Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 Hi, I give my reasons why I don't allow my kids to be vaccinated http://66.70.140.217/a/webmaster.html and a bit on mmr http://66.70.140.217/vaccine/points.html IMO: basically the chances of your child dying of measles are virtually nil unless it is on steroids or chemotherapy--I gave measles to my whole school of 100 8-12 yr olds in 1962 and no one batted an eyelid, and my mother can't recall any fear of measles, in fact you can still find measles parties in the UK---but mmr does kill--JABS has 24 on its books in the UK, and the government has awarded at least two that I know of, plus the risk of mild to serious behavioural disorders like autism. And measles deaths declined by 99.4% before vaccination so I am not convinced vaccination did a few points of a percent. And if you know a naturopath or homeopath & breastfeed all the better. And measles may be an immune detoxifying and/or priming process for the immune system for inherited disease traits and/or imbalanced diet. It is an experiment which has a few decades to run, using crude science and materials like mercury, alcohols, toxic antibiotics like neomycin. The hep b has to be the most cynical money extraction ploy I have ever come across bar the chickenpox or flu vaccines. If your child is into drug use with needles or casual sex then there might be some reason to vaccinate babies apart from the fact they have never proven hepatitis is caused by a virus or even if it exists, plus the risk of death or MS--two awards were given by the French government for vaccine MS, but I have yet to see that in any UK paper. http://66.70.140.217/vaccine/point.html john 's intro Hi all! I'm new to the group here and am looking forward to reviewing the posts for news on vaccines. My question here is to get info regarding the MMR. My daughter is up for that and that was the only one that we were going to do but now I'm not sure if it's good or not. I know there was a scare regarding autism and the MMR and also know about all the thimerisol and other junk that's in vaccines. Is this a good thing to do for a child who is going to be homeschooled? Do I have to keep some kind of paperwork for my kids if they do end up going to a school? Anyway, back to the intro. I have two kids ages 3 and 1. When we had my son in CA, they wouldn't let us leave the hospital without giving him the hepB vaccination. We were pretty much scared into giving it to him and when we got to our appointment, we expressed to the pediatrician that we didn't want to vax and wanted to wait until we read more. He literally took our son and vaccinated him against our will. We left that office and never returned. Since then we fight our pediatricians on why we don't want to vaccinate. We had our son vaccinated with hep B, MMR and I think he got the polio vax. I've got his medical file here, just can't think of it on the top of my head. By the time my daughter was born, I've read a LOT on certain vaccines. My husband has asthma (as does the majority of his family.) He and his brothers/sisters were all breastfed for many years and all ate organic foods, lived in dry climate, etc. Statistically speaking, he wasn't supposed to get asthma but I feel it was the DTP vaccine because of what I read and our nephew got the DTP vaccine, had a BAD reaction to it and then developed asthma shortly thereafter. I think that if you have the susceptability to something, the vaccines can sometimes bring it on and I think that's what happened with his family. So, the DTP and DTaP were out for us. Now my doctor is trying to push the DT for them. Is this very necessary? I know if the child is bitten by another child who has tetanus or if they cut themselves on some old rusty thing they have a chance of getting it, but when I was 5 I stepped on a rusty nail that went thru my foot. I went to the doctor and they soaked my foot and then gave me a tetanus shot and I was already vaccinated for that... So, that's it for now, I guess. We do extended breastfeeding, we eat organically, locally and wholely. My husband works for Conservation International and conservation/energy efficiency is a big thing for us. I'm not into using chemicals for anything (which is another reason why I don't want it injected into my little babes.) I'm hoping I can find a good naturopath or even a homeopath in the area here but most don't get covered by insurance. Speak soon and looking forward to the answers to my questions! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 hi linda, Which state are you in?Check out the bookmarks on the list website and you should be able to find the specifics for your state laws. You were lied to about getting the vaxes before leaving the hospital.The scheldule is a suggestion, there is no law that I've heard of that says anyone has to vax at birth if they are going to vax. If you didn't sign a consent form, they legally can't vax the baby. Same with the doc. If that was my doc, he never would've gotten my child out of the room without me. And if he vaxed my child without a consent form, he would be up on charges. That is illegal. Period. It's harder to selectively vax than to just not vax. I know someone who did do that because she wanted to avoid the ones that are cultured on aborted fetal tissue.(she's catholic, and wanted nothing to do with anything that included abortion) But it was harder for her to do that than it would have been to just say no vaxes for religious reasons. Are you still in california? they allow a philosophical objection exemption. You fill out the form and keep a copy for yourself, and one in your childs medical file. Religious exemptions are easier, and when people find out the stuff in vaxes, it's not that hard to come up with a way to justify not vaxing with religious reasons. Not that you have to explain those reasons other than " religious " . It's unconstituional for anyone to ask you to explain those beliefs. Knowing your rights is what is key. You have to know the specifics of the laws in your state. People who are supposed to know what the laws are will bully you, and out and out lie to you about what you " have to " do. I had a doc try to scare me into the Hep B and chicken pox vax along with a couple of others when my daughter was 6 weeks old. He lied to me, and I called him on it. I asked him if he had even bothered to read the insert on the vax package. He got quite irritated at me and informed me that he HAD been to medical school. But he never answered my question. I told him it boiled down to one thing. If she had a reaction, I would be the one having to deal with it. If she got autism, or other illnesses because of vaccine damage, it would be me taking care of her, not him, and I wasn't willing to take that risk with her health. That the vaxes he was pushing were far more scary to me than the diseases they supposedly protect people from. And that the chances of a reaction were more likely than the child getting the disease. Then he started talking about " crack pot websites " I asked him what he thought of the CDC and World Health Organization websites.