1:1 Aid

[Guest guest]

Hi I am new. My 6 yr old was formally diagnosed w AS, ADHD and Sensory Issues.

I suspected it since her preschool IEP evaluator suggested either PDD-NOS or

ADHD. That got me started looking at autism and AS so I felt pretty confident

it was AS for awhile. I requested she be tested recently by the school district

and they had most of the AS symptoms right in their reports but still would not

acknowledge it. Anyway I decided to take her to an independent doc for

neuropshyc testing and agreed she has AS. She is recommending meds to help with

the severe ADHD and a 1:1 " trained " aid. I would appreciate your thoughts on a

1:1 trained aid? Thanks for your help! I do attend local ASPEN support group

and will be attending 1st PACT meeting on Tuesday. She does get in-home therapy

once a week and I am applying for aid from the state. Also started OT rehab

last Friday. Somethings are coming together but I am stumped on 1:1 aid. Does

the school district have to provide it?

[Guest guest]

If the IEP team agrees with the doctors results then the school will

have to provide it. The trick is getting them to agree. You might

have the doctor teleconference for the IEP meeting in order to answer

questions. We did that and the school had to pay for the doctors time

as part of the assessment process.

Kathy J.

On 11/8/10, myaspieblessing <maureenkcummings@...> wrote:

> Hi I am new. My 6 yr old was formally diagnosed w AS, ADHD and Sensory

> Issues. I suspected it since her preschool IEP evaluator suggested either

> PDD-NOS or ADHD. That got me started looking at autism and AS so I felt

> pretty confident it was AS for awhile. I requested she be tested recently

> by the school district and they had most of the AS symptoms right in their

> reports but still would not acknowledge it. Anyway I decided to take her to

> an independent doc for neuropshyc testing and agreed she has AS. She is

> recommending meds to help with the severe ADHD and a 1:1 " trained " aid. I

> would appreciate your thoughts on a 1:1 trained aid? Thanks for your help!

> I do attend local ASPEN support group and will be attending 1st PACT meeting

> on Tuesday. She does get in-home therapy once a week and I am applying for

> aid from the state. Also started OT rehab last Friday. Somethings are

> coming together but I am stumped on 1:1 aid. Does the school district have

> to provide it?

>

>

[Guest guest]

As Kathy stated, the trick is getting them to agree with the diagnosis. We have

a similar problem. My 11 year old son was diagnosed privately with Asperger's,

but when the school did their testing they say he only has ADHD and don't

acknowledge his AS dx at all for his IEP, although the testing stated many times

throughout that there are major concerns about social skills and peer

interactions. They are, however, agreeing to services including OT, but I want

his AS listed as his dx also so teachers will be aware of this, and also for

manifestation determinations if needed in the future. My advocate told me to

write a letter of dissent and bring it to our 1st IEP meeting, so we'll see what

happens then. Sounds like you are on the right track-it's a very long road.

Good luck!

> > Hi I am new. My 6 yr old was formally diagnosed w AS, ADHD and Sensory

> > Issues. I suspected it since her preschool IEP evaluator suggested either

> > PDD-NOS or ADHD. That got me started looking at autism and AS so I felt

> > pretty confident it was AS for awhile. I requested she be tested recently

> > by the school district and they had most of the AS symptoms right in their

> > reports but still would not acknowledge it. Anyway I decided to take her to

> > an independent doc for neuropshyc testing and agreed she has AS. She is

> > recommending meds to help with the severe ADHD and a 1:1 " trained " aid. I

> > would appreciate your thoughts on a 1:1 trained aid? Thanks for your help!

> > I do attend local ASPEN support group and will be attending 1st PACT meeting

> > on Tuesday. She does get in-home therapy once a week and I am applying for

> > aid from the state. Also started OT rehab last Friday. Somethings are

> > coming together but I am stumped on 1:1 aid. Does the school district have

> > to provide it?

> >

> >

>

[Guest guest]

How can the team disagree with a Medical Professional???? Do they have a license as a Psychiatrist. If the school psychologist tested your child and says your child only has ADHD then tell them you want an outside opinion and make them pay for it. Many children with Asperger's have Attention Deficit problems...my son included. In 3rd grade he was dx only with ADHD but by early 6th grade it changed to PDD NOS and then Asperger's Syndrome.

