Schools

January 29, 2004

I agree. When I was younger, no one ever made a difference between

myself and them. It wasn't until I got my first wheelchair and friends

started asking. I explained (in elementary terms) that my muscles get

really tired. I'm from a small community, so nearly every kid in the

school knew who I was and what disease I have. They were always very

considerate of my differences and I never had emotional problems -

except when gym class came around and I was not allowed to even sit on

the side. I had to sit in the " special class " and take a 'study hall'

in the back of the room. When it was time for my adaptive PE, they

pulled my out of English class. After I hit 8th grade I got pissed off

and refused to attend adaptive PE if it were scheduled over my other

courses. My mom adamantly fought with me and I was granted PE credits

without attending a course for the last two years of high school. They

had managed to get the teacher in when I was having a study hall - I

tried to fight that as well, but they said study halls weren't

necessary to learning (which I could argue). I felt really

disconnected and different only when the school told me I was. Besides

that, I never noticed a huge difference. I think it's a combination of

how you perceive yourself and how accepting your peers are. Mine were

wonderful and always made me feel equal.

Now that I'm older, I find a lot of teens, young adults, and older

generations to be very confused or disgusted with me. They stare a

lot. Some have the audacity to speak up to me in criticizing tones and

degrading remarks - they get equal treatment in return for their kind

comments (especially on PMS days)! =) Little kids stare at me a lot. I

think they're amazed with the wheelchair. The thing with little kids

is, I get to be one of their first experiences with the disabled

community and I like that perhaps I may have some inkling of molding

ability. Kids LOVE when I smile at them and say hello when theyre

staring at my chair. They smile back and get shy and giggle and wave.

I've had a few older kids (8/9ish) tell me how cool my wheels are and

asking questions - not about my disability or why I'm using a

wheelchair, but about how fast the wheelchair goes and if I can do

pop-a-wheels.

I used to volunteer in my sister and brother's classes when they were

in third grade (they had my third grade teacher and he was my

favorite). When I was in class with my brother the first time, a lot

of kids asked why I always sat down. My brother, being only 8 at the

time, explained that my back hurts a lot and I have metal things

inside, " so don't touch her back, she'll yell at you. " The kids were

more curious now how I got metal things in my back. My brother then

told them my muscles get really tired and my back fell asleep one year

so the doctor put in metal things so it can take a nap and I can still

sit up. HAHAHAHA! It's amazing how kids understand things sometimes.

~Kendra

> I thought it interesting you asked " any advice how you

> all overcome that problem when

> you were young ? " What's weird is that for me I

> didn't seem to need to overcome. It was just the way

> it was and so like many others on here, we just lived

> life...and to the fullest. It seems now as an adult is

> when I am realizing whoa! I am different. Surprising

> that adults are often less accepting than kids or even

> teenagers. I'm often surprised at how ignornant adults

> can be.

>

January 30, 2004

Honestly, if my parents had tried to push me, then my rebellious streak probably

would have come out and I probably wouldn't have been as involved as I was.

Though I think my parents were amongst those who wished I would have been less

involved so they wouldn't have had to drive me everywhere! My doctors tried to

tell me that I should cut out some activities too, but I've never listened to

any doctor who didn't agree with me, and I've never had reason to regret it.

Don't push her too hard, but encourage her. It can be hard to find your niche at

that age.

~e

January 31, 2004

Jeni-

I would love to see the picture of h cheering- just because Brett loves

cheerleaders- and I think he would really love to see someone in a

powerchair in a different situation as cheering. I am so excited about the

conference and stuff because I want Brett to see he is not ALONE as he

thinks sometimes. Thanks

Kristal

Mom to Brett- SMA II- 4 years old

" Life is 10% what happens to you and 90% how you respond to it. " ~anonymous

Visit Brett's website at: http://www.our-sma-angels.com/brett/index.htm

November 8, 2004

More legal eagle issues. If they have approved him to go because it met his needs and the other did not, there is a legal issue here. Also, 3 yrs is not to young to ride the bus, they do it here all the time. After school programs should not be denied, but usually are to the disabled. I would have to look more into the law and check with my atty about this one. I know that what I've gone through, they would let my child go if I chose that avenue.

Karyn

Schools

O.K. I just have to vent a little. We have been trying to get our son in school since August. The week he was suppose to start at Habersham we found out that we live just over the county line in Banks County. Banks County wouldn't provide transportation because our son was "too young" to ride the bus. He was also "too young" to go to the after school care. So I would have to change his current daycare in Habersham to one in Banks which would change my daily commute to an hour (one way) from 30 minutes. That is doubling my travel now. That is doubling gas and you know how those prices are. I have a friend who lives in Banks County but got permission (after going through a couple of people) for her son to go to school in Baldwin (Habersham) even though she lives on the Banks County side of Baldwin. I asked about that last Friday when I called the Habersham BOE and they tried to act like that didn't happen. The woman that my friend went through to get this done won't return my phone calls. We are moving to Habersham at the end of this month so I called and asked Haberham if we could go ahead and let him start. Well, we have to take proof of our move (phone bill, electric bill) to the school before he can go. When you move it usually takes about a month before you get a first bill. So that is a month more before he can start. We have been trying to get him in for 3 months now. I told my husband I am about to pull the discrimination card and find out why a "regular" child that lives in Banks can go to Haberhsam COunty schools because he lives in a town that is in both counties, but my "special needs" child can't. It just really irratates me. It is my son that is losing here because he isn't getting the early education that he needs.

