i need advice

[Guest guest]

Better then dieing from being anesthetized. Of course during anything

like this, if you use a bipap. It should be available during procedures

of such nature, even when sedatives are used.

Take Care,

Cody Namesnik

codemann@...

Re: Re: I need advice

esma1999

Oh my heck! Are you crazy?! I would NEVER let a dr. put a tube in me

like that! Just *BAMM!!*

and it's in! ouchy.

I have a trach and it was a pain in the butt at first but it's saved my

life many MANY times! No g-tube here just plain 'ol prednisone cheeks!

In

otherwords: I'm constantly eating, I am trying new *psych* meds & on

prednisone from a recent cold. Whew! Having nooo problems w/ low

calories

;p

~jodi

[Guest guest]

You know in New Jersey at UMDNJ they do the g-tube with a local anesthesia

and versed so the person never has to be intubated - you ought to call them

and see if they can get protocols to your hospital so you don't have to

make the choice.

At 01:33 AM 5/23/02 +0000, you wrote:

>Ok.....I went to the DR. And he said if I wanted to get a g-tube

>then I would have to get a trache. He said they probably couldnt

>intubated me cause my throat is so small. I dont really need a g-

>tube, was just thinking it'd give me some extra calories. So.....if

>you were me would you get a trache and lose a lot of independance

>just to get a g-tube?

>

>also, how much do you guys usually pay your nurses an hour?

>

>Thanks

>

>http://www.turbokev.com/crazydaizy/images/webcampics/Jessic.jpg

>

>

>

>

[Guest guest]

ok....no trache for me, they scare me anyways!

[Guest guest]

No. And I've never heard that you need a trache to get a g-tube. They were

considering giving Jordan a g-tube when he wouldn't gain weight, but never

said anything about a trache. Sounds nonsense, so I'd see a new Dr.

Jay

I need advice

Ok.....I went to the DR. And he said if I wanted to get a g-tube

then I would have to get a trache. He said they probably couldnt

intubated me cause my throat is so small. I dont really need a g-

tube, was just thinking it'd give me some extra calories. So.....if

you were me would you get a trache and lose a lot of independance

just to get a g-tube?

also, how much do you guys usually pay your nurses an hour?

Thanks

http://www.turbokev.com/crazydaizy/images/webcampics/Jessic.jpg

[Guest guest]

In a message dated 5/22/2002 11:26:44 PM Pacific Daylight Time,

blueyedaze@... writes:

> LOL. I love you, Deena. =)

OMG... could this be? Amy and I agreeing on something? Someone call CNN...

this is huge!! LOL

Deena

[Guest guest]

In a message dated 5/23/2002 12:58:57 PM Central Daylight Time,

DeTannous@... writes:

> OMG... could this be? Amy and I agreeing on something? Someone call CNN...

> this is huge!! LOL

Hehe miracles DO happen, Deena!!!

[Guest guest]

In a message dated 5/22/02 9:46:40 PM Eastern Daylight Time,

blueyedaze@... writes:

> you were me would you get a trache and lose a lot of independance

> > just to get a g-tube?

>

Getting a g-tube didn't involve all of that for me. They gave me some IV

drug to knock me out, went down w/ the scope found the spot, cut the hole. I

made sure they had respiratory in the room, After the procedure they put me

on my BiPap and I was gven Demoral for pain. I did great!

~s, GRADUATE of Class 2002~

" Challenges are what make life interesting; overcoming them is what makes l

ife meaningful. "

- J. Marine

[Guest guest]

You may want to try Scandishake (

http://www.axcanscandipharm.com/Merchant2/merchant.mv?Screen=CTGY & Store_Code

=ASOS & Category_Code=SCANDISHAKE ) for extra calories. They would send you a

free sample if you asked. I had two shakes a day for six weeks and gained

fifteen pounds.

I need advice

Ok.....I went to the DR. And he said if I wanted to get a g-tube

then I would have to get a trache. He said they probably couldnt

intubated me cause my throat is so small. I dont really need a g-

tube, was just thinking it'd give me some extra calories. So.....if

you were me would you get a trache and lose a lot of independance

just to get a g-tube?

also, how much do you guys usually pay your nurses an hour?

Thanks

http://www.turbokev.com/crazydaizy/images/webcampics/Jessic.jpg

[Guest guest]

that link didnt work

> I need advice

>

>

> Ok.....I went to the DR. And he said if I wanted to get a g-tube

> then I would have to get a trache. He said they probably couldnt

> intubated me cause my throat is so small. I dont really need a g-

> tube, was just thinking it'd give me some extra calories. So.....if

> you were me would you get a trache and lose a lot of independance

> just to get a g-tube?

