Guest guest Posted February 24, 2004 Report Share Posted February 24, 2004 Everyone is different, but when our daughter began doing the same, we told our doctors and they suspected that perhaps there was some compression in her forum magnum. Sure enough, there was NO spinal fluid going up the right side of her stem, and she also had some problems with tightening in her spine. So, she was rushed in to emergency surgery and had decompression. Like I said, everyone is different, but perhaps that may be something to consider. Warmly, Debi Hoggan o <paulojr1@...> wrote: My son is 4 years old, Pseudo, he is fully potty trained for more then two years, now he started wetting the bed, I was wondering if it could be any how related to pseudo achondroplasia, does any parent know about this?! ngela === Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2004 Report Share Posted February 24, 2004 Indeed every child is different. Some kids wet the bed until they're 10 or 11 -- regardless of height or genetic difference. Dan On 2/24/04 5:24 PM, " hogganclan " <hogganclan@...> wrote: > Everyone is different, but when our daughter began doing the same, we told our > doctors and they suspected that perhaps there was some compression in her > forum magnum. Sure enough, there was NO spinal fluid going up the right side > of her stem, and she also had some problems with tightening in her spine. So, > she was rushed in to emergency surgery and had decompression. Like I said, > everyone is different, but perhaps that may be something to consider. > Warmly, Debi Hoggan > > o <paulojr1@...> wrote: > My son is 4 years old, Pseudo, he is fully potty trained for more > then two years, now he started wetting the bed, I was wondering if > it could be any how related to pseudo achondroplasia, does any > parent know about this?! > ngela Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2011 Report Share Posted January 31, 2011 If you find something that works let us know. My dd is 10 and wets 29 nights/month. She is now wetting through the pullup and we will have to switch to depends. I hope your daughter gets back on track. In the meantime we will remain the "queen" of laundry. Best Wishes! From: patricia <Zazoo81198@...>Subject: ( ) wetting the bedAspergers Treatment Date: Monday, January 31, 2011, 12:24 PM This is a big confusion to me. We have tried the alarms, the pills, limiting her fluid intake before bed..etc etc...about 7 or 8 months ago when we moved to Colorado she stopped completely overnight and has been doing great. Then about a month ago without any warning she started up again. She will wake up and get another blanket, strip her clothes off, shove them in the closet, put on other clothes, and go back to sleep. I have given her depends to wear to cut down on laundry, but she won't wear them. About a month and a half a go I had signed up for a mall-lock in with the girl scouts, but she had that taken away because of her behavior at school and home. Then this came up. All the things she has achieved since moving here has gone downhill and I wish I knew how to get them back. Mom to my 4 girlsMadeline, Cayla, Arabella, & Vincenza"You are the TRIP I did not takeYou are the PEARLS I cannot buyYou are the blue Italian LAKEYOU are my piece of foreign SKY"---Anne ---- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2011 Report Share Posted January 31, 2011 Just wanted to mention that this can be a side effect of meds. My 9 yo ds has very occasional bed wetting, but it started happening a lot. I thought maybe the meds were just making him extra tired, but the doc said incontinence is a side effect and took him off it (I believe it as Risperdal, but he has tried many). Not sure if this is your case, but thought I would mention it.... > > > From: patricia <Zazoo81198@...> > Subject: ( ) wetting the bed > Aspergers Treatment > Date: Monday, January 31, 2011, 12:24 PM > > >  > > > > This is a big confusion to me. We have tried the alarms, the pills, limiting her fluid intake before bed..etc etc...about 7 or 8 months ago when we moved to Colorado she stopped completely overnight and has been doing great. Then about a month ago without any warning she started up again. She will wake up and get another blanket, strip her clothes off, shove them in the closet, put on other clothes, and go back to sleep. I have given her depends to wear to cut down on laundry, but she won't wear them. About a month and a half a go I had signed up for a mall-lock in with the girl scouts, but she had that taken away because of her behavior at school and home. Then this came up. All the things she has achieved since moving here has gone downhill and I wish I knew how to get them back. > > > > Mom to my 4 girls > Madeline, Cayla, Arabella, & Vincenza > " You are the TRIP I did not take > You are the PEARLS I cannot buy > You are the blue Italian LAKE > YOU are my piece of foreign SKY " > ---Anne ---- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2011 Report Share Posted January 31, 2011 Just wanted to mention that this can be a side effect of meds. My 9 yo ds has very occasional bed wetting, but it started happening a lot. I thought maybe the meds were just making him extra tired, but the doc said incontinence is a side effect and took him off it (I believe it as Risperdal, but he has tried many). Not sure if this is your case, but thought I would mention it.... > > > From: patricia <Zazoo81198@...