(very provax) That that was where I got my numbers for the numbers of people who get and die from the diseases he was wanting to vax my child against. I compared that to the numbers on the vax inserts and stuff I found at the Vaers website. But if you look it up and do the reasearch, you will probably figure out that almost all the vaxes are scarier than the diseases. I have also decided to avoid docs for all of us unless we are sick. We dont do well baby/child visits, less hassle that way. Nisha > Hi all! > > I'm new to the group here and am looking forward to > reviewing the posts for news on vaccinesto our appointment, we > expressed to the pediatrician that we didn't want to > vax and wanted to wait until we read more. He > literally took our son and vaccinated him against our > will. We left that office and never returned. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 thanks for the emails! By the way, I'm in MD now. > 5. Re: 's intro > From: " nishamartin " > <nishamartin@...> > 9. Re: 's intro > From: " " <whaleto@...> __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 curious about others in california..... i know that cali has the philosophical exemption but i am wondering what cali residents do regarding not vaccinating their children. is it best to have something typed up and notarized? i know that is what is recommended with some states that only have religious and medical exemptions. i originally planned to fill out some form from public health and have it notarized but then i spoke with a mother in cali who never bothered with doing that so i chose to follow her path and did nothing. i stay at home with my 2yr old and i just chose to avoid seeing any doctors all together, which eliminated unwanted pressure to vaccinate. i am wondering what would arise if i had to take him to the emergency room for any reason. would it be better to have documentation stating no vaccines allowed for my child? thanks for any input! stacy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 hi linda! where are you located in cali? stacy, sacramento Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 At 01:33 AM 07/23/2002 EDT, you wrote: >curious about others in california..... > >i know that cali has the philosophical exemption but i am wondering what cali >residents do regarding not vaccinating their children. is it best to have >something typed up and notarized? i know that is what is recommended with >some states that only have religious and medical exemptions. i originally >planned to fill out some form from public health and have it notarized but >then i spoke with a mother in cali who never bothered with doing that so i >chose to follow her path and did nothing. > i stay at home with my 2yr old and i just chose to avoid seeing any doctors >all together, which eliminated unwanted pressure to vaccinate. i am wondering >what would arise if i had to take him to the emergency room for any reason. >would it be better to have documentation stating no vaccines allowed for my >child? > >thanks for any input! >stacy There is NO law that you have to vaccinated to live, but then you have child protective services interfering everywhere. But it is so common not to vax in Calif - espec the north, that it usually isn't a problem. If you have to go to an ER, if they ask you about vaxs, you just say they are taken care of, or something vague like that. Don't even get into it with them. If they try to push tetanus, refuse, and then take some time to think carefully about it if you haven't decided already. Nothing has to be done in a few minutes. Practice what you will say and do. Or you can just be honest and say we don't vaccinate, full stop, period. And if they give you a hard time you just say it is my choice. But better not to be confrontive so you'll see CPS. Better to be vague in my opinion. Sheri > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 thanks sheri! i am just wondering about those occasion where you leave your child with another caregiver and some tragedy occurs requiring a visit to the ER.if that ever happened, i thought it would be better to have a document notarized declining vaccination, but i get what you are saying about being vague.i asked you before about rhogam too and i received several responses but i think my husband may have deleted it. are you opposed to rhogam as well? i was in the process of educating myself about vaccines and had decided against vaccinating my son when i received the rhogam. for some reason i did put 2 and 2 together and realize that it was in the same category with vaccines and contained thimerosal as well! i need to really research it in the future because i am rh- and plan to eventually give birth again some day. thanks again! stacy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Bayer makes a mercury-free RhoGam shot, its called WinRo, but is *very* expensive. Last June (2001) I was quoted $800 per shot by my pharmacist. I didn't have insurance, so went with the standard mercury filled shot. (after my son was born though, I refused to have the shot before delivery and before even knowing his blood type). www.ChestnutHillCurlies.com Re: Re: 's intro > thanks sheri! > > i am just wondering about those occasion where you leave your child with > another caregiver and some tragedy occurs requiring a visit to the ER.if that > ever happened, i thought it would be better to have a document notarized > declining vaccination, but i get what you are saying about being vague.i > asked you before about rhogam too and i received several responses but i > think my husband may have deleted it. are you opposed to rhogam as well? i > was in the process of educating myself about vaccines and had decided against > vaccinating my son when i received the rhogam. for some reason i did put 2 > and 2 together and realize that it was in the same category with vaccines and > contained thimerosal as well! i need to really research it in the future > because i am rh- and plan to eventually give birth again some day. > > thanks again! > stacy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2004 Report Share Posted December 31, 2004 >Hi! >I'm , and I'm learning about fermented things. I tried store >bought Kimchi and liked it if anyone has a good " mild " recipe to try. >I'm not real sure about some of this stuff since I don't know what to >look for when making it. It's a little like scary chemistry. I have >been using S. Fallons book for a year now and have read Jordan Rubin. >I live in NE metro area of Atlanta, Ga. I look forward to learning a >lot from you guys. Take care, and happy New Year! To make " mild: ... don't add red pepper! Mind you I LOVE red pepper, but it is hot! Also take it easy on ginger. You can start out with just plain Napa and salt, which is what a lot of Korean kimchi's start out as. I sprinkle (non-iodized) salt