Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 We saw some good results from TMG. We started at about 40mg, 3 times a day, and worked up to 175 mg, 3 times a day. Methylation can be damaged in a number of ways, which is why there is not one size fits all when trying to address this problem. Common things to address this problem are MB12, TMG or DMG along with folinic or folic acid. In the cases of MB12, TMG or DMG it often helps to be supplementing taurine for a few weeks before introducing things like MB12, TMG or DMG as it is very common for their to be an initial drop in taurine when first introducing these methylation correction interventions. This can cause problems. One of the best ways to damage the bodies methylation processes and cycles is to introduce mercury. And when methylation is not working and SAMe is not doing its job methylating a myriad of different things inside the body, including DNA and RNA, then this will affect gene expression, and can even give you things like a mitochondrial disorder. Alyssa Davi wrote: > > Has anyone seen a language boost on DMG? And if so, what was the dose > you used? > > Any positive results on TMG? > > Alyssa > > > > > > > > > > > > > > > My son has been very very fixating on certain topic along with > > > repetitive speech in the past couple days, driving the whole world > > > crazy.... Now, any clue what may be the cause, so we can put off the > > > fire or at least get it down??? > > > > > > For my son, this would have meant viruses, yeast, and/or B12/folic > > > deficiency. Addressing those issues eliminated this problem. > > > > > > Dana > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 Yes, we have. We started with 1 capsule from Kirkman (with Folinic and mb-12) and are up to 2-3 per day. The Vit E from Vitamin World also gave us a nice language burst too: http://www.vitaminworld.com/pages/file.asp?xs=1300951E5066466689D05E8B4F2E10 BE <http://www.vitaminworld.com/pages/file.asp?xs=1300951E5066466689D05E8B4F2E1 0BE & PID=1005 & CID= & CPID=806> & PID=1005 & CID= & CPID=806 From: [mailto: ] On Behalf Of Alyssa Davi Sent: Sunday, October 19, 2008 11:46 PM Subject: [ ] DMG Has anyone seen a language boost on DMG? And if so, what was the dose you used? Any positive results on TMG? Alyssa > > > > > > > > > My son has been very very fixating on certain topic along with > > repetitive speech in the past couple days, driving the whole world > > crazy.... Now, any clue what may be the cause, so we can put off the > > fire or at least get it down??? > > > > For my son, this would have meant viruses, yeast, and/or B12/folic > > deficiency. Addressing those issues eliminated this problem. > > > > Dana > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 > Has anyone seen a language boost on DMG? And if so, what was the dose you used? > Any positive results on TMG? My son did not tolerate DMG. TMG required folic acid and carnitine for proper absorption, but it caused nice language improvement, plus a bit of behavior improvement and lessening of stims. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 We use Vermont Science DMG tablets and we give 4 a day....mind you we worked up to this dose over quite some time. He has gained a LOT of language from this but it was also a long process of getting all of the methylation support in there as well. Chris Re: [ ] DMG We did. We started with one capsule (I think 125 mg) and moved up to 2. Ruth On Oct 19, 2008, at 11:46 PM, Alyssa Davi wrote: > Has anyone seen a language boost on DMG? And if so, what was the > dose you used? > > Any positive results on TMG? > > Alyssa > > > > > > > > > > > > > > > My son has been very very fixating on certain topic along with > > > repetitive speech in the past couple days, driving the whole world > > > crazy.... Now, any clue what may be the cause, so we can put > off the > > > fire or at least get it down??? > > > > > > For my son, this would have meant viruses, yeast, and/or B12/folic > > > deficiency. Addressing those issues eliminated this problem. > > > > > > Dana > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 What I see in my son is he has an initial boost in language and sound production when I bump the DMG dose up. Then it levels off and he becomes quiet again 5-6 days later. He becomes more verbal again when I increase the dose. He is only 15 months old and he is only on 1 tablet currently but I believe I need to increase it again.  My thought is that I will know when he has enough because he will maintain the same level of vocalization over a longer period of time. Any thoughts?  