> > Subject: ( ) wetting the bed > Aspergers Treatment > Date: Monday, January 31, 2011, 12:24 PM > > >  > > > > This is a big confusion to me. We have tried the alarms, the pills, limiting her fluid intake before bed..etc etc...about 7 or 8 months ago when we moved to Colorado she stopped completely overnight and has been doing great. Then about a month ago without any warning she started up again. She will wake up and get another blanket, strip her clothes off, shove them in the closet, put on other clothes, and go back to sleep. I have given her depends to wear to cut down on laundry, but she won't wear them. About a month and a half a go I had signed up for a mall-lock in with the girl scouts, but she had that taken away because of her behavior at school and home. Then this came up. All the things she has achieved since moving here has gone downhill and I wish I knew how to get them back. > > > > Mom to my 4 girls > Madeline, Cayla, Arabella, & Vincenza > " You are the TRIP I did not take > You are the PEARLS I cannot buy > You are the blue Italian LAKE > YOU are my piece of foreign SKY " > ---Anne ---- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2011 Report Share Posted January 31, 2011 Just wanted to mention that this can be a side effect of meds. My 9 yo ds has very occasional bed wetting, but it started happening a lot. I thought maybe the meds were just making him extra tired, but the doc said incontinence is a side effect and took him off it (I believe it as Risperdal, but he has tried many). Not sure if this is your case, but thought I would mention it.... > > > From: patricia <Zazoo81198@...> > Subject: ( ) wetting the bed > Aspergers Treatment > Date: Monday, January 31, 2011, 12:24 PM > > >  > > > > This is a big confusion to me. We have tried the alarms, the pills, limiting her fluid intake before bed..etc etc...about 7 or 8 months ago when we moved to Colorado she stopped completely overnight and has been doing great. Then about a month ago without any warning she started up again. She will wake up and get another blanket, strip her clothes off, shove them in the closet, put on other clothes, and go back to sleep. I have given her depends to wear to cut down on laundry, but she won't wear them. About a month and a half a go I had signed up for a mall-lock in with the girl scouts, but she had that taken away because of her behavior at school and home. Then this came up. All the things she has achieved since moving here has gone downhill and I wish I knew how to get them back. > > > > Mom to my 4 girls > Madeline, Cayla, Arabella, & Vincenza > " You are the TRIP I did not take > You are the PEARLS I cannot buy > You are the blue Italian LAKE > YOU are my piece of foreign SKY " > ---Anne ---- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2011 Report Share Posted January 31, 2011 This is one of the first things she got tested for. That and a UTI. I have a few nephews and nieces that are diabetic. Mom to my 4 girls Madeline, Cayla, Arabella, & Vincenza "You are the TRIP I did not take You are the PEARLS I cannot buy You are the blue Italian LAKE YOU are my piece of foreign SKY" ---Anne ---- ( ) wetting the bed > Aspergers Treatment > Date: Monday, January 31, 2011, 12:24 PM > > > > > > > This is a big confusion to me. We have tried the alarms, the pills, limiting her fluid intake before bed..etc etc...about 7 or 8 months ago when we moved to Colorado she stopped completely overnight and has been doing great. Then about a month ago without any warning she started up again. She will wake up and get another blanket, strip her clothes off, shove them in the closet, put on other clothes, and go back to sleep. I have given her depends to wear to cut down on laundry, but she won't wear them. About a month and a half a go I had signed up for a mall-lock in with the girl scouts, but she had that taken away because of her behavior at school and home. Then this came up. All the things she has achieved since moving here has gone downhill and I wish I knew how to get them back. > > > > Mom to my 4 girls > Madeline, Cayla, Arabella, & Vincenza > "You are the TRIP I did not take > You are the PEARLS I cannot buy > You are the blue Italian LAKE > YOU are my piece of foreign SKY" > ---Anne ---- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2011 Report Share Posted February 1, 2011 When we had foster kids one needed a type of diaper at night. medicaid paid for his I wondered if medicaid still pays for these when these kids reach a certain age? Pullups and Depends arent cheap. Curious if anyone knows.. In a message dated 1/31/2011 12:59:48 P.M. Eastern Standard Time, mbaet@... writes: If you find something that works let us know. My dd is 10 and wets 29 nights/month. She is now wetting through the pullup and we will have to switch to depends. I hope your daughter gets back on track. In the meantime we will remain the "queen" of laundry. Best Wishes! From: patricia <Zazoo81198@...>Subject: ( ) wetting the bedAspergers Treatment Date: Monday, January 31, 2011, 12:24 PM This is a big confusion to me. We have tried the alarms, the pills, limiting her fluid intake before bed..etc etc...about 7 or 8 months ago when we moved to Colorado she stopped completely overnight and has been doing great. Then about a month ago without any warning she started up again. She will wake up and get another blanket, strip her clothes off, shove them in the closet, put on other clothes, and go back to sleep. I have given her depends to wear to cut down on laundry, but she won't wear them. About a month and a half a go I had signed up for a mall-lock in with the girl scouts, but she had that taken away because of her behavior at school and home. Then this came up. All the things she has achieved since moving here has gone downhill and I wish I knew how to get them back. Mom to my 4 girlsMadeline, Cayla, Arabella, & Vincenza"You are the TRIP I