Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 So I hear, you would think they would have gone down in price by now. --Kathy Calvin: I'm a genius, but I'm a misunderstood genius. Hobbes: What's misunderstood about you? Calvin: Nobody thinks I'm a genius -------------- Original message -------------- From: Festival City Concrete <pvisser@...> kvetro60 wrote:> Have you ever considered > getting one of those SAD lamps? I hear they are great.hi kathy! i would love to have one of those lamps!! ive lookedat them on the internet... sure are expensive.:*carolyn. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 I've ordered a light box for me and Tom (and Remis judging by his mood this morning) and will let you know if we see any results. Sara x Sara Moroza- wrote: > > Has anyone tried light therapy/ light boxes for themselves or with their > kids? > Sara > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 When I feel like this, I take 6,000 IU of D3 and in an hour I'm feeling a whole lot better. So I do think sun or light or a lamp will help. x Sara Moroza- schrieb: > I've ordered a light box for me and Tom (and Remis judging by his mood > this morning) and will let you know if we see any results. > Sara x > > Sara Moroza- wrote: > >> Has anyone tried light therapy/ light boxes for themselves or with their >> kids? >> Sara >> >> >> > > > > ------------------------------------ > > DISCLAIMER > No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 Hi Sara, We didn't buy a SAD light but thought about it. (We are just looking into FIR lights now and wondering about just using our bathroon as an FIR sauna.) We do have a blue bulb in one of our living room lamps (I read a while back about a study where they replaced workplace lights with bluer lights and saw a significant improvement in staff wellbeing or happiness - something like that). Well actually we have bluish bulbs in several lights - it makes a whiter light. I'll ask Tim to send a link. On a bit of a tangent here .... We also bought a jellephish colour light - it's not a proper SAD light - but you can choose any colour or have it constantly changinghttp://www.myredpacket.co.uk/product.php/3948/1/the-jellephish-mood-lamp(we bought it for half this price or less)We couldn't say it has made any beneficial changes at all - but it is a fun light. One setting makes it sound sensitive and Eddie and I had several fun sessions shouting at it :-)! The remote control is handy but I'm still not sure what setting it is on without reading the instructions. A "surprise bonus feature" is that it can also respond to some DVD remotes controls and will change colour randomly when you control the DVD :-)! - when it changes to sound sensitive it will then change away happiliy to all the louder noises from the tv! Sandyxxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 I have one, I don't use it that often as it is very bright and I don't exactly enjoy using it, however i do feel it helps, and i will use it if i'm feeling really down - maybe when we're getting into January. Charlotte Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 Hi Sara The blue bulbs Sandy mentioned are sold either as " daylight " or " craft " bulbs in most DIY stores. I also got some of ours that needed a small ES candle bulb from RS components: http://uk.rs-online.com/web/search/searchBrowseAction.html?method=getProduct & R=2\ 478130 for other fittings you could also try: http://www.thelightbulb.co.uk/product/list.php?cat=19 Needless to say: don't be tempted by " energy saving " alternatives! Best wishes Tim > > > Hi Sara, > > We didn't buy a SAD light but thought about it. (We are just looking > into FIR lights now and wondering about just using our bathroon as an > FIR sauna.) > > > We do have a blue bulb in one of our living room lamps (I read a while > back about a study where they replaced workplace lights with bluer > lights and saw a significant improvement in staff wellbeing or happiness > - something like that). Well actually we have bluish bulbs in several > lights - it makes a whiter light. I'll ask Tim to send a link. > > > On a bit of a tangent here .... We also bought a jellephish colour light > - it's not a proper SAD light - but you can choose any colour or have it > constantly changing > http://www.myredpacket.co.uk/product.php/3948/1/the-jellephish-mood-lamp > <http://www.myredpacket.co.uk/product.php/3948/1/the-jellephish-mood-lam\ > p> > (we bought it for half this price or less) > We couldn't say it has made any beneficial changes at all - but it is a > fun light. One setting makes it sound sensitive