My son is also getting methyl supports.  Alyssa, mom to Nate, 15 months old > > > > > > > > > > > > > My son has been very very fixating on certain topic along with > > > repetitive speech in the past couple days, driving the whole world > > > crazy.... Now, any clue what may be the cause, so we can put > off the > > > fire or at least get it down??? > > > > > > For my son, this would have meant viruses, yeast, and/or B12/folic > > > deficiency. Addressing those issues eliminated this problem. > > > > > > Dana > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2009 Report Share Posted October 2, 2009 It's a plug into the methylation cycle. See the diagram attached. I also added the pathway of methylation document. Steph DMG What does DMG do? Thanks. 1 of 1 Photo(s) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 We all take it at the same time as iodine (all 4 of us). We all take a B6 Complex from Pure Encapsulations and take them at the same time too. B vitamins are water soluble and are flushed if they are not needed. Steph DMG I just got my DMG complete for my daughter..did your husband take it at same time as iodine and other stuff or seperately...and should i discontinue her activated b complex she takes?? what is your opinion?. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 does everyone just take 1 DMG ?? kids and adults? my daughter takes a whole food multi that has b's in it so not sure if need to add a b6 to that ? why did you select to add an extra jab of B6?From: ladybugsandbees <ladybugsandbees@...>iodine Sent: Monday, October 5, 2009 3:24:31 PMSubject: Re: DMG We all take it at the same time as iodine (all 4 of us). We all take a B6 Complex from Pure Encapsulations and take them at the same time too. B vitamins are water soluble and are flushed if they are not needed. Steph DMG I just got my DMG complete for my daughter..did your husband take it at same time as iodine and other stuff or seperately.. .and should i discontinue her activated b complex she takes?? what is your opinion?. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 The B6 helps with anemia which my children have. It's also good for neurological stuff (the b's). Adults take 2 - 2x / day of DMG. Kids take 1 / day. Steph DMG I just got my DMG complete for my daughter..did your husband take it at same time as iodine and other stuff or seperately.. .and should i discontinue her activated b complex she takes?? what is your opinion?. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 when you say your kids were anemic was that revealed in that their ferritin was too low or was it their blood counts ?From: ladybugsandbees <ladybugsandbees@...>iodine Sent: Monday, October 5, 2009 3:43:08 PMSubject: Re: DMG The B6 helps with anemia which my children have. It's also good for neurological stuff (the b's). Adults take 2 - 2x / day of DMG. Kids take 1 / day. Steph DMG I just got my DMG complete for my daughter..did your husband take it at same time as iodine and other stuff or seperately.. .and should i discontinue her activated b complex she takes?? what is your opinion?. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 Ferritin DMG I just got my DMG complete for my daughter..did your husband take it at same time as iodine and other stuff or seperately.. .and should i discontinue her activated b complex she takes?? what is your opinion?. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2009 Report Share Posted November 14, 2009 yes, i heard a naturopathic dr. talk for an hour on dmg i used one bottle a couple months ago and just got another bottle. i still cannot honestly tell if it is doing anything. it is expensive but worth a shot in my opinion, what works for one might not work for another and vice versa. On Fri, Nov 13, 2009 at 6:39 PM, Tara Romanowich <tvromanowich@...>wrote: > > > Has anyone tried DMG? My friend sent me a link to this book and was > wondering if anyone had any expreience with it. Thanks, tara > > http://www.dmgdoctor.com/dmg.php > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 HI  couldit be a combination of TST improving brain oxygen and this remedy? the body has to be in a receptive state for the meds to work..  Really exciting news  Tracey On Mon, Feb 22, 2010 at 9:45 PM, emilyscorer <emilyscorer@...