on my cabbage, let it wilt, then cut it and pound it, add some water and salt if it doesn't taste mildly salty, and a bit of vinegar or old kimchi juice. The latter is to make it mildly acidic, which jumpstarts the process. I don't use whey or any culture medium: napa has it's own bacteria. For a writup see: http://f3.grp.fs.com/v1/QCDWQRcjiV1wrFXvw01HcWWbE3oiIhLLuhKvOm1dnf6lMSRIggm\ wuoSJgktdX5jqLAXIgIH_9BEVSd4yl90/Recipes-Condiments/kimchi.pdf (if you can't download it, write me privately and I'll send it). Heidi Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2005 Report Share Posted January 1, 2005 A much shorter :-) link for Heidi's kimchi writeup is: nutrition/files/ Mike SE Pennsylvania The best way to predict the future is to invent it. --Alan Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 Tried this link and it still wont down load! A much shorter :-) link for Heidi's kimchi write up is: nutrition/files/ Vona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2005 Report Share Posted May 30, 2005 Hi thank you for your thoughtful reply and for making me feel welcome. My son came home last night and had a major meltdown. He was gone camping with his friend since friday evening and forgot to take his meds. He is moody, irritible, restless, his hands are 'ticcing' (I don't know what else to call this) again with a major attitude directed towards me (very defiant). It's really not like him to act like this, so it almost makes me wonder if he started doing drugs while he was gone, except I know that is impossible, because he hates even cigarette using, and he was at an AA campout.....I don't think he would ever use alcohol even (he is anti-drugs, including alcohol). So, then I wonder if the gabitril he is on is causing the problems he is having. I am very worried that he forgot to take his medicine for that many days - it scares me. He does not have a doctor managing his meds currently. His appointment is w/new pdoc is Wednesday. You asked if there was a change in his meds from Sept to Jan, and this was the deal he was started on Gabitril in August 2003, the dosage was gradually raised. Strattera was added in December 2003. In late Jan.2004, he began to have increased mood cycling due to strattera, and I think it was in late Feb.2004 he had a mixed bipolar episode which was medication induced. Still the doctor refused to take him off of the medication, saying it was caused by " stress in the home. " And, my son continued to stay agitated and ill. I was confused and had no help and did not no what to do. My son was afraid to adjust the medication on his own, becuase the same pdoc had told him if he did not take the medicine he had prescribed for him every single day, he may have a seizure (I was not aware he had told him this). My son was frightened obviously and confused. He liked that doctor, until he refused to take him off of strattera or help him when he was doing so badly and feeling so sick. The pdoc would not listen to me at all, and my son could not speak for himself, because he was too ill by then. Quite the situation. This is how his phobia of doctors developed that I told you about. And, that was only a little over a year ago. what happened then was I finally got him a new pdoc who took him off of strattera, and he immediately began to do better. That was last summer. We were able to breathe a sigh of relief, especially my son, who spent the summer doing boy things, like going to the skate park with his friends, and not worrying about this stuff, thankfully, as it should be. Then, in September, his symptoms quickly changed, worsened and intensified, into tics, etc., that I described.............The place I was taking him too at the time, I didn't realize was the same place as the first place, just in a different town, all tied together (takes DSHS, only place in town we could go besides, in whole county w/ a pdoc)........I think they were concerned I was going to sue or something??? about the strattera prior.........but his new therapist saw him a total of 3 times and contually tried to close his file w/ a different 'excuse' each time, saying he was doing better, he didn't need a pdoc, we were not consistent or committed to his treatment (that was the real kicker), all in violation of his client rights I now know after getting an advocate and filing a greivance. Anyway, I was not aware at his last appt, really, and I did expect treatment for my son, who was not doing well, despite what both his tdoc and pdoc said (unfortunately), and I did not sign the papers they tried to make me sign (closing his file). He has been on gabitril only this entire time, except for the short disatrous stint w/strattera, which made him much worse. I don't know if that had permanent affect or if it is the gabitril doing this to him, or the disorder(s).................His symptoms waxes and wanes a lot. He usually doesn't forget to take it for that long anymore. In Sept 2004, in response to severe distraction, disorientation, irritiability, motor tics, and mental obsesssions, and a personal request by me to change his medication beginning with a change to a more first line treatment for bipolar disorder (such as Depakote), she instead increased his gabitril at that time by 4mg, and never saw him again............they sent me a letter closing his file in Jan.2004, after missing 3 apptointments (she was out of the office for months, and then quit her job). OK, so in retrospect, I never should've accepted that. I should have been more persistent. But, I did not know what was going to happen. I didn't know they were terminate his treatment and he would not see another pdoc until June 1, 2005. That's how long it has taken the agency to respond to my greivance. So, my son is still incorrectly diagnosed and not properly treated, after all this time, and getting worse by the day. I am trying to keep an open mind here for this appointment, but I just don't see how it's going to be much better than our previous experience. What can I do? Am I supposed to tell the pdoc what his diagnosis is? What medication I want him on? Or what? I will try what you suggested about calling the state Mental Health Dept. I live in WA state. Thanks again your support, understanding, kindness, and encouragement means more than you will ever know. It's helped me get through a very hard day. p.s. as for the " stress in the home " deal, it's like what came first the chicken or the egg..........I think if one can get proper treatment for a neurological condition, and empathetic caring support (not this projecting point the finger, blame the victim, protect the system at all costs dysfuntion). That's why I think support groups of peers work so well. We have empathy, where others who have not been there cannot have this quality. For me this ingredient is necessary for a healing and loving supportive environment. Of course we have stress in the home. If we didn't have stress in the home, we wouldn't be human. Any family living under