Schools

[Guest guest]

Hi Ken,

How are you? I gave the fairlite site to the schools for education

information. I also suggested that they buy Teaching the Tiger. I also make

sure that they understand that they may call to consult with me at any time,

day or night.

take care, wendy in canada

[Guest guest]

Hi Ken,

I found that I have to figure out what accomadations my (11 yr old) daughter

needs and then put them in writing for the 504 plan. I figure this out by

spending some time in her class,

talking to her teacher, knowing what she's like at home etc.. Not every OCDer

has the same symptoms and even the symptoms they do have wax and wane so there

isn't any " one size fits all " set

of accomadations.

Dana in NC

Ken Strong wrote:

> From: Ken Strong <kstrong@...>

>

> Hi;

> I have been lurking here for some time. The list is great!

>

> Do any of you have any pointers I could pass onto the schools re a girl of

> 9 with OCD and a boy of 15 also with OCD. Anything would be useful.

>

> They seem a bit stuck on what they can do to help.

>

> Thanks,

>

> Ken

>

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[Guest guest]

Hi ken,

I also gave the link http://www.fairlite.com/ocd/articles/school.shtml to the

school. I just talked to our superintendent who said that 504 plan is something

between you and the school team. Whatever you determine is possible. There is

no " you can do... " or " you can not do... " 's. As long as the agreement is

reasonable, anything can be included. I think the 504 plan is a federal plan

instead of the district plan.

TC

Ken Strong <kstrong@...> on 05/02/99 07:20:19 PM

Please respond to onelist

onelist

cc: (bcc: Tse Chao/JerseyCity/iNautix)

Subject: Schools

From: Ken Strong <kstrong@...>

Hi;

I have been lurking here for some time. The list is great!

Do any of you have any pointers I could pass onto the schools re a girl of

9 with OCD and a boy of 15 also with OCD. Anything would be useful.

They seem a bit stuck on what they can do to help.

Thanks,

Ken

------------------------------------------------------------------------

Looking for the perfect gift for a friend?

Tell them about ONElist's 130,000 free e-mail communities!

------------------------------------------------------------------------

The is sponsored by the OCSDA. You may visit their web

site at http://www.ocdhelp.org/ and view schedules for chatroom support at

http://www.ocdhelp.org/chat.html

[Guest guest]

Hi

Thanks to all of you for the information you gave me on schools.

I have passed the information on to the person who requested it.

Ken

http://www.pacificcoast.net/~kstrong/

[Guest guest]

Hi, Everyone............Maureen.......it's not about my parish, it's about

the schools. My church is great......Gareth and I took the gifts up again

today and we are always at donut Sundays, etc. People are very polite and

make it a point to congratulate him when he takes the gifts up. I wanted him

in the Catholic school system and Sr. Helen (Super. of schools for

Dio.of Joliet) personally wrote me and told me that they don't accept special

needs kids. They won't even try. Enough about schools. Glad you got the

official dx. for . We do need to get together one of these days. How

long does it take for you to get to Kankakee? Margaret

[Guest guest]

In a message dated 02/13/2000 1:27:39 PM Central Standard Time,

MFROOF@... writes:

<< We do need to get together one of these days. How

long does it take for you to get to Kankakee? >>

I think Kankakee is probably about an hour or so away from Naperville, and I

would love to get together. I'm having surgery on Tuesday afternoon and will

be in the hospital a few days, recuperating at home for a few weeks. I'll

let you know when I'm back in the pink and we can make plans.

Maureen

[Guest guest]

cindy,

thank -you i had

frist did that at the beginning of the school year i handed out papers on jra

but the problem is is a lack of communication the teachers when i talk to

them have tolled me they didn`t know also when i try to call her teacher and

ask her to call me back she never does so i go to the principal and ask him

and he well tell me she didn`t have time or ill get maybe she hasn`t read her

e-mail yet i really don`t think they care right now the only thing i know is

they are always eating donuts or drinking coffee and they want another pay

raise it makes me so mad but ill keep on bugging them til they either do

something or get tired of me coming in . so please wish me luck becky

[Guest guest]