> wrote:  Hi,I've started ds on DMG (Kirkman) 125mg /day (about 2 weeks now) and I'mseeing what looks like some emotional episodes.Hard to describe, what's happening is that ds is making a sound which is repetitive and hoarse (does it when we are sitting with him or near him)it sounds like someone trying to say something but it just can't comeout, like discovering he has a voice. DS has not been vocal for a looong time and recently he has been putting his finger in his mouth,moving his tongue around the mouth like he has only realised he's gotone. He'd also recently spent a whole day and all night trying to say " ahhh " but he would form the shape with the mouth and the sound wouldcome out right at the very end.It's really hard to tell what this repetitive sound is, as it couldalmost sound like he is complaining about something but I'm hoping it is a positive effect from DMG.Is anyone able to give me an idea of how much DMG can be used? Is thedose dependant on the size/age of child? We tried TMG before and didnot have any reaction from it.Many thanks, emily Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 HI  couldit be a combination of TST improving brain oxygen and this remedy? the body has to be in a receptive state for the meds to work..  Really exciting news  Tracey On Mon, Feb 22, 2010 at 9:45 PM, emilyscorer <emilyscorer@...> wrote:  Hi,I've started ds on DMG (Kirkman) 125mg /day (about 2 weeks now) and I'mseeing what looks like some emotional episodes.Hard to describe, what's happening is that ds is making a sound which is repetitive and hoarse (does it when we are sitting with him or near him)it sounds like someone trying to say something but it just can't comeout, like discovering he has a voice. DS has not been vocal for a looong time and recently he has been putting his finger in his mouth,moving his tongue around the mouth like he has only realised he's gotone. He'd also recently spent a whole day and all night trying to say " ahhh " but he would form the shape with the mouth and the sound wouldcome out right at the very end.It's really hard to tell what this repetitive sound is, as it couldalmost sound like he is complaining about something but I'm hoping it is a positive effect from DMG.Is anyone able to give me an idea of how much DMG can be used? Is thedose dependant on the size/age of child? We tried TMG before and didnot have any reaction from it.Many thanks, emily Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 HI  couldit be a combination of TST improving brain oxygen and this remedy? the body has to be in a receptive state for the meds to work..  Really exciting news  Tracey On Mon, Feb 22, 2010 at 9:45 PM, emilyscorer <emilyscorer@...> wrote:  Hi,I've started ds on DMG (Kirkman) 125mg /day (about 2 weeks now) and I'mseeing what looks like some emotional episodes.Hard to describe, what's happening is that ds is making a sound which is repetitive and hoarse (does it when we are sitting with him or near him)it sounds like someone trying to say something but it just can't comeout, like discovering he has a voice. DS has not been vocal for a looong time and recently he has been putting his finger in his mouth,moving his tongue around the mouth like he has only realised he's gotone. He'd also recently spent a whole day and all night trying to say " ahhh " but he would form the shape with the mouth and the sound wouldcome out right at the very end.It's really hard to tell what this repetitive sound is, as it couldalmost sound like he is complaining about something but I'm hoping it is a positive effect from DMG.Is anyone able to give me an idea of how much DMG can be used? Is thedose dependant on the size/age of child? We tried TMG before and didnot have any reaction from it.Many thanks, emily Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 I am sure the speech is there and I suspect one of the neurotransmitters either dopamine or acetylcholine plays an important role in activating the speaking apparatus..... You know the term, He went speechless with shock. I keep thinking of that. These kids are in a permanent state of shock (sympathetic nervous system in override as Dr. Woody McGinnis on the A-M forum said years ago.....In this state, not enough acetylcholine is in action......Just a theory for now:-)) Tracey Clewer schrieb: > HI > couldit be a combination of TST improving brain oxygen and this > remedy? the body has to be in a receptive state for the meds to work.. > Really exciting news > Tracey > > On Mon, Feb 22, 2010 at 9:45 PM, emilyscorer <emilyscorer@... > <mailto:emilyscorer@...