Re: Re: Hyperactive? Also SSI

[Guest guest]

If the meds are not helping what you think they should be helping, then

you should talk to your doctor and discuss that. He could be taking

the wrong ones, the wrong doses or any number of things...

With going to an event, it might be a good idea to write a simple

social story or a list of ways you expect him to behave while you are

there. I know it seems a silly thing to do, but I have seen the power

of using these tools. There was a kid in our social group who was loud

and out of control. His mom wrote him up some character cards - pocket

sized cards with characters on them that repeated behavioral goals he

was working on. He would start hyping up, then grab his cards and

touch his fingers to his card, then to his head. It was like he was

wishing the skills into himself. But it worked. He would regroup

doing that and calm down a bit. It also worked great with my youngest

ds when he was a toddler. He used to tantrum a lot. Then I realized

he just needed to know what was going on. I didn't have to write his

down but I would tell him, " We are doing 4 things right now... " and

list them. He would be fine and cooperate. It was such a minor thing

to do. I guess his anxiety of not knowing what was going on

overwhelmed him.

Anyway, it does help to outline the basic rules before you go some

place that you know will be har

d for him. Practice the rules, write

them in social story, have him repeat them back, whatever method works.

With mine, I will say, " I can't afford to buy anything today. Do not

ask for toys! You can look but I can't buy! " They are fairly good

with that. There is also a good book, " The explosive child " that you

might read for more/better ideas on handling him. Sometimes it is not

all meds that change the behavior and you also have to change your

response as well as work with him on practicing the skills he lacking.

It's a combination of these that will improve things.

 Roxanna

" The only thing necessary for the triumph of evil is for good men to do

nothing. " E. Burke

( ) Re: Hyperactive? Also SSI

Over the weekend we tried to do a street festival in town. As soon as

my son got there he wanted a WEbkinz which he obsesses over and has

over 30! We said no that we were just looking around. He started

kicking and screaming and hitting and spitting at us, He is 7, and my

husband had to pick him up and carry him down the street to the car as

he was punching him in the face. When I arrived at the car he said he

was hungry and wanted to eat. I'm like no not after that fit you eat at

=0

Ahome and we drove home. He throws fits everytime he doesn't get his way

or what he wants. He is on meds too. I wonder why they don't stop the

anger? Yesterday he put two holes in the walls when on time out because

he threw a fit because I wouldn't take him to the store. We see the

psychiatrist AGAIN today but we haven't found a way to stop the

meltdowns. Has anyone found their ASD kids were worse on meds? I wonder

how he would be without them? He is on Abilify, Clonidine and Celexa. I

feel sorry for my other kids 13, 9, 2. It does get annoying that he has

to spoil every outing.

> >

> > Are your Aspergers children really hyperactive? n is. He is

always all over the place. He runs away from us. He always has a lot of

energy. When I go outside with him, as soon as a close the door, he is

right by the road. I hate keeping him in. We use when I call a baby

leash on him when we go in big places like the mall. We always get

looks from people. When we go in public, he always cries and screams

when he doesn't get what he wants and we always get looks and whispers

from people. It makes me mad because they don't know what we have to

deal with. Do your kids have adhd? If so, how do you go about getting

them on medication? And do our kids qualify for SSI? How do I find out?

Thanks for all your help ladies

>

> My Asperger son is not hyperactive at all and has no attention

problems at all. It just depends on the child. My son has problems that

look like hyperactivity/ inattention to the untrained eye. He will

avoid looking at people while they are talking to him and do something

else to keep his hands and eyes busy elsewhere.

But he is attending

well, using his auditory senses--just not looking. This includes in

class while the teacher is lecturing. They test him, and he is

listening, can answer questions about what they are talking about, etc.

Since he doesn't " go with the flow " very well, when he was young, he

would also wonder off in public. We kept him in a stroller until he was

almost 5yo; then he was too heavy, and I had to just really keep an eye

on him. I had to really lessen my ambitions on what we would accomplish

with a family outing, since I couldn't do as much and keep a very close

eye on him at the same time. Again, that may seem like inattention,

> but it really is a lack of ability to read non-verbal

communications. They aren't seeing the body language and facial

expressions that signal other's intents. It is important to distinguish

between ADHD and the communication breakdowns of autism since

medication isn't what is going to help the communication breakdowns. On

the other hand, if your child has both ADHD and AS--medication may help

a lot.

>

> Regarding SSI--seems some kids qualify and some don't--suggests some

gray area. Unless you are low income or don't have medical insurance,

I'm not sure what the point would be for a child. If you are low

income, it seems like medicaid has more programs, and I don't think you

can do both. At least that is what they told my husband.

0A>

> My husband is blind and has had SSI for decades, so we have been

dealing with it for quite some time. I don't know that much about SSI

for kids though..

>

> SSI for adults--SSI is intended to be an insurance program that

people pay into. You're supposed to have so many work credits to

qualify and you have to wait a couple of years or something like that.

I believe only kids get SSI " for free " .

>

> As an adult though, SSI is not so income dependent, although it is

somewhat.. Someone who has paid into the system and becomes disabled

will get some kind of payment and medicare insurance. For all practical

purposes, they are just getting their soc sec early (and probably a

smaller amount than they would get if they were able to keep working).

>

> I'm posting the info on SSI for adults in response to some earlier

posts. Some people were saying their kids qualified for SSI as kids,

but then were told they didn't qualify as adults. It could have nothing

to do with their disability, simply the fact that they haven't worked

and earned enough work credits. I'm not so sure you can get past that.

If they can't work at all, or just haven't worked much yet, they might

need to go the medicaid/welfare route. One thing you can do for your

kids is make sure their employers are filing social security taxes on

them. With contract jobs or cash jobs, sometimes this

doesn't happen

unless someone makes it happen. Or you can try to make sure your child

doesn't take a job where social security taxes aren't going to be paid.

>

[Guest guest]

Wow, Jan. That is a crappy place. Can you change to a different

psychiatrist?

 Roxanna

" The only thing necessary for the triumph of evil is for good men to do

nothing. " E. Burke

Re: ( ) Re: Hyperactive? Also SSI

now ....but we do what we gotta do.  We went to the psychiatrisst

yesterday...the appt. was for 1:30 and we didn't get in till

2:20....next time I am walking out....that is so unreal ....every time

we go we have to wait  and yesterday was the longest.  And, on top of

it, my son is there ...saying can we go , can we go about every minute.

 

lfie stinks somedays....

 

jan

Janice Rushen

 

" I will try to be open to all avenues of wisdom and hope "

Messages