these conditions I think has stress in the home. Do people who don't have stress in the home go to mental health providers for help and support? It's ridiculous. The biggest stress for me was parenting a child with an inadequately treated neurological condition and at the time a baby (she was 1 then, she is 2 1/2 now), and a 12 year old, because the 14 yr.old, the one who needed medical attention, because of his condition (by no fault of his, or mine), is at times unable to control his impulses, his moods, his behaviors, and this has a profound affect on our entire family, especially the two younger siblings, and the stress is huge when he is not doing well (mood wise). When the support level goes down from those who are supposed to be helping us, it increased tenfold, thank you very much, and then we would've been better off not getting any help at all. It's shameful. What if that were how they treated families who had disorders of the skin? or the stomach? or AIDS? or cancer? or diabetes? We would not stand for it. Hi again , I replied earlier but wanted to comment on some more of your post. You wrote: ...and everywhere I turn someone is criticizing me it would seem, either for placing my son on medication, taking him to a psychiatrist, or 'labeling' him.... **As hard as it is, try to ignore them as YOU know you are doing the right thing. They just don't see it. Might have missed this in your post, but how does dad feel about it? You wrote: ...and then they blame us - the family, the mother, the parents, stress in the home...., and then you are actually labeled a bad mother....it's " stress in the home " , that is the stamp we received. **Oh, you're not the first here to hear that!! But, again, pay it no attention. I think the thing is - and don't know if I'll word my thoughts very well right now - that stress does agitate lots of things/disorders - OCD, anxiety, tics.... And lessening stress can help relieve some things, OCD ease up maybe or whatever (note I said " maybe " on that OCD thing!). But it's not *the* cause with all OCD and doctors/therapists should not dwell on " it's bad parenting, parents not getting along or sibling problems, etc. " Oh, I don't mind if they go over ways to de-stress/relax, better ways to handle/avoid outbursts or meltdowns, ways to NOT stress things in the home. But with OCD they need to work on HOW to control/boss back OCD and use methods to help gain control, lessen OCD anxiety, get rid of some obsession, " whatever " and not dwell on home life as a " cause. " My OCD son has a twin (not identical) and the 2 don't get along well, aren't friends but aren't enemies and the other twin really, really does " get to " my OCD son. (Not so much now that they are older - 16 - but more when younger.) And I just know the psychologist (who was also a friend, since he was at our local mental health center where I work) thought that the stress/agitation my OCD son () felt with (twin) was a problem. Like it was the " home life " and so on. And, as stated above, I wouldn't mind if he went over with how to not let get to him, how to handle situations, whatever. But I really, really don't think the psych *understood* OCD actually. He would tell to work on compulsions not lasting so long, trying to shorten them. But just from some things said, I think the psych thought it was more " home life " than OCD that was the problem. I might be wrong, just guessing a bit there. But it was OCD driving insane, me insane, his brothers fed up with it, etc. OK, rambled a bit there. But you're right in not buying into the " stress in the home " as THE problem. You wrote: from September to January he suffered from constant complex motor tics. This was a new thing. He was highly distracted and disoriented also. He gets confused when we go out sometimes. He has severe social anxiety. and panic attacks. **Was there any medication change at the time (new med or dosage change)? With the clothes thing and all - there can be so many variables there as to that. Regular teen thing ( just FINALLY got a hair cut, I can see his eyes again!) or depression or some sensory issues that have come up. had a few sensory issues when younger, wouldn't wear certain clothes, hated the feel of the material. My OCD son (who also has Aspergers Syndrome) likes only plain t-shirts, doesn't want any words/pictures on the. My other 2 sons HAVE to have something on t-shirts, won't wear plain ones. used to wear jeans all summer, didn't like shorts. Also he went thru a summer or two with long sleeves, as it felt right to him. I thought at least others can see ONE twin dressing seasonably (), it's not MOM who is making him wear that stuff in 90+ degrees! But depression can leave people not caring about appearance. OCD can cause some clothes things too. I hope your upcoming appt goes well! New psychiatrist or new therapist?? I mentioned earlier your state Mental Health department. Call them if you feel your son is not getting better (you've tried for 2 years now!!) and perhaps they will have your local center refer you to someone with actual experience. That way, Medicaid should still pay MAYBE, if billed through the mental health center. Just a thought. 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Guest guest Posted May 30, 2005 Report Share Posted May 30, 2005 , I don't really have anything to add, or any advice. I just wanted to say how sorry I am that you are dealing with such incompetent doctors. If you didn't have " stress in the home, " I'd think that would cause it! P. in NJ <kthielen@...> wrote: Hi thank you for your thoughtful reply and for making me feel welcome. My son came home last night and had a major meltdown. He was gone camping with his friend since friday evening and forgot to take his meds. He is moody, irritible, restless, his hands are 'ticcing' (I don't know what else to call this) again with a major attitude directed towards me (very defiant). It's really not like him to act like this, so it almost makes me wonder if he started doing drugs while he was gone, except I know that is impossible, because he hates even cigarette using, and he was at an AA campout.....I don't think he would ever use alcohol even (he is anti-drugs, including alcohol). So, then I wonder if the gabitril he is on is causing the problems he is having. I am very worried that he forgot to take his medicine for that many days - it scares me. He does not have a doctor managing his meds currently. His appointment is w/new pdoc is Wednesday. You asked if there was a change in his meds from Sept to Jan, and this was the deal he was started on Gabitril in August 2003, the dosage was gradually raised. Strattera was added in December 2003. In late Jan.2004, he began to have increased mood cycling due to strattera, and I think it was in late Feb.2004 he had a mixed bipolar episode which was medication induced. Still the doctor refused to take him off of the medication, saying it was caused by " stress in the home. " And, my son continued