Guest guest Posted November 8, 2001 Report Share Posted November 8, 2001 I just want to thank all that replied to my earlier question about when your child was diagnosed with ASD or PDD the whole spectrum. Now I have another request. Do most of your kids have a Sleep Disorder? Meaning waking up many times before daylight, or sleep apnea or having trouble going back to sleep. Or just plain waking up early. How long did you wait to do something about it? And did the medication help? And I think for some of you that is the main reason for medication. Is this correct? My Rochelle has been having sleep problems almost going on a year now. As you know, we are trying the no-dairy. But we've had some Oopses and also she has gotten sick which disrupts my food journal. Medication would be our next step if we continue to have sleepless nights and I'd like to get some more information. You guys are the experts. I welcome all opinions on the subject too. Thanks in advance. Diane (mom to Rochelle ds-5 and Danny 7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2001 Report Share Posted November 8, 2001 Well this one kid that I babysitt. He has trouble going to bed on time, I mean he's up when his parents are in bed. But when I babysitt him I try to put him down aroun 10:30 or 11ish. He did have some medicacation to try to make him drosey- but I think he's off it for some reason. ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2001 Report Share Posted November 8, 2001 Diane, Well, I know many of the kids on the list do have a lot of trouble with sleep, or not sleeping as the case may be. But, Brook doesn't have any trouble sleeping. That's one thing that we are very grateful for. He sleeps very well, but he did have his tonsils and adenoids out when he was 4 yrs which I think really helped a lot. The doctor also said that there was a lot of scar tissue in his throat from all the infections that he had. Prior to the surgery he used to do that sleeping pose where he would sleep sitting up but bent over. I did take him in to his ENT when he was little, 2 or 3yrs old, because I was concerned about sleep anea. The doctor didn't think he had it at the time. On the diagnosis question, we have an appt. Dec 3rd to get him diagnosed, so he'll still be 11years old. But I recognized the signs of course much earlier. Marisa Mom to Miles 14, Brook 11yrs and Genevieve 4yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2001 Report Share Posted November 8, 2001 Diane, my nathan has never been a sleep, we are talking a good 5-6 hours on gret night,lol, with the exception of when he is sick then it is more. Natha also has sleep apnea, and is on a CPAP for it which has helped greatly, especially in the behavior department. If your child has sleep apnea, most docs will NOT prescribe a CNS Depressent or sleeping pill otherwise they could stop breathing all together, this is what i have been told anyways. The docs will let me give natha some benedryl on nocs needed, which i only use if absolutely have to, like last night for eg, he was up unitl about 3am, i gave in and gave 2tsp of bynadryl at around 230am, and this worked. But this isnt alwyas full proof. One can do warm baths, with lavender or vanilla, or even warmed milk creates some emzyme ive read that promotes sleep. Sometimes even something as simple as tylenol will do the trick, or going to the bathroom and getting a drink of water or juice agian, or during the noc. still moves all over his bed , frequently,when sleeps causeing his mask to come off or not work appropriately, and not proper sleep either, this is why we are getting some weighted blankets for his bed, the wieghts we used on his ankles to stop the feet banging all noc long worked greatly. Hope this helps shawna. Re: Re: Sleep Disorders I just want to thank all that replied to my earlier question about when your child was diagnosed with ASD or PDD the whole spectrum. Now I have another request. Do most of your kids have a Sleep Disorder? Meaning waking up many times before daylight, or sleep apnea or having trouble going back to sleep. Or just plain waking up early. How long did you wait to do something about it? And did the medication help? And I think for some of you that is the main reason for medication. Is this correct? My Rochelle has been having sleep problems almost going on a year now. As you know, we are trying the no-dairy. But we've had some Oopses and also she has gotten sick which disrupts my food journal. Medication would be our next step if we continue to have sleepless nights and I'd like to get some more information. You guys are the experts. I welcome all opinions on the subject too. Thanks in advance. Diane (mom to Rochelle ds-5 and Danny 7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 In a message dated 11/8/01 3:03:58 PM Pacific Standard Time, dben937342@... writes: << Do most of your kids have a Sleep Disorder? Meaning waking up many times before daylight, or sleep apnea or having trouble going back to sleep. Or just plain waking up early. How long did you wait to do something about it? And did the medication help? And I think for some of you that is the main reason for medication. Is this correct? >> Diane, Seth wakes up every night between 2-4. He plays for a while and then