and Eddie and I had > several fun sessions shouting at it :-)! The remote control is handy > but I'm still not sure what setting it is on without reading the > instructions. A " surprise bonus feature " is that it can also respond to > some DVD remotes controls and will change colour randomly when you > control the DVD :-)! - when it changes to sound sensitive it will then > change away happiliy to all the louder noises from the tv! > Sandyxxx > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2010 Report Share Posted January 9, 2010 FWIW Just writing this in the hope that it may help someone else: I thought I'd let people know that I bought a lightbox and that I've done very well on it. I think Tom's sleep MAY have benefitted from it but I am more definite about myself. I had every single symptom of SAD btw. It's like reading a paragraph about me! At the same time, however, I have found that an air purifier in my bedroom has stopped my nighttime asthma. I have had asthma at night and have taken drugs for it day in, day out for 30 years so this is incredible for me. It is the anti-pollen function of the air purifier that is doing it for me as we have another purifier without this function which doesn't help me. I didn't even know my asthma was related to pollen until a chiropractor told me it was recently. I don't really suffer from hayfever. So the 'cured' asthma and light box together have made a big difference, to my sleep but more so to my energy levels and mood. Sara Sandy and Tim wrote: > > Hi Sara, > > We didn't buy a SAD light but thought about it. (We are just looking > into FIR lights now and wondering about just using our bathroon as an > FIR sauna.) > > We do have a blue bulb in one of our living room lamps (I read a while > back about a study where they replaced workplace lights with bluer > lights and saw a significant improvement in staff wellbeing or > happiness - something like that). Well actually we have bluish bulbs > in several lights - it makes a whiter light. I'll ask Tim to send a link. > > On a bit of a tangent here .... We also bought a jellephish colour > light - it's not a proper SAD light - but you can choose any colour or > have it constantly changing > http://www.myredpacket.co.uk/product.php/3948/1/the-jellephish-mood-lamp > <http://www.myredpacket.co.uk/product.php/3948/1/the-jellephish-mood-lamp> > (we bought it for half this price or less) > We couldn't say it has made any beneficial changes at all - but it is > a fun light. One setting makes it sound sensitive and Eddie and I had > several fun sessions shouting at it :-)! The remote control is handy > but I'm still not sure what setting it is on without reading the > instructions. A " surprise bonus feature " is that it can also respond > to some DVD remotes controls and will change colour randomly when you > control the DVD :-)! - when it changes to sound sensitive it will then > change away happiliy to all the louder noises from the tv! > Sandyxxx > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2010 Report Share Posted January 10, 2010 Hi Sara This is brilliant with the light box, which type do you have, I looked at them ages ago and didnt get one as I thought they were quite expensive and I didnt know anyone who had one. Have you ever been tested for Lymes? When I went to see Lilias she reckoned I had Lymes and not asthma. At times my chest has been so terrible and have also used inhalers. I just wondered. So glad about your improvements, did you try the Vitamin D3 also like suggested? Luv Caroline xx > > > > Hi Sara, > > > > We didn't buy a SAD light but thought about it. (We are just looking > > into FIR lights now and wondering about just using our bathroon as an > > FIR sauna.) > > > > We do have a blue bulb in one of our living room lamps (I read a while > > back about a study where they replaced workplace lights with bluer > > lights and saw a significant improvement in staff wellbeing or > > happiness - something like that). Well actually we have bluish bulbs > > in several lights - it makes a whiter light. I'll ask Tim to send a link. > > > > On a bit of a tangent here .... We also bought a jellephish colour > > light - it's not a proper SAD light - but you can choose any colour or > > have it constantly changing > > http://www.myredpacket.co.uk/product.php/3948/1/the-jellephish-mood-lamp > > <http://www.myredpacket.co.uk/product.php/3948/1/the-jellephish-mood-lamp> > > (we bought it for half this price or less) > > We couldn't say it has made any beneficial changes at all - but it is > > a fun light. One setting makes it sound