>> wrote: > > > Hi, > > I've started ds on DMG (Kirkman) 125mg /day (about 2 weeks now) > and I'm > seeing what looks like some emotional episodes. > > Hard to describe, what's happening is that ds is making a sound > which is > repetitive and hoarse (does it when we are sitting with him or > near him) > it sounds like someone trying to say something but it just can't come > out, like discovering he has a voice. DS has not been vocal for a > looong time and recently he has been putting his finger in his mouth, > moving his tongue around the mouth like he has only realised he's got > one. He'd also recently spent a whole day and all night trying to say > " ahhh " but he would form the shape with the mouth and the sound would > come out right at the very end. > > It's really hard to tell what this repetitive sound is, as it could > almost sound like he is complaining about something but I'm hoping > it is > a positive effect from DMG. > > Is anyone able to give me an idea of how much DMG can be used? Is the > dose dependant on the size/age of child? We tried TMG before and did > not have any reaction from it. > > Many thanks, > > emily > > > > ------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG - www.avg.com > Version: 8.5.435 / Virus Database: 271.1.1/2705 - Release Date: 02/23/10 07:34:00 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 I am sure the speech is there and I suspect one of the neurotransmitters either dopamine or acetylcholine plays an important role in activating the speaking apparatus..... You know the term, He went speechless with shock. I keep thinking of that. These kids are in a permanent state of shock (sympathetic nervous system in override as Dr. Woody McGinnis on the A-M forum said years ago.....In this state, not enough acetylcholine is in action......Just a theory for now:-)) Tracey Clewer schrieb: > HI > couldit be a combination of TST improving brain oxygen and this > remedy? the body has to be in a receptive state for the meds to work.. > Really exciting news > Tracey > > On Mon, Feb 22, 2010 at 9:45 PM, emilyscorer <emilyscorer@... > <mailto:emilyscorer@...>> wrote: > > > Hi, > > I've started ds on DMG (Kirkman) 125mg /day (about 2 weeks now) > and I'm > seeing what looks like some emotional episodes. > > Hard to describe, what's happening is that ds is making a sound > which is > repetitive and hoarse (does it when we are sitting with him or > near him) > it sounds like someone trying to say something but it just can't come > out, like discovering he has a voice. DS has not been vocal for a > looong time and recently he has been putting his finger in his mouth, > moving his tongue around the mouth like he has only realised he's got > one. He'd also recently spent a whole day and all night trying to say > " ahhh " but he would form the shape with the mouth and the sound would > come out right at the very end. > > It's really hard to tell what this repetitive sound is, as it could > almost sound like he is complaining about something but I'm hoping > it is > a positive effect from DMG. > > Is anyone able to give me an idea of how much DMG can be used? Is the > dose dependant on the size/age of child? We tried TMG before and did > not have any reaction from it. > > Many thanks, > > emily > > > > ------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG - www.avg.com > Version: 8.5.435 / Virus Database: 271.1.1/2705 - Release Date: 02/23/10 07:34:00 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 I am sure the speech is there and I suspect one of the neurotransmitters either dopamine or acetylcholine plays an important role in activating the speaking apparatus..... You know the term, He went speechless with shock. I keep thinking of that. These kids are in a permanent state of shock (sympathetic nervous system in override as Dr. Woody McGinnis on the A-M forum said years ago.....In this state, not enough acetylcholine is in action......Just a theory for now:-)) Tracey Clewer schrieb: > HI > couldit be a combination of TST improving brain oxygen and this > remedy? the body has to be in a receptive state for the meds to work.. > Really exciting news > Tracey > > On Mon, Feb 22, 2010 at 9:45 PM, emilyscorer <emilyscorer@... > <mailto:emilyscorer@...