to stay agitated and ill. I was confused and had no help and did not no what to do. My son was afraid to adjust the medication on his own, becuase the same pdoc had told him if he did not take the medicine he had prescribed for him every single day, he may have a seizure (I was not aware he had told him this). My son was frightened obviously and confused. He liked that doctor, until he refused to take him off of strattera or help him when he was doing so badly and feeling so sick. The pdoc would not listen to me at all, and my son could not speak for himself, because he was too ill by then. Quite the situation. This is how his phobia of doctors developed that I told you about. And, that was only a little over a year ago. what happened then was I finally got him a new pdoc who took him off of strattera, and he immediately began to do better. That was last summer. We were able to breathe a sigh of relief, especially my son, who spent the summer doing boy things, like going to the skate park with his friends, and not worrying about this stuff, thankfully, as it should be. Then, in September, his symptoms quickly changed, worsened and intensified, into tics, etc., that I described.............The place I was taking him too at the time, I didn't realize was the same place as the first place, just in a different town, all tied together (takes DSHS, only place in town we could go besides, in whole county w/ a pdoc)........I think they were concerned I was going to sue or something??? about the strattera prior.........but his new therapist saw him a total of 3 times and contually tried to close his file w/ a different 'excuse' each time, saying he was doing better, he didn't need a pdoc, we were not consistent or committed to his treatment (that was the real kicker), all in violation of his client rights I now know after getting an advocate and filing a greivance. Anyway, I was not aware at his last appt, really, and I did expect treatment for my son, who was not doing well, despite what both his tdoc and pdoc said (unfortunately), and I did not sign the papers they tried to make me sign (closing his file). He has been on gabitril only this entire time, except for the short disatrous stint w/strattera, which made him much worse. I don't know if that had permanent affect or if it is the gabitril doing this to him, or the disorder(s).................His symptoms waxes and wanes a lot. He usually doesn't forget to take it for that long anymore. In Sept 2004, in response to severe distraction, disorientation, irritiability, motor tics, and mental obsesssions, and a personal request by me to change his medication beginning with a change to a more first line treatment for bipolar disorder (such as Depakote), she instead increased his gabitril at that time by 4mg, and never saw him again............they sent me a letter closing his file in Jan.2004, after missing 3 apptointments (she was out of the office for months, and then quit her job). OK, so in retrospect, I never should've accepted that. I should have been more persistent. But, I did not know what was going to happen. I didn't know they were terminate his treatment and he would not see another pdoc until June 1, 2005. That's how long it has taken the agency to respond to my greivance. So, my son is still incorrectly diagnosed and not properly treated, after all this time, and getting worse by the day. I am trying to keep an open mind here for this appointment, but I just don't see how it's going to be much better than our previous experience. What can I do? Am I supposed to tell the pdoc what his diagnosis is? What medication I want him on? Or what? I will try what you suggested about calling the state Mental Health Dept. I live in WA state. Thanks again your support, understanding, kindness, and encouragement means more than you will ever know. It's helped me get through a very hard day. p.s. as for the " stress in the home " deal, it's like what came first the chicken or the egg..........I think if one can get proper treatment for a neurological condition, and empathetic caring support (not this projecting point the finger, blame the victim, protect the system at all costs dysfuntion). That's why I think support groups of peers work so well. We have empathy, where others who have not been there cannot have this quality. For me this ingredient is necessary for a healing and loving supportive environment. Of course we have stress in the home. If we didn't have stress in the home, we wouldn't be human. Any family living under these conditions I think has stress in the home. Do people who don't have stress in the home go to mental health providers for help and support? It's ridiculous. The biggest stress for me was parenting a child with an inadequately treated neurological condition and at the time a baby (she was 1 then, she is 2 1/2 now), and a 12 year old, because the 14 yr.old, the one who needed medical attention, because of his condition (by no fault of his, or mine), is at times unable to control his impulses, his moods, his behaviors, and this has a profound affect on our entire family, especially the two younger siblings, and the stress is huge when he is not doing well (mood wise). When the support level goes down from those who are supposed to be helping us, it increased tenfold, thank you very much, and then we would've been better off not getting any help at all. It's shameful. What if that were how they treated families who had disorders of the skin? or the stomach? or AIDS? or cancer? or diabetes? We would not stand for it. Hi again , I replied earlier but wanted to comment on some more of your post. You wrote: ...and everywhere I turn someone is criticizing me it would seem, either for placing my son on medication, taking him to a psychiatrist, or 'labeling' him.... **As hard as it is, try to ignore them as YOU know you are doing the right thing. They just don't see it. Might have missed this in your post, but how does dad feel about it? You wrote: ...and then they blame us - the family, the mother, the parents, stress in the home...., and then you are actually labeled a bad mother....it's " stress in the home " , that is the stamp we received. **Oh, you're not the first here to hear that!! But, again, pay it no attention. I think the thing is - and don't know if I'll word my thoughts very well right now - that stress does agitate lots of things/disorders - OCD, anxiety, tics.... And lessening stress can help relieve some things, OCD ease up maybe or whatever (note I said " maybe " on that OCD thing!). But it's not *the* cause with all OCD and doctors/therapists should not dwell on " it's bad parenting, parents not getting along or sibling problems, etc. " Oh, I don't mind if they go over ways to de-stress/relax, better ways to handle/avoid outbursts or meltdowns, ways to NOT stress things in the home. But with OCD they need to work on HOW to control/boss back OCD and use methods to help gain control, lessen OCD anxiety, get rid of some