November 8, 2004

I feel your pain!!! When we moved here, we had the same battle, I

found out through being a real estate agent, that all you need to do

is bring a copy of your contract to the school, showing a closing

date if a purchase, or move in date for a lease.

Good luck!

October 16, 2005

There is a school close to here called the Seacoast Learning

Collaborative and they have an autism/aspergers program at the school with about

10 kids in it. I went to look at the school but all the kids were pretty low

functioning. Their ages were 8-13 and a good percent of them were

non-verbal or limited verbally

-Charlotte

******Hi Charlotte, our boys seem to

have a lot of similarities and it sure is tough finding the right learning

environment for them. Actually, I think I know the right environment(besides

Home School) and it just isn’t

available around here or many places. thoroughly enjoys his book group

which is 4-7 Home Schooled kids 10-13 years old He also does well with classes at the

museum for Home Schooled kids, where there a dozen kids and the class is an

hour or so at a time. About a month ago he joined a D & D group (Dungeons and

Dragons) and is loving it. It is 4 kids and one dad.

The group is very orderly and the dad does a great job. It runs for 3 hours and

loves every minute. does best with 5-7 bright kids ages 9-15

depending on the kid. I know ’s son is doing well in Ps. but I do

think this is rare. People were always telling me to “advocate”…not

one of my favorite words. In certain situations you can “advocate”

till the cows come home and the environment is just wrong….We are really

pleased with how our son is doing compared to when he was 9 and 10 (now 13)

Take care, Gail

October 16, 2005

Gail,

This is ’ first year if Middle School (6th

grade) and so far it has been good and bad. usually as a rule does

better in the first half of the year than the second. There are not many

opportunities for socializing in this school as they are mostly in class as

opposed to elementary school where they had recess and such.

This year he seems to be friendly with more 7th graders

than 6th. Some of the kids are in his special ed

program. I have not decided if this is a good thing or a bad thing yet as

I have no idea what these kids have or what kind of environment they come

from. As for the school itself, the advocating HAS already become a full

time job. As it stands now, my otherwise A student is getting his first C

and his first F in school. I am attempting to get to the bottom of this

because a child with an aid in class should NOT be failing anything. It

should not even get to that point without me knowing. There are several

other issues….we shall see. I don’t know if I could home

school so don’t know what I am going to do if this school fails him!

-Charlotte

******Hi Charlotte,

our boys seem to have a lot of similarities and it sure is tough finding the

right learning environment for them.

October 16, 2005

has anyone had any experiences with the Summit Academies

http://www.summitacademies.com/default.htm

they are in Ohio and are opening new schools in FL and MA and are looking at expansion and they are free

Greta

-----Original Message-----From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ]On Behalf Of Gail AfricaSent: Sunday, October 16, 2005 11:49 AMAutism and Aspergers Treatment Subject: RE: schools

There is a school close to here called the Seacoast Learning Collaborative and they have an autism/aspergers program at the school with about 10 kids in it. I went to look at the school but all the kids were pretty low functioning. Their ages were 8-13 and a good percent of them were non-verbal or limited verbally

-Charlotte

******Hi Charlotte, our boys seem to have a lot of similarities and it sure is tough finding the right learning environment for them. Actually, I think I know the right environment(besides Home School) and it just isn’t available around here or many places. thoroughly enjoys his book group which is 4-7 Home Schooled kids 10-13 years old He also does well with classes at the museum for Home Schooled kids, where there a dozen kids and the class is an hour or so at a time. About a month ago he joined a D & D group (Dungeons and Dragons) and is loving it. It is 4 kids and one dad. The group is very orderly and the dad does a great job. It runs for 3 hours and loves every minute. does best with 5-7 bright kids ages 9-15 depending on the kid. I know ’s son is doing well in Ps. but I do think this is rare. People were always telling me to “advocate”…not one of my favorite words. In certain situations you can “advocate” till the cows come home and the environment is just wrong….We are really pleased with how our son is doing compared to when he was 9 and 10 (now 13) Take care, Gail

October 17, 2005

RE:

schools

Gail,

This is ’ first year if Middle School (6th

grade) and so far it has been good and bad. usually as a rule does

better in the first half of the year than the second. There are not many

opportunities for socializing in this school as they are mostly in class as

opposed to elementary school where they had recess and such.

This year he seems to be friendly with more 7th

graders than 6th. Some of the kids are in his special ed program.

