RE: Non compliant for meds what to do

[Guest guest]

I’m not sure about Abilify, as it’s not in Canada

yet (where I am!) BUT our son just started taking Risperidone (Risperdal) which

is the same family of meds as Abilify. I will link you to a couple of

interesting things I found, that will hopefully help… I think if this med

works, it’ll be a GOD SEND for us, and potentially could be for you guys,

too. I’ve heard some great things about Abilify !!

http://www.psychiatrist.com/supplenet/v66s10/v66s1004.pdf

Good luck… my son is only 9, but he’s controlling

too… and anxious through the roof. So I COMPLETELY get it, and

sympathize.

BIG HUGS!!!

=)

From:

[mailto: ] On

Behalf Of eliot

Sent: Friday, December 18, 2009 10:55 AM

Subject: ( ) Non compliant for meds what to do

Good morning,

I feel so distraught and know there is so much support and wisdom on this group

please advise.

My son is 14 next month and for the last two years has become increasingly more

paranoid, anxiety ridden and controlling. He literally tries and succeeds sadly

most days to run our house. His obesession is to me the mother of the house and

do all the housekeeping, cooking decorating , gardening etc etc..ok i know that

may sound great at first but imagine walking in your kitchen to make your

coffee and breakast and being screamed and pushed on and told he will handle it

and if you try negogiate he becomes tyranical and scary. My husband and I are

at wits end he gets crazy if we do anything in the house as he considers all of

it his domain and believes he is a 57 yo woman and therefore older than us and

in charge.

We kept hoping he would move past this obsession and move onto a new one but he

has been hanging on to this for over 2 years now. His anxiety is thru the roof

and he still has not one friend in the world.

We tried prozac 2 years ago and he became suicidal and now refuses treatment of

any kind.

I spoke to a Dr yesterday who said he needs treatment and if we have to

hospitalize him or even get a court order we need to move fast because at some

point kids even minors leagally can refuse treatment. Does anyone know that

age.

We are so distraught we want to help him, he refused help we are constantly

fighting he is miserable and so are we. Meanwhile he does to well in school and

does not have behavioral issues there .

The Psychologist suggested abilify any feedback on that medication?

Any ideas , suggestions, feedback welcome.

Thanks

[Guest guest]

I went to a AS conference this fall. This is what was reported

by the pyschiatrist that spoke: Rispedal was studied in AS patients and helped

stablize mood but many boys gained lots of weight and had issues with breast

tissue development. Many doctors working with

children are trying Abilify because it does not have these

issues with it.

AS kids seem to be more sensitive to medications so doses are

to be started very low and titrated up slowly.

The benefit of Abilify is that you don't need alot of blood testing and it can

be used short term.

My daughter is very controlling too. I had to go to extremes

I have locks on all the doors, to control assess to TVs etc.

She needs to earn privelges to do stuff she likes like cook.

Everything she does I control as a reward for cooperating

with me.

I had to go to this extreme because my daughter would not

go to school.

Does your son go to school, get there on time, eat meals with

you, socialize, manage his anger ?

I am reluctant to give anymore ideas until I hear more what are

the priority of behaviors to change, school is usually first,

anger outbursts also a high priority.

Are these issues?

Pam

the aht ithat

>

> Good morning,

>

> I feel so distraught and know there is so much support and wisdom on this

group please advise.

>

> My son is 14 next month and for the last two years has become increasingly

more paranoid, anxiety ridden and controlling. He literally tries and succeeds

sadly most days to run our house. His obesession is to me the mother of the

house and do all the housekeeping, cooking decorating , gardening etc etc..ok i

know that may sound great at first but imagine walking in your kitchen to make

your coffee and breakast and being screamed and pushed on and told he will

handle it and if you try negogiate he becomes tyranical and scary. My husband

and I are at wits end he gets crazy if we do anything in the house as he

considers all of it his domain and believes he is a 57 yo woman and therefore

older than us and in charge.

>

> We kept hoping he would move past this obsession and move onto a new one but

he has been hanging on to this for over 2 years now. His anxiety is thru the

roof and he still has not one friend in the world.