obsession, " whatever " and not dwell on home life as a " cause. " My OCD son has a twin (not identical) and the 2 don't get along well, aren't friends but aren't enemies and the other twin really, really does " get to " my OCD son. (Not so much now that they are older - 16 - but more when younger.) And I just know the psychologist (who was also a friend, since he was at our local mental health center where I work) thought that the stress/agitation my OCD son () felt with (twin) was a problem. Like it was the " home life " and so on. And, as stated above, I wouldn't mind if he went over with how to not let get to him, how to handle situations, whatever. But I really, really don't think the psych *understood* OCD actually. He would tell to work on compulsions not lasting so long, trying to shorten them. But just from some things said, I think the psych thought it was more " home life " than OCD that was the problem. I might be wrong, just guessing a bit there. But it was OCD driving insane, me insane, his brothers fed up with it, etc. OK, rambled a bit there. But you're right in not buying into the " stress in the home " as THE problem. You wrote: from September to January he suffered from constant complex motor tics. This was a new thing. He was highly distracted and disoriented also. He gets confused when we go out sometimes. He has severe social anxiety. and panic attacks. **Was there any medication change at the time (new med or dosage change)? With the clothes thing and all - there can be so many variables there as to that. Regular teen thing ( just FINALLY got a hair cut, I can see his eyes again!) or depression or some sensory issues that have come up. had a few sensory issues when younger, wouldn't wear certain clothes, hated the feel of the material. My OCD son (who also has Aspergers Syndrome) likes only plain t-shirts, doesn't want any words/pictures on the. My other 2 sons HAVE to have something on t-shirts, won't wear plain ones. used to wear jeans all summer, didn't like shorts. Also he went thru a summer or two with long sleeves, as it felt right to him. I thought at least others can see ONE twin dressing seasonably (), it's not MOM who is making him wear that stuff in 90+ degrees! But depression can leave people not caring about appearance. OCD can cause some clothes things too. I hope your upcoming appt goes well! New psychiatrist or new therapist?? I mentioned earlier your state Mental Health department. Call them if you feel your son is not getting better (you've tried for 2 years now!!) and perhaps they will have your local center refer you to someone with actual experience. That way, Medicaid should still pay MAYBE, if billed through the mental health center. Just a thought. Our list archives, bookmarks, files, and chat feature may be accessed at: / . Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D., ( http://www.lighthouse-press.com ). Our list moderators are Birkhan, Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail Pesses, and Kathy . Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at louisharkins@... , louisharkins@... , louisharkins@... . --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2005 Report Share Posted May 30, 2005 Hi , I hope a parent here who deal with tics sees your post, they might can offer some insight on it. I know stress can aggravate tics but some meds can also, or trigger them to begin with. Then again, some meds trigger bipolar. Ahh, genetics! Are the hands more " shaking " as some medications do that, some conditions also. Your son's seems to come & go though, right? I still say, combine some teenagers with an aggravating disability/disorder, and look out! Would make anyone moody too, especially at that age. But then depression, bipolar, conduct disorder, OCD and anything else you can think of can cause irritability too. Gee, maybe all parents need to go to med/psych school to figure our kids out. We're the ones who raise and live with them, know them best as to what is going on so far as symptoms. The government should have free classes! Then - who has time to go?? Does sound like very incompetent doctor(s) he's had. I don't know anything about Gabitril, hope his starting back on it will help & lessen his mood! Like you, I think he needs to maybe try another medication as this one doesn't seem to be helping after, what, 9 months? Though I guess Strattera didn't help matters. I guess the new psych will have his records to hopefully review before you come in. And just be hopeful until the appt! I told you I work at our local mental health. Back when I was looking to put on medication for OCD, I had researched, read here and other places about the SSRI medications. had to have a liquid so that narrowed it down (still can't swallow tablets). I decided on a couple I would like him to try first. Well in talking with our psychiatrist at work about meds, he, of course, said to me that " you " (me) " are going to tell the psychiatrist what to do? " or something to that effect, as in my suggesting the medication. I just said, smiling, " aren't you glad I'm not bringing to you?! " and he said " aren't YOU glad you're not bringing him to me!! " with not much of a smile! (nice guy, really like him but wouldn't want him for a doctor I don't think, though he is smart and doesn't like to medicate if not necessary, etc, etc.) ANYWAY, at our psych appt (with another psych) I suggested Celexa and that's what we got! So - all doctors are different, you'll find the right one. Have you checked out any others nearby that might take Medicaid? If not satisfied after this next psych doctor, I would still call the state mental health people and express your dissatisfaction. Call AND write a follow-up letter. I find that phone calls sometimes get you " in " faster than if waiting for them to get to some letter on their desk among the many there. Our mental health center isn't perfect either. And rules get in the way I think. And now this state reform! Also personalities, so find a therapist & doctor you click with. There are some where I work that I would prefer to see over others. Just MY personality and who I feel more comfortable with. When they closed his chart, did they give you any type of Medicaid appeal papers? I'm thinking they do that here. I know they do for denial of service or reduction in hours of service, things like that. As to family/home life, stress - I have 3 sons, am a single mom. All live here, put up with me and each other. So why wouldn't all of them be dealing with OCD or some other disorder if THAT were THE cause...? And they're all so different in personality, moods, etc., too. I always say I'm lucky it was dealt the OCD and other stuff, as he has such a nice, calm, patient personality. My other 2 would have really sent me over the edge I think! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2005 Report Share Posted May 30, 2005 I was just reading your post and it struck me that because your son has Tics you might do better with a pdco that specializes in TS? My son has ocd/ tics ect... and once I got him to a TS specialist - it was a whole different ballgame. Because TS can be comorbid with OCD ( and SOMETIMES other things like anxiety bipolar, ADHD, Aspergers ect... ) our Pdoc is really good at weeding out the differences because this is what they often see ( more then other pdocs I think ) Just a suggestion as I found it made the difference with us.... Sharon Re: 's Intro Hi thank you for your thoughtful reply and for making me feel welcome. My son came home last night and had a major meltdown. He was gone camping with his friend since friday evening and forgot to take his meds. He is moody, irritible, restless, his hands are 'ticcing' (I don't know what else to call this) again with a major attitude directed towards me (very defiant). It's really not like him to act like this, so it almost makes me wonder if he started doing drugs while he was gone, except I know that is impossible, because he hates even cigarette using, and he was at an AA campout.....I don't think he would ever use alcohol even (he is anti-drugs, including alcohol). So, then I wonder if the gabitril he is on is causing the problems he is having. I am very worried that he forgot to take his medicine for that many days - it scares me. He does not have a doctor managing his meds currently. His appointment is w/new pdoc is Wednesday. You asked if there was a change in his meds from Sept to Jan, and this was the deal he was started on Gabitril in August 2003, the dosage was gradually raised. Strattera was added in December 2003. In late Jan.2004, he began to have increased mood cycling due to strattera, and I think it was in late Feb.2004 he had a mixed bipolar episode which was medication induced. Still the doctor refused to take him off of the medication, saying it was caused by " stress in the home. " And, my son continued to stay agitated and ill. I was confused and had no help and did not no what to do. My son was afraid to adjust the medication on his own, becuase the same pdoc had told him if he did not take the medicine he had prescribed for him every single day, he may have a seizure (I was not aware he had told him this). My son was frightened obviously and confused. He liked that doctor, until he refused to take him off of strattera or help him when he was doing so badly and feeling so sick. The pdoc would not listen to me at all, and my son could not speak for himself, because he was too ill by then. Quite the situation. This is how his phobia of doctors developed that I told you about. And, that was only a little over a year ago. what happened then was I finally got him a new pdoc who took him off of strattera, and he immediately began to do better. That was last summer. We were able to breathe a sigh of relief, especially my son, who spent the summer doing boy things, like going to the skate park with his friends, and not worrying about this stuff, thankfully, as it should be. Then, in September, his symptoms quickly changed, worsened and intensified, into tics, etc., that I described.............The place I was taking him too at the time, I didn't realize was the same place as the first place, just in a different town, all tied together (takes DSHS, only place in town we could go besides, in whole county w/ a pdoc)........I think they were concerned I was going to sue or something??? about the strattera prior.........but his new therapist saw him a total of 3 times and contually tried to close his file w/ a different 'excuse' each time, saying he was doing better, he didn't need a pdoc, we were not consistent or committed to his treatment (that was the real kicker), all in violation of his client rights I now know after getting an advocate and filing a greivance. Anyway, I was not aware at his last appt, really, and I did expect treatment for my son, who was not doing well, despite what both his tdoc and pdoc said (unfortunately), and I did not sign the papers they tried to make me sign (closing his file). He has been on gabitril only this entire time, except for the short disatrous stint w/strattera, which made him much worse. I don't know if that had permanent affect or if it is the gabitril doing this to him, or the disorder(s).................His symptoms waxes and wanes a lot. He usually doesn't forget to take it for that long anymore. In Sept 2004, in response to severe distraction, disorientation, irritiability, motor tics, and mental obsesssions, and a personal request by me to change his medication beginning with a change to a more first line treatment for bipolar disorder (such as Depakote), she instead increased his gabitril at that time by 4mg, and never saw him again............they sent me a letter closing his file in Jan.2004, after missing 3 apptointments (she was out of the office for months, and then quit her job). OK, so in retrospect, I never should've accepted that. I should have been more persistent. But, I did not know what was going to happen. I didn't know they were terminate his treatment and he would not see another pdoc until June 1, 2005. That's how long it has taken the agency to respond to my greivance. So, my son is still incorrectly diagnosed and not properly treated, after all this time, and getting worse by the day. I am trying to keep an open mind here for this appointment, but I just don't see how it's going to be much better than our previous experience. What can I do? Am I supposed to tell the pdoc what his diagnosis is? What medication I want him on? Or what? I will try what you suggested about calling the state Mental Health Dept. I live in WA state. Thanks again your support, understanding, kindness, and encouragement means more than you will ever know. It's helped me get through a very hard day. p.s. as for the " stress in the home " deal, it's like what came first the chicken or the egg..........I think if one can get proper treatment for a neurological condition, and empathetic caring support (not this projecting point the finger, blame the victim, protect the system at all costs dysfuntion). That's why I think support groups of peers work so well. We have empathy, where others who have not been there cannot have this quality. For me this ingredient is necessary for a healing and loving supportive environment. Of course we have stress in the home. If we didn't have stress in the home, we wouldn't be human. Any family living under these conditions I think has stress in the home. Do people who don't have stress in the home go to mental health providers for help and support? It's ridiculous. The biggest stress for me was parenting a child with an inadequately treated neurological condition and at the time a baby (she was 1 then, she is 2 1/2 now), and a 12 year old, because the 14 yr.old, the one who needed medical attention, because of his condition (by no fault of his, or mine), is at times unable to control his impulses, his moods, his behaviors, and this has a profound affect on our entire