Jan

"In the Midst of Difficulty lies Opportunity" Albert Einstein

Success is not measured by one's position but by the obstacles one has overcome to obtain that position

From: craftmasterk <craftmasterk@...> Sent: Tue, November 9, 2010 2:18:39 PMSubject: Re: ( ) 1:1 Aid

As Kathy stated, the trick is getting them to agree with the diagnosis. We have a similar problem. My 11 year old son was diagnosed privately with Asperger's, but when the school did their testing they say he only has ADHD and don't acknowledge his AS dx at all for his IEP, although the testing stated many times throughout that there are major concerns about social skills and peer interactions. They are, however, agreeing to services including OT, but I want his AS listed as his dx also so teachers will be aware of this, and also for manifestation determinations if needed in the future. My advocate told me to write a letter of dissent and bring it to our 1st IEP meeting, so we'll see what happens then. Sounds like you are on the right track-it's a very long road. Good luck!> > Hi I am new. My 6 yr old was formally diagnosed w AS, ADHD and Sensory> > Issues. I suspected it since her preschool IEP evaluator suggested either> > PDD-NOS or ADHD. That got me started looking at autism and AS so I felt> > pretty confident it was AS for awhile. I requested she be tested recently> > by

the school district and they had most of the AS symptoms right in their> > reports but still would not acknowledge it. Anyway I decided to take her to> > an independent doc for neuropshyc testing and agreed she has AS. She is> > recommending meds to help with the severe ADHD and a 1:1 "trained" aid. I> > would appreciate your thoughts on a 1:1 trained aid? Thanks for your help!> > I do attend local ASPEN support group and will be attending 1st PACT meeting> > on Tuesday. She does get in-home therapy once a week and I am applying for> > aid from the state. Also started OT rehab last Friday. Somethings are> > coming together but I am stumped on 1:1 aid. Does the school district have> > to provide it?> >> >>

[Guest guest]

I am a one-on-one aide...also called paraprofessional. The school trains us to work in a classroom and one-on-one. I have a son with AS and have read a lot on AS as well as have gone to several seminars on AS and work with Kids with AS. And, even with all my background, it can still be a challenge but I feel comfortable working with my student. I seemed to understand her and where she is coming from and why she acts the way she does. I also try to work in social stories with her or help her when she acts out. I hope I am doing a good job and try my best. I think the important thing is for the aide to love children, to understand the basics of AS and to be compassionate and patient.

Jan

"In the Midst of Difficulty lies Opportunity" Albert Einstein

Success is not measured by one's position but by the obstacles one has overcome to obtain that position

From: myaspieblessing <maureenkcummings@...> Sent: Mon, November 8, 2010 3:59:16 PMSubject: ( ) 1:1 Aid

Hi I am new. My 6 yr old was formally diagnosed w AS, ADHD and Sensory Issues. I suspected it since her preschool IEP evaluator suggested either PDD-NOS or ADHD. That got me started looking at autism and AS so I felt pretty confident it was AS for awhile. I requested she be tested recently by the school district and they had most of the AS symptoms right in their reports but still would not acknowledge it. Anyway I decided to take her to an independent doc for neuropshyc testing and agreed she has AS. She is recommending meds to help with the severe ADHD and a 1:1 "trained" aid. I would appreciate your thoughts on a 1:1 trained aid? Thanks for your help! I do attend local ASPEN support group and will be attending 1st PACT meeting on Tuesday. She does get in-home therapy once a week and I am applying for aid from the state. Also started OT rehab last Friday. Somethings are coming together but I am stumped on 1:1 aid. Does the school district have to

provide it?

[Guest guest]

The school cannot deny the diagnosis of a medical professional. Most school psychologists aren't PHDs or MDs, so if you have a diagnosis from and MD or PHD then they have no choice. We had this problem for two years. On my son's IEP it said ADHD (which he does have) and Asperger's per Mom. I asked what was up with the "per Mom"? Like I was going to diagnose my son on my own and pull Aspergers out of the air? Once I got two doctors to send in documentation they changed it. The next year when they did his triannual reevaluation they too determined he has Aspergers. Hmmmm, go figure. ne

From: rushen janice <jrushen@...>Subject: Re: ( ) 1:1 Aid Date: Tuesday, November 9, 2010, 5:51 PM

How can the team disagree with a Medical Professional???? Do they have a license as a Psychiatrist. If the school psychologist tested your child and says your child only has ADHD then tell them you want an outside opinion and make them pay for it. Many children with Asperger's have Attention Deficit problems...my son included. In 3rd grade he was dx only with ADHD but by early 6th grade it changed to PDD NOS and then Asperger's Syndrome.