did not takeYou are the PEARLS I cannot buyYou are the blue Italian LAKEYOU are my piece of foreign SKY"---Anne ---- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 Laundry, laundry, laundry in this house. It is overtaking me. I have three pee-ers. My 12 yo Aspie son was dry for several months then started up again - I think it was the stress of school in 5th grade when he was being bullied. He refuses to use the alarm (says it doesn't wake him) or the DDAVP (is scared of taking it). I have told him that he's old enough to take some responsibility for this problem and that he can change his own bed (I do the laundry part) every day until he decides to do something about it (alarm and med). My son also wakes up and then he goes right back to sleep IN THE PEE for the rest of the night. He also refuses to wear goodnights anymore since he didn't need to for that several month break from wetting. I'm right there with you, so I can't offer much advice. Sorry. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 It's still good to know we aren't the only one. I am wondering if it's the stress/anxiety that's getting to her. She's been on the same level of meds since she was 10. I am wondering if it's time to up them. Her doc is not pro meds which is frustrating to say the least. Mom to my 4 girls Madeline, Cayla, Arabella, & Vincenza "You are the TRIP I did not take You are the PEARLS I cannot buy You are the blue Italian LAKE YOU are my piece of foreign SKY" ---Anne ---- ( ) Re: wetting the bed Laundry, laundry, laundry in this house. It is overtaking me. I have three pee-ers. My 12 yo Aspie son was dry for several months then started up again - I think it was the stress of school in 5th grade when he was being bullied. He refuses to use the alarm (says it doesn't wake him) or the DDAVP (is scared of taking it). I have told him that he's old enough to take some responsibility for this problem and that he can change his own bed (I do the laundry part) every day until he decides to do something about it (alarm and med). My son also wakes up and then he goes right back to sleep IN THE PEE for the rest of the night. He also refuses to wear goodnights anymore since he didn't need to for that several month break from wetting. I'm right there with you, so I can't offer much advice. Sorry. > = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 Medicaid pays for our goodnights. I think it is age 4 and up. Our dr writes a prescription for the goodnights, pharmacy fills it (and delivers for free). I have been wondering if they'd pay for bed pads, etc. I'm going to check it out. > > When we had foster kids one needed a type of diaper at night. medicaid paid > for his I wondered if medicaid still pays for these when these kids > reach a certain age? Pullups and Depends arent cheap. Curious if anyone > knows.. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 , what meds does she take? Leah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 she is taking concerta, prozac, guanafacine, and remeron. Mom to my 4 girls Madeline, Cayla, Arabella, & Vincenza "You are the TRIP I did not take You are the PEARLS I cannot buy You are the blue Italian LAKE YOU are my piece of foreign SKY" ---Anne ---- ( ) Re: wetting the bed , what meds does she take? Leah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 What is the remeron for? I'm not familiar with that one. You could look on drugs.com and see if bedwetting is a side effect of any of the meds. ~ Leah > > she is taking concerta, prozac, guanafacine, and remeron. > > > > Mom to my 4 girls > Madeline, Cayla, Arabella, & Vincenza > " You are the TRIP I did not take > You are the PEARLS I cannot buy > You are the blue Italian LAKE > YOU are my piece of foreign SKY " > ---Anne ---- > > > > ( ) Re: wetting the bed > > > > > > > , what meds does she take? > > Leah > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2011 Report Share Posted February 4, 2011 wets the bed every single night. I am a single parent with low income and a coin op laundry room. As if that wasn't frustrating enough (the financial part of laundry and pull ups) he doesn't even know when he is wet. He will get up in the morning and sit all over the furniture soaked. Also, if the urine has dried by the time he wakes then he gets mad about being made to shower. He doesn't understand that dry pee still smells. If he does realize he is wet he will still shove his pajamas under his pillow and even his wet depend. He takes the desmopressin now. He used to also take imipramine for day time accidents but he doesnt really have those anymore. He does get wet during the day but that is because he doesn't pull his pants down far enough when he goes potty. Or he pulls them up before he is done voiding. Those aren't really accidents though. I am trying to set a routine for him where he just has to shower every morning and not just if wet. Also, I am finding that leaving plastic bags in the bathroom for wet depends and a post it note on his bedroom door reminding him to throw them away is sort of helpful. He has gone to a few sleep overs and except for one time they were successful ventures. I just gave him a depend wrapped in his jammie pants and an extra plastic bag to dispose of it. One sleepover he woke up wet and did not feel it so he sat on his friends new couch. The mother will not let spend the night again. > > This is a big confusion to me. We have tried the alarms, the pills, limiting her fluid intake before bed..etc etc...about 7 or 8 months ago when we moved to Colorado she stopped completely overnight and has been doing great. Then about a month ago without any warning she started up again. She