family, especially the two younger siblings, and the stress is huge when he is not doing well (mood wise). When the support level goes down from those who are supposed to be helping us, it increased tenfold, thank you very much, and then we would've been better off not getting any help at all. It's shameful. What if that were how they treated families who had disorders of the skin? or the stomach? or AIDS? or cancer? or diabetes? We would not stand for it. Hi again , I replied earlier but wanted to comment on some more of your post. You wrote: ...and everywhere I turn someone is criticizing me it would seem, either for placing my son on medication, taking him to a psychiatrist, or 'labeling' him.... **As hard as it is, try to ignore them as YOU know you are doing the right thing. They just don't see it. Might have missed this in your post, but how does dad feel about it? You wrote: ...and then they blame us - the family, the mother, the parents, stress in the home...., and then you are actually labeled a bad mother....it's " stress in the home " , that is the stamp we received. **Oh, you're not the first here to hear that!! But, again, pay it no attention. I think the thing is - and don't know if I'll word my thoughts very well right now - that stress does agitate lots of things/disorders - OCD, anxiety, tics.... And lessening stress can help relieve some things, OCD ease up maybe or whatever (note I said " maybe " on that OCD thing!). But it's not *the* cause with all OCD and doctors/therapists should not dwell on " it's bad parenting, parents not getting along or sibling problems, etc. " Oh, I don't mind if they go over ways to de-stress/relax, better ways to handle/avoid outbursts or meltdowns, ways to NOT stress things in the home. But with OCD they need to work on HOW to control/boss back OCD and use methods to help gain control, lessen OCD anxiety, get rid of some obsession, " whatever " and not dwell on home life as a " cause. " My OCD son has a twin (not identical) and the 2 don't get along well, aren't friends but aren't enemies and the other twin really, really does " get to " my OCD son. (Not so much now that they are older - 16 - but more when younger.) And I just know the psychologist (who was also a friend, since he was at our local mental health center where I work) thought that the stress/agitation my OCD son () felt with (twin) was a problem. Like it was the " home life " and so on. And, as stated above, I wouldn't mind if he went over with how to not let get to him, how to handle situations, whatever. But I really, really don't think the psych *understood* OCD actually. He would tell to work on compulsions not lasting so long, trying to shorten them. But just from some things said, I think the psych thought it was more " home life " than OCD that was the problem. I might be wrong, just guessing a bit there. But it was OCD driving insane, me insane, his brothers fed up with it, etc. OK, rambled a bit there. But you're right in not buying into the " stress in the home " as THE problem. You wrote: from September to January he suffered from constant complex motor tics. This was a new thing. He was highly distracted and disoriented also. He gets confused when we go out sometimes. He has severe social anxiety. and panic attacks. **Was there any medication change at the time (new med or dosage change)? With the clothes thing and all - there can be so many variables there as to that. Regular teen thing ( just FINALLY got a hair cut, I can see his eyes again!) or depression or some sensory issues that have come up. had a few sensory issues when younger, wouldn't wear certain clothes, hated the feel of the material. My OCD son (who also has Aspergers Syndrome) likes only plain t-shirts, doesn't want any words/pictures on the. My other 2 sons HAVE to have something on t-shirts, won't wear plain ones. used to wear jeans all summer, didn't like shorts. Also he went thru a summer or two with long sleeves, as it felt right to him. I thought at least others can see ONE twin dressing seasonably (), it's not MOM who is making him wear that stuff in 90+ degrees! But depression can leave people not caring about appearance. OCD can cause some clothes things too. I hope your upcoming appt goes well! New psychiatrist or new therapist?? I mentioned earlier your state Mental Health department. Call them if you feel your son is not getting better (you've tried for 2 years now!!) and perhaps they will have your local center refer you to someone with actual experience. That way, Medicaid should still pay MAYBE, if billed through the mental health center. Just a thought. Our list archives, bookmarks, files, and chat feature may be accessed at: / . Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D., ( http://www.lighthouse-press.com ). Our list moderators are Birkhan, Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail Pesses, and Kathy . Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at louisharkins@... , louisharkins@... , louisharkins@... . ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 Hi , Welcome to the group. I'm kind of new here myself. I have two boys that I also homeschool. When we mention that to the doctors - or whoever - there is usually a pause and then they move on... Through my insistence (from the encouragement and advice I found on here) the boys are finally going for their evaluations in January. Just wanted to say " hi " to you and let you know that this is a great group. Jeannette > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2009 Report Share Posted November 10, 2009 Hi , Welcome! I think you should DEFINITELY contact mental health services.......they will be the ones you find therapists and child psychol's through!!!! Good luck! Oh - this is a great group! Robin From: <hiskids37@...>Subject: ( ) 's Intro @...Date: Sunday, November 8, 2009, 2:53 PM Hello and thank you for having me on your list. I'm , married to Alif, and my kids are Malachi age 11, Graham 9, Caris 6 and Canaan 2. I have always had problems with my 9-year-old and when I read a website about Aspergers a couple weeks ago, I was shocked to see that many, many of the symptom describe him perfectly. I have since done a lot of reading, talking to friends who have kids with HFA and making frustrating phone calls. We homeschool and that has caused us a major roadblock to the place here that does most of the evaluations - no referral from the school. They also don't want to evaluate since they said it sounds like my son has HFA and they don't service that. Our next step is to take him to mental health services and see if they can refer us to someone who can evaluate him. This is a two steps forward, one step back process but if it leads to our being able to understand and help our son then it will all have been worth it. Thanks for any advice you might have! http://www.liftupyo urhearts. com Quote Link to comment Share on other sites More sharing options...
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