sensitive and Eddie and I had > > several fun sessions shouting at it :-)! The remote control is handy > > but I'm still not sure what setting it is on without reading the > > instructions. A " surprise bonus feature " is that it can also respond > > to some DVD remotes controls and will change colour randomly when you > > control the DVD :-)! - when it changes to sound sensitive it will then > > change away happiliy to all the louder noises from the tv! > > Sandyxxx > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2010 Report Share Posted January 10, 2010 Hi Nina and Caroline, I bought this one http://www.detoxyourworld.com/acatalog/sad_diamond_4.html It was very expensive but I went for that one in the end as it has the shortest sitting time. You have to sit by it for 20 mins whereas with the cheaper ones it's an hour. I was thinking of Tom who I didn't think could sit there for an hour and nor do I have a whole hour to spare first thing in the morning but 20 mins with a cuppa, etc is nice. I've never been tested for lyme and nor has Tom. I bought a book on Lyme and autism and didn't understand a word of it! I think it might have been the book. How do you get tested for it? Sara carolinetraa2000 wrote: > > Hi Sara > > This is brilliant with the light box, which type do you have, I looked > at them ages ago and didnt get one as I thought they were quite > expensive and I didnt know anyone who had one. > > Have you ever been tested for Lymes? When I went to see Lilias she > reckoned I had Lymes and not asthma. At times my chest has been so > terrible and have also used inhalers. I just wondered. > > So glad about your improvements, did you try the Vitamin D3 also like > suggested? > > Luv Caroline > xx > > > > > > > > Hi Sara, > > > > > > We didn't buy a SAD light but thought about it. (We are just looking > > > into FIR lights now and wondering about just using our bathroon as an > > > FIR sauna.) > > > > > > We do have a blue bulb in one of our living room lamps (I read a > while > > > back about a study where they replaced workplace lights with bluer > > > lights and saw a significant improvement in staff wellbeing or > > > happiness - something like that). Well actually we have bluish bulbs > > > in several lights - it makes a whiter light. I'll ask Tim to send > a link. > > > > > > On a bit of a tangent here .... We also bought a jellephish colour > > > light - it's not a proper SAD light - but you can choose any > colour or > > > have it constantly changing > > > > http://www.myredpacket.co.uk/product.php/3948/1/the-jellephish-mood-lamp > <http://www.myredpacket.co.uk/product.php/3948/1/the-jellephish-mood-lamp> > > > > > <http://www.myredpacket.co.uk/product.php/3948/1/the-jellephish-mood-lamp > <http://www.myredpacket.co.uk/product.php/3948/1/the-jellephish-mood-lamp>> > > > (we bought it for half this price or less) > > > We couldn't say it has made any beneficial changes at all - but it is > > > a fun light. One setting makes it sound sensitive and Eddie and I had > > > several fun sessions shouting at it :-)! The remote control is handy > > > but I'm still not sure what setting it is on without reading the > > > instructions. A " surprise bonus feature " is that it can also respond > > > to some DVD remotes controls and will change colour randomly when you > > > control the DVD :-)! - when it changes to sound sensitive it will > then > > > change away happiliy to all the louder noises from the tv! > > > Sandyxxx > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2010 Report Share Posted January 10, 2010 Thanks for posting this Sara. Really good to hear that it has helped you both, good on you for trying it out. I've thought about getting one but haven't gotten round to it. I'm interested to know what type of lamps are used, are they flourescent tube lamps?? Norman stares at flourescent/strip lights and this triggers a seizure, so I wanted to know what type of lamp. I think it's worth a try for myself but hope that I could also use it with Norman. emily x > > > > Hi Sara, > > > > We didn't buy a SAD light but thought about it. (We are just looking > > into FIR lights now and wondering about just using our bathroon as an > > FIR sauna.) > > > > We do have a blue bulb in one of our living room lamps (I read a while > > back about a study where they replaced workplace lights with bluer > > lights and saw a significant improvement in staff wellbeing or > > happiness - something like that). Well actually we have bluish bulbs > > in several lights - it makes a whiter light. I'll ask Tim to send a link. > > > > On a bit of a