>

> We tried prozac 2 years ago and he became suicidal and now refuses treatment

of any kind.

> I spoke to a Dr yesterday who said he needs treatment and if we have to

hospitalize him or even get a court order we need to move fast because at some

point kids even minors leagally can refuse treatment. Does anyone know that age.

>

>

> We are so distraught we want to help him, he refused help we are constantly

fighting he is miserable and so are we. Meanwhile he does to well in school and

does not have behavioral issues there .

>

> The Psychologist suggested abilify any feedback on that medication?

>

> Any ideas , suggestions, feedback welcome.

>

> Thanks

>

[Guest guest]

Both of my boys were put on Risperal and gained a huge amount of weight.  Both were then put on Abilify.  One has lost the weight, the other hasn't.  (But that could be the effect of over-eating.)  I can speak to the short acting of Abilify.  One of my sons did not take his medication for 2 days and by the evening of the 2nd day he became extremely violent again, just the behavior we'd been medicating him for.  Thank GOD for Abilify!!!

Lindsey sen

http://5kidswdisabilities.wordpress.com  

On Mon, Dec 21, 2009 at 2:47 PM, Pamela <susanonderko@...> wrote:

 

I went to a AS conference this fall. This is what was reportedby the pyschiatrist that spoke: Rispedal was studied in AS patients and helped stablize mood but many boys gained lots of weight and had issues with breast tissue development. Many doctors working with

children are trying Abilify because it does not have theseissues with it.AS kids seem to be more sensitive to medications so doses areto be started very low and titrated up slowly. The benefit of Abilify is that you don't need alot of blood testing and it can be used short term.

[Guest guest]

Have you tried Omega-3 for your son. It has helped a lot of people with Bipolar

Disorder as shown in a study at Harvard by Dr. Stoll. I think the dose is 4

grams a day for adults. I can't remember the dose for kids, but if you google

Dr. Stoll and Omega-3 you can view the study. Anyway, Perhaps your 14 year old

would comply with that. Also Coromega Omega-3 is a powder that comes in various

flavors if he doesn't like taking pills. I do not sell these products but have

used them and know they work. Good luck

Take care and no worries,

Shell

> >

> > Good morning,

> >

> > I feel so distraught and know there is so much support and wisdom on this

group please advise.

> >

> > My son is 14 next month and for the last two years has become increasingly

more paranoid, anxiety ridden and controlling. He literally tries and succeeds

sadly most days to run our house. His obesession is to me the mother of the

house and do all the housekeeping, cooking decorating , gardening etc etc..ok i

know that may sound great at first but imagine walking in your kitchen to make

your coffee and breakast and being screamed and pushed on and told he will

handle it and if you try negogiate he becomes tyranical and scary. My husband

and I are at wits end he gets crazy if we do anything in the house as he

considers all of it his domain and believes he is a 57 yo woman and therefore

older than us and in charge.

> >

> > We kept hoping he would move past this obsession and move onto a new one but

he has been hanging on to this for over 2 years now. His anxiety is thru the

roof and he still has not one friend in the world.

> >

> > We tried prozac 2 years ago and he became suicidal and now refuses treatment

of any kind.

> > I spoke to a Dr yesterday who said he needs treatment and if we have to

hospitalize him or even get a court order we need to move fast because at some

point kids even minors leagally can refuse treatment. Does anyone know that age.

> >

> >

> > We are so distraught we want to help him, he refused help we are constantly

fighting he is miserable and so are we. Meanwhile he does to well in school and

does not have behavioral issues there .

> >

> > The Psychologist suggested abilify any feedback on that medication?

> >

> > Any ideas , suggestions, feedback welcome.

> >

> > Thanks

> >

>

[Guest guest]

About medication refusal ... My daughter wanted control and did not

want to take any medication. flat out refused and the more we talked

about it the more powerful she talked (if you try to make me take

this I will run away from home). One day I showed her the

medication and she poured soda on me. I finally called

a behaviorist (Certified behavior analyst) and they

have been helping me with a plan for gaining control back.

