Re: Wild Child

October 27, 2000

In a message dated 10/27/00 8:27:04 AM Pacific Daylight Time,

egroups writes:

<< Well, looks like it is time for Mark to get a med update. He has turned

into

the wild child once again. It is driving us bonkers, well more than usual.

He is in nonstop motion and in a path of destruction once again. Anyone

have

any ideas for us to throw at the doctor?

My mom asked if there were any toys to get Mark for Christmas, lol I replied

with no, save your money, buy clothes. He still has no interest in toys,

just in being in constant motion. >>

Boy, can I relate to that one, Jeannie! We have been on constant " updates "

with 's med's for well over a year and a half! I know what you mean! No

rest for the weary! Even with med's, still manages to get up at the

crack of dawn, but I must admit he does fall asleep by 7:30 every night (no

afternoon naps either).

I don't know what the answer is.....maybe you can just tell the doc that he's

" wound up " .......what med's is Mark on? Clonidine slowed down a little

until he builds up an immunity and we have to cut it out for a few months.

Hang in there,

October 27, 2000

,

Thanks for replying. The clonidine must be wearing off ;( He is just off

all the wall lately!

Jeannie

October 27, 2000

,

Thanks for the info on naltrexone. We did try that for 2 weeks, Mark cried

and would not eat. I was a hard 2 weeks for all of us, so we discontinued

it. I do believe what your doctor said about the internal rush....

Jeannie

October 27, 2000

Ask about naltrexone. I noticed a marked improvment in Matt's behavior

after starting this. It is an opiod antagonist, given to heroine addicts

and long term alcoholics to prevent DT's. Experimental in autism, but

seems to work in about 50% of the cases. For Matt it helps him

concentrate and really helps draw him out of himself. The psych who

originally prescribed it said nothing we could do externally would ever

be stronger than the internal rush he gets from being withdrawn and his

destructive behavior. This has certainly panned out for us.

S

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March 7, 2002

I have made it VERY clear to school that the problem lies in school and not

outside of it and they are now taking steps

to adress the problem, whether those steps will succeed only time will tell, I'm

giving them until half term next term

(end of may) before I look at other schools for september.

sue

Ltb3105@... wrote:

> In a message dated 3/8/02 2:22:37 PM Pacific Standard Time,

> writes:

>

> > , in addition to the problems in class work, the csa

> > is finding it hard to know what to do with tim for those occasions when

> > he is not able to access what the other kids are doing. I pointed out

> > that for tim I don't want him to have a new csa I just want his csa to

> > have a new attitude, that I want his csa to enjoy working with him becoz

> > if she isn't then that is rubbing off on him and that we must find ways

> > for tim to get out of this entrenched behaviour at school. i said I

> > felt so bad for them becoz they had never seen tim at his best and he is

> > really a different child every where else so they are being

> > shortchanged.

>

> Oh brother, can WE relate to that one! I just don't think that my child

> tolerates structure very well but on the other hand, if he's left to his own

> accord, he will virtually destroy everything in his path! Something's

> definitely going on at school with BOTH our kids, 's not that bad at

> home, and I'm sure your kid isn't either.

>

> 's teacher keeps asking me " if anything's changed at home " that I want to

> slap her silly! Why is it that everyone looks towards the home life when

> something goes amuck?

>

> Hang in there, Sue, I'm with you,

>

March 8, 2002

The other day while waiting in outpatients for a very long time, (seen at 12.30

for an 11.30 appointment) timflopped against me and said, clear as daylight,

:'God, i need a fag'. Now I have to point out that a fag in british english is

a ciggarette as I realise it may have a different meaning in the states! And

fag is very definitley slang here. I cracked up!! He has NEVER heard that at

home, we don't smoke and anyway call cigarettes cigarettes or at worst ciggies,

he must of picked it up at school. On the other hand, given that tims speech is

usually very unclear it is possible he in fact said something else starting with

f and ending in a sound that said by a speech impaired child sounded like a

'guh' (G) but could have kuh (K) with an uh (U) in the middle! But that he

would definitely not have heard that at home and so I won't go down that road!!!

sue wong

wrote:

> >

>

> Just this week, I got a note from the teacher that said I'm going to

kill you several times while at lunch. She didn't hear it, but the cafeteria

hostess did. The teacher wanted to know if has heard that phrase in a

video.

>

> So I wrote back that is not a phrase from any video...and that no one here

says that phrase, and I doubt that was what he said and suggested that maybe

could help decipher if he repeats that (she spent time with him in school

this week). Then I added...unless he has heard this at school.

>

March 8, 2002

In a message dated 3/8/02 2:22:37 PM Pacific Standard Time,

writes:

> , in addition to the problems in class work, the csa

> is finding it hard to know what to do with tim for those occasions when

> he is not able to access what the other kids are doing. I pointed out

> that for tim I don't want him to have a new csa I just want his csa to

> have a new attitude, that I want his csa to enjoy working with him becoz

> if she isn't then that is rubbing off on him and that we must find ways

> for tim to get out of this entrenched behaviour at school. i said I

> felt so bad for them becoz they had never seen tim at his best and he is

> really a different child every where else so they are being

> shortchanged.

