Am I CRAZY??? (kind of long)

[Guest guest]

Starting initial testing for PDD for my daughter at TEAM Center in Chatt. TN. My

1st appt with the psychologist, he mentions that nothing seems to be wrong with

my daughter, she seems SHY. OK, I let that slide.

As soon as we get out of his clinic, she becomes her normal WILD, AGGRESSIVE

self. He has only seen the Nice side for an hour. He gives me the different

tests to take home and complete. None of these tests mention the autism behavior

that we are concerned about. She is high functioning, great language, etc. She

does NOT have imaginative play, does not play with toys (lines them up), does

not feel pain (ruptured ear recently and did not feel a thing), extreme

daredevil behavior, selective hearing, doesn't like cuddling, poor sleeping,

extremely independent, hyperactive (cannot sit still) many tantrums,no

discipline works (NONE), chews on non food items, lack of social play etc. Plus

she has all the bio-med issues too...yeast, GFCFSFEF, clostridia. low

vitamin/mineral levels.

Today is our 2nd appt. I mention these issues with him and he seems so

unconcerned. He said " most parents overstate their children's issues....Look she

is making eye contact with me and engaging me with smiles and laugher " . I told

him that the social issues are not what I am concerned about and I mention the

above issues. He really does not respond with anything but " we all have

tendencies to be on the spectrum " .

I feel like he is only looking for the social issues. Should I even be worried

about the other issues then? Sbe has been diagnosed with SPD, but I feel like

SPD does not contribute to every issue ( she is in OT for SPD issues). In other

words, I feel like he thinks I have raised a brat or I lack good parenting

skills.

This is very frustrating to know that SOMETHING is wrong, but cannot get anyone

to help us do anything about it. I don't believe that she will get the diagnosis

and we are not going to get the help that we need.

Has anyone ever felt this way? Or has similar situation happened and what did

you do to get the help that you needed??

[Guest guest]

This is why you are on this support group. Autism I thought was a silent child

rocking in the corner that didn't talk. I didn't think that included my child

either. And boy did I feel like a looser parent with my son being so difficult.

I had a developmental ped chew me up and down the other side about my 4 year old

son not being potty trained. Trust me, I bought ever gadget, book, video, it

didn't work. One day it did and we never looked back. I told her my guy has

issues and I know perfectly " normal " boys that didn't potty train until 4. My

second nt son, it was a breeze, trust me. I'd have a dozen on him and my

PPD-NOS son...ONE. Love him to death but there are many days I don't have an

ounce of strength to go over it again, and again, and again.

Is your child getting there services you need? Is there a need for more of a

diagnoses or an official one? Try another doctor and honestly, there are books

out there for reading, , parents support groups. We are all here to

help one another. Some times getting ideas on parenting because they aren't

easy kids to parent, I KNOW! Until you've sat in this position, it isn't fun.

Before I had kids...well I understand so much and it isn't always the parents at

fault.

We had a circle team evaluation, like a 2 day process. They then got together,

bounces ideas, treatments. I thought for sure asbergers, but they said my guy

was too social. WHATEVER. Don't get to hooked up on diagnoses because everyone

has their thoughts an opinions. I also thought my child, he memorized his world

and was reading at 2 1/2, he had hypolexia. They said no because he wasn't

reading chapter books at 5. WHATEVER! He couldn't get his shoes.

Tammy

Am I CRAZY??? (kind of long)

Starting initial testing for PDD for my daughter at TEAM Center in Chatt. TN.

My 1st appt with the psychologist, he mentions that nothing seems to be wrong

with my daughter, she seems SHY. OK, I let that slide.

As soon as we get out of his clinic, she becomes her normal WILD, AGGRESSIVE

self. He has only seen the Nice side for an hour. He gives me the different

tests to take home and complete. None of these tests mention the autism behavior

that we are concerned about. She is high functioning, great language, etc. She

does NOT have imaginative play, does not play with toys (lines them up), does

not feel pain (ruptured ear recently and did not feel a thing), extreme

daredevil behavior, selective hearing, doesn't like cuddling, poor sleeping,

extremely independent, hyperactive (cannot sit still) many tantrums,no

discipline works (NONE), chews on non food items, lack of social play etc. Plus

she has all the bio-med issues too...yeast, GFCFSFEF, clostridia. low

vitamin/mineral levels.