During summer vacation, I gained confidence that the low dose

of zoloft was not going to hurt her. I was sure a trial was

safe. I did not try to explain too much more about medication

since it inflamed her. I planned activities she liked and

told her we would go when she took her pill. But until

she did there was no privileges in the house at all.

I don't work and I could wait around. I think the difference

in this plan was there was no reasoning with her this time

around. I didn't try to convince her anymore. She took the crumb

the first dose was just a crumb and we went out.

The next day the same. After 4 days I said she needed to take

2 crumbs and I promised her she was safe. She took the 2 crumbs

of a pill and we went out.

2 weeks go by and I keep increasing the crumbs the tricky part is the parts of a

pill need to be about the same size.

It took months to get up to a full pill.

I changed the reward as summer ended she now gets a small reward (30 min TV at

8:30 and visits to the pet store

to look a few days after school) for taking her med. IF she doesn't

no TV, electronics, outings all privileges are on hold.

Whew!!!! What a lot of work but it is working.

Take care I hope some of this is helpful to understand some

strategies to get AS kids to cooperate with medications.

Pam

>

> Good morning,

>

> I feel so distraught and know there is so much support and wisdom on this

group please advise.

>

> My son is 14 next month and for the last two years has become increasingly

more paranoid, anxiety ridden and controlling. He literally tries and succeeds

sadly most days to run our house. His obesession is to me the mother of the

house and do all the housekeeping, cooking decorating , gardening etc etc..ok i

know that may sound great at first but imagine walking in your kitchen to make

your coffee and breakast and being screamed and pushed on and told he will

handle it and if you try negogiate he becomes tyranical and scary. My husband

and I are at wits end he gets crazy if we do anything in the house as he

considers all of it his domain and believes he is a 57 yo woman and therefore

older than us and in charge.

>

> We kept hoping he would move past this obsession and move onto a new one but

he has been hanging on to this for over 2 years now. His anxiety is thru the

roof and he still has not one friend in the world.

>

> We tried prozac 2 years ago and he became suicidal and now refuses treatment

of any kind.

> I spoke to a Dr yesterday who said he needs treatment and if we have to

hospitalize him or even get a court order we need to move fast because at some

point kids even minors leagally can refuse treatment. Does anyone know that age.

>

>

> We are so distraught we want to help him, he refused help we are constantly

fighting he is miserable and so are we. Meanwhile he does to well in school and

does not have behavioral issues there .

>

> The Psychologist suggested abilify any feedback on that medication?

>

> Any ideas , suggestions, feedback welcome.

>

> Thanks

>

[Guest guest]

When my usually compliant son reached a point where he refused to go to school,

his doctor & I agreed it was because the stress level was just too much for him.

He didn't have any behavior issues at school as far as the school was concerned,

but he was really scared and confused most of the time. When he would come home,

he would explode. He was controlling our house and it was horrible. He would

terrorize his little sister. He claimed she was making too much noise and he

would call her stupid if she asked me a question about her homework. I got a

bigger car so he would have the third row in the back to himself and hopefully

just not pick on anyone else. I was afraid to leave him home alone and never

would consider leaving his little sister alone with him.

When he refused to get out of bed and go to school, I kept him home on doctor's

orders and promised him that he would not have to go back, that we would find a

better place for him. The school (with some help from my lawyer) agreed that the

public school was not longer FAPE for him. By the next semester, he was on

medication for stress and he was enrolled at a private school for kids with AS

at the public school's expense. The difference was night and day. He came home

smiling on the first day of school. And he had friends. He felt safe. He did a

better job of grooming. He still missed assignments here and there, but the

small setting, the assignments with clear written instructions, and the positive

encouragement gave me my son back. No more sleepless nights for me, too. It

wasn't long before he started making an effort to be nice to his sister. Now

they get along great. He still struggles with social skills, but I hate to

think what would have happened to him if he had been forced to stay at the

public school. I'm sure he would have dropped out and would be hiding in his

room.

If your child is suffering in school, there are a lot of options out there.