Jan

"In the Midst of Difficulty lies Opportunity" Albert Einstein

Success is not measured by one's position but by the obstacles one has overcome to obtain that position

From: craftmasterk <craftmasterk@...> Sent: Tue, November 9, 2010 2:18:39 PMSubject: Re: ( ) 1:1 Aid

As Kathy stated, the trick is getting them to agree with the diagnosis. We have a similar problem. My 11 year old son was diagnosed privately with Asperger's, but when the school did their testing they say he only has ADHD and don't acknowledge his AS dx at all for his IEP, although the testing stated many times throughout that there are major concerns about social skills and peer interactions. They are, however, agreeing to services including OT, but I want his AS listed as his dx also so teachers will be aware of this, and also for manifestation determinations if needed in the future. My advocate told me to write a letter of dissent and bring it to our 1st IEP meeting, so we'll see what happens then. Sounds like you are on the right track-it's a very long road. Good luck!> > Hi I am new. My 6 yr old was formally diagnosed w AS, ADHD and Sensory> > Issues. I suspected it since her preschool IEP evaluator suggested either> > PDD-NOS or ADHD. That got me started looking at autism and AS so I felt> > pretty confident it was AS for awhile. I requested she be tested recently> > by

the school district and they had most of the AS symptoms right in their> > reports but still would not acknowledge it. Anyway I decided to take her to> > an independent doc for neuropshyc testing and agreed she has AS. She is> > recommending meds to help with the severe ADHD and a 1:1 "trained" aid. I> > would appreciate your thoughts on a 1:1 trained aid? Thanks for your help!> > I do attend local ASPEN support group and will be attending 1st PACT meeting> > on Tuesday. She does get in-home therapy once a week and I am applying for> > aid from the state. Also started OT rehab last Friday. Somethings are> > coming together but I am stumped on 1:1 aid. Does the school district have> > to provide it?> >> >>

[Guest guest]

Hello Group. I am new to the list.

I have a dd that was diagnosed with ASD 3 years ago. I have been fighting my

school district ever since. The main point of contention is the medical

diagnosis.

Now, IDEA in Section 1414((2)(A) states, " use a variety of assessment tools

and strategies to gather relevant functional, developmental, and academic

information, including information provided by the parent, that may assist in

determing... "

There are some relative terms in here that Districts may interpret to their

advantage, such as " relevant " , and " may " . Districts could determine whether or

not the information provided by the parent is relevant or whether or not it

actually does indeed assist in the determination.

I have heard time after time, " We are not seeing it. " I am not saying that they

are morally correct in taking this stand. What I am offering is that, if they

don't give on this issue, you may have to file for due process hearing and hope

that the administrative judge declares the burden of proof to fall in the

District's lap.

I live in NJ, which has its own administrative code. IDEA is the primarily law

but it is vague at certain points. That is when my state's code kicks in.

In NJ, the state went another step further. The code states that the District

is required to " consider " the professional reports provided by the parent. In

the interpretation of it, they have satisfied IDEA. This has also provided

Districts more leverage to deny professional assessments that are conducted in

the private sector.

In a nutshell, there are loopholes available for the Districts to refute an

evaluation at the federal, and maybe even at the state, level and they don't

need a certain creditials to do it. One saving grace is that IDEA does offer a

counter to this. If you have a private neurodevelopmental assessment and the

District is disputing it, you have the right to ask that District to conduct

their own neurodevelopmental evaluation.

Now, this is not the independent part of the process. Just as they are required

to have a PT to review PT reports, a Psychologist to review pscyh reports, and

so on, they have to contract a neurodevelopmental pediatrician to reivew that

same industry's report and assess your child on their own dime.

This is a costly expenditure though. So many Districts, like Suzanne's, will

just accept what you submit. It is cheaper to just give the services than pay

the huge doctor fee. Others will not but you have to insist in writing for the

same industry evaluation.

Okay, I won't continue to babble. I know the heartbreak and tears. I've felt

and shed them. I learned many things the hard way, including this one. This is

the one that began the campaign that I am waging now. I just wanted to offer

this information just in case someone needed it.

