Guest guest Posted January 5, 2011 Report Share Posted January 5, 2011 Good morning , We are struggling with the same thing. I find it heart breaking and extremely stressful. I would suggest as much intervention as you can get...the earlier the better. I'm glad you see the strengths in your child. Sometimes I feel like we're the only ones who do. I hope our children don't hurt about their situations as much as we do. Maybe there is at least one positive to being somewhat disconnected. Much luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2011 Report Share Posted January 5, 2011 Get the kids book "All Cats have Aspergers" for your son.. and some Tony Attwood's books for yourself... It is a tough road, but you can do it.. It won't be painless. He will have esteem issues. That seems unavoidable.. good luck! and blessings...From: JULIE <juliewhulie@...> Sent: Wed, January 5, 2011 7:51:14 AMSubject: ( ) Don't know where to start... 7 year old son just diagnosed with Asperger Hi to all, I've never joined a support group before, not sure if I'm in enough need for support of if I just need to pull myself together. My seven year old son has been diagnosed with Higher Functioning Autism/ Asperger. I knew was different from his peers from a very young age, but was always toid that he would be fine, that I expected too much, it was a stage he was going through... Finally after seeing numerous doctors, fighting with family members, lots of persuading and defending of my son. I now have a diagnosis, but where do I go from here. I want to do what's best for him... I want to be more patient... I want him to enjoy life and increase his self-esteem. To most people my son come across as rude and obnoxious but to me he's loving and big hearted, how do I help him find life less confusing. Thanks for reading this... my first step in understanding I can't do everything on my own. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 Thanks for replying I agree that sometimes it feels as though I am the only advocate for my son, but I know lots of my family love him, they just have difficulty understanding him and his needs, constant reassurance being one... As for intervention I was given a diagnosis and then told see you in two months... so this is why I got in contact with the group because I don't even know what to expect. I know we will have an assessment of needs done but how this assessment will be done is not clear. Do you have any ideas? Thanks again > > Good morning , > We are struggling with the same thing. I find it heart breaking and extremely stressful. I would suggest as much intervention as you can get...the earlier the better. I'm glad you see the strengths in your child. Sometimes I feel like we're the only ones who do. I hope our children don't hurt about their situations as much as we do. Maybe there is at least one positive to being somewhat disconnected. > Much luck, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 Thanks, I'm going to start book shopping... Amazon here I come > > Get the kids book " All Cats have Aspergers " for your son.. and some Tony > Attwood's books for yourself... It is a tough road, but you can do it.. It won't > be painless. He will have esteem issues. That seems unavoidable.. good luck! and > blessings... > > > > > > ________________________________ > From: JULIE <juliewhulie@...> > > Sent: Wed, January 5, 2011 7:51:14 AM > Subject: ( ) Don't know where to start... 7 year old son just > diagnosed with Asperger > > > Hi to all, > I've never joined a support group before, not sure if I'm in enough need for > support of if I just need to pull myself together. > My seven year old son has been diagnosed with Higher Functioning Autism/ > Asperger. > > I knew was different from his peers from a very young age, but was always > toid that he would be fine, that I expected too much, it was a stage he was > going through... > Finally after seeing numerous doctors, fighting with family members, lots of > persuading and defending of my son. I now have a diagnosis, but where do I go > from here. > > I want to do what's best for him... I want to be more patient... I want him to > enjoy life and increase his self-esteem. > > To most people my son come across as rude and obnoxious but to me he's loving > and big hearted, how do I help him find life less confusing. > Thanks for reading this... my first step in understanding I can't do everything > on my own. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 Hello and welcome to the group! Therapies are going to be some of the things your son will probably need. Below is a list of the different therapies and what they help with. Good luck in your journey and remember to take time for yourself. It will be very important that you find time to unwind, and regenerate. Find something that works for you like working out, a support group like this one, or getting regular massages. Whatever works for you! Take care! QuestionWhat are the most beneficial therapy types available for Aspergers?AnswerWhen a child is first diagnosed with Asperger’s Syndrome, he may be referred for therapy. Asperger’s Syndrome, as you know, is not a condition that can be cured. Asperger’s Syndrome is a neurodevelopmental condition that is treated with an individualized treatment plan that may include different therapies and medications. “The Autism Sourcebook : Everything You Need to Know About Diagnosis, Treatment, Coping, and Healing,†by Siff Exkorn is one of the best published resources for families dealing with Autism and Asperger’s Syndrome. Written by a parent of a child with Autism, this book covers all aspects of living with Autism once the diagnosis is received. Here are some of the most common treatment options. * Young children are often treated with ABA therapy. Applied Behavioral Analysis is a form of therapy used to teach young children basic skills in many different areas. For example, ABA can be used to teach young children to make eye contact, to play with toys, and to identify shapes and colors.* Cognitive-behavioral therapy is used to treat the emotional side of Asperger’s Syndrome like anxiety, depression, and obsessions. This therapy helps form the connections between feelings, emotions, and behavior.* Occupational therapy is basically used to teach independence. Grasp, handwriting, social skills, and play skills are often included. This therapist may help your child learn to tie his shoes of zip his jacket.* Sensory integration therapy may be included by the occupational therapist. Some occupational therapists are trained in sensory therapies and some are not. This therapy helps get your child’s sensory systems in synch.* Speech/language therapy covers speech articulation as well as pragmatics, or fluency. Language therapy covers social communication, and in some cases, social skills. Speech/language therapy will help your child learn to communicate verbally or nonverbally, if necessary, with the use of picture exchange and/or sign language.* Physical therapy addresses the physical awkwardness that sometimes comes with Asperger’s Syndrome. Awkward gait and lack of balance are common complaints. This therapist may help your child learn to kick a ball, walk up and down stairs, and ride a bicycle.