Check out homeschooling, the online schools, charter schools, private schools.

[Guest guest]

Hello,

My 15-yr son has been taking abilify since June due to behaviors at school and home. He was angry/depressed/self-injury, etc...

He is currently on Concerta (5mg) and Abilify (7.5mg) a day. Both seems to be working for him right now. We still have 'meltdown' days but it is not as bad as without meds. Abilify does cause weight gain. He's a big kid (5'8")and is self-concious of his weight. He looks older for his age. I got him a DMV id for proof ;-).

Hang in there.

From: eliot <cmirabella@...>Subject: ( ) Non compliant for meds what to do Date: Friday, December 18, 2009, 6:24 AM

Good morning,I feel so distraught and know there is so much support and wisdom on this group please advise.My son is 14 next month and for the last two years has become increasingly more paranoid, anxiety ridden and controlling. He literally tries and succeeds sadly most days to run our house. His obesession is to me the mother of the house and do all the housekeeping, cooking decorating , gardening etc etc..ok i know that may sound great at first but imagine walking in your kitchen to make your coffee and breakast and being screamed and pushed on and told he will handle it and if you try negogiate he becomes tyranical and scary. My husband and I are at wits end he gets crazy if we do anything in the house as he considers all of it his domain and believes he is a 57 yo woman and therefore older than us and in charge.We kept hoping he would move past this obsession and move onto a new one but he has been hanging on to this for

over 2 years now. His anxiety is thru the roof and he still has not one friend in the world.We tried prozac 2 years ago and he became suicidal and now refuses treatment of any kind.I spoke to a Dr yesterday who said he needs treatment and if we have to hospitalize him or even get a court order we need to move fast because at some point kids even minors leagally can refuse treatment. Does anyone know that age.We are so distraught we want to help him, he refused help we are constantly fighting he is miserable and so are we. Meanwhile he does to well in school and does not have behavioral issues there .The Psychologist suggested abilify any feedback on that medication?Any ideas , suggestions, feedback welcome.Thanks

[Guest guest]

Our story is very similar. Except my daughter is still very

avoidant and if there is any issue at school even at this

wonder private school she wants to stay home and is still often

late. But the difference is night and day. I can see she

feels more confident in school and very well supported by the

teachers.

It was so much work, money and time to advocate for a special needs school. But

I was sure homeschooling would not be right for my daughter, her executive

function is very

poor and she needed the help and direction from special ed teachers.

It is a shame people have to struggle so much to get the help their

kids need in school, but it is the reality.

good luck!

Pam

>

> When my usually compliant son reached a point where he refused to go to

school, his doctor & I agreed it was because the stress level was just too much

for him. He didn't have any behavior issues at school as far as the school was

concerned, but he was really scared and confused most of the time. When he would

come home, he would explode. He was controlling our house and it was horrible.

He would terrorize his little sister. He claimed she was making too much noise

and he would call her stupid if she asked me a question about her homework. I

got a bigger car so he would have the third row in the back to himself and

hopefully just not pick on anyone else. I was afraid to leave him home alone and

never would consider leaving his little sister alone with him.

>

> When he refused to get out of bed and go to school, I kept him home on

doctor's orders and promised him that he would not have to go back, that we

would find a better place for him. The school (with some help from my lawyer)

agreed that the public school was not longer FAPE for him. By the next semester,

he was on medication for stress and he was enrolled at a private school for kids

with AS at the public school's expense. The difference was night and day. He

came home smiling on the first day of school. And he had friends. He felt safe.

He did a better job of grooming. He still missed assignments here and there, but

the small setting, the assignments with clear written instructions, and the

positive encouragement gave me my son back. No more sleepless nights for me,

too. It wasn't long before he started making an effort to be nice to his sister.

Now they get along great. He still struggles with social skills, but I hate to

think what would have happened to him if he had been forced to stay at the

public school. I'm sure he would have dropped out and would be hiding in his

room.

>

> If your child is suffering in school, there are a lot of options out there.

Check out homeschooling, the online schools, charter schools, private schools.