Today is our 2nd appt. I mention these issues with him and he seems so

unconcerned. He said " most parents overstate their children's issues....Look she

is making eye contact with me and engaging me with smiles and laugher " . I told

him that the social issues are not what I am concerned about and I mention the

above issues. He really does not respond with anything but " we all have

tendencies to be on the spectrum " .

I feel like he is only looking for the social issues. Should I even be worried

about the other issues then? Sbe has been diagnosed with SPD, but I feel like

SPD does not contribute to every issue ( she is in OT for SPD issues). In other

words, I feel like he thinks I have raised a brat or I lack good parenting

skills.

This is very frustrating to know that SOMETHING is wrong, but cannot get

anyone to help us do anything about it. I don't believe that she will get the

diagnosis and we are not going to get the help that we need.

Has anyone ever felt this way? Or has similar situation happened and what did

you do to get the help that you needed??

[Guest guest]

You are not crazy. Normal kids don't have all these things you described. Her

behavior is a sign that her body is trying to tell you she's not well. Your mom

gut is right...

She does NOT have imaginative play, does not play with toys (lines them up),

does not feel pain (ruptured ear recently and did not feel a thing), extreme

daredevil behavior, selective hearing, doesn't like cuddling, poor sleeping,

extremely independent, hyperactive (cannot sit still) many tantrums,no

discipline works (NONE), chews on non food items, lack of social play etc. Plus

she has all the bio-med issues too...yeast, GFCFSFEF, clostridia. low

vitamin/mineral levels.

>

Find a different doctor, who notices when you describe all these symptoms. I

believe that is the malfunctioning part of the situation you described.

Terri

mom to Zane, hfa almost 16yo

[Guest guest]

I would be concerned, but no, he is not the right person to help with these

issues. If you know about high clostridia levels, the diet and vit./mineral

levels, then you have probably come across several physician names that work in

this field. The biochemical issues largely drive the behaviors. Treat those

correctly and the issues will lessen or disappear. Therapy is good, but treating

the underlying issue is better. I don't know much about DAN docs, but we see Dr.

Megson and it's made all the difference. She won't do it all for you, but

she helps you get where you want to go with your child's health.

Am I CRAZY??? (kind of long)

Starting initial testing for PDD for my daughter at TEAM Center in Chatt. TN.

My 1st appt with the psychologist, he mentions that nothing seems to be wrong

with my daughter, she seems SHY. OK, I let that slide.

As soon as we get out of his clinic, she becomes her normal WILD, AGGRESSIVE

self. He has only seen the Nice side for an hour. He gives me the different

tests to take home and complete. None of these tests mention the autism behavior

that we are concerned about. She is high functioning, great language, etc. She

does NOT have imaginative play, does not play with toys (lines them up), does

not feel pain (ruptured ear recently and did not feel a thing), extreme

daredevil behavior, selective hearing, doesn't like cuddling, poor sleeping,

extremely independent, hyperactive (cannot sit still) many tantrums,no

discipline works (NONE), chews on non food items, lack of social play etc. Plus

she has all the bio-med issues too...yeast, GFCFSFEF, clostridia. low

vitamin/mineral levels.

Today is our 2nd appt. I mention these issues with him and he seems so

unconcerned. He said " most parents overstate their children's issues....Look she

is making eye contact with me and engaging me with smiles and laugher " . I told

him that the social issues are not what I am concerned about and I mention the

above issues. He really does not respond with anything but " we all have

tendencies to be on the spectrum " .

I feel like he is only looking for the social issues. Should I even be worried

about the other issues then? Sbe has been diagnosed with SPD, but I feel like

SPD does not contribute to every issue ( she is in OT for SPD issues). In other

words, I feel like he thinks I have raised a brat or I lack good parenting

skills.

This is very frustrating to know that SOMETHING is wrong, but cannot get

anyone to help us do anything about it. I don't believe that she will get the

diagnosis and we are not going to get the help that we need.

Has anyone ever felt this way? Or has similar situation happened and what did

you do to get the help that you needed??