usually goes back to sleep. I think it's just habit now. We only did Melatonin when he was having problems getting to bed. Once he got back on his schedule, we quit the Melatonin. But even with that, he would wake up between 2-4. Gail :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 the T and A usually help with the sleepapnea, nahtan also had his out when was a babe, and he continued to sit up while sleeping, as brrok does,an d one can hear the gasping or all of a sudden a big breath, and their behavior during the day also shows the lack of proper sleep. shawna. Re: Re: Sleep Disorders Diane, Well, I know many of the kids on the list do have a lot of trouble with sleep, or not sleeping as the case may be. But, Brook doesn't have any trouble sleeping. That's one thing that we are very grateful for. He sleeps very well, but he did have his tonsils and adenoids out when he was 4 yrs which I think really helped a lot. The doctor also said that there was a lot of scar tissue in his throat from all the infections that he had. Prior to the surgery he used to do that sleeping pose where he would sleep sitting up but bent over. I did take him in to his ENT when he was little, 2 or 3yrs old, because I was concerned about sleep anea. The doctor didn't think he had it at the time. On the diagnosis question, we have an appt. Dec 3rd to get him diagnosed, so he'll still be 11years old. But I recognized the signs of course much earlier. Marisa Mom to Miles 14, Brook 11yrs and Genevieve 4yrs -------------------------------------------------- Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. -------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 Thank you to everyone who posted answers to my questions about sleeping and dual diagnosis. It gives me a little more insight to what the future may hold. I keep hoping we won't need medicine but we have not ruled it out. Diane (mom to Rochelle ds-5 and Danny 7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 > There is one EEG pattern related to sleep onset insomnia, difficult falling asleep when you go to bed. What is a good protocol for this pattern? Van Deusen wrote: > Matt, > > Which sleep disorders? > > There is one EEG pattern related to sleep onset insomnia, difficult falling asleep when you go to bed. > There is another related to sleeping heavily all night and having difficulty awakening, plus not feeling rested no matter how much you sleep. > Another related to waking up and falling back asleep numerous times during the night, with or without remembering a lot of dreams. > Another related to sleeping for a while, then awakening and not being able to go back to sleep. > > Pete > > Van Deusen > BrainTrainer () > 16246 SW 92nd Ave, Miami, FL 33157 > 305/321-1595 > > > Sleep disorders > > > Dear et al., > > At what 10-20 sites am I likely to find information that can help > diagnose sleep disorders? Are there any specific ratios to look for > and train? > > Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 In this case it is waking and falling back asleep numnerous times during the night. Thanks! Matt > Matt, > > Which sleep disorders? > > There is one EEG pattern related to sleep onset insomnia, difficult falling asleep when you go to bed. > There is another related to sleeping heavily all night and having difficulty awakening, plus not feeling rested no matter how much you sleep. > Another related to waking up and falling back asleep numerous times during the night, with or without remembering a lot of dreams. > Another related to sleeping for a while, then awakening and not being able to go back to sleep. > > Pete > > Van Deusen > BrainTrainer () > 16246 SW 92nd Ave, Miami, FL 33157 > 305/321-1595 > > > Sleep disorders > > > Dear et al., > > At what 10-20 sites am I likely to find information that can help > diagnose sleep disorders? Are there any specific ratios to look for > and train? > > Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Usually relates to excessive slowing in the EEG (lots of theta and difficulty sustaining beta speeds). Pete Van Deusen BrainTrainer () 16246 SW 92nd Ave, Miami, FL 33157 305/321-1595 Re: Sleep disorders In this case it is waking and falling back asleep numnerous times during the night. Thanks! Matt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Sleep onset insomnia generally relates to difficulty sustaining SMR speeds, which make up " sleep spindles " . Usually training up 13-15 or 12-16 Hz and training down 2-5 with eyes open at C4/A2 or Cz/A2 would be helpful. May have to reduce the frequencies, though, for younger clients to get the desired effect. Pete Van Deusen BrainTrainer () 16246 SW 92nd Ave, Miami, FL 33157 305/321-1595 Re: Sleep disorders > There is one EEG pattern related to sleep onset insomnia, difficult falling asleep when you go to bed. What is a good protocol for this pattern? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Pete, Can it be due to excessive high beta? There is lots of high beta. > Usually relates to excessive slowing in the EEG (lots of theta and difficulty sustaining beta speeds). > > Pete > > Van Deusen > BrainTrainer () > 16246 SW 92nd Ave, Miami, FL 33157 > 305/321-1595 > > > Re: Sleep disorders > > > In this case it is waking and falling back asleep numnerous times > during the night. > > Thanks! > > > Matt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Yes, it can. What I sent you were the most common correlations. High levels of beta and highbeta have global effects (when we're sure they're really there and not some artifact). Pete Van Deusen BrainTrainer () 16246 SW 92nd Ave, Miami, FL 33157 305/321-1595 Re: Sleep disorders Pete, Can it be due to excessive high beta? There is lots of high beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2010 Report Share Posted January 16, 2010 I have read of this symptom often and a good friend's son is afflicted too.. They and many others use melatonin supplements to help with sleep.I found this :Insomnia: Melatonin Supplement Appeared to Help in Open Trial: In an unreliable 14-day open trial, melatonin 3 mg/night was given to 15 children with Asperger disorder with measures of sleep quality, tiredness, and behavior. Sleep patterns of all the children improved, and half of them displayed excellent responses. Time to fall asleep decreased from 40 minutes to 21 minutes (p = 0.002), whereas sleep duration remained steady at 477 minutes and 480 minutes. Behavioral measures also displayed a significant improvement, and most of the effect disappeared after the discontinuation of the melatonin (p = 0.001). Effectiveness of melatonin in the treatment of sleep disturbances in children with Asperger disorder. Paavonen EJ, Nieminen-von Wendt T, et al. University of Helsinki. J Child Adolesc Psychopharmacol. 2003 Spring;13(1):83-95. Ed: Melatonin does help in many animal models of stroke and Alzheimer's disease. On Jan 16, 2010, at 1:29 AM, "cheriandmike@..." <cheriandmike@...> wrote: Hi! I just found this support group and hope to learn a great deal. I already am comforted by the fact there are other parents who "get" the difficulties we face as parents of Asperger's children. My Aspie son is 17 years old and was diagnosed a couple years ago. I am still in the infancy of understanding this complex disorder. He has always had sleep issues. He will stay up all night, unable to shut his brain down. We have tried everything we can think of. We did pull him out of public school in 2nd grade and have homeschooled him ever since. He couldn't continue to function in school due to sleep problems. I don't know how he will ever hold a job. Help! Does anyone else have the same experience and have any solutions? Does this seem to be an Aspie symptom or should I look into a deeper diagnosis? Thanks for your time. Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2010 Report Share Posted January 16, 2010 Hi, Glad,you found the group.my 17yrsAspie son has the same thing where he can stay up all nite unable to shut down,We have done Homeschool snice grade9th,somtines i have to giev him zanax 5mil to sleep so it is a part of it he has had for a long time.What program did you use for high school? Angel Blessings On Sat, 1/16/10, cheriandmike@... <cheriandmike@...> wrote: From: cheriandmike@... <cheriandmike@...>Subject: ( ) Sleep Disorders Date: Saturday, January 16, 2010, 1:29 AM Hi! I just found this support group and hope to learn a great deal. I already am comforted by the fact there are other parents who "get" the difficulties we face as parents of Asperger's children.My Aspie son is 17 years old and was diagnosed a couple years ago. I am still in the infancy of understanding this complex disorder. He has always had sleep issues. He will stay up all night, unable to shut his brain down. We have tried everything we can think of. We did pull him out of public school in 2nd grade and have homeschooled him ever since. He couldn't continue to function in school due to sleep problems. I don't know how he will ever hold a job.Help! Does anyone else have the same experience and have any solutions? Does this seem to be an Aspie symptom or should I look into a deeper diagnosis?Thanks for your time.Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2010 Report Share Posted January 16, 2010 At what age can you start using the melatonin? Hi! I just found this support group and hope to learn a great deal. I already am comforted by the fact there are other parents who "get" the difficulties we face as parents of Asperger's children.My Aspie son is 17 years old and was diagnosed a couple years ago. I am still in the infancy of understanding this complex disorder. He has always had sleep issues. He will stay up all night, unable to shut his brain down. We have tried everything we can think of. We did pull him out of public school in 2nd grade and have homeschooled him ever since. He couldn't continue to function in school due to sleep problems. I don't know how he will ever hold a job.Help! Does anyone else have the same experience and have any solutions? Does this seem to be an Aspie symptom or should I look into a deeper diagnosis?Thanks for your time.Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2010 Report Share Posted January 16, 2010 This is not an uncommon problem with kids who have autism to also have sleep issues. My ds is a polysomnographer and he says there is not a lot of studies out there on this particular group and sleep issues. Two of our ds's have HFA and both have struggled a lot with sleep issues. One is 21 yo, the other is 13 yo. What has helped is the med " clonidine. " It is usually for blood pressure issues but found it has the added side effect of causing drowsiness which has been used to benefit some kids. It worked great for my older ds until he got to the upper teens and then refused to take any meds. He still has such a messed up sleep cycle and I don't know how he will do with a " real " job someday either. I joke that he needs to learn his father's job because he stays up all night monitoring the sleep equipment/patient. My oldest also tried several of the sleeping meds out - Ambien and there was another one he tried that he didn't like at all. It helped maybe 80% of the time. I would like him to try clonidine again since it worked great for him but who knows if it still will? He may go back to Ambien when he has a schedule he has to keep and starts having problems keeping it. We'll see. My 13 yo takes clonidine for sleep issues. It works often but not always - again - maybe 85% of the time or so. And for us, that's a good number. Without it, he is up and down constantly. Roxanna " The only thing necessary for the triumph of evil is for good men to do nothing. " E. Burke ( ) Sleep Disorders Hi! I just found this support group and hope to learn a great deal. I already am comforted by the fact there are other parents who " get " the difficulties we face as parents of Asperger's children. My Aspie son is 17 years old and was diagnosed a couple years ago. I am still in the infancy of understanding this complex disorder. He has always had sleep issues. He will stay up all night, unable to shut his brain down. We have tried everything we can think of. We did pull him out of public school in 2nd grade and have homeschooled him ever since. He couldn't continue to function in school due to sleep problems. I don't know how he will ever hold a job. Help! Does anyone else have the same experience and have any solutions? Does this seem to be an Aspie symptom or should I look into a deeper diagnosis? Thanks for your time. Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2010 Report Share Posted January 16, 2010 Hi, My 19 yrs. aspie was having sleep difficulties before I realized he had asperger's. Every since he was very young, it took him hours to fall asleep sometimes, even now he will sometimes get a few hours or none at all. He was taking a prescription med. called sonata and an over the counter melatonin. That worked for quite awhile. It works usually within an hour or so of taking it, but is safe enough according to his dr. to take every night. Then it wasn't working as well, so now he was prescribed ambien because he is an adult. He doesn't take it every night, only on nights he feels he may need it or if he had very few hours of sleep the night before. I hope this helps you. Sharon From: cheriandmike@... <cheriandmike@...>Subject: ( ) Sleep Disorders Date: Saturday, January 16, 2010, 1:29 AM Hi! I just found this support group and hope to learn a great deal. I already am comforted by the fact there are other parents who "get" the difficulties we face as parents of Asperger's children.My Aspie son is 17 years old and was diagnosed a couple years ago. I am still in the infancy of understanding this complex disorder. He has always had sleep issues. He will stay up all night, unable to shut his brain down. We have tried everything we can think of. We did pull him out of public school in 2nd grade and have homeschooled him ever since. He couldn't continue to function in school due to sleep problems. I don't know how he will ever hold a job.Help! Does anyone else have the same experience and have any solutions? Does this seem to be an Aspie symptom or should I look into a deeper diagnosis?Thanks for your time.Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2010 Report Share Posted January 16, 2010 Melatonin works for Zak. We have to give it to him at least 8pm if we want him to be asleep by Midnight! Namaste Dawn in Tucson There is a difference between interest and commitment. When you are interested in doing something, you do it only when circumstances permit. When you are committed to something, you accept no excuses, only results. - Unknown From: [mailto: ] On Behalf Of cheriandmike@... Sent: Friday, January 15, 2010 11:30 PM Subject: ( ) Sleep Disorders Hi! I just found this support group and hope to learn a great deal. I already am comforted by the fact there are other parents who " get " the difficulties we face as parents of Asperger's children. My Aspie son is 17 years old and was diagnosed a couple years ago. I am still in the infancy of understanding this complex disorder. He has always had sleep issues. He will stay up all night, unable to shut his brain down. We have tried everything we can think of. We did pull him out of public school in 2nd grade and have homeschooled him ever since. He couldn't continue to function in school due to sleep problems. I don't know how he will ever hold a job. Help! Does anyone else have the same experience and have any solutions? Does this seem to be an Aspie symptom or should I look into a deeper diagnosis? Thanks for your time. Cheri Quote Link to comment Share on other sites More sharing options...
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