will wake up and get another blanket, strip her clothes off, shove them in the closet, put on other clothes, and go back to sleep. I have given her depends to wear to cut down on laundry, but she won't wear them. About a month and a half a go I had signed up for a mall-lock in with the girl scouts, but she had that taken away because of her behavior at school and home. Then this came up. All the things she has achieved since moving here has gone downhill and I wish I knew how to get them back. > > > > Mom to my 4 girls > Madeline, Cayla, Arabella, & Vincenza > " You are the TRIP I did not take > You are the PEARLS I cannot buy > You are the blue Italian LAKE > YOU are my piece of foreign SKY " > ---Anne ---- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 Just piping in in support. My 12-year-old wets herself almost every night. We haven't tried anything, as her doctor said it was " within the range of normal " until age 11 for girls (same doctor who refused to listen to my please that something was different about her -- thus the fact we just got a diagnosis). She is mortified, and talking about it with her is almost impossible. We just use pull-ups (so far we haven't needed to go to depends), and through therapy have worked on routines for dealing with it in the morning. Right now she puts the pull-ups in a garbage can in her room and I throw them away. Until recently, we had major issues with her hygiene, but in the last six months she's become a huge fan of morning showers (that's another issue -- getting her up and out in the morning is very stressful). I am going to call our insurance company to see whether perhaps they will cover the pull-ups. So glad to see this mentioned. Deirdre She is mortified by this, despite our never once teasing her in any way. > > This is a big confusion to me. We have tried the alarms, the pills, limiting her fluid intake before bed..etc etc...about 7 or 8 months ago when we moved to Colorado she stopped completely overnight and has been doing great. Then about a month ago without any warning she started up again. She will wake up and get another blanket, strip her clothes off, shove them in the closet, put on other clothes, and go back to sleep. I have given her depends to wear to cut down on laundry, but she won't wear them. About a month and a half a go I had signed up for a mall-lock in with the girl scouts, but she had that taken away because of her behavior at school and home. Then this came up. All the things she has achieved since moving here has gone downhill and I wish I knew how to get them back. > > > > Mom to my 4 girls > Madeline, Cayla, Arabella, & Vincenza > " You are the TRIP I did not take > You are the PEARLS I cannot buy > You are the blue Italian LAKE > YOU are my piece of foreign SKY " > ---Anne ---- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 We got the "within the range of normal" too from her doctor when we lived in Hawaii, this being the same doctor that laughed off the list of things that I brought from her teacher saying she needed to be tested because I had told them for years something was different. Even my mother said during a visit something was a little different about her. She has :::crossing fingers, knocking wood::::: stopped in the last few days. Let's hope this sticks. Mom to my 4 girls Madeline, Cayla, Arabella, & Vincenza "You are the TRIP I did not take You are the PEARLS I cannot buy You are the blue Italian LAKE YOU are my piece of foreign SKY" ---Anne ---- ( ) Re: wetting the bed Just piping in in support. My 12-year-old wets herself almost every night. We haven't tried anything, as her doctor said it was "within the range of normal" until age 11 for girls (same doctor who refused to listen to my please that something was different about her -- thus the fact we just got a diagnosis). She is mortified, and talking about it with her is almost impossible. We just use pull-ups (so far we haven't needed to go to depends), and through therapy have worked on routines for dealing with it in the morning. Right now she puts the pull-ups in a garbage can in her room and I throw them away. Until recently, we had major issues with her hygiene, but in the last six months she's become a huge fan of morning showers (that's another issue -- getting her up and out in the morning is very stressful). I am going to call our insurance company to see whether perhaps they will cover the pull-ups. So glad to see this mentioned. Deirdre She is mortified by this, despite our never once teasing her in any way. > > This is a big confusion to me. We have tried the alarms, the pills, limiting her fluid intake before bed..etc etc...about 7 or 8 months ago when we moved to Colorado she stopped completely overnight and has been doing great. Then about a month ago without any warning she started up again. She will wake up and get another blanket, strip her clothes off, shove them in the closet, put on other clothes, and go back to sleep. I have given her depends to wear to cut down on laundry, but she won't wear them. About a month and a half a go I had signed up for a mall-lock in with the girl scouts, but she had that taken away because of her behavior at school and home. Then this came up. All the things she has achieved since moving here has gone downhill and I wish I knew how to get them back. > > > > Mom to my 4 girls > Madeline, Cayla, Arabella, & Vincenza > "You are the TRIP I did not take > You are the PEARLS I cannot buy > You are the blue Italian LAKE > YOU are my piece of foreign SKY" > ---Anne ---- > Quote Link to comment Share on other sites More sharing options...
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