Regards,

> > > Hi I am new. My 6 yr old was formally diagnosed w AS, ADHD and Sensory

> > > Issues. I suspected it since her preschool IEP evaluator suggested either

> > > PDD-NOS or ADHD. That got me started looking at autism and AS so I felt

> > > pretty confident it was AS for awhile. I requested she be tested recently

> > > by the school district and they had most of the AS symptoms right in their

> > > reports but still would not acknowledge it. Anyway I decided to take her

to

> > > an independent doc for neuropshyc testing and agreed she has AS. She is

> > > recommending meds to help with the severe ADHD and a 1:1 " trained " aid. I

> > > would appreciate your thoughts on a 1:1 trained aid? Thanks for your help!

> > > I do attend local ASPEN support group and will be attending 1st PACT

meeting

> > > on Tuesday. She does get in-home therapy once a week and I am applying for

> > > aid from the state. Also started OT rehab last Friday. Somethings are

> > > coming together but I am stumped on 1:1 aid. Does the school district have

> > > to provide it?

> > >

> > >

> >

>

[Guest guest]

School districts have a lot of leeway on what they have to consider if the

evaluation was not done by agreed upon independent evaluator. I've had one

school district completely ignore evaluations done privately because the

evaluation recommended more services than the school district was willing to

provide. The school's reason for denying the evaluation was that the evaluation

was done in a " medical setting " rather than an " educational setting. "

Your only choice to resolve the dispute may be to request an independent eval

and/or request mediation with your state's DOE. You should send a letter to the

school district with a bullet list of what you are requesting for your child.

Include a deadline for them to respond before you request mediation. You can

always cancel the mediation meeting if you resolve in the meantime. Mediation

meetings are usually scheduled out months in advance so you don't want to give a

long deadline to the school. In the bullet list make sure that you include a few

items that you are willing to negotiate on so that you look like you are willing

to work with the school district. Be sure that you know the items that you are

not going to compromise on. My lawyer advised us to do this whenever we were at

a impasse with the school district. I lived in that district for 4 years and

went to medication 3 years. The bullet list was always used as the agenda for

the mediation meeting.

I have moved to a new town which is less than 10 miles away from my old one but

it is like living a completely different planet as far as the school's attitude

goes. I've only had a few minor issues since moving.

Caroline

> > >

> > >

> > > On 11/8/10, myaspieblessing <maureenkcummings@> wrote:

> > > > Hi I am new. My 6 yr old was formally diagnosed w AS, ADHD and Sensory

> > > > Issues. I suspected it since her preschool IEP evaluator suggested

either

> > > > PDD-NOS or ADHD. That got me started looking at autism and AS so I felt

> > > > pretty confident it was AS for awhile. I requested she be tested

recently

> > > > by the school district and they had most of the AS symptoms right in

their

> > > > reports but still would not acknowledge it. Anyway I decided to take her

to

> > > > an independent doc for neuropshyc testing and agreed she has AS. She is

> > > > recommending meds to help with the severe ADHD and a 1:1 " trained " aid.

I

> > > > would appreciate your thoughts on a 1:1 trained aid? Thanks for your

help!

> > > > I do attend local ASPEN support group and will be attending 1st PACT

meeting

> > > > on Tuesday. She does get in-home therapy once a week and I am applying

for

> > > > aid from the state. Also started OT rehab last Friday. Somethings are

> > > > coming together but I am stumped on 1:1 aid. Does the school district

have

> > > > to provide it?

> > > >

> > > >

> > >

> >

>

[Guest guest]

I know what you are saying,Jan. I am very upset about the school's findings

also. They seem to be basing their opinion on the fact that the teachers'

Asperger's questionaire showed no problems socially, although all through the

report they state their concerns for socialization and peer interactions! He is

not your " typical " Asperger's child, so it is difficult for them to see, but we

are absolutely positive he has the correct diagnosis. The clinician who

diagnosed him is confused by their report also, and is trying to classify him

into a subtype for further clarification and treatment. It is so frustruating,

but if I ask for another opinion, I know there is a very long waiting list in

our area, and actually there is nobody locally,(willing to see an 11 year old)

who is qualified to diagnose an ASD, which is why we went out of town in the

first place for evaluation. Our son was also dx w/ADHD in 4th grade, but he

obviously had more going on, so we just got him diagnosed w/AS in May. Sorry to

vent...it is very frustruating. Thanks.

