Re: Re: Questions for Neurologist?

[Guest guest]

LJ, thank you for responding.  Our appointment was today and he did cover most of that.  I will check with him on how specific he is going to be in the letter he sends for school.  He did mention that he was going to say that he requires social skill training, OT, etc.  

On Mon, Feb 22, 2010 at 8:08 PM, seaglass278 <seaglass278@...> wrote:

 

I would definitely ask for recommendations regarding school;

if he has to go to a psychologist recommended by the neurologist for

this, so be it. But they can be very specific, and the school has

to follow this. What I mean by re:school is what special needs does

he require to stay at the same level as the others?? My dr. wrote

down stuff like taking tests alone, for longer period of time,

etc. for an older child. I do not know what they would be for a

younger child. Also, what therapy does he need to be at his best?

He'd have to write the prescriptions for those. LJ

>

> Hi all, I am new here. My son, age 5 1/2, has been diagnosed with

> Asperger's. At least I think he has. I completed a screening form and the

> nurse called me to tell me the results were " consistent with Asperger's. "

> The neurologist sent me a letter with the scores from the screening and the

> bottom of the letter said something to the effect of " should be tested for

> Asperger's/PDD. " So, we are going back tomorrow for a followup visit and

> for recommendations. Anything any of you can recommend that I should be

> asking other than for resources? I plan to ask him to review the screening

> with us, but I've been reading posts and so many of you have such great

> insight that I wanted to ask if you had any for me.

>

> I have been reading a bunch and he definitely fits the description. We've

> been treating him with OT and PT for Sensory Processing Disorder since last

> May. The OT has made a huge difference in the meltdowns. They're virtually

> non-existent now (knock on wood.)

>

> --

> McAllister

> FB: www.facebook.com/healfrominsideout

> Twitter: www.twitter.com/healinginside

> Blog: http://healingfrominsideout.blogspot.com

> Reiki II practitioner, #1 alternative treatment recommended by Dr. Oz

> Herbal consultations

>

-- McAllisterFB:  www.facebook.com/healfrominsideoutTwitter:  www.twitter.com/healinginside

Blog:  http://healingfrominsideout.blogspot.comReiki II practitioner, #1 alternative treatment recommended by Dr. OzHerbal consultations

[Guest guest]

Hi ,

I'm new here but our son was diagnosed at about the same age and we asked our doctor to write a letter to the school with his recommendations. He recommended an aide at school for safety reasons as well as for all the others reasons (keeping him on task, helping him with his sensory issues, escorting him to different parts of the building where his OT or speech therapists were). Our son was a runner and would be out the door in 3 seconds flat. It was a good thing his aide was athletic because my son was FAST. I even walked the grounds of the entire school with the principal at the beginning of school and he had the surrounding fence repaired in two places where there were holes he could climb through and escape to the street. I didn't have to make a big issue of it--just had to say in a nice way that it would be really bad for the school if a disabled child was lost or hit by a car. When my son moved to a

different school for 1st grade, word must have got around because the principal offered to walk with me before I could even bring it up!

Think about what your son's problems might be at school (you can spend the day with him so you can see first hand) and brainstorm ideas. Ask his teacher or his SPED. It never hurts to ask. Also, don't forget that you can call for an IEP at any time if you want to make changes (like an aide). Ask the doctor what kind of recommendations he has done in the past for a child like yours. Don't be afraid to ask questions. I have found that sometimes people (esp. the schools) aren't always forthcoming unless you ask!

"Scrapbooking is a wonderful way of celebrating what I have, dreaming of what could be and healing, while coming to terms with what might never be." --Mou Saha

From: seaglass278 <seaglass278@...>Subject: ( ) Re: Questions for Neurologist? Date: Monday, February 22, 2010, 8:08 PM

I would definitely ask for recommendations regarding school;if he has to go to a psychologist recommended by the neurologist forthis, so be it. But they can be very specific, and the school hasto follow this. What I mean by re:school is what special needs doeshe require to stay at the same level as the others?? My dr. wrotedown stuff like taking tests alone, for longer period of time,etc. for an older child. I do not know what they would be for ayounger child. Also, what therapy does he need to be at his best?He'd have to write the prescriptions for those. LJ>> Hi all, I am new here. My son, age 5 1/2, has been diagnosed with>