tangent here .... We also bought a jellephish colour > > light - it's not a proper SAD light - but you can choose any colour or > > have it constantly changing > > http://www.myredpacket.co.uk/product.php/3948/1/the-jellephish-mood-lamp > > <http://www.myredpacket.co.uk/product.php/3948/1/the-jellephish-mood-lam\ p> > > (we bought it for half this price or less) > > We couldn't say it has made any beneficial changes at all - but it is > > a fun light. One setting makes it sound sensitive and Eddie and I had > > several fun sessions shouting at it :-)! The remote control is handy > > but I'm still not sure what setting it is on without reading the > > instructions. A " surprise bonus feature " is that it can also respond > > to some DVD remotes controls and will change colour randomly when you > > control the DVD :-)! - when it changes to sound sensitive it will then > > change away happiliy to all the louder noises from the tv! > > Sandyxxx > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2010 Report Share Posted January 10, 2010 Hi , I've just tried to find out for you, and on Wikipedia it says * Light therapy* or *phototherapy* consists of exposure to daylight or to specific wavelengths of light using lasers <http://en.wikipedia.org/wiki/Laser>, light-emitting diodes <http://en.wikipedia.org/wiki/Light-emitting_diode>, fluorescent lamps <http://en.wikipedia.org/wiki/Fluorescent_lamp>, dichroic <http://en.wikipedia.org/wiki/Dichroism> lamps or very bright, full-spectrum light <http://en.wikipedia.org/wiki/Light> -- by a so-called light box. The light is administered for a prescribed amount of time and, in some cases, at a specific time of day. Light therapy directed at the skin is used to treat /Acne vulgaris <http://en.wikipedia.org/wiki/Acne_vulgaris>/ and neonatal jaundice <http://en.wikipedia.org/wiki/Neonatal_jaundice>. Light therapy which strikes the retina <http://en.wikipedia.org/wiki/Retina> of the eyes is used to treat circadian rhythm <http://en.wikipedia.org/wiki/Circadian_rhythm> disorders such as delayed sleep phase syndrome <http://en.wikipedia.org/wiki/Delayed_sleep_phase_syndrome> and can also be used to treat seasonal affective disorder <http://en.wikipedia.org/wiki/Seasonal_affective_disorder>, with some support for its use also with non-seasonal psychiatric disorders. so it looks like flourescent can be used so I suppose you'd have to ring up the sellers/ manufacturers and ask first. I don't know what mine is and didn't keep any blurb but it may be fluorescent as it turns on in the same way as a fluorescent light. Sara x emilyscorer wrote: > > > Thanks for posting this Sara. Really good to hear that it has helped > you both, good on you for trying it out. I've thought about getting > one but haven't gotten round to it. > > I'm interested to know what type of lamps are used, are they > flourescent tube lamps?? Norman stares at flourescent/strip lights and > this triggers a seizure, so I wanted to know what type of lamp. I think > it's worth a try for myself but hope that I could also use it with > Norman. > > emily x > > > > > > > > Hi Sara, > > > > > > We didn't buy a SAD light but thought about it. (We are just looking > > > into FIR lights now and wondering about just using our bathroon as > an > > > FIR sauna.) > > > > > > We do have a blue bulb in one of our living room lamps (I read a > while > > > back about a study where they replaced workplace lights with bluer > > > lights and saw a significant improvement in staff wellbeing or > > > happiness - something like that). Well actually we have bluish bulbs > > > in several lights - it makes a whiter light. I'll ask Tim to send a > link. > > > > > > On a bit of a tangent here .... We also bought a jellephish colour > > > light - it's not a proper SAD light - but you can choose any colour > or > > > have it constantly changing > > > > http://www.myredpacket.co.uk/product.php/3948/1/the-jellephish-mood-lamp > <http://www.myredpacket.co.uk/product.php/3948/1/the-jellephish-mood-lamp> > > > > <http://www.myredpacket.co.uk/product.php/3948/1/the-jellephish-mood-lam\ > p > <http://www.myredpacket.co.uk/product.php/3948/1/the-jellephish-mood-lamp>> > > > (we bought it for half this price or less) > > > We couldn't say it has made any beneficial changes at all - but it > is > > > a fun light. One setting makes it sound sensitive and Eddie and I > had > > > several fun sessions shouting at it :-)! The remote control is handy > > > but I'm still not sure what setting it is on without reading the > > > instructions. A " surprise bonus feature " is that it can also respond > > > to some DVD remotes controls and will change colour randomly when > you > > > control the DVD :-)! - when it changes to sound sensitive it will > then > > > change away happiliy to all the louder noises from the tv! > > > Sandyxxx > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 Thank you Sara. I'll ring and check. emily x > > > > > > > > Hi Sara, > > > > > > > > We didn't buy a SAD light but thought about it. (We are just looking > > > > into FIR lights now and wondering about just using our bathroon as > > an > > > > FIR sauna.) > > > > > > > > We do have a blue bulb in one of our living room lamps (I read a > > while > > > > back about a study where they replaced workplace lights with bluer > > > > lights and saw a significant improvement in staff wellbeing or > > > > happiness - something like that). Well actually we have bluish bulbs > > > > in several lights - it makes a whiter light. I'll ask Tim to send a > > link. > > > > > > > > On a bit of a tangent here .... We also bought a jellephish colour > > > > light - it's not a proper SAD light - but you can choose any colour > > or > > > > have it constantly changing > > > > > > http://www.myredpacket.co.uk/product.php/3948/1/the-jellephish-mood-lamp > > <http://www.myredpacket.co.uk/product.php/3948/1/the-jellephish-mood-lam\ p> > > > > > > <http://www.myredpacket.co.uk/product.php/3948/1/the-jellephish-mood-lam\ \ > > p > > <http://www.myredpacket.co.uk/product.php/3948/1/the-jellephish-mood-lam\ p>> > > > > (we bought it for half this price or less) > > > > We couldn't say it has made any beneficial changes at all - but it > > is > > > > a fun light. One setting makes it sound sensitive and Eddie and I > > had > > > > several fun sessions shouting at it :-)! The remote control is handy > > > > but I'm still not sure what setting it is on without reading the > > > > instructions. A " surprise bonus feature " is that it can also respond > > > > to some DVD remotes controls and will change colour randomly when > > you > > > > control the DVD :-)! - when it changes to sound sensitive it will > > then > > > > change away happiliy to all the louder noises from the tv! > > > > Sandyxxx > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Sara, I probably asked this before but where did you get the light box and how much did it cost? x Sara Moroza- schrieb: > I've ordered a light box for me and Tom (and Remis judging by his mood > this morning) and will let you know if we see any results. > Sara x > > Sara Moroza- wrote: > >> Has anyone tried light therapy/ light boxes for themselves or with their >> kids? >> Sara >> >> >> > > > > ------------------------------------ > > DISCLAIMER > No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Sara, I probably asked this before but where did you get the light box and how much did it cost? x Sara Moroza- schrieb: > I've ordered a light box for me and Tom (and Remis judging by his mood > this morning) and will let you know if we see any results. > Sara x > > Sara Moroza- wrote: > >> Has anyone tried light therapy/ light boxes for themselves or with their >> kids? >> Sara >> >> >> > > > > ------------------------------------ > > DISCLAIMER > No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Sara, I probably asked this before but where did you get the light box and how much did it cost? x Sara Moroza- schrieb: > I've ordered a light box for me and Tom (and Remis judging by his mood > this morning) and will let you know if we see any results. > Sara x > > Sara Moroza- wrote: > >> Has anyone tried light therapy/ light boxes for themselves or with their >> kids? >> Sara >> >> >> > > > > ------------------------------------ > > DISCLAIMER > No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 I bought this one, http://www.detoxyourworld.com/acatalog/sad_diamond_4.html I bought the most expensive one because you only have to sit by it for 20 mins, you have to sit by the others for up to an hour I think, which is fine if you're at a computer, or reading, for example but I believe it has to be first thing. Sara x JULIE GRIFFITHS wrote: > > Sara, > > I probably asked this before but where did you get the light box and how > much did it cost? > > x > > Sara Moroza- schrieb: > > I've ordered a light box for me and Tom (and Remis judging by his mood > > this morning) and will let you know if we see any results. > > Sara x > > > > Sara Moroza- wrote: > > > >> Has anyone tried light therapy/ light boxes for themselves or with > their > >> kids? > >> Sara > >> > >> > >> > > > > > > > > ------------------------------------ > > > > DISCLAIMER > > No information contained in this post is to be construed as medical > advice. If you need medical advice, please seek it from a suitably > qualified practitioner. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 I bought this one, http://www.detoxyourworld.com/acatalog/sad_diamond_4.html I bought the most expensive one because you only have to sit by it for 20 mins, you have to sit by the others for up to an hour I think, which is fine if you're at a computer, or reading, for example but I believe it has to be first thing. Sara x JULIE GRIFFITHS wrote: > > Sara, > > I probably asked this before but where did you get the light box and how > much did it cost? > > x > > Sara Moroza- schrieb: > > I've ordered a light box for me and Tom (and Remis judging by his mood > > this morning) and will let you know if we see any results. > > Sara x > > > > Sara Moroza- wrote: > > > >> Has anyone tried light therapy/ light boxes for themselves or with > their > >> kids? > >> Sara > >> > >> > >> > > > > > > > > ------------------------------------ > > > > DISCLAIMER > > No information contained in this post is to be construed as medical > advice. If you need medical advice, please seek it from a suitably > qualified practitioner. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 I bought this one, http://www.detoxyourworld.com/acatalog/sad_diamond_4.html I bought the most expensive one because you only have to sit by it for 20 mins, you have to sit by the others for up to an hour I think, which is fine if you're at a computer, or reading, for example but I believe it has to be first thing. Sara x JULIE GRIFFITHS wrote: > > Sara, > > I probably asked this before but where did you get the light box and how > much did it cost? > > x > > Sara Moroza- schrieb: > > I've ordered a light box for me and Tom (and Remis judging by his mood > > this morning) and will let you know if we see any results. > > Sara x > > > > Sara Moroza- wrote: > > > >> Has anyone tried light therapy/ light boxes for themselves or with > their > >> kids? > >> Sara > >> > >> > >> > > > > > > > > ------------------------------------ > > > > DISCLAIMER > > No information contained in this post is to be construed as medical > advice. If you need medical advice, please seek it from a suitably > qualified practitioner. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2011 Report Share Posted January 19, 2011 I am new to the group. My first post was the one about rule out as diagnosis. I have been too scared to post before, rightfully so after someone called it the prize to be had, the diagnosis that is. maybe I'm too soft but now I don't want to post anymore. I will continue to read and hope to gain knowledge but will not put myself out there. thanks, Jeana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2011 Report Share Posted January 19, 2011 Ok, apparently that was a bad use of words.... I really didn't mean it that way. I am just noticing that SO many people are having a hard time getting the diagnosis (especially from the school districts). Apparently I should leave the list, everybody seems to be upset at me today.....CarolynFrom: Jeana Boase <jmboase@...> Sent: Wed, January 19, 2011 7:42:04 AMSubject: ( ) Sad I am new to the group. My first post was the one about rule out as diagnosis. I have been too scared to post before, rightfully so after someone called it the prize to be had, the diagnosis that is. maybe I'm too soft but now I don't want to post anymore. I will continue to read and hope to gain knowledge but will not put myself out there. thanks, Jeana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2011 Report Share Posted January 19, 2011 Carolyn, It was my original post that the prize remark came from. I also took it quite sad also. I'm glad to hear you didn't mean it that way. No one wants AS for their loved ones, certainly not me. Don't leave the list you are a valuable part of this support group. Take care, Cathleen From: Carolyn Weisbard <ccweisbard@...> Sent: Wed, January 19, 2011 12:16:58 PMSubject: Re: ( ) Sad Ok, apparently that was a bad use of words.... I really didn't mean it that way. I am just noticing that SO many people are having a hard time getting the diagnosis (especially from the school districts). Apparently I should leave the list, everybody seems to be upset at me today.....Carolyn From: Jeana Boase <jmboase@...