>> wrote: > > > Hi, > > I've started ds on DMG (Kirkman) 125mg /day (about 2 weeks now) > and I'm > seeing what looks like some emotional episodes. > > Hard to describe, what's happening is that ds is making a sound > which is > repetitive and hoarse (does it when we are sitting with him or > near him) > it sounds like someone trying to say something but it just can't come > out, like discovering he has a voice. DS has not been vocal for a > looong time and recently he has been putting his finger in his mouth, > moving his tongue around the mouth like he has only realised he's got > one. He'd also recently spent a whole day and all night trying to say > " ahhh " but he would form the shape with the mouth and the sound would > come out right at the very end. > > It's really hard to tell what this repetitive sound is, as it could > almost sound like he is complaining about something but I'm hoping > it is > a positive effect from DMG. > > Is anyone able to give me an idea of how much DMG can be used? Is the > dose dependant on the size/age of child? We tried TMG before and did > not have any reaction from it. > > Many thanks, > > emily > > > > ------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG - www.avg.com > Version: 8.5.435 / Virus Database: 271.1.1/2705 - Release Date: 02/23/10 07:34:00 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 In a message dated 23/02/2010 19:18:08 GMT Standard Time, emilyscorer@... writes: For now, I can't complain I'm getting a good dose ofreinforcement to hear his voice and this afternoon he was actuallyresponding to tickles from his carer with smiles, which is somethingnew, he never smiles so it was brilliant to see and I'm so excited :-)))) >>brings a tear to my eyes, fingers crossed for more MAndi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 Hi , This is very helpful, thank you. emily x > > In Kendall's book: Building Wellness with DMG it says recommended doses for child are 1-4 125mg tablets per day and 2-8 for an adult. (I think a child over 12 is counted as an adult but you might want to check). It suggests starting + 1 and increasing every 2-3 days. It suggests if you get hyperactivity or agitation to add in folic acid 2x 800mcg per 125 mg DMG which sounds enormous. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 Hi Tracey, Yes that's true, TST must be helping, as you say enabling the body to use the DMG effectively. I tend to forget the role of the exercises. I suppose because improvements are tiny and very slow to show with Norman, so I've got to keep reminding myself that improvements WILL take a lot longer with him because of how affected he is in so many areas. It really can be so hard at times to keep the motivation up and be patient. For now, I can't complain I'm getting a good dose of reinforcement to hear his voice and this afternoon he was actually responding to tickles from his carer with smiles, which is something new, he never smiles so it was brilliant to see and I'm so excited :-)))) emily x > > > > > > > > > Hi, > > > > I've started ds on DMG (Kirkman) 125mg /day (about 2 weeks now) and I'm > > seeing what looks like some emotional episodes. > > > > Hard to describe, what's happening is that ds is making a sound which is > > repetitive and hoarse (does it when we are sitting with him or near him) > > it sounds like someone trying to say something but it just can't come > > out, like discovering he has a voice. DS has not been vocal for a > > looong time and recently he has been putting his finger in his mouth, > > moving his tongue around the mouth like he has only realised he's got > > one. He'd also recently spent a whole day and all night trying to say > > " ahhh " but he would form the shape with the mouth and the sound would > > come out right at the very end. > > > > It's really hard to tell what this repetitive sound is, as it could > > almost sound like he is complaining about something but I'm hoping it is > > a positive effect from DMG. > > > > Is anyone able to give me an idea of how much DMG can be used? Is the > > dose dependant on the size/age of child? We tried TMG before and did > > not have any reaction from it. > > > > Many thanks, > > > > emily > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 Hi  Do you keep a " Happy Memory Book " ? It is something I have suggested to my clients in the past who have a lot of challenges and often seem unable to remember the rainbows from the dark clouds.  On wonderful good news days like you have had this week, they record all the happy thoughts and memories in their happy book .. embelish the pages , add photos or whatever anchors the moment for them..  Then on those days when no rainbows are around, they flip back through the Happy Memories book and reconnect with the good things.. It changes the energy state... and to my mind allows more good things to come along-  I think too that our special children tend to like to surprise us... and often exceed our expectations,,, by having leaps forward... when we least expect it....  