Guest guest Posted July 26, 1999 Report Share Posted July 26, 1999 Terry, My experience with this is from reading posts on the autism ng. Apparently this is a common problem with children that have Aspergers and Autism ( not that your child has this). I'll find out more about this and get back to you. mary kelbro wrote: > Hi, This is Terry in WI. My wife and I were wondering if any one out > there in cyber space has seen toe walking associated with OCD. My > daughter still walks on her toes (10 yrs old in Sept. ) She can and > does also walk normal. Doctors have not been helpful in this area. Any > have any ideas. Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 1999 Report Share Posted July 26, 1999 Hi Terry - Yes I have seen toe walking in my son. He has been doing this since he was two. It waxes and wanes along with other compulsions. If this is OCD, then he has had symptons since he was a toddler. I didn't think anything of it back then but it does look a little odd now a days. He gets very high on his toes and sometimes he tugs up on his pants. When he does this, it looks as though he has to go to the bathroom - but this is seldom the case. By the way, Joe's therapist is Val Stromquist, Ph.D. at The Psychology Center in Madison. (608)833-9290. Toe walking Hi, This is Terry in WI. My wife and I were wondering if any one out there in cyber space has seen toe walking associated with OCD. My daughter still walks on her toes (10 yrs old in Sept. ) She can and does also walk normal. Doctors have not been helpful in this area. Any have any ideas. Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 1999 Report Share Posted July 26, 1999 Hi Terry, You are welcome for the nice thoughts. With respect to the toe walking yes Carly does this enough to where she frequently complains that her feet are sore. I never associated this with OCD just thought she is practicing her ballet. Still not sure. Now I'll be wondering!! - Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 1999 Report Share Posted July 26, 1999 Terry, this is an e-mail from a parent on the alt.sup.autism ng. Hope this helps. mary j wrote: > If you go into deja news you will find posts regarding this an high arched > feet. > It is caused by the tendons on the back of the leg being too tight. My child > has this in her feet and it is clubbing. The doctor said this is common > amoung children with neurological problems. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 1999 Report Share Posted July 30, 1999 Hi, , thanks for the info. TERRY Re: toe walking >From: <maryth3@...> > >Terry, >this is an e-mail from a parent on the alt.sup.autism >ng. Hope this helps. >mary > >j wrote: > >> If you go into deja news you will find posts regarding this an high arched >> feet. >> It is caused by the tendons on the back of the leg being too tight. My child >> has this in her feet and it is clubbing. The doctor said this is common >> amoung children with neurological problems. > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 1999 Report Share Posted August 7, 1999 hello yes they are sure it is the JRA they have ruled out every thing else, when first got sick she had just gotten a DPT and a polieo vaccine so they thought with her high temp it was nero.well lets make a long story short they do not know for sure they think it is because she has lost some range of motion in her ankles, she also has lost range in her left shoulder and her neck two of her disks have fussed together so she can put her head forward but not all the way back,and she can only turn her head to her right shoulder not her left .Has this happend to any one else? see you >From: Skis@... >Reply- onelist > onelist >Subject: [ ] toe walking >Date: Fri, 6 Aug 1999 22:32:01 EDT >MIME-Version: 1.0 >From errors-80038-992-shancna Fri Aug 06 19:40:36 1999 >Received: from [209.207.164.159] by hotmail.com (2.1) with ESMTP id >MHotMailB974E7A4015FD82197E3D1CFA49F047D0; Fri Aug 06 19:40:36 1999 >Received: (qmail 10711 invoked by alias); 7 Aug 1999 02:31:41 -0000 >Received: (qmail 10546 invoked from network); 7 Aug 1999 02:31:39 -0000 >Received: from unknown (HELO imo28.mx.aol.com) (198.81.17.72) by >pop.onelist.com with SMTP; 7 Aug 1999 02:31:39 -0000 >Received: from Skis@... by imo28.mx.aol.com (mail_out_v22.4.) id >hRRLa22757 (4573) for < onelist>; Fri, 6 Aug 1999 22:32:02 >-0400 (EDT) >Message-ID: <b89cbe40.24dcf4a1@...> >X-Mailer: AOL 4.0 for Windows 95 sub 10 >Mailing-List: list onelist; contact -owneronelist >Delivered-mailing list onelist >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeONElist> > >From: Skis@... > >I have a friend who's son toe walks and she was told that it is something >to >do with being grounded. He is autistic and when he is nervous, etc., he >toe >walks. I am surprised does that with her JRA you'd think it would be >painful with all those joints. Are they sure it's the JRA that's causing >it? > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 1999 Report Share Posted August 8, 1999 , Does get 'the rash'? Now when Molly 's little sister bit her the other day and interesting thing happened the rash only appeared right where she was bitten for two days. Her immune system over reacted and the 'inflammation' went right there! Does get any swelling and redness at her joints? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 1999 Report Share Posted August 9, 1999 She did get the rash real bad all over her body ,but she has only had two small rashes on her body in about 6 months.Now she get big red welts I wonder if that is not from the preds.I do not know. her joints do not turn red and hot write now. When Broke was at her worst they did ,but her muscles would as well like if her elbow was in flare her arms would turn to big hot lumps it was weird. How is feeling now? Well I hope all is well .. >From: Skis@... >Reply- onelist > onelist >Subject: Re: [ ] toe walking >Date: Sun, 8 Aug 1999 22:08:30 EDT >MIME-Version: 1.0 >From errors-80038-997-shancna Sun Aug 08 19:09:57 1999 >Received: from [209.207.164.209] by hotmail.com (2.1) with ESMTP id >MHotMailB97783730074D820F3B6D1CFA4D16C4B0; Sun Aug 08 19:09:57 1999 >Received: (qmail 25664 invoked by alias); 9 Aug 1999 02:08:08 -0000 >Received: (qmail 25479 invoked from network); 9 Aug 1999 02:08:00 -0000 >Received: from unknown (HELO imo19.mx.aol.com) (198.81.17.9) by >pop.onelist.com with SMTP; 9 Aug 1999 02:08:00 -0000 >Received: from Skis@... by imo19.mx.aol.com (mail_out_v22.4.) id >hYSIa06252 (14373) for < onelist>; Sun, 8 Aug 1999 22:08:31 >-0400 (EDT) >Message-ID: <a1f5d224.24df921e@...> >X-Mailer: AOL 4.0 for Windows 95 sub 10 >Mailing-List: list onelist; contact -owneronelist >Delivered-mailing list onelist >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeONElist> > >From: Skis@... > >, >Does get 'the rash'? Now when Molly 's little sister bit her >the >other day and interesting thing happened the rash only appeared right where >she was bitten for two days. Her immune system over reacted and the >'inflammation' went right there! Does get any swelling and redness >at >her joints? > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 1999 Report Share Posted August 9, 1999 is moving around great, and so she should on the amount of Decaron she is on. About = to 80 mg Prednisone every other day!!! But today is the fist Monday (Sat and Sun she has low doses) that she has no temp and no aches:):) Lots of mood swings though. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2001 Report Share Posted December 3, 2001 My son is totally unvaxed and has always toe walked when he is barefoot. He is completely normal except he seems to communicate better then most two year olds. So I don't think that toe walking synonymous with Autism. Mother to two beautiful children Tristan 2 Lorna 5 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 > My son is totally unvaxed and has always toe walked when he is barefoot. He > is completely normal except he seems to communicate better then most two > year olds. So I don't think that toe walking synonymous with Autism. > > > > Mother to two beautiful children > Tristan 2 > Lorna 5 months No it's not synonymous. There are also other symptoms involved. The point I was trying to make here is until there is a system set up to find the vunerable infants (may be never) we have to inform parents who intend to vaccinate (despite our efforts) to watch out for these vunerabilites. It is a sad state of affairs when parents have to protect their children's health, when the professionals are unwilling to help. My 2 and a half yr. old also toe walks barefoot. He does not have autism but, there are many shades of autism. My 15 yr. old was not diagnosed with Asperger's Syndrome until last year. From birth he had terrible stomach problems and lots of food allergies. He talked on time and he developed normally. He received all his vaccinations!! The only diagnosis he had was multiple food allergy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 Homeopathically it is a sign and would help guide the homeopath to a good remedy for the child to correct the disturbance that is displaying itself - just one of the symptoms looked at would be the toe walking. I really encourage you to see a homeopath and avoid further problems http://www.nccn.net/~wwithin/STEVELIST.htm Sheri At 05:36 PM 12/04/2001 EST, you wrote: >Here's a portion of a BabyCenter post that I just stole. Thought y'all might >find the toe walking portion interesting since the subject has come up. > >QUOTE >You wrote: " ( how is this for a description of regressive autism?-in the >second year of life: loss of previously acquired language skills, >toe-walking, abnormal social interactions, stereotyped mannerisms, >self-injurious behaviors, restricted interests (and more). This description >is the consequence of mutating exactly1 specific gene. " -------------------------------------------------------- Sheri Nakken, R.N., MA Vaccination Information & Choice Network, Nevada City CA & Wales UK $$ Donations to help in the work - accepted by Paypal account vaccineinfo@... (go to http://www.paypal.com) or by mail PO Box 1563 Nevada City CA 95959 530-740-0561 Voicemail in US http://www.nccn.net/~wwithin/vaccine.htm ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE DECISION TO VACCINATE IS YOURS AND YOURS ALONE. Well Within's Earth Mysteries & Sacred Site Tours http://www.nccn.net/~wwithin International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers Education, Homeopathic Education CEU's for nurses, Books & Multi-Pure Water Filters Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 My 14yo Aspie son STILL walks on his toes and hand flaps when he is excited --- designs <scottdesigns@...