>

[Guest guest]

Hi Everyone,

Here is one of many web articles on Omega-3. I know this worked for my youngest

son who continues to take this daily. I also take it. But buyer beware, you must

make sure it is distilled, and the dose of EPA and DHA are adequate. Please do

your research by reading the bottle and by Googling: Dr. Stoll Omega-3 for

Bipolar Disorder. Also, Dr. Stoll has a book available which I found to be very

helpful. Here is one sight about children:

http://www.bipolarchild.com/Newsletters/0501.htmlr Bipolar Disorder.

Hope this helps some parents who are having trouble medicating their children or

who do not want to use some of the rather harsh meds the docs prescribe.

Take care and no worries

Shell

> >

> > When my usually compliant son reached a point where he refused to go to

school, his doctor & I agreed it was because the stress level was just too much

for him. He didn't have any behavior issues at school as far as the school was

concerned, but he was really scared and confused most of the time. When he would

come home, he would explode. He was controlling our house and it was horrible.

He would terrorize his little sister. He claimed she was making too much noise

and he would call her stupid if she asked me a question about her homework. I

got a bigger car so he would have the third row in the back to himself and

hopefully just not pick on anyone else. I was afraid to leave him home alone and

never would consider leaving his little sister alone with him.

> >

> > When he refused to get out of bed and go to school, I kept him home on

doctor's orders and promised him that he would not have to go back, that we

would find a better place for him. The school (with some help from my lawyer)

agreed that the public school was not longer FAPE for him. By the next semester,

he was on medication for stress and he was enrolled at a private school for kids

with AS at the public school's expense. The difference was night and day. He

came home smiling on the first day of school. And he had friends. He felt safe.

He did a better job of grooming. He still missed assignments here and there, but

the small setting, the assignments with clear written instructions, and the

positive encouragement gave me my son back. No more sleepless nights for me,

too. It wasn't long before he started making an effort to be nice to his sister.

Now they get along great. He still struggles with social skills, but I hate to

think what would have happened to him if he had been forced to stay at the

public school. I'm sure he would have dropped out and would be hiding in his

room.

> >

> > If your child is suffering in school, there are a lot of options out there.

Check out homeschooling, the online schools, charter schools, private schools.

> >

>

[Guest guest]

I have taken Omega-3 for many years, and started the kids on it early.

I would add to beware of " proprietary " formulas that are heavily

marketed. Quality Omega-3 supplements are available at any natural

foods store. If someone is advertising it, it is probably not the one

you want to buy.

We used to give my little girl a strawberry-flavored Swedish (or

Norwegian, not sure) supplement because the capsules were small. But we

had to give her four a day to get enough. I started my older daughter

with the problems on it because of depression when she was younger. She

did not have serious depression, but a hint of sadness that had no

obvious cause.

I cannot vouch for its use in bipolar, we are not dealing with that.

But it is definitely an important supplement for everybody because most

diets are lacking in healthy oils and full of unhealthy ones.

Cris

On Dec 23, 2009, at 7:17 AM, intublu wrote:

> Hi Everyone,

>

> Here is one of many web articles on Omega-3. I know this worked for

> my youngest son who continues to take this daily. I also take it. But

> buyer beware, you must make sure it is distilled, and the dose of EPA

> and DHA are adequate. Please do your research by reading the bottle

> and by Googling: Dr. Stoll Omega-3 for Bipolar Disorder. Also, Dr.

> Stoll has a book available which I found to be very helpful. Here is

> one sight about children:

> http://www.bipolarchild.com/Newsletters/0501.htmlr Bipolar Disorder.

> Hope this helps some parents who are having trouble medicating their

> children or who do not want to use some of the rather harsh meds the

> docs prescribe.

> Take care and no worries

> Shell

>

>

> > >

> > > When my usually compliant son reached a point where he refused to

> go to school, his doctor & I agreed it was because the stress level

> was just too much for him. He didn't have any behavior issues at

> school as far as the school was concerned, but he was really scared

> and confused most of the time. When he would come home, he would

> explode. He was controlling our house and it was horrible. He would

> terrorize his little sister. He claimed she was making too much noise

> and he would call her stupid if she asked me a question about her

> homework. I got a bigger car so he would have the third row in the

> back to himself and hopefully just not pick on anyone else. I was

> afraid to leave him home alone and never would consider leaving his

> little sister alone with him.