* Social skills training is a therapy that teaches children with Asperger’s how to relate to others, making and keeping friends, how to recognize social cues and gestures, and other details such as personal space and understanding slang.It is very important for parents to fully support and participate in their child’s therapy. Asperger’s therapies can be successfully performed by parents in the home with the proper support and training.ne From: JULIE <juliewhulie@...>Subject: ( ) Don't know where to start... 7 year old son just diagnosed with Asperger Date: Wednesday, January 5, 2011, 7:51 AM Hi to all,I've never joined a support group before, not sure if I'm in enough need for support of if I just need to pull myself together.My seven year old son has been diagnosed with Higher Functioning Autism/ Asperger. I knew was different from his peers from a very young age, but was always toid that he would be fine, that I expected too much, it was a stage he was going through...Finally after seeing numerous doctors, fighting with family members, lots of persuading and defending of my son. I now have a diagnosis, but where do I go from here. I want to do what's best for him... I want to be more patient... I want him to enjoy life and increase his self-esteem. To most people my son come across as rude and obnoxious but to me he's loving and big hearted, how do I help him find life less confusing.Thanks for reading this... my first step in understanding I can't do everything on my own. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2011 Report Share Posted January 8, 2011 Hi to everyone, Thanks for all the information give to me, regarding what to expect. Just being able to read the situations that others find themselves in is helping a great deal, knowing that my frustrations and hopes for my DS are not so strange. Everyday situations which I find so frustrating, throwing away a table and chairs which now wants to keep. Putting the paper hat from the christmas cracker in the bin instead of wearing it to bed. Getting upset when a clay model J has made is broken by his three year old brother. All these instances have been helped by reading what others have put. Not that anyone has an answer all the time but are there just saying " Hey I know what you're going through " is very helpful to me. I will really try to take time for myself, but I guess I'm like many mothers who put their needs on the back burner when it comes to alocating time. The children, the house etc usually comes before me. Until next time. > > > From: JULIE <juliewhulie@...> > Subject: ( ) Don't know where to start... 7 year old son just diagnosed with Asperger > > Date: Wednesday, January 5, 2011, 7:51 AM > > > Â > > > > Hi to all, > I've never joined a support group before, not sure if I'm in enough need for support of if I just need to pull myself together. > My seven year old son has been diagnosed with Higher Functioning Autism/ Asperger. > I knew was different from his peers from a very young age, but was always toid that he would be fine, that I expected too much, it was a stage he was going through... > Finally after seeing numerous doctors, fighting with family members, lots of persuading and defending of my son. I now have a diagnosis, but where do I go from here. > I want to do what's best for him... I want to be more patient... I want him to enjoy life and increase his self-esteem. > To most people my son come across as rude and obnoxious but to me he's loving and big hearted, how do I help him find life less confusing. > Thanks for reading this... my first step in understanding I can't do everything on my own. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2011 Report Share Posted January 8, 2011 , ne did a wonderful summary of service types. There is two that I would like to add to her list. Psychoacoustic therapy - There are times when sound is not being received through the ear properly. This will cause central auditory processing issues. Customized audio programs which include subliminal tones are used to retrain the ear conduction pathway. Below is a website that gives some details on this type of treatment. My daughter went here and it did a world of good. http://www.keytometherapy.com/ Inateractive Metronome - This is used to improve the neurological processes of motor planning, sequencing and processing. Website is below. http://www.interactivemetronome.com/IMPublic/Home.aspx Regards, > > > From: JULIE <juliewhulie@...> > Subject: ( ) Don't know where to start... 7 year old son just diagnosed with Asperger > > Date: Wednesday, January 5, 2011, 7:51 AM > > > Â > > > > Hi to all, > I've never joined a support group before, not sure if I'm in enough need for support of if I just need to pull myself together. > My seven year old son has been diagnosed with Higher Functioning Autism/ Asperger. > I knew was different from his peers from a very young age, but was always toid that he would be fine, that I expected too much, it was a stage he was going through... > Finally after seeing numerous doctors, fighting with family members, lots of persuading and defending of my son. I now have a diagnosis, but where do I go from here. > I want to do what's best for him... I want to be more patient... I want him to enjoy life and increase his self-esteem. > To most people my son come across as rude and obnoxious but to me he's loving and big hearted, how do I help him find life less confusing. > Thanks for reading this... my first step in understanding I can't do everything on my own. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2011 Report Share Posted January 8, 2011 Hi , You are right, the first one you listed is a very important test. I should have thought of that one because my son was tested for central auditory processing when he was in second grade. Good one! The other one you mentioned I haven't heard of. That's what's so great about this group. You learn something new all the time.:-) And knowledge is power!ne> > > From: JULIE <juliewhulie@...>> Subject: ( ) Don't know where to start... 7 year old son just diagnosed with Asperger> > Date: Wednesday, January 5, 2011, 7:51 AM> > > > > > > Hi to all,> I've never joined a support group before, not sure if I'm in enough need for support of if I just need to pull myself together.> My seven year old son has been diagnosed with Higher Functioning Autism/ Asperger. > I knew was different from his peers from a very young age, but was always toid that he would be fine, that I expected too much, it was a stage he was going through...> Finally after seeing numerous doctors, fighting with family members, lots of persuading and defending of my son. I now have a diagnosis, but where do I go from here. > I want to do what's best for him... I want to be more patient... I want him to enjoy life and increase his self-esteem. > To most people my son come across as rude and obnoxious but to me he's loving and big hearted, how do I help him find life less confusing.> Thanks for reading this... my first step in understanding I can't do everything on my own.> > Quote Link to comment Share on other sites More sharing options...
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