>

> also, how much do you guys usually pay your nurses an hour?

>

> Thanks

>

> http://www.turbokev.com/crazydaizy/images/webcampics/Jessic.jpg

>

>

>

>

[Guest guest]

Try this... http://www.axcanscandipharm.com/

I need advice

>

>

> Ok.....I went to the DR. And he said if I wanted to get a g-tube

> then I would have to get a trache. He said they probably couldnt

> intubated me cause my throat is so small. I dont really need a g-

> tube, was just thinking it'd give me some extra calories. So.....if

> you were me would you get a trache and lose a lot of independance

> just to get a g-tube?

>

> also, how much do you guys usually pay your nurses an hour?

>

> Thanks

>

> http://www.turbokev.com/crazydaizy/images/webcampics/Jessic.jpg

>

>

>

>

[Guest guest]

No. I'd find a heavy duty calorie nutritional drink.

Jay

I need advice

Ok.....I went to the DR. And he said if I wanted to get a g-tube

then I would have to get a trache. He said they probably couldnt

intubated me cause my throat is so small. I dont really need a g-

tube, was just thinking it'd give me some extra calories. So.....if

you were me would you get a trache and lose a lot of independance

just to get a g-tube?

also, how much do you guys usually pay your nurses an hour?

Thanks

http://www.turbokev.com/crazydaizy/images/webcampics/Jessic.jpg

[Guest guest]

Start looking for another rheumatologist.

-- Ron

> I've had pretty a fairly severe case of psoriasis for at least

> 20 years. It's mostly on my hands, chin line, scalp, navel and

> elbows. During the past year, I developed " sausage fingers " and

> it often difficult to close my hands. My fingers ache almost

> constantly, particularly on the right hand.

>

> For the past few months, I've had what I would call shooting

> pains in various parts of my body (legs, arms mostly). My feet

> hurt almost constantly, particularly on the sides. When I wake

> up in the morning, my entire body is stiff and my feet are

> painful.

>

> I had an appointment with a rheumy a few weeks ago. He suggested

> I try Bextra and Mobic. Neither gave me any relief. He finally

> returned my phone call of a week ago and left a message that my

> hand x-rays were " negative. "

>

> Any ideas as to what my next move should be?

>

>

> Painfully yours,

>

>

[Guest guest]

Hello ,

In the case of PA, x-rays are usually meaningless. The typical

problems have to do with swelling, pain, and tendonitis. Sausage

fingers, negative bloodwork and pitted nails all are typical pointers

to PA. The pitted nails are usual but may not always be present.

I agree with Ron, start looking for a new rheumy. Some rheumies have

a pre-formed opinion that PA is not particular terrible. They think

joint damage is the end-all be all of arthritis. While joint damage

is indeed terrible it can sometimes be operated on. With PA, most

tendonitis can NOT be operated on.

Some things a good rheumy might do for you right now is give you an

intramuscular steroid injection or a prednisone dose pack, put you on

some methotrexate and prescribe a different NSAID (anti-

inflammatory). In addition for home treatment, you can do hot and

cold contrast baths or packs. This helps increase circulation and can

help reduce some swelling and relieve some pain. Start with hot for

about 1 to 2 mins, then cold 1 to 2 mins. Alternate between the two

for 15 minutes or so. Always end with COLD.

Best wishes and keep us posted on how things are going.

-Meghan

> I've had pretty a fairly severe case of psoriasis for at least 20

years.

> It's mostly on my hands, chin line, scalp, navel and elbows.

During the past

> year, I developed " sausage fingers " and it often difficult to close

my hands.

> My fingers ache almost constantly, particularly on the right hand.

>

> For the past few months, I've had what I would call shooting pains

in various

> parts of my body (legs, arms mostly). My feet hurt almost

constantly,

> particularly on the sides. When I wake up in the morning, my

entire body is

> stiff and my feet are painful.

>

> I had an appointment with a rheumy a few weeks ago. He suggested I

try

> Bextra and Mobic. Neither gave me any relief. He finally returned

my phone

> call of a week ago and left a message that my hand x-rays

were " negative. "

>

> Any ideas as to what my next move should be?