> wrote: > Does anyone else's older child still walk on their > toes when nervous or excited? My son is almost 12 > and it just occurred to me the other day that he's > still doing this. > > -Charlotte __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 My son really only hand flaps now when he thinks he's messed something up that he's trying to do. He does still mouth everything though, he had one of those sand filled balloons for a stress ball that unconsciously went toward his mouth while watching TV the other day, I heard him squeal in panic from the other room and I cam in to find him with a mouth/face/lap full of sand and a look of sheer terror on his face! Re: toe walking My 14yo Aspie son STILL walks on his toes and handflaps when he is excited--- designs <scottdesigns@...> wrote:> Does anyone else's older child still walk on their> toes when nervous or excited? My son is almost 12> and it just occurred to me the other day that he's> still doing this.> > -Charlotte__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 My little guy hand flaps every day, more of a finger flap, and it's more pronounced when he's upset, stressed, tired, or just out of sorts...which I guess is often. He'll do it when he's playing Gameboy, brushing teeth, you name it, and some days it can interfere with his activities as he has to stop to do it. He told me once he can't feel his fingers unless he moves them. Lately, his licking is really bad, and if he's not licking, he's got his shirt in his mouth, literally soaking it. Blech. I try to get him to stop that, and I find his hand fully in his mouth. Re: toe walking My 14yo Aspie son STILL walks on his toes and handflaps when he is excited Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2005 Report Share Posted July 7, 2005 We lost SO many shirts that way when my son was little.....after so any times he'd literally chewed holes in them! Re: toe walking My 14yo Aspie son STILL walks on his toes and handflaps when he is excited Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2005 Report Share Posted July 7, 2005 That's what I'm afraid of now! My laundry pile is huge, I have to wash his clothes daily (due to that, and his accidents -- he's got encopresis on top of things). We've pretty much just started taking off his shirt when he's chewing. Thankfully, it's in the mid-90s here anymore so at least it's an appropriate time of year for this. Not sure what I'll do when winter comes if he's still doing it. We're also working on some biomedical help, and will be shortly adding zinc to his diet. That is supposed to help, too, possibly. Worth a shot! Re: toe walking My little guy hand flaps every day, more of a finger flap, and it's more pronounced when he's upset, stressed, tired, or just out of sorts...which I guess is often. He'll do it when he's playing Gameboy, brushing teeth, you name it, and some days it can interfere with his activities as he has to stop to do it. He told me once he can't feel his fingers unless he moves them. Lately, his licking is really bad, and if he's not licking, he's got his shirt in his mouth, literally soaking it. Blech. I try to get him to stop that, and I find his hand fully in his mouth. ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2005 Report Share Posted July 7, 2005 What is encopresis? Just curious. My son did chew his clothes when he was age 3-6, mainly the fronts of his shirts and his sleeves, I went through so many shirt with him. Luckily he outgrew this. I can definately relate to this. Hopefully it will get better. Good luck! Donna B <Donna@...> wrote: That's what I'm afraid of now! My laundry pile is huge, I have to wash his clothes daily (due to that, and his accidents -- he's got encopresis on top of things). We've pretty much just started taking off his shirt when he's chewing. Thankfully, it's in the mid-90s here anymore so at least it's an appropriate time of year for this. Not sure what I'll do when winter comes if he's still doing it. We're also working on some biomedical help, and will be shortly adding zinc to his diet. That is supposed to help, too, possibly. Worth a shot! Re: toe walking My little guy hand flaps every day, more of a finger flap, and it's more pronounced when he's upset, stressed, tired, or just out of sorts...which I guess is often. He'll do it when he's playing Gameboy, brushing teeth, you name it, and some days it can interfere with his activities as he has to stop to do it. He told me once he can't feel his fingers unless he moves them. Lately, his licking is really bad, and if he's not licking, he's got his shirt in his mouth, literally soaking it. Blech. I try to get him to stop that, and I find his hand fully in his mouth. ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2005 Report Share Posted July 7, 2005 I sure hope he outgrows it soon! Encopresis is an intestinal problem -- in short, you end up constipated and have leakage. It can be caused by a few things, but often it's due to holding it in for one reason or another, and you eventually lose appropriate sensations telling you that you have to go. Really messy, particularly in a child who isn't 100% potty-trained in that area. (As our doctor says, we never thought we'd see the words 'constipation' or encopresis on our son's file -- he had chronic diarrhea for years!) Re: toe walking What is encopresis? Just curious. My son did chew his clothes when he was age 3-6, mainly the fronts of his shirts and his sleeves, I went through so many shirt with him. Luckily he outgrew this. I can definately relate to this. Hopefully it will get better. Good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2007 Report Share Posted March 12, 2007 Hi Ling, It's great that your daughter is no longer toe walking! I had heard another story about similar success with a child who was toe walking by working on the tendon guard stretching and some of the tactile program. Thanks for sharing with us! Keep us updated on how your daughter progresses! Val <Ling wrote:> She had been walking on her toes since she was one year old. We tried several things but with no result at all. We had a private session with Svetlana and Piotr in Feb 2006 and were given a simple home program. I followed some of the instructions, lifting calf muscles and push toes and knees, 3 times a week. After 2 months, I noticed that her heels are on the ground while she was walking to get her snack. I was so amazed and happy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2007 Report Share Posted June 21, 2007 Any help here? Need info on toe walking, autism, heavy metal poisoning & /or success stories with chelation. (in simple terms) I’m assuming that if a child is toe walking, they could be toxic and chelation gets rid of the metals. Right? Thank you so much - (christine@...) from B.: Are you aware of any success stories with respect to chelation and toe walking? I am kind of surprised that anyone would suggest such a controversial therapy for this autism-related problem. christine <christine@...> wrote: Have you tried chelation? Hi: Has anyone successfully eliminated toe walking? If so, how? And does anyone have a good orthopedist who understands the neurological basis for toe walking? I have an 11 yr old on the spectrum who still toe walks. Nothing has worked for us and we are desperate. He is hurting himself every day from doing this. I've heard people have done orthotics, braces, casts and even doing Botox shots in the calves but I don't know who does that. Thanks. L. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2007 Report Share Posted June 21, 2007 We stopped the toe-walking before starting chelation. We stopped it through diet and supplements. That is not to say that epople shouldn't be doing chelation. We are still doing it. maurine christine <christine@...> wrote: Any help here? Need info on toe walking, autism, heavy metal poisoning & /or success stories with chelation.(in simple terms) I’m assuming that if a child is toe walking, they could be toxic and chelation gets rid of the metals. Right?Thank you so much- (christinelighthousestudios (DOT) info) from B.:Are you aware of any success stories with respect to chelation and toe walking? I am kind of surprised that anyone would suggest such a controversial therapy for this autism-related problem. christine <christinelighthousestudios (DOT) info> wrote: Have you tried chelation? Hi: Has anyone successfully eliminated toe walking? If so, how? And does anyone have a good orthopedist who understands the neurological basis for toe walking? I have an 11 yr old on the spectrum who still toe walks. Nothing has worked for us and we are desperate. He is hurting himself every day from doing this. I've heard people have done orthotics, braces, casts and even doing Botox shots in the calves but I don't know who does that. Thanks. L. Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2007 Report Share Posted June 21, 2007 Hey thanks Maurine I just gave this speech (on that list) about finding the problem not just putting a band-aid on the kid... And then I get a comment like this. I should have thought of diet and supplements too. That is the base of everything. On 6/21/07 12:05 PM, " Maurine Meleck " <maurine_meleck@...> wrote: We stopped the toe-walking before starting chelation. We stopped it through diet and supplements. That is not to say that epople shouldn't be doing chelation. We are still doing it. maurine christine <christine@...> wrote: Any help here? Need info on toe walking, autism, heavy metal poisoning & /or success stories with chelation. (in simple terms) I’m assuming that if a child is toe walking, they could be toxic and chelation gets rid of the metals. Right? Thank you so much - (christine@...) from B.: Are you aware of any success stories with respect to chelation and toe walking? I am kind of surprised that anyone would suggest such a controversial therapy for this autism-related problem. christine <christine@...