask because the school at our IEP meeting is really stuck on > his ADHD only, and therefore think that meds is the only solution for Dylan. > Dylan's problems run the gamet and Ritalin is not the answer. I'm getting very > frustrated with people who don't want to explore the possibility that Dylan may > be suffering and I mean suffering from something else. I want no stone left > unturned. Does this sound better? It's not a prize> > > > > ________________________________> From: Carolyn Weisbard <ccweisbard@...>> > Sent: Thu, January 13, 2011 11:37:47 AM> Subject: Re: ( ) Asperger diagnosis> >  > I am a bit confused.... What is the big deal about giving the lable of AS?? It > seems like it is almost a prize to be had....> Carolyn> > > > > ________________________________> From: Cathleen Veloria <cathleen.veloria@...>> > Sent: Thu, January 13, 2011 12:22:31 PM> Subject: Re: ( ) Asperger diagnosis> >  > yes, we are in the middle of ADHD and Autism meaning we have a Dx of PDD-NOS but > no one feels comfortable stating AS. I am seeking further testing from a > neurpsychologist if I can afford it. If he comes back saying no to the AS, I > drop it. But my instincts say differently.> > Cathleen> > > > > ________________________________> From: jeanarob <jmboase@...>> > Sent: Wed, January 12, 2011 10:21:11 PM> Subject: ( ) Asperger diagnosis> >  > Our six year old son was given a diagnosis:> Rule Out 299.80 Asperger Disorder.> Our counselor tells us this means they can not rule out Asperger Disorder but > the facts were not 100 % evident. His kindergarten teacher's facts she provided > did not support Aspergers. The Psychologist's tests supported Aspergers as well > as our reports (parents). This is frustrating to us. We are not going to have > any further testing done until before he goes to First grade this fall. Anyone > have an experience with this confusing diagnosis?> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2011 Report Share Posted January 18, 2011 It sounded to me like you were saying that you've seen that many schools do not focus on needs but on dx and that's why it's important to get the dx. I am pointing out that just because they do it that way, doesn't make it right or something we should accept. Roxanna "I predict future happiness for Americans if they can prevent the government from wasting the labors of the people under the pretense of taking care of them." - Jefferson ( ) Asperger diagnosis > > Â > Our six year old son was given a diagnosis: > Rule Out 299.80 Asperger Disorder. > Our counselor tells us this means they can not rule out Asperger Disorder but > the facts were not 100 % evident. His kindergarten teacher's facts she provided > did not support Aspergers. The Psychologist's tests supported Aspergers as well > as our reports (parents). This is frustrating to us. We are not going to have > any further testing done until before he goes to First grade this fall. Anyone > have an experience with this confusing diagnosis? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2011 Report Share Posted January 18, 2011 That's exactly why i dissented to our IEP. The school would only focus on Dylan's ADHD, and not his true needs. It's the only reason why I asked this community if I needed that AS dx to get anywhere with my stubborn school. I don't need more labels for my son, but if it wakens up the schools eyes and brain so they can create a viable IEP then so be it. My son can't even pee at school because of his anxiety level is sky high. That was never addressed at the IEP meeting, because it didn't fall under symptoms of ADHD. Inattention, hyperactivity, time on task were all addressed, barely. I'm rambling now, so I'll go. From: Roxanna <MadIdeas@...> Sent: Tue, January 18, 2011 6:51:20 PMSubject: Re: ( ) Asperger diagnosis It sounded to me like you were saying that you've seen that many schools do not focus on needs but on dx and that's why it's important to get the dx. I am pointing out that just because they do it that way, doesn't make it right or something we should accept. Roxanna"I predict future happiness for Americans if they can prevent the government from wasting the labors of the people under the pretense of taking care of them." - Jefferson ( ) Asperger diagnosis> > Â > Our six year old son was given a diagnosis:> Rule Out 299.80 Asperger Disorder.> Our counselor tells us this means they can not rule out Asperger Disorder but > the facts were not 100 % evident. His kindergarten teacher's facts she provided > did not support Aspergers. The Psychologist's tests supported Aspergers as well > as our reports (parents). This is frustrating to us. We are not going to have > any further testing done until before he goes to First grade this fall. Anyone > have an experience with this confusing diagnosis?> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2011 Report Share Posted January 18, 2011 How about an anxiety diagnosis? Wouldn't that be quicker and easier to get? And get you some extra services from the school?The pediatric neurologist diagnosed my son with anxiety at the first visit, and prescribed him Zoloft. I haven't given it to him so can't tell you if it works.From: Cathleen Veloria <cathleen.veloria@...>Subject: Re: ( ) Asperger diagnosis Date: Tuesday, January 18, 2011, 9:07 PM That's exactly why i dissented to our IEP. The school would only focus on Dylan's ADHD, and not his true needs. It's the only reason why I asked this community if I needed that AS dx to get anywhere with my stubborn school. I don't need more labels for my son, but if it wakens up the schools eyes and brain so they can create a viable IEP then so be it. My son can't even pee at school because of his anxiety level is sky high. That was never addressed at the IEP meeting, because it didn't fall under symptoms of ADHD. Inattention, hyperactivity, time on task were all addressed, barely. I'm rambling now, so I'll go. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2011 Report Share Posted January 19, 2011 , excellent idea. Our next appt. I was going to suggest that. Keep me posted how that works. I think I will ask for Zoloft also because my sister and Mom take it and have good results. Cathleen From: <jennywatson@...> Sent: Tue, January 18, 2011 8:09:18 PMSubject: Re: ( ) Asperger diagnosis How about an anxiety diagnosis? Wouldn't that be quicker and easier to get? And get you some extra services from the school?The pediatric neurologist diagnosed my son with anxiety at the first visit, and prescribed him Zoloft. I haven't given it to him so can't tell you if it works. From: Cathleen Veloria <cathleen.veloria@...>Subject: Re: ( ) Asperger diagnosis Date: Tuesday, January 18, 2011, 9:07 PM That's exactly why i dissented to our IEP. The school would only focus on Dylan's ADHD, and not his true needs. It's the only reason why I asked this community if I needed that AS dx to get anywhere with my stubborn school. I don't need more labels for my son, but if it wakens up the schools eyes and brain so they can create a viable IEP then so be it. My son can't even pee at school because of his anxiety level is sky high. That was never addressed at the IEP meeting, because it didn't fall under symptoms of ADHD. Inattention, hyperactivity, time on task were all addressed, barely. I'm rambling now, so I'll go. Quote Link to comment Share on other sites More sharing options...
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