>

>

> Painfully yours,

>

>

[Guest guest]

,

I had the same problem with my symptoms. I went to the Rhum and he

looked at my Xrays and they came up negative and my blood count is

still normal. However, my Rhum sent me to get a bone scan which

picked up the Arthritis. I have all the same problems that you are

claiming and you need to be agressive with the doctors. I knew that

there was something wrong with me but everyone wants to put a " quick

fix " label on it. I am still in the beginning phase and I know that

this will probably get worse in the future. Currently I am on MTX,

Naprocin and Folic Acid. If you have any questions feel free to ask.

Tom

> I've had pretty a fairly severe case of psoriasis for at least 20

years.

> It's mostly on my hands, chin line, scalp, navel and elbows.

During the past

> year, I developed " sausage fingers " and it often difficult to close

my hands.

> My fingers ache almost constantly, particularly on the right hand.

>

> For the past few months, I've had what I would call shooting pains

in various

> parts of my body (legs, arms mostly). My feet hurt almost

constantly,

> particularly on the sides. When I wake up in the morning, my

entire body is

> stiff and my feet are painful.

>

> I had an appointment with a rheumy a few weeks ago. He suggested I

try

> Bextra and Mobic. Neither gave me any relief. He finally returned

my phone

> call of a week ago and left a message that my hand x-rays

were " negative. "

>

> Any ideas as to what my next move should be?

>

>

> Painfully yours,

>

>

[Guest guest]

Find a new Ruemy.

Sounds like PA to me.

Good luck

[Guest guest]

In a message dated 06/22/2002 7:41:56 AM Eastern Daylight Time,

mplatt6750@... writes:

> Any ideas as to what my next move should be?

>

Yeah - Call your rheumy and tell him those didn't work. Seems they

always try the NSAIDS first but I don't know many here who've had much luck

with JUST an anti-inflammatory. You probably need to consider a DMARD like

enbrel, methotrexate, arava, or remicade. I would also ask my rheumy if he

had experience in treating PA.

[Guest guest]

Christy,

Its about a normal time to wait. I had my surgery in dec of 2001 and 6

months later my fundoplication has came undone. I now have a large

portion of either my esophogus or part of my stomach (not sure yet) at

the bottom of my esophogus. Food just kind of sits there and what

doesn't go down comes back up when i sleep. I have finally got some dr's

to listen to my impatience. I go on teusday for a barium pill xray and

then on aug 6th i go for an endoscopy...the GI (a new one of course)

wants to see how much damage has been done and what my options are going

to be. The top portion of my esoph is going to have to be streched due to

3 restrictions now and the lower part will probably have to be

reconstructed and another HM and fundoplication done. But he has to see

how much scar tissue was inccured from the first surgery. Just think how

i feel...i can't sleep laying down at all...i have to take reglan to be

able to eat anything besides baby food...and i will probably be going in

about the end of aug or sept for another surgery. That means about 2

months for me to wait. They won't move any faster unless you are actually

starving and can't eat at all. The meds seem to help but make me really

sleepy and they will just keep uping the dose...but i have 3 small ones

to take care of go to school and doing an internship..so i can't take the

meds 4 times a day. So i am bound to lose weight soon. But don't worry

i've been through this for 11 yrs and yes its about the right time line

they are following. Hope it helps..you will make it, hope all goes well.

[Guest guest]

Christy - I'm in the same boat with my son. They confirmed A yesterday

- at first they said Aug. 12 for consult, then "found" a date on July 29

(that's still 3 weeks). Saw the primary doctor today - he's unhappy

with July 29 and is calling to try to get it moved up. I should know tommorrow.

That worked when he referred us to the GI to start with - got moved up

almost a month. Maybe your doctor has more pull with the surgeon.

(my 12 year old) is so miserable - 10 days ago he didn't want surgery,

to the point he was lying about being able to eat more. Now he is

complaining that he wants the surgery NOW.

Good luck,

christycali777 wrote:

OK, last Tuesday my doctor called me to

confirm that I have A. He

told me that I would be hearing from the surgeon sometime this

week.

I decided to give them a call today because I am so anxious to

get

this taken care of. They say I have to go in for a consultation...

I

understand that (even though I think it is something we could do

over

the phone) But they said that the earliest they can get me in for

the

consultation is August 13th. I asked if they could get me in any

sooner and they said no. That is over a month away and that's just

the consultation ... After that I'm sure it will take at least

a

month (if not longer) to get a surgery date. That puts me all the

way

into September before I get any relief from this. It really upset

me.