Oh brother, can WE relate to that one! I just don't think that my child

tolerates structure very well but on the other hand, if he's left to his own

accord, he will virtually destroy everything in his path! Something's

definitely going on at school with BOTH our kids, 's not that bad at

home, and I'm sure your kid isn't either.

's teacher keeps asking me " if anything's changed at home " that I want to

slap her silly! Why is it that everyone looks towards the home life when

something goes amuck?

Hang in there, Sue, I'm with you,

March 9, 2002

>I have made it VERY clear to school that the problem lies in school and not

outside of it and they are now taking steps

to adress the problem, whether those steps will succeed only time will tell, I'm

giving them until half term next term

(end of may) before I look at other schools for september.<

Just this week, I got a note from the teacher that said I'm going to

kill you several times while at lunch. She didn't hear it, but the cafeteria

hostess did. The teacher wanted to know if has heard that phrase in a

video.

So I wrote back that is not a phrase from any video...and that no one here says

that phrase, and I doubt that was what he said and suggested that maybe

could help decipher if he repeats that (she spent time with him in school this

week). Then I added...unless he has heard this at school.

This is more of that piddly shit with people who have vivid imaginations, no

training in speech or special needs teaching and certainly not a meaningful

relationship with my child. I'm really surprised that his Sped teacher couldn't

figure that one out by herself and instead wrote a note to home about it.

Sometimes this stuff gets comical....but it can still be draining.

Anyway, my wild child..lol....is going to Virginia Tech today with daddy and

. I always go down and back within the same day. Tim is getting old and

must spend the night. He is staying in a hotel with a pool and is

eagerly waiting to swim. He's going to drive Tim crazy for the next few hours.

's future BIL just called to see if they left...he asked if was

going and I said, well of course, he wants to see you (he does)...he moaned and

said I had hoped to sleep on the way down...fat chance! Anyway, he always gives

new beanies and is really good with him. I get to spend the day

cleaning thoroughly....and maybe sneak out to the movies with a girl friend

tonight.

March 9, 2002

In a message dated 3/9/02 9:14:53 AM Central Standard Time,

cindysue@... writes:

> I get to spend the day cleaning thoroughly....and maybe sneak out to the

> movies with a girl friend tonight.

>

Aren't you glad Tim is getting so old. Jessie

March 9, 2002

> >

> Aren't you glad Tim is getting so old. Jessie

He called me an hour ago to see how he can get out of the

pool. I asked how long had been in...just one and a half hour....I

told Tim to give him 45 more minutes and he will want to come out,

hehe!

March 10, 2002

, enjoy your well-deserved break!!! A movie with a girlfriend sounds

heavenly!

R.

Mom to (7, ds) and Grace (4)

March 10, 2002

Sue, I showed this one to Vince. That's hilarious. Tim usually tells

people they " make me crazy " or " you're making me crazy " but that's as far as

he's gotten. Had to work the " f " word out of him though. This was one he

repeated from hearing it at school.

BTW, I knew exactly what " fags " were and " ciggies " . We have BBC Canada TV

here and it's almost all I watch.

And , I think that sometimes with all of the events that have been

happening, people are really " gun shy " (no pun intended) and tend to

overract at times because they don't know if they are hearing the real thing

or not. But, they should have known better with .

Val

>

> The other day while waiting in outpatients for a very long time, (seen at

12.30 for an 11.30 appointment) timflopped against me and said, clear as

daylight, :'God, i need a fag'. Now I have to point out that a fag in

british english is a ciggarette as I realise it may have a different meaning

in the states! And fag is very definitley slang here. I cracked up!! He

has NEVER heard that at home, we don't smoke and anyway call cigarettes

cigarettes or at worst ciggies, he must of picked it up at school. On the

other hand, given that tims speech is usually very unclear it is possible he

in fact said something else starting with f and ending in a sound that said

by a speech impaired child sounded like a

> 'guh' (G) but could have kuh (K) with an uh (U) in the middle! But that

he would definitely not have heard that at home and so I won't go down that

road!!!

>

> sue wong

> wrote:

>

> > >

> >

> > Just this week, I got a note from the teacher that said I'm

going to kill you several times while at lunch. She didn't hear it, but the

cafeteria hostess did. The teacher wanted to know if has heard that

phrase in a video.

> >

> > So I wrote back that is not a phrase from any video...and that no one

here says that phrase, and I doubt that was what he said and suggested that

maybe could help decipher if he repeats that (she spent time with him

in school this week). Then I added...unless he has heard this at school.

> >

March 10, 2002

It's the same way everywhere. When in doubt, blame the parenting.