> > > Hi I am new. My 6 yr old was formally diagnosed w AS, ADHD and Sensory

> > > Issues. I suspected it since her preschool IEP evaluator suggested either

> > > PDD-NOS or ADHD. That got me started looking at autism and AS so I felt

> > > pretty confident it was AS for awhile. I requested she be tested recently

> > > by the school district and they had most of the AS symptoms right in their

> > > reports but still would not acknowledge it. Anyway I decided to take her

to

> > > an independent doc for neuropshyc testing and agreed she has AS. She is

> > > recommending meds to help with the severe ADHD and a 1:1 " trained " aid. I

> > > would appreciate your thoughts on a 1:1 trained aid? Thanks for your help!

> > > I do attend local ASPEN support group and will be attending 1st PACT

meeting

> > > on Tuesday. She does get in-home therapy once a week and I am applying for

> > > aid from the state. Also started OT rehab last Friday. Somethings are

> > > coming together but I am stumped on 1:1 aid. Does the school district have

> > > to provide it?

> > >

> > >

> >

>

[Guest guest]

:

Thank you so much for your detailed explanation. And it especially helped

because I live in NJ so I feel prepared with the right information for the

meeting next week. This team I am working with always has been supportive. I

pray it continues. I will keep you posted.

God bless you : )

> > > > Hi I am new. My 6 yr old was formally diagnosed w AS, ADHD and Sensory

> > > > Issues. I suspected it since her preschool IEP evaluator suggested

either

> > > > PDD-NOS or ADHD. That got me started looking at autism and AS so I felt

> > > > pretty confident it was AS for awhile. I requested she be tested

recently

> > > > by the school district and they had most of the AS symptoms right in

their

> > > > reports but still would not acknowledge it. Anyway I decided to take her

to

> > > > an independent doc for neuropshyc testing and agreed she has AS. She is

> > > > recommending meds to help with the severe ADHD and a 1:1 " trained " aid.

I

> > > > would appreciate your thoughts on a 1:1 trained aid? Thanks for your

help!

> > > > I do attend local ASPEN support group and will be attending 1st PACT

meeting

> > > > on Tuesday. She does get in-home therapy once a week and I am applying

for

> > > > aid from the state. Also started OT rehab last Friday. Somethings are

> > > > coming together but I am stumped on 1:1 aid. Does the school district

have

> > > > to provide it?

> > > >

> > > >

> > >

> >

>

[Guest guest]

In my son's case the school would say they didn't deny his medical disgnosis, but that they weren't seeing the symptoms during the school day and it must have been only when he was out of school and they would not give him an educational diagnosis of autism. Finally they gave hi and emotional behavior disturbance one, which I refuted but was not able to overturn. He did get the help he needed during the day with that educational label, not as much as I wanted, but some help. The crazy part was they denied he had symptoms at school, then wanted to put him a least restrictive environmentm, a secluded EBD classroom, and only after he was injured in a restraint situation, did they consider transferring him to a different school with more resources. It was a tough time but he is doing so much better now even under the wrong label, so in the end he did get

help.

From: rushen janice <jrushen@...>Subject: Re: ( ) 1:1 Aid Date: Tuesday, November 9, 2010, 5:51 PM

How can the team disagree with a Medical Professional???? Do they have a license as a Psychiatrist. If the school psychologist tested your child and says your child only has ADHD then tell them you want an outside opinion and make them pay for it. Many children with Asperger's have Attention Deficit problems...my son included. In 3rd grade he was dx only with ADHD but by early 6th grade it changed to PDD NOS and then Asperger's Syndrome.

Jan

"In the Midst of Difficulty lies Opportunity" Albert Einstein

Success is not measured by one's position but by the obstacles one has overcome to obtain that position

From: craftmasterk <craftmasterk@...> Sent: Tue, November 9, 2010 2:18:39 PMSubject: Re: ( ) 1:1 Aid

As Kathy stated, the trick is getting them to agree with the diagnosis. We have a similar problem. My 11 year old son was diagnosed privately with Asperger's, but when the school did their testing they say he only has ADHD and don't acknowledge his AS dx at all for his IEP, although the testing stated many times throughout that there are major concerns about social skills and peer interactions. They are, however, agreeing to services including OT, but I want his AS listed as his dx also so teachers will be aware of this, and also for manifestation determinations if needed in the future. My advocate told me to write a letter of dissent and bring it to our 1st IEP meeting, so we'll see what happens then. Sounds like you are on the right track-it's a very long road. Good luck!> > Hi I am new. My 6 yr old was formally diagnosed w AS, ADHD and Sensory> > Issues. I suspected it since her preschool IEP evaluator suggested either> > PDD-NOS or ADHD. That got me started looking at autism and AS so I felt> > pretty confident it was AS for awhile. I requested she be tested recently> > by the school district and they had most of the AS symptoms right in their> > reports