You all know how hard it is to live everyday life with A... I can't

even go out to eat with friends or family. So do you guys think

that

I should complain or do you think that this is a normal amount

of

time to wait?

Christy

[Guest guest]

I am confused. Where I am surgery is the last option, not the first.

With me they dilated it and gave me medicine. Are there cases where

surgery is the first line of defense?

Hiv

>

> > OK, last Tuesday my doctor called me to confirm that I have A. He

> > told me that I would be hearing from the surgeon sometime this

week.

> > I decided to give them a call today because I am so anxious to get

> > this taken care of. They say I have to go in for a

consultation... I

> > understand that (even though I think it is something we could do

over

> > the phone) But they said that the earliest they can get me in for

the

> > consultation is August 13th. I asked if they could get me in any

> > sooner and they said no. That is over a month away and that's just

> > the consultation ... After that I'm sure it will take at least a

> > month (if not longer) to get a surgery date. That puts me all the

way

> > into September before I get any relief from this. It really upset

me.

> > You all know how hard it is to live everyday life with A... I

can't

> > even go out to eat with friends or family. So do you guys think

that

> > I should complain or do you think that this is a normal amount of

> > time to wait?

> > Christy

> >

> >

> >

> >

[Guest guest]

Hi !

Apologies everyone as I haven't yet introduced myself, soon will though!

My husband is with me all the way now and very anti-vax but what really 'sold'

him the idea was not even so much the harmful effects but the pharmaceutical

companies making billions out of it etc - that side of the argument - facts,

figures, data etc!

Whatever their nationality I think fellas all over the world are sneaking into

the same school somewhere as they all seem to think with the same logic whereas

us girls are more tuned into the damaging effects and the far-ranging emotions

that go with it all. I'm from the UK and guys this side of the 'pond' aren't

that different, believe me! Hope this is of some help but at the end of the day

no matter what anyone says just trust your own 'gut instinct'! Good luck.

LOL .

I need advice

hello,

I am having trouble convincing my boyfriend not to vaccinate our child who

is due to come into the world in 2 short weeks. I have made some

headway..... I sent him an article about why it's not necessary to vax for

HepB and he agreed. He also agrees that she won't need one for flu and

chicken pox, for example. He is open to waiting a year or so and also

spreading them out as much as possible, but still thinks it's stupid to not

vax. I am willing to continue sending him facts, but he's a tough one and

thinks that there's facts to support any side of an issue (he's an engineer

and is stubborn!) I'm getting exhausted trying to convince him and others

why I don't wish to vax (does that sound selfish?). It's just that when you

get it, a light bulb goes off, and there's really no turning back, but you

can't force a " light bulb moment " for someone else. The time I'd save

bombarding him with info, I could use to further educate myself on this

endless subject. I don't want to just point him to a website and say " go

crazy " because I don't know if he'll be open minded and read everything. Any

suggestions?? thanks so much for listening.

in Mass.

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

[Guest guest]

>I am confused. Where I am surgery is the last option, not the first.

>With me they dilated it and gave me medicine. Are there cases where

>surgery is the first line of defense?

The surgeon didn't consider anything else for my 5yo daughter. And I

was glad he hadn't as, by the time we spoke after the radiologist had

given the diagnosis, I had had time to read up on A and the treatments

and wanted her to have the surgery.

I found one study (1) that suggested that dilatation should be the first

treatment in school age children and if two or more are required in a

year then surgery is recommended. However, IMO, since this was

published in 1983 and we're now 20 years on, almost, and lap surgery is

more common, a lap myotomy is preferable to the seemingly less permanent

solution of a dilatation and much, much better than botox injections,

*provided that you are a good candidate for surgery*.

My daughter is an otherwise very healthy 5yo who has failed to lose

weight in spite of her condition (the doc confirmed yesterday that she

is still 50-75 centile for weight and 75 centile for height which is

consistent with her growth to date). What isn't reflected in these

charts of course is that she is eatin less and doing less - and she is

slightly more irritable than she was 6months-a year ago. Both the two

surgeons and I believe that she should be put through as few anaesthetic

procedures as possible so her endoscopy will take place immediately

prior to surgery.

As regards timing, here in the UK we deal with our National Health

Service. If my husband and I were not prepared to fund the entire cost

of the operation ourselves (health insurance is not as prevalent here as

in the US particularly for those of us who have travelled

internationally with work and are consequently quoted huge premiums) and

relied entirely on the state system, our daughter would not have her

operation before November/December this year which would be around 6

months from her diagnosis. By paying we will have the op around 3

months earlier.