> wrote: Have you tried chelation? Hi: Has anyone successfully eliminated toe walking? If so, how? And does anyone have a good orthopedist who understands the neurological basis for toe walking? I have an 11 yr old on the spectrum who still toe walks. Nothing has worked for us and we are desperate. He is hurting himself every day from doing this. I've heard people have done orthotics, braces, casts and even doing Botox shots in the calves but I don't know who does that. Thanks. L. Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games. <http://us.rd./evt=48224/*http://sims./> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2007 Report Share Posted June 21, 2007 , Food dyes I’ve read are related to toe walking (from other parents). Also, something regarding vitamin K deficiency. My son was not a toe walker except occationally in the winter and I thought it was a vitamin D thing. But it could have been a combo of things. Food dyes were the 1st thing I noticed when he regressed and removed them right away, so I thought maybe that was a viable connection. Good luck, allison From: EOHarm [mailto:EOHarm ] On Behalf Of christine Sent: Thursday, June 21, 2007 12:09 PM EOHarm Subject: Re: FW: Toe Walking Hey thanks Maurine I just gave this speech (on that list) about finding the problem not just putting a band-aid on the kid... And then I get a comment like this. I should have thought of diet and supplements too. That is the base of everything. On 6/21/07 12:05 PM, " Maurine Meleck " <maurine_meleck > wrote: We stopped the toe-walking before starting chelation. We stopped it through diet and supplements. That is not to say that epople shouldn't be doing chelation. We are still doing it. maurine christine <christinelighthousestudios (DOT) info> wrote: Any help here? Need info on toe walking, autism, heavy metal poisoning & /or success stories with chelation. (in simple terms) I’m assuming that if a child is toe walking, they could be toxic and chelation gets rid of the metals. Right? Thank you so much - (christinelighthousestudios (DOT) info) from B.: Are you aware of any success stories with respect to chelation and toe walking? I am kind of surprised that anyone would suggest such a controversial therapy for this autism-related problem. christine <christinelighthousestudios (DOT) info> wrote: Have you tried chelation? Hi: Has anyone successfully eliminated toe walking? If so, how? And does anyone have a good orthopedist who understands the neurological basis for toe walking? I have an 11 yr old on the spectrum who still toe walks. Nothing has worked for us and we are desperate. He is hurting himself every day from doing this. I've heard people have done orthotics, braces, casts and even doing Botox shots in the calves but I don't know who does that. Thanks. L. Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games. <http://us.rd./evt=48224/*http://sims./> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2007 Report Share Posted June 21, 2007 My son started toe walking a year ago, just out of the blue. Don't know what caused it. Using braces right now to prevent him from getting stiff feet, and to keep him off his toes. You can do stretching exercises, jumping on a Trampoline, have your son walk backwards, or walk up ramps, stairs, all these require you to plant your feet flat. We are doing IV EDTA now, and most likely will do Hyperbaric's soon to help clear this up. Diet and supplements haven't made any changes. Forget the Botox - its only temporary and its so expensive if your insurance doesn't cover it. You really want to get a handle on this, because it can really cause a lot of problems. In EOHarm , Maurine Meleck <maurine_meleck@...> wrote: > > We stopped the toe-walking before starting chelation. We stopped it through diet and supplements. That is not to say that epople shouldn't be doing chelation. We are still doing it. > maurine > > > christine <christine@...> wrote: > Any help here? Need info on toe walking, autism, heavy metal poisoning & /or success stories with chelation. > (in simple terms) I'm assuming that if a child is toe walking, they could be toxic and chelation gets rid of the metals. Right? > > Thank you so much > > - (christine@...) > > > > from B.: > > Are you aware of any success stories with respect to chelation and toe walking? I am kind of surprised that anyone would suggest such a controversial therapy for this autism-related problem. > > christine <christine@...> wrote: > > > Have you tried chelation? > > > > > > Hi: > > Has anyone successfully eliminated toe walking? If so, how? And does anyone have a good orthopedist who understands the neurological basis for toe walking? I have an 11 yr old on the spectrum who still toe walks. Nothing has worked for us and we are desperate. He is hurting himself every day from doing this. I've heard people have done orthotics, braces, casts and even doing Botox shots in the calves but I don't know who does that. Thanks. > > L. > > > > > > > > > --------------------------------- > Moody friends. Drama queens. Your life? Nope! - their life, your story. > Play Sims Stories at Games. > Quote Link to comment Share on other sites More sharing options...
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