Asperger's. At least I think he has. I completed a screening form and the> nurse called me to tell me the results were "consistent with Asperger's."> The neurologist sent me a letter with the scores from the screening and the> bottom of the letter said something to the effect of "should be tested for> Asperger's/PDD. " So, we are going back tomorrow for a followup visit and> for recommendations. Anything any of you can recommend that I should be> asking other than for resources? I plan to ask him to review the screening> with us, but I've been reading posts and so many of you have such great> insight that I wanted to ask if you had any for me. > > I have been reading a bunch and he definitely fits the description. We've> been treating him with OT and PT for Sensory Processing Disorder since last> May. The OT has made a huge difference in the meltdowns. They're

virtually> non-existent now (knock on wood.)> > -- > McAllister> FB: www.facebook. com/healfrominsi deout> Twitter: www.twitter. com/healinginsid e> Blog: http://healingfromi nsideout. blogspot. com> Reiki II practitioner, #1 alternative treatment recommended by Dr. Oz> Herbal consultations>

[Guest guest]

, thank you so much for these suggestions.  I'm waiting to see what the letter from the neurologist says.  He knows all of my son's issues and then I will talk to his teacher too.  I'm keeping your post though so that I have something to refer back to.  I really appreciate it!!  

 On Wed, Feb 24, 2010 at 12:41 PM, Robbins <scrappyksr@...> wrote:

 

Hi ,

 

I'm new here but our son was diagnosed at about the same age and we asked our doctor to write a letter to the school with his recommendations.  He recommended an aide at school for safety reasons as well as for all the others reasons (keeping him on task, helping him with his sensory issues, escorting him to different parts of the building where his OT or speech therapists were).  Our son was a runner and would be out the door in 3 seconds flat.  It was a good thing his aide was athletic because my son was FAST.  I even walked the grounds of the entire school with the principal at the beginning of school and he had the surrounding fence repaired in two places where there were holes he could climb through and escape to the street.  I didn't have to make a big issue of it--just had to say in a nice way that it would be really bad for the school if a disabled child was lost or hit by a car.  When my son moved to a

different school for 1st grade, word must have got around because the principal offered to walk with me before I could even bring it up!

 

Think about what your son's problems might be at school (you can spend the day with him so you can see first hand) and brainstorm ideas.  Ask his teacher or his SPED.  It never hurts to ask.  Also, don't forget that you can call for an IEP at any time if you want to make changes (like an aide).  Ask the doctor what kind of recommendations he has done in the past for a child like yours.  Don't be afraid to ask questions.  I have found that sometimes people (esp. the schools) aren't always forthcoming unless you ask!

 

" Scrapbooking is a wonderful way of celebrating what I have, dreaming of what could be and healing, while coming to terms with what might never be. "   --Mou Saha

From: seaglass278 <seaglass278@...>Subject: ( ) Re: Questions for Neurologist?

Date: Monday, February 22, 2010, 8:08 PM

 

I would definitely ask for recommendations regarding school;if he has to go to a psychologist recommended by the neurologist forthis, so be it. But they can be very specific, and the school has

to follow this. What I mean by re:school is what special needs doeshe require to stay at the same level as the others?? My dr. wrotedown stuff like taking tests alone, for longer period of time,etc. for an older child. I do not know what they would be for a

younger child. Also, what therapy does he need to be at his best?He'd have to write the prescriptions for those. LJ

>> Hi all, I am new here. My son, age 5 1/2, has been diagnosed with>

Asperger's. At least I think he has. I completed a screening form and the> nurse called me to tell me the results were " consistent with Asperger's. " > The neurologist sent me a letter with the scores from the screening and the

> bottom of the letter said something to the effect of " should be tested for> Asperger's/PDD. " So, we are going back tomorrow for a followup visit and> for recommendations. Anything any of you can recommend that I should be

> asking other than for resources? I plan to ask him to review the screening> with us, but I've been reading posts and so many of you have such great> insight that I wanted to ask if you had any for me.

> > I have been reading a bunch and he definitely fits the description. We've> been treating him with OT and PT for Sensory Processing Disorder since last> May. The OT has made a huge difference in the meltdowns. They're

virtually> non-existent now (knock on wood.)> > -- > McAllister> FB: www.facebook. com/healfrominsi deout> Twitter: www.twitter. com/healinginsid e> Blog: http://healingfromi nsideout. blogspot. com

> Reiki II practitioner, #1 alternative treatment recommended by Dr. Oz> Herbal consultations>

-- McAllisterFB:  www.facebook.com/healfrominsideoutTwitter:  www.twitter.com/healinginside

Blog:  http://healingfrominsideout.blogspot.comReiki II practitioner, #1 alternative treatment recommended by Dr. OzHerbal consultations