So really pleased you are seeing positive improvements in Norman... and a smile is so powerful...    Best wishes    Tracey On Tue, Feb 23, 2010 at 7:17 PM, emilyscorer <emilyscorer@...> wrote:  Hi Tracey,Yes that's true, TST must be helping, as you say enabling the body touse the DMG effectively. I tend to forget the role of the exercises. I suppose because improvements are tiny and very slow to show with Norman, so I've got to keep reminding myself that improvements WILLtake a lot longer with him because of how affected he is in so manyareas. It really can be so hard at times to keep the motivation up andbe patient. For now, I can't complain I'm getting a good dose of reinforcement to hear his voice and this afternoon he was actuallyresponding to tickles from his carer with smiles, which is somethingnew, he never smiles so it was brilliant to see and I'm so excited :-)))) emily x>> >> >> >> > Hi,> >> > I've started ds on DMG (Kirkman) 125mg /day (about 2 weeks now) and I'm> > seeing what looks like some emotional episodes.> >> > Hard to describe, what's happening is that ds is making a soundwhich is> > repetitive and hoarse (does it when we are sitting with him or near him)> > it sounds like someone trying to say something but it just can'tcome> > out, like discovering he has a voice. DS has not been vocal for a> > looong time and recently he has been putting his finger in his mouth,> > moving his tongue around the mouth like he has only realised he'sgot> > one. He'd also recently spent a whole day and all night trying tosay> > " ahhh " but he would form the shape with the mouth and the sound would> > come out right at the very end.> >> > It's really hard to tell what this repetitive sound is, as it could> > almost sound like he is complaining about something but I'm hoping it is> > a positive effect from DMG.> >> > Is anyone able to give me an idea of how much DMG can be used? Isthe> > dose dependant on the size/age of child? We tried TMG before and did > > not have any reaction from it.> >> > Many thanks,> >> > emily> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 oh , that's so amazing. It must have been so hard for you all these years not to hear his voice or see his smile. I'm positive there will be loads more of both! Sara x emilyscorer wrote: > > > Hi Tracey, > > Yes that's true, TST must be helping, as you say enabling the body to > use the DMG effectively. I tend to forget the role of the exercises. > I suppose because improvements are tiny and very slow to show with > Norman, so I've got to keep reminding myself that improvements WILL > take a lot longer with him because of how affected he is in so many > areas. It really can be so hard at times to keep the motivation up and > be patient. For now, I can't complain I'm getting a good dose of > reinforcement to hear his voice and this afternoon he was actually > responding to tickles from his carer with smiles, which is something > new, he never smiles so it was brilliant to see and I'm so excited > :-)))) > > emily x > > > > > > > > > > > > > > > > Hi, > > > > > > I've started ds on DMG (Kirkman) 125mg /day (about 2 weeks now) and > I'm > > > seeing what looks like some emotional episodes. > > > > > > Hard to describe, what's happening is that ds is making a sound > which is > > > repetitive and hoarse (does it when we are sitting with him or near > him) > > > it sounds like someone trying to say something but it just can't > come > > > out, like discovering he has a voice. DS has not been vocal for a > > > looong time and recently he has been putting his finger in his > mouth, > > > moving his tongue around the mouth like he has only realised he's > got > > > one. He'd also recently spent a whole day and all night trying to > say > > > " ahhh " but he would form the shape with the mouth and the sound > would > > > come out right at the very end. > > > > > > It's really hard to tell what this repetitive sound is, as it could > > > almost sound like he is complaining about something but I'm hoping > it is > > > a positive effect from DMG. > > > > > > Is anyone able to give me an idea of how much DMG can be used? Is > the > > > dose dependant on the size/age of child? We tried TMG before and did > > > not have any reaction from it. > > > > > > Many thanks, > > > > > > emily > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 oh , that's so amazing. It must