BTW, if anyone is interested and hasn't already seen it, there's a video

of the Laparoscopic Heller Myotomy and Dor Fundoplication at http://www.

ipeg.org/heller.html

(1) Berquist W.E.; Byrne W.J.; Ament M.E.; et al. PEDIATRICS 1983; 71/5

(798-805)

--

Sue

Nottingham UK

[Guest guest]

Thanks for the link. Boy that looks nasty - I completely cringe at

surgeries of any kind on video and especially this one since I

actually had the myotomy. Laparascopy is the way to go I'm sure but

it looks like it isn't all that precise from the video - especially

the sewing part ;-)

I think the Dor fundiplication is not so common anymore. The myotomy

part is probably the same but I think many doctors now prefer a

partial wrap. In the video you can see they sew the stomach

completely over the opening they made in the esophageal muscle. In

the partial wrap, they sew it around the outside from both sides and

it holds the incisions open.

(Jennlee_2)

> BTW, if anyone is interested and hasn't already seen it, there's a

video

> of the Laparoscopic Heller Myotomy and Dor Fundoplication at

http://www.ipeg.org/heller.html

>

> (1) Berquist W.E.; Byrne W.J.; Ament M.E.; et al. PEDIATRICS 1983;

71/5

> (798-805)

>

>

> --

> Sue

> Nottingham UK

[Guest guest]

wrote:

>Boy that looks nasty - I completely cringe at

>surgeries of any kind on video and especially this one since I

>actually had the myotomy.

Wow - you are brave. I haven't dared watch it all the way through.

> Laparascopy is the way to go I'm sure but

>it looks like it isn't all that precise from the video - especially

>the sewing part ;-)

I gave up with the first cut when it looked more like an imprecise hack!

>I think the Dor fundiplication is not so common anymore.

Our surgeon said last week that he has spoken to a couple of his

colleagues who have done the op on adults. One is very much in favour

of the wrap; the other against.

--

Sue

[Guest guest]

Well, I had to wait over 4 weeks to get back in to see the A

specialist I had already seen, now I'm on the surgery list which I

was told will be about 2 months, so I think it's pretty normal. The

one good thing in seeing them in summer, they said there are less

surgeries etc. in summer, people go on vacation etc. ask to be put on

a list in case someone cancels at the last minute, if you can go on

short notice. good luck, Janet -

-- In achalasia@y..., " christycali777 " <christycali777@y...> wrote:

> OK, last Tuesday my doctor called me to confirm that I have A. He

> told me that I would be hearing from the surgeon sometime this

week.

> I decided to give them a call today because I am so anxious to get

> this taken care of. They say I have to go in for a consultation...

I

> understand that (even though I think it is something we could do

over

> the phone) But they said that the earliest they can get me in for

the

> consultation is August 13th. I asked if they could get me in any

> sooner and they said no. That is over a month away and that's just

> the consultation ... After that I'm sure it will take at least a

> month (if not longer) to get a surgery date. That puts me all the

way

> into September before I get any relief from this. It really upset

me.

> You all know how hard it is to live everyday life with A... I can't

> even go out to eat with friends or family. So do you guys think

that

> I should complain or do you think that this is a normal amount of

> time to wait?

> Christy

[Guest guest]

In a message dated 9/25/2002 9:11:02 PM Eastern Daylight Time,

karlynn17@... writes:

> Any

> suggestions?? thanks so much for listening.

>

This is just my opinion, but i would go with the waiting a year thing and say

that you will talk about it more when the time comes. And durin that time

slowly try and educate him more and more. My hubby TOTALLY disagreed with

me!!!!!! I mean he thought everything i showed him or said to him was a pile

of crap. He comes from a family of Doctor's. So he always has his Uncle in

his other ear tellin him that i'm wrong. I would find some seminars in your

area, here we have Vaccination groups. Things like that to HELP him have that

lightbulb moment =)

aaaaaaaaaaaaaaaaaaaaaaaaaaa

* Jenna & *

* Proud Parents to *

* Corbin *

* 9/30/00 *

* Our Birthday Boy & Nursing Toddler *

* Happy 2nd Birthday!! *

* And awaiting the arrival of our 2nd angel baby *

* Due February 16th, 2003 *

* Phoebe Rose or Landon *

aaaaaaaaaaaaaaaaaaaaaaaaaaa