but still would not acknowledge it. Anyway I decided to take her to> > an independent doc for neuropshyc testing and agreed she has AS. She is> > recommending meds to help with the severe ADHD and a 1:1 "trained" aid. I> > would appreciate your thoughts on a 1:1 trained aid? Thanks for your help!> > I do attend local ASPEN support group and will be attending 1st PACT meeting> > on Tuesday. She does get in-home therapy once a week and I am applying for> > aid from the state. Also started OT rehab last Friday. Somethings are> > coming together but I am stumped on 1:1 aid. Does the school district have> > to provide it?> >> >>

[Guest guest]

Just request it any ways...the school will have to pay for it. They will have to find an outside source for you. And, they have a certain amount of time to do it and even if it took a long time it is worth the weight in gold. Believe me...Asperger's is on a spectrum...so no one child is a like. My son is very different than a lot of other kids dx with Aspergers. But he has some of the same characteristics....

Just keep pushing and plugging away ...if you have to get an advocate. You have rights! Call your state educational department and talk to them. Don't let the school push you around....you have more power than you realize! Believe me...I know!

Jan

"In the Midst of Difficulty lies Opportunity" Albert Einstein

Success is not measured by one's position but by the obstacles one has overcome to obtain that position

From: craftmasterk <craftmasterk@...> Sent: Wed, November 10, 2010 11:05:41 AMSubject: Re: ( ) 1:1 Aid

I know what you are saying,Jan. I am very upset about the school's findings also. They seem to be basing their opinion on the fact that the teachers' Asperger's questionaire showed no problems socially, although all through the report they state their concerns for socialization and peer interactions! He is not your "typical" Asperger's child, so it is difficult for them to see, but we are absolutely positive he has the correct diagnosis. The clinician who diagnosed him is confused by their report also, and is trying to classify him into a subtype for further clarification and treatment. It is so frustruating, but if I ask for another opinion, I know there is a very long waiting list in our area, and actually there is nobody locally,(willing to see an 11 year old) who is qualified to diagnose an ASD, which is why we went out of town in the first place for evaluation. Our son was also dx w/ADHD in 4th grade, but he obviously had more going on, so we

just got him diagnosed w/AS in May. Sorry to vent...it is very frustruating. Thanks.> > > Hi I am new. My 6 yr old was formally diagnosed w AS, ADHD and Sensory> > > Issues. I suspected it since her preschool IEP evaluator suggested either> > > PDD-NOS or ADHD. That got me started looking at autism and AS so I felt> > > pretty confident it was AS for awhile. I requested she be tested recently> > > by the school district and they had most of the AS symptoms right in their> > > reports but still would not acknowledge it. Anyway I decided to take her to> > > an independent doc for neuropshyc testing and agreed she has AS. She is> > >

recommending meds to help with the severe ADHD and a 1:1 "trained" aid. I> > > would appreciate your thoughts on a 1:1 trained aid? Thanks for your help!> > > I do attend local ASPEN support group and will be attending 1st PACT meeting> > > on Tuesday. She does get in-home therapy once a week and I am applying for> > > aid from the state. Also started OT rehab last Friday. Somethings are> > > coming together but I am stumped on 1:1 aid. Does the school district have> > > to provide it?> > >> > >> >>

[Guest guest]

Thank you. If they do give me a hard time at our next meeting with this, I just

may do that. We do have an advocate, and she advised me to write a letter of

dissent asking them to attach it to their evaluation, and bring it to our

meeting. Hopefully we won't have to fight, but I will do whatever I need to do

for my child. Thanks for your help!

> > > > Hi I am new. My 6 yr old was formally diagnosed w AS, ADHD and Sensory

> > > > Issues. I suspected it since her preschool IEP evaluator suggested

either

> > > > PDD-NOS or ADHD. That got me started looking at autism and AS so I felt

> > > > pretty confident it was AS for awhile. I requested she be tested

recently

> > > > by the school district and they had most of the AS symptoms right in

their

> > > > reports but still would not acknowledge it. Anyway I decided to take her

> to

> > > > an independent doc for neuropshyc testing and agreed she has AS. She is

> > > > recommending meds to help with the severe ADHD and a 1:1 " trained " aid.