have been so hard for you all these years not to hear his voice or see his smile. I'm positive there will be loads more of both! Sara x emilyscorer wrote: > > > Hi Tracey, > > Yes that's true, TST must be helping, as you say enabling the body to > use the DMG effectively. I tend to forget the role of the exercises. > I suppose because improvements are tiny and very slow to show with > Norman, so I've got to keep reminding myself that improvements WILL > take a lot longer with him because of how affected he is in so many > areas. It really can be so hard at times to keep the motivation up and > be patient. For now, I can't complain I'm getting a good dose of > reinforcement to hear his voice and this afternoon he was actually > responding to tickles from his carer with smiles, which is something > new, he never smiles so it was brilliant to see and I'm so excited > :-)))) > > emily x > > > > > > > > > > > > > > > > Hi, > > > > > > I've started ds on DMG (Kirkman) 125mg /day (about 2 weeks now) and > I'm > > > seeing what looks like some emotional episodes. > > > > > > Hard to describe, what's happening is that ds is making a sound > which is > > > repetitive and hoarse (does it when we are sitting with him or near > him) > > > it sounds like someone trying to say something but it just can't > come > > > out, like discovering he has a voice. DS has not been vocal for a > > > looong time and recently he has been putting his finger in his > mouth, > > > moving his tongue around the mouth like he has only realised he's > got > > > one. He'd also recently spent a whole day and all night trying to > say > > > " ahhh " but he would form the shape with the mouth and the sound > would > > > come out right at the very end. > > > > > > It's really hard to tell what this repetitive sound is, as it could > > > almost sound like he is complaining about something but I'm hoping > it is > > > a positive effect from DMG. > > > > > > Is anyone able to give me an idea of how much DMG can be used? Is > the > > > dose dependant on the size/age of child? We tried TMG before and did > > > not have any reaction from it. > > > > > > Many thanks, > > > > > > emily > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 oh , that's so amazing. It must have been so hard for you all these years not to hear his voice or see his smile. I'm positive there will be loads more of both! Sara x emilyscorer wrote: > > > Hi Tracey, > > Yes that's true, TST must be helping, as you say enabling the body to > use the DMG effectively. I tend to forget the role of the exercises. > I suppose because improvements are tiny and very slow to show with > Norman, so I've got to keep reminding myself that improvements WILL > take a lot longer with him because of how affected he is in so many > areas. It really can be so hard at times to keep the motivation up and > be patient. For now, I can't complain I'm getting a good dose of > reinforcement to hear his voice and this afternoon he was actually > responding to tickles from his carer with smiles, which is something > new, he never smiles so it was brilliant to see and I'm so excited > :-)))) > > emily x > > > > > > > > > > > > > > > > Hi, > > > > > > I've started ds on DMG (Kirkman) 125mg /day (about 2 weeks now) and > I'm > > > seeing what looks like some emotional episodes. > > > > > > Hard to describe, what's happening is that ds is making a sound > which is > > > repetitive and hoarse (does it when we are sitting with him or near > him) > > > it sounds like someone trying to say something but it just can't > come > > > out, like discovering he has a voice. DS has not been vocal for a > > > looong time and recently he has been putting his finger in his > mouth, > > > moving his tongue around the mouth like he has only realised he's > got > > > one. He'd also recently spent a whole day and all night trying to > say > > > " ahhh " but he would form the shape with the mouth and the sound > would > > > come out right at the very end. > > > > > > It's really hard to tell what this repetitive sound is, as it could > > > almost sound like he is complaining about something but I'm hoping > it is > > > a positive effect from DMG. > > > > > > Is anyone able to give me an idea of how much DMG can be used? Is > the > > > dose dependant on the size/age of child? We tried TMG before and did > > > not have any reaction from it. > > > > > > Many thanks, > > > > > > emily > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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