Hi Everyone, We are back from our trip to Florida. felt great, he

developed that incredible hunger from the high dose prednisone iv he had in

the hospital.At first it seems funny that he keeps saying he is hungry, then

after a awhile when you see him devour a huge breakfast at 9;00 and at 10;30

he wants a tuna club and fries then st noon he wants a hamburger anf

fries..etc..I know he couldn't have digested the meal an hour before, when we

tell him he has to wait,he cries, I mean I know he really feels he is

hungry..when we left he was so pale now he has round rosy cheeks and a tan

,'he looks good, walked all day around disney, no pain at all.. speaking of

schools, Ive got a good one for you..Last year towards the end of school, (ry

was in second grade)the phys ed teacher saw me in the hall way and mentioned

to me that was putting on weight and getting out of shape, that he

refused to do the mile run and can't keep up with the other kids, I looked at

him like he was kidding and said " well you know the jra can slow him down and

the weight gain is from steroids) he said whatis JRA?So to make a long story

short went all year in this guys gym class hearing things like Hurry

up,quit slacking, etc etc..... Boy did my husband and I have a long talk with

the principal!!Needless to say this year at his 504 they included the phys ed

teacher!!The Dr. wants us to call this week about starting the enbrel I still

can't make a decision,....I have to investigate tyhis further,, More

later,,... Jane

[Guest guest]

make a weekly chart and make copies. have your child take the paper to

school to have a note written on it from the teacher and returned daily.

[Guest guest]

Hi Jane,

Welcome Back! I'm glad you and the family enjoyed your vacation to

Florida. It was nice to hear that handled all the extra walking and

everything, with no problems. Must have been nice to get away from the

cooler weather for a while and enjoy the sunshine. Wow! what an appetite

I've almost forgotten what that's like, since Josh has been on the

lowered dose of prednisone. He actually lost two pounds in the past

month but he still looks a bit chubby, since he hasn't had an increase

in his height yet.

Thanks for sharing your story about the school PE teacher. I guess it's

not uncommon for our children to have these kinds of issues at school

and it's something we parents may need to be more diligent about.

Take care,

Georgina

Jitz45@... wrote:

> Hi Everyone, We are back from our trip to Florida. felt great, he

> developed that incredible hunger from the high dose prednisone iv he had in

> the hospital.At first it seems funny that he keeps saying he is hungry, then

> after a awhile when you see him devour a huge breakfast at 9;00 and at 10;30

> he wants a tuna club and fries then st noon he wants a hamburger anf

> fries..etc..I know he couldn't have digested the meal an hour before, when we

> tell him he has to wait,he cries, I mean I know he really feels he is

> hungry..when we left he was so pale now he has round rosy cheeks and a tan

> ,'he looks good, walked all day around disney, no pain at all.. speaking of

> schools, Ive got a good one for you..Last year towards the end of school, (ry

> was in second grade)the phys ed teacher saw me in the hall way and mentioned

> to me that was putting on weight and getting out of shape, that he

> refused to do the mile run and can't keep up with the other kids, I looked at

> him like he was kidding and said " well you know the jra can slow him down and

> the weight gain is from steroids) he said whatis JRA?So to make a long story

> short went all year in this guys gym class hearing things like Hurry

> up,quit slacking, etc etc..... Boy did my husband and I have a long talk with

> the principal!!Needless to say this year at his 504 they included the phys ed

> teacher!!The Dr. wants us to call this week about starting the enbrel I still

> can't make a decision,....I have to investigate tyhis further,, More

> later,,... Jane

[Guest guest]

i agree that you did whats best for your child. that is what is most

important. cheri

[Guest guest]

I've just read the last few days posts and there's so much I want to respond

to - I'm just too busy (I'm sure you all know what I mean)

I'm struggling with this dual dx stuff too

Had a BIG meeting yesterday about 's communication ( read lack of) I

sat there with all these professionals - teachers, SLT's etc I listened to

them all contradict each other - does he have communicative intent or

doesn't he, is he autistic or just displaying autistic behaviour

blah,blah,blah

Anyway, I just sat there thinking this is ridiculous! These people

[Guest guest]

In a message dated 2/23/01 4:21:12 AM Eastern Standard Time,

Evesmother@... writes:

<< Back to

schools: Each school and each teacher just do their own thing. >>

Sounds horrible to me, and that is what they are doing in places all around

us too. People that move here think that we are so backwards still. I guess

I only can judge from what I have seen. I see here that the only kids in a

contained room are there for a good reason. It's very obvious that they

could not function in a regular class. I don't know, and try to keep an open

mind, but some of the things they do just don't make any sense to me. I know

for Seth, I just want where ever he will do his best at. But like always,

the more I see, hear and read, the more confused I get. LOL

Gail

[Guest guest]

In a message dated 4/10/02 7:03:14 PM Eastern Daylight Time, mfroof@...

writes:

>

> Hi, Everyone.....Donna....I know that all kids can't be included and I know

> what you went through. My writing came across wrong......foot in mouth

> syndrome. I just know with Gareth (at the Lanc. SD) that the ONLY choice

> the SD gave us was a Life skills class. It didn't matter that he was

> reading, writing and doing math. Gareth is not totally included these

> days,

> by his choice and mine. I'll shut up before I put my foot in my mouth

> again......all these reports about lousy schools really gets me irate!!!