I

> > > > would appreciate your thoughts on a 1:1 trained aid? Thanks for your

help!

> > > > I do attend local ASPEN support group and will be attending 1st PACT

> >meeting

> > > > on Tuesday. She does get in-home therapy once a week and I am applying

for

> > > > aid from the state. Also started OT rehab last Friday. Somethings are

> > > > coming together but I am stumped on 1:1 aid. Does the school district

have

> > > > to provide it?

> > > >

> > > >

> > >

> >

>

[Guest guest]

Be polite but firm. Put everything in writing and keep a copy for yourself. Let them know you are not backing down.....they'll get the hint.

Jan

"In the Midst of Difficulty lies Opportunity" Albert Einstein

Success is not measured by one's position but by the obstacles one has overcome to obtain that position

From: craftmasterk <craftmasterk@...> Sent: Thu, November 11, 2010 10:08:39 AMSubject: Re: ( ) 1:1 Aid

Thank you. If they do give me a hard time at our next meeting with this, I just may do that. We do have an advocate, and she advised me to write a letter of dissent asking them to attach it to their evaluation, and bring it to our meeting. Hopefully we won't have to fight, but I will do whatever I need to do for my child. Thanks for your help!> > > > Hi I am new. My 6 yr old was formally diagnosed w AS, ADHD and Sensory> > > > Issues. I suspected it since her preschool IEP evaluator suggested either> > > > PDD-NOS or ADHD. That got me started looking at autism and AS so I felt> > > > pretty confident it was AS for awhile. I requested she be tested recently> > > > by the school district and they had most of the AS symptoms right in their> > > > reports but still would not acknowledge it. Anyway I decided to take her > to> > > > an independent doc for neuropshyc testing and agreed she has AS. She is> > > > recommending meds to help with the severe ADHD and a 1:1

"trained" aid. I> > > > would appreciate your thoughts on a 1:1 trained aid? Thanks for your help!> > > > I do attend local ASPEN support group and will be attending 1st PACT > >meeting> > > > on Tuesday. She does get in-home therapy once a week and I am applying for> > > > aid from the state. Also started OT rehab last Friday. Somethings are> > > > coming together but I am stumped on 1:1 aid. Does the school district have> > > > to provide it?> > > >> > > >> > >> >>

[Guest guest]

Thanks again! I always put everything in writing-I learned that right from the

start. I carry an entire bag full of folders with test results, school

correspondence and evaluations wherever I go-I'm sure they roll their eyes when

they see me coming! I'll let you know how it goes. We still don't have any

date set for our 1st IEP meeting. They said it would be within 10 days from the

evaluation report, but it has been longer than that and we haven't heard

anything yet...hopefully it will be soon.

> > > > > Hi I am new. My 6 yr old was formally diagnosed w AS, ADHD and Sensory

> > > > > Issues. I suspected it since her preschool IEP evaluator suggested

> either

> > > > > PDD-NOS or ADHD. That got me started looking at autism and AS so I

felt

> > > > > pretty confident it was AS for awhile. I requested she be tested

> recently

> > > > > by the school district and they had most of the AS symptoms right in

> >their

> > > > > reports but still would not acknowledge it. Anyway I decided to take

her

>

> > to

> > > > > an independent doc for neuropshyc testing and agreed she has AS. She

is

> > > > > recommending meds to help with the severe ADHD and a 1:1 " trained "

aid.

> I

> > > > > would appreciate your thoughts on a 1:1 trained aid? Thanks for your

> >help!

> > > > > I do attend local ASPEN support group and will be attending 1st PACT

> > >meeting

> > > > > on Tuesday. She does get in-home therapy once a week and I am applying

> >for

> > > > > aid from the state. Also started OT rehab last Friday. Somethings are

> > > > > coming together but I am stumped on 1:1 aid. Does the school district

> >have

> > > > > to provide it?

> > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

There is a time limit....I forget what it is ...but you could probably look it up in 's law....and keep calling them and bugging them to set a time...and it should be at YOUR convenience. I hight recommend you bring someone with you ...even if it is just a friend. Don't sign any NOREP's at the meeting...take the information home and read it over carefully.