> > >

> > > When he refused to get out of bed and go to school, I kept him

> home on doctor's orders and promised him that he would not have to go

> back, that we would find a better place for him. The school (with some

> help from my lawyer) agreed that the public school was not longer FAPE

> for him. By the next semester, he was on medication for stress and he

> was enrolled at a private school for kids with AS at the public

> school's expense. The difference was night and day. He came home

> smiling on the first day of school. And he had friends. He felt safe.

> He did a better job of grooming. He still missed assignments here and

> there, but the small setting, the assignments with clear written

> instructions, and the positive encouragement gave me my son back. No

> more sleepless nights for me, too. It wasn't long before he started

> making an effort to be nice to his sister. Now they get along great.

> He still struggles with social skills, but I hate to think what would

> have happened to him if he had been forced to stay at the public

> school. I'm sure he would have dropped out and would be hiding in his

> room.

> > >

> > > If your child is suffering in school, there are a lot of options

> out there. Check out homeschooling, the online schools, charter

> schools, private schools.

> > >

> >

>

>

[Guest guest]

By this age, it is really hard to deal with meds. My oldest ds refused

to take meds during late puberty and up through his teen years. If I

had to do it again, I would have gotten him more involved in the

problems/solutions. One way I can think of handling this is to work on

discussing his needs. i.e. " you do this, this is not ok, how can we

help you stop... " Enlist his help with ideas as to how to manage the

problem. Also discuss medication in general - what it does, why people

might be taking meds, what meds can do...etc. If you take meds for

something, discuss it more openly than you might in order to let him

see that you have whatever issues and your meds help you manage the

problem. With our middle ds now, we discuss his depression and sleep

problems openly and we discuss what the meds are supposed to do, if

they are working, etc. We had not done that with our oldest.

Having him take over your house like that is so reinforcing to him. It

is a huge problem and if he won't take meds, you need to find a

behaviorist to come in and help you reshape his behavior and get him to

stop doing it. Or it could be you need both - meds and behavior

intervention. he should have limits so you can all live more

comfortably in the house. I'm sure you are saying, " duh " , lol, but

find someone to help. You can usually find people by looking up " ABA "

in your area. Or contact your local autism group and ask around for

references.

Roxanna

" The only thing necessary for the triumph of evil is for good men to do

nothing. " E. Burke

( ) Non compliant for meds what to do

Good morning,

I feel so distraught and know there is so much support and wisdom on

this group please advise.

My son is 14 next month and for the last two years has become

increasingly more paranoid, anxiety ridden and controlling. He

literally tries and succeeds sadly most days to run our house. His

obesession is to me the mother of the house and do all the

housekeeping, cooking decorating , gardening etc etc..ok i know that

may sound great at first but imagine walking in your kitchen to make

your coffee and breakast and being screamed and pushed on and told he

will handle it and if you try negogiate he becomes tyranical and scary.

My husband and I are at wits end he gets crazy if we do anything in the

house as he considers all of it his domain and believes he is a 57 yo

woman and therefore older than us and in charge.

We kept hoping he would move past this obsession and move onto a new

one but he has been hanging on to this for over 2 years now. His

anxiety is thru the roof and he still has not one friend in the world.

We tried prozac 2 years ago and he became suicidal and now refuses

treatment of any kind.

I spoke to a Dr yesterday who said he needs treatment and if we have to

hospitalize him or even get a court order we need to move fast because

at some point kids even minors leagally can refuse treatment. Does

anyone know that age.

We are so distraught we want to help him, he refused help we are

constantly fighting he is miserable and so are we. Meanwhile he does to

well in school and does not have behavioral issues there .

The Psychologist suggested abilify any feedback on that medication?

Any ideas , suggestions, feedback welcome.

Thanks