>

>

Oh gosh hon!!! I'm sorry. I didn't mean to imply that is what you were

saying. I know you better!! ;-) If Maddie were remotely doing what

Gareth was, I'd push for it too. But like you said, it's what works for

each individual child. I have to say though, that I think it's harder in a

way, when you have a child who is able to read, write and do academic work.

The whole world is so inclined to ignore their skills because of their

autism. Maddie has so many other rudimentary issues, that the pressure is

of a different kind. Yes, it's still incredibly hard, but it's more like

trying to open a door, whereas with kids like Gareth, it's like trying to

keep others from shutting it. I may be way off, but that's my take.

Margaret dear, you did not put your foot in your mouth!!! You're among

*family* here and can say what you want!!! {{{{{{{{{{{{hugs}}}}}}}}}}}}}}

hon!!!!

Donna

[Guest guest]

In a message dated 5/15/02 3:34:27 PM Pacific Daylight Time, mfroof@...

writes:

<< <LOL Like Bo , right Joan? LOL Gail :-)>>

I will deal with you later!!! >>

LOL You will always be the graceful, self confident, self assured Bo to me

Margaret! LOL

Gail :-)

[Guest guest]

In a message dated 5/15/2002 6:34:20 PM Eastern Daylight Time, mfroof@...

writes:

> ..is there another school (same district) that

> Zeb could go to.

Hi Margaret,

I don't think any other school in this district would be better. I don't

think it is the principal as much as the teachers. The principal is a whimp

when it comes to the teachers or woman in general. He hates conflict and will

play both sides. A few years ago I was so mad at him I called him a balless

wonder, whoops. I think the shoe fit. If he would just take a stance and tell

the teachers to follow the IEP life would be ok. He has caused most of the

problems by not being a good administrator. My grandchildren go to another

school down the road and my son has had his share with nonsense too. My

granddaughter is in the gifted program they were not allowing the kids to use

the restroom only at certain designated times. My granddaughter was

constantly suffering from bladder infections and they couldn't understand

why. The ped started to question her on use of the restroom at school. My son

started sending notes to the principal and teacher that were ignored. He

ended up going to the superintendant before he got results.

Charlyne

Mom to Zeb 9 DS/OCD ?

[Guest guest]

> I don't think any other school in this district would be better. I

don't think it is the principal as much as the teachers.

Oh Charlyne,

I-yai yai, excuse that semi slang Spanish. It just seems its a never-

ending battle. So many hugs that all will work out for ya'll. If this

is what you want for Zeb to stay at that school district, then

continue and keep educating them. Not that I have the right to

command here, hee hee. I know you'll do good, why start all over with

another school district. This is almost like buying a used car with

somebody elses problem or someones relationship gets messed up and

then jumps into another relationship when the last one had not been

settled. If I had been in your shoes, I would continue to find

answers but I would of left the home school at the end of my list. As

I do not know what patience is anymore. I just hate to see wasted

time and education. When is school over for Zeb and what plans are

for the summer? Better get to work, not looking forward to going as I

might have to have some strength to finally tell my boss, I'll be

quitting, then I'll be a stay home mom again. Hate that word,

quitting. We shall see, though.

Irma,13,DS/ASD

[Guest guest]

congrats to you Irma!! get some needed rest and just enjoy life!!

Sometimes I just feel so thankful for the little things in life!! Your life will

be busy enough as it is right? I will try to e-mail my phone no. to ya still so

that if you come our way you can give us a call and I can meet you somewhere in

N-ville and you can meet and I can meet !! Dawn

Re: schools

> I don't think any other school in this district would be better. I

don't think it is the principal as much as the teachers.

Oh Charlyne,

I-yai yai, excuse that semi slang Spanish. It just seems its a never-

ending battle. So many hugs that all will work out for ya'll. If this

is what you want for Zeb to stay at that school district, then

continue and keep educating them. Not that I have the right to

command here, hee hee. I know you'll do good, why start all over with

another school district. This is almost like buying a used car with

somebody elses problem or someones relationship gets messed up and

then jumps into another relationship when the last one had not been

settled. If I had been in your shoes, I would continue to find

answers but I would of left the home school at the end of my list. As

I do not know what patience is anymore. I just hate to see wasted

time and education. When is school over for Zeb and what plans are

for the summer? Better get to work, not looking forward to going as I

might have to have some strength to finally tell my boss, I'll be

quitting, then I'll be a stay home mom again. Hate that word,

quitting. We shall see, though.