What are you looking for in the IEP? Does your child need extended time for tests or projects? Does he/she to be able to go to a quiet area to recoup? Does he/she need to be able to take a walk? Does the work or tests need to be modified? Do you want to be in re-testing if he/she fails? Do you want daily communication with the teachers via a book that goes back and forth? Does your child need speech, OT, or reading help? Does the school have groups for socialization? What happens in the lunch room...is you child okay there? Or does he/she need to eat somewhere else? What are some of the things that may cause a meltdown...are the teachers aware of this? Does you child need to sit near the front or back of the room? Does you child need copies of the classnotes, study guides??? Does you child need his homework planner signed by a teacher or help packing up at the end of the day?Does your child need to check in or

check out with someone each day to let them know how his day was. Does your child feel comfortable with anyone in particular that he/she could go to when needed? Does your child need to have directions read out loud and re-phrased for understanding? Does your child need to have work broken down into chunks so that it is not overwhelming?

These are some things you need to think about and bring up in the meeting.

When you go in be polite...but let them know who is the Boss...YOU! Don't let them bully you or make you feel inferior. Read up and go in prepared...they will be surprised. But, as I said...you have the upper hand (they don't want you to know that but you do!).

Jan

"In the Midst of Difficulty lies Opportunity" Albert Einstein

Success is not measured by one's position but by the obstacles one has overcome to obtain that position

From: craftmasterk <craftmasterk@...> Sent: Thu, November 11, 2010 9:14:59 PMSubject: Re: ( ) 1:1 Aid

Thanks again! I always put everything in writing-I learned that right from the start. I carry an entire bag full of folders with test results, school correspondence and evaluations wherever I go-I'm sure they roll their eyes when they see me coming! I'll let you know how it goes. We still don't have any date set for our 1st IEP meeting. They said it would be within 10 days from the evaluation report, but it has been longer than that and we haven't heard anything yet...hopefully it will be soon.> > > > > Hi I am new. My 6 yr old was formally diagnosed w AS, ADHD and Sensory> > > > > Issues. I suspected it since her preschool IEP evaluator suggested > either> > > > > PDD-NOS or ADHD. That got me started looking at autism and AS so I felt> > > > > pretty confident it was AS for awhile. I requested she be tested > recently> > > > > by the school district and they had most of the AS symptoms right in > >their> > > > > reports but still would not acknowledge it. Anyway I decided to take her > > > to> > > > > an independent doc for neuropshyc testing and agreed she has AS. She is> > > > > recommending meds to help with the severe ADHD and a 1:1 "trained" aid. > I> > > > > would

appreciate your thoughts on a 1:1 trained aid? Thanks for your > >help!> > > > > I do attend local ASPEN support group and will be attending 1st PACT > > >meeting> > > > > on Tuesday. She does get in-home therapy once a week and I am applying > >for> > > > > aid from the state. Also started OT rehab last Friday. Somethings are> > > > > coming together but I am stumped on 1:1 aid. Does the school district > >have> > > > > to provide it?> > > > >> > > > >> > > >> > >> >>

[Guest guest]

The school has to provide a 1-1 aide if the child needs one to access their education. You would need to prove need if they want to argue against providing one.

Roxanna

"I

predict future happiness for Americans if they can prevent the government from wasting the labors of the people under the pretense of taking care of them." - Jefferson

( ) 1:1 Aid

Hi I am new. My 6 yr old was formally diagnosed w AS, ADHD and Sensory Issues. I suspected it since her preschool IEP evaluator suggested either PDD-NOS or ADHD. That got me started looking at autism and AS so I felt pretty confident it was AS for awhile. I requested she be tested recently by the school district and they had most of the AS symptoms right in their reports but still would not acknowledge it. Anyway I decided to take her to an independent doc for neuropshyc testing and agreed she has AS. She is recommending meds to help with the severe ADHD and a 1:1 "trained" aid. I would appreciate your thoughts on a 1:1 trained aid? Thanks for your help! I do attend local ASPEN support group and will be attending 1st PACT meeting on Tuesday. She does get in-home therapy once a week and I am applying for aid from the state. Also started OT rehab last Friday. Somethings are coming together but I am stumped on 1:1 aid. Does the school district hav

e to provide it?

[Guest guest]

The same thing w/my ds, he was 1st dx @ age 5 as ADHD, OCD. Then @ age 8 w/PDD-NOS, Then @ age 12-13 w/ASD, and since last yr AS/HFA @ age 16-17. He will be 18 in a few months. This type of Autism seems to change as the child gets older. At least it feels that way to me.

..:~Anita W~:.