> Sent: Wed, January 19, 2011 7:42:04 AMSubject: ( ) Sad I am new to the group. My first post was the one about rule out as diagnosis. I have been too scared to post before, rightfully so after someone called it the prize to be had, the diagnosis that is. maybe I'm too soft but now I don't want to post anymore. I will continue to read and hope to gain knowledge but will not put myself out there. thanks, Jeana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Thank you Meaghan I completely agree with you, sometimes things or words don't come out the way you really mean it, and we are here to help each other, not to hurt each other so I would not take things personally.From: Meaghan Larson <meaghanlarson@...> Sent: Thu, January 20, 2011 1:48:21 AMSubject: Re: ( ) Sad Things get said that people dont mean , we all have our bad days where patience just runs a little thin! I remember reading the persons post that said that to you , and responding , and i feel kinda bad because i probably shouldnt have stepped in and said what i thought about the situation( i had a bad day that day) , you got a bad remark from one person , and that one person got like 6 remarks directed back to her! Sometimes its hard too , to know how people meant to say things because its in writing and your not hearing their tone of voice ya know? I think all of us just need to remember , that we are ALL trying to help eachother , and learn from one another! There were a few women i noticed when i first joined this group , that i was like " holy crap this person is blunt!" But the more posts from them i would read , and all the different sides of them that i would see , i quickly figured out that all the parents on here are just amazing people!! People will come and go from this group im sure , but everyone that sticks around will get to know everyone else's personality eventually , and everyone can benefit from this group , you say your too soft?? ....ok easy ...... go talk to Roxanna , she will toughen you up a bit if u want , she is seriously so smart and full of the BEST advice and i love that she is honest and speaks whats on her mind , i wish i could be more like that , and see thats why i love this group , because i do benefit from reading posts from parents who are maybe a little more tough then i am , because you do have to toughen up sometimes with the situation we are in!! And its NOT being insensitive to your feelings its just some of these women have been in this game for a long time , so they just are being honest and just want to help! Sometimes i will see what another parent posted to someone and think " well wait thats not what im doing, "and maybe feel a little bit defensive about it , i get defensive for a minute in my thinking because i know i SHOULD be doing it !! 9 times out of 10 i think " CRAP she is right again!" lol But from reading a lot of posts about their story i realize we have a lot in common with out children and struggles we go through , and im not saying one person is always right , and to do whatever they say , but i am sure glad i joined this group because i dont know what i would be doing right now without it!! I look forward to logging on to my computer every morning , because i know i will learn something from these women, and that benefits my boys!!! I live away from my family , i have no friends where i live because we just moved here , so i was really lonely before i joined this group! I grew up with 5 sisters , and with this group i kind of feel like i have a lil piece of that back!!! Good lord i wrote too much , i am so sorry you guys......this is why i cant drink mountain dew at 7 o clock at night!! , and sorry roxanna for puttin you on the spot like that , hope what i said about you doesnt offend you , i meant it all as compliments!!! but im sure a lot of women would agree , you are one of the parents that i will search for comments you post because you give parents a lot of hope and knowledge in your responses!! And that goes for all the rest of you moms and dads on here , ive learned atleast 1 thing from every single one of you!!! So i hope you dont leave the group, we all need eachother, i know i need all the support!! MeaghanFrom: Roxanna <MadIdeas@...