Irma,13,DS/ASD

[Guest guest]

Charlene,

I am . I have two autistic children aged 9 & 7. When the 9 year old

was 5 we were living in Florida. We were offered one hour per week of speech

therapy... but declined it as we already knew that the speech therapist hated

our child (she made that clear the year before at a different school). I

believe that she is still receiving one, maybe two hours per week in elementary

school in Provo, UT.

The real answer? Not nearly enough.

In Florida if the child can walk from his desk to the door he does not need PT;

OT was about an hour or half an hour per week when Sherman started kindergarten

here in Provo.

Does that help at all?

Smiles!

wife to

mom to:

na, 14, NT; Marilla, 9, Autistic; Sherman, almost 8, Autistic; Greilyn,

2.5, NT

schools

I would like to know of all of you out there who have children ages

3 to 5, what school hours and how many hours of OT , speech and PT does your

autistic child receive? This is very important to me to know what the rest

of the country is gettingas I have been advocating heavily here to get some

services. I already know what Brownsmills NJ gets but I sure would love to

know what everyone else is getting! Thanks for all your help

Charlene

[Guest guest]

Charlene, 1st thru 4th- 120 minutes of speech per wk,

never OT

At 4 and 5 it was 30minutes 2 x wk- one on one.

Sharon Gudger, GA

__________________________________________________

[Guest guest]

We live in Scappoose, Oregon (30 minutes from Portland). When my daughter

was in ECSE preschool she went 5 days a week. Four of those days she had one

hour of 1:1, followed by 2.5 hours of preschool, on wednesdays she had 2

hours of 1:1 at the same school. She had 20 minutes of individual speech per

week in the classroom and attended two group language classes per week in

addition (these classes were with the same ST at a different site and were

1.5 hours in length each- I credit this with a lot of her improvement). She

also had group/individual OT for 30 minutes, twice per week, and I had two

home visits with her teacher per month. This works out to about 20 hours a

week. We were very happy with the services available for the ESCE kids

(3-5). My daughter went for one year and was 4 when she started and 5 when

she left. I now homeschool- though we were offered a pretty good placement

for kindy. HTH, Deanna in Oregon

[Guest guest]

Hello, Charlene !! We live in Columbus OH. My daughter just turned 4yrs old. For

the past 2yrs, she has been going to school for 4 days/week 2 1/2hrs/day.

Outside of getting speech & ot at school (its realy hard to calculate how much

she gets at school), we receive an additional 6hrs of speech & ot. Hope this

helps --

schools

I would like to know of all of you out there who have children ages

3 to 5, what school hours and how many hours of OT , speech and PT does your

autistic child receive? This is very important to me to know what the rest

of the country is gettingas I have been advocating heavily here to get some

services. I already know what Brownsmills NJ gets but I sure would love to

know what everyone else is getting! Thanks for all your help

Charlene

[Guest guest]

My daughter, Cristina, is 3 years old and has ASD. She is currently receiving

OT 3 times a week and speech twice a week. This is paid for with her Medicaid

as there is a 2-3 year wait in Florida right now for services through the state.

Crazy, huh? She should be in school but the supposed *only* option our county's

public school system had was unacceptable to me for many reasons which I won't

bore you with right now. So I have decided to keep her home until the new

school year starts when she will be going to a charter school for autistic

children. Incidentally, my NT 4-year old daughter (who will be 5 when the

school year starts) will be going to that school as well since they have

something called " reverse inclusion " . We aren't sure yet how long we'll send

her there yet, guess we'll have to see how it goes.

Okay, I've rambled long enough. LOL Hope this answers your question.

~Amy

mamaznutz@...

Check out my family webpage! www.geocities.com/amyboz

" I don't know the key to success, but the key to failure is trying to please

everybody. " Bill Cosby

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

schools

I would like to know of all of you out there who have children ages

3 to 5, what school hours and how many hours of OT , speech and PT does your

autistic child receive? This is very important to me to know what the rest

of the country is gettingas I have been advocating heavily here to get some

services. I already know what Brownsmills NJ gets but I sure would love to

know what everyone else is getting! Thanks for all your help

Charlene

[Guest guest]

cheezer <cheezer@...> wrote: I would like to know of all of

you out there who have children ages

3 to 5, what school hours and how many hours of OT , speech and PT does your

autistic child receive? This is very important to me to know what the rest

of the country is gettingas I have been advocating heavily here to get some

services. I already know what Brownsmills NJ gets but I sure would love to

know what everyone else is getting! Thanks for all your help

Charlene

[Guest guest]

Charlene- I havn't heard first hand but this same topic has been going around

on another one of my lists and New Mexico always gets a huge thumbs down from

people living there in regards to special ed. FYI, Deanna in Oregon