> Sent: Wed, January 19, 2011 8:09:29 PMSubject: Re: ( ) Sad You are welcome to keep posting. It's up to you. I wouldn't want to let one person's comment spoil whatever you want to contribute or learn from the group. Many people replied in disagreement to that post anyway. I've been here a long time and people won't always agree or even say things nicely to each other all the time. I can say things wrong sometimes too. Or people take them worse than I meant it. At any rate, you had a good question and it was worth asking, IMO. Roxanna "I predict future happiness for Americans if they can prevent the government from wasting the labors of the people under the pretense of taking care of them." - Jefferson ( ) Sad I am new to the group. My first post was the one about rule out as diagnosis. I have been too scared to post before, rightfully so after someone called it the prize to be had, the diagnosis that is. maybe I'm too soft but now I don't want to post anymore. I will continue to read and hope to gain knowledge but will not put myself out there. thanks, Jeana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 No, don't leave Carolyn. I was thinking about this this morning and I really thought you were talking about the influx of posts about how to get a dx and not really her post about what "rule out" means. I totally got your point and I'm not upset with you either. I wish she had not taken it so personally but that happens sometimes. Roxanna "I predict future happiness for Americans if they can prevent the government from wasting the labors of the people under the pretense of taking care of them." - Jefferson (AspergersSuppor t) Sad I am new to the group. My first post was the one about rule out as diagnosis. I have been too scared to post before, rightfully so after someone called it the prize to be had, the diagnosis that is. maybe I'm too soft but now I don't want to post anymore. I will continue to read and hope to gain knowledge but will not put myself out there. thanks, Jeana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Do not leave Carolyn, some people will take things personally, remember we are all ultra exhausted, ultra stressed and ultra sensitive, but we still care about each other. Let's move on because there lots of things to learn from each other. Roxanna is right nobody is upset with you, at least I am not, From: Roxanna <MadIdeas@...> Sent: Thu, January 20, 2011 10:49:54 AMSubject: Re: ( ) Sad No, don't leave Carolyn. I was thinking about this this morning and I really thought you were talking about the influx of posts about how to get a dx and not really her post about what "rule out" means. I totally got your point and I'm not upset with you either. I wish she had not taken it so personally but that happens sometimes. Roxanna "I predict future happiness for Americans if they can prevent the government from wasting the labors of the people under the pretense of taking care of them." - Jefferson (AspergersSuppor t) Sad I am new to the group. My first post was the one about rule out as diagnosis. I have been too scared to post before, rightfully so after someone called it the prize to be had, the diagnosis that is. maybe I'm too soft but now I don't want to post anymore. I will continue to read and hope to gain knowledge but will not put myself out there. thanks, Jeana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 I do have to admit that I am ultra sensitive. After learning on Tuesday that they couldn't rule out seizures for my daughter, it was about more than I could take. She will be hospitalized on Monday for a 2 day video EEG, has anyone gone through this before, and if so any suggestions?? I am super stressed!!! Carolyn From: chris Dunn <christineshello@...> Sent: Thu, January 20, 2011 10:20:09 AMSubject: Re: ( ) Sad Do not leave Carolyn, some people will take things personally, remember we are all ultra exhausted, ultra stressed and ultra sensitive, but we still care about each other. Let's move on because there lots of things to learn from each other. Roxanna is right nobody is upset with you, at least I am not, From: Roxanna <MadIdeas@...> Sent: Thu, January 20, 2011 10:49:54 AMSubject: Re: ( ) Sad No, don't leave Carolyn. I was thinking about this this morning and I really thought you were talking about the influx of posts about how to get a dx and not really her post about what "rule out" means. I totally got your point and I'm not upset with you either. I wish she had not taken it so personally but that happens sometimes. Roxanna"I predict future happiness for Americans if they can prevent the government from wasting the labors of the people under the pretense of taking care of them." - Jefferson (AspergersSuppor t) Sad I am new to the group. My first post was the one about rule out as diagnosis. I have been too scared to post before, rightfully so after someone called it the prize to be had, the diagnosis that is. maybe I'm too soft but now I don't want to post anymore. I will continue to read and hope to gain knowledge but will not put myself out there. thanks, Jeana Quote Link to comment Share on other sites More sharing options...
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