************Charlotte, what do they do

in the Special Ed. program? I think you should make arrangements to attend a

session. Does like this part of his day and why? What are the

other kids like? I wonder because there sure are some toughies around. Those would be a couple questions I have.

I As it stands now, my otherwise A student is getting his

first C and his first F in school.

****************Yikes, I know this would have happened to

. The spiral was rapidly heading down. ly his love for learning was

headed out the door.

I am attempting to get to the bottom of this because

a child with an aid in class should NOT be failing anything. It should

not even get to that point without me knowing. There are several other

issues….we shall see. I don’t know if I could home school so don’t know what I am going to do if this

school fails him!

**************Well see what you can do. Does he change

classes or have one teacher? Any space at the school where they could put

together a program next year for 6-9 bright kids, maybe grades 6-8? I know this

could happen at more schools but between space. time,$, it is thought of as impossible. I don’t think

it is, but it takes a certain attitude. Also, I never thought in a million

years thought I would home school, and really it’s been the best thing we

could have done for . asked in first and second grade if he could be

home schooled and I said something foolish like “you’ll learn more

at Ps.”. I do understand that some people just couldn’t do it and

that is upsetting because I do believe the Ps. could put together a program for

our kids. We go to classes for home schoolers. is drawn in with interest and

comments in a good way overall.

Good luck Charlotte and let us know

what happens, Gail

October 17, 2005

************Charlotte,

what do they do in the Special Ed. program? I think you should make

arrangements to attend a session. Does like this part of his day and why?

What are the other kids like? I wonder because there sure are some toughies

around. Those would be a couple questions I have.

*********** is mainstreamed in all his classes yet

during study halls and SIP’s (self improvement periods) he is in one of

the special ed programs. These classes are at the end of the day and are

primarily about getting homework done in school with assistance. I have

raised SEVERAL concerns about the potential for “toughies” in the

program and made it VERY clear that since this is NOT my child’s issue

that he is not to be “grouped” with these kids. So far they

are separating and another boy from the rest of the “pack” in

there.

****************Yikes, I know this would have happened to

. The spiral was rapidly heading down. ly his love for learning was

headed out the door.

************This was a SHOCK and I do believe it is a teacher

conflict. I am not worried about the C because likes the teacher

and subject that is in but although the teacher says he loves geography he did

NOT love latitude and longitude and that test was what brought him down to a

C. As for the F in English there are already several people working on

finding out what happened with this teacher, because something is VERY wrong

here. This is a class he would have had an A in last year.

**************Well see what you can do. Does he change

classes or have one teacher? Any space at the school where they could put

together a program next year for 6-9 bright kids, maybe grades 6-8? I know this

could happen at more schools but between space. time,$, it is thought of as

impossible. I don’t think it is, but it takes a certain attitude. Also, I

never thought in a million years thought I would home school, and really

it’s been the best thing we could have done for . asked in first

and second grade if he could be home schooled and I said something foolish like

“you’ll learn more at Ps.”. I do understand that some people

just couldn’t do it and that is upsetting because I do believe the Ps.

could put together a program for our kids. We go to classes for home

schoolers. is drawn in with interest and comments in a good way

overall.

Good luck Charlotte

and let us know what happens, Gail

*****************He changes teachers, he has 7 classes all

with different teachers. I doubt the school would go for a class as you

described since they are already strapped budget wise and understaffed. He

is already starting to say that he hates school again which usually starts

around this time of the year but this year we will see how it plays out.

-Charlotte

October 17, 2005

*********** I have raised

SEVERAL concerns about the potential for “toughies” in the program

and made it VERY clear that since this is NOT my child’s issue that he is

not to be “grouped” with these kids. So far they are

separating and another boy from the rest of the “pack” in

there.

************Good for you Charlotte as this would definitely

be a major concern

As for the F in English there are already several

people working on finding out what happened with this teacher, because

something is VERY wrong here. This is a class he would have had an A in

last year.

************This to me is where might need a special

program or at least a clear written outline of what he is supposed to be doing.

My guess he doesn’t know what he is doing or even how to begin. has

loads of ideas in his head but getting them on paper is a different story. The reason being 6th grade and

up all of a sudden they want opinion pieces written or longer reports. The

student needs explicit instruction on how to get started and what comes where.

Back to the who,

what, where, when, etc. My husband

works with my son on this as he is the better writer by far. does not do a

lot of writing but we are building slowly to achieve more written work. There’s

a program on computer, called ‘Inspiration’ which might be of

benefit to . This way the aide could work with him but the program would

be consistent. Do a web search and it will come up. ‘Kidspiration’

comes before, but may be too young and then again possibly not. When was

in fourth grade they did a weekly journal about the school week. spent the

entire year writing, “I had art. I had music. I had P.E.” I never

saw the journal. I didn’t know they were doing this until was very

upset about the whole thing one day. Since he was the brightest kid in the

class it seems like a little bell should have gone off for someone…

*******Time

to get going with . Off to the dentist, one of our most dreaded

appointments…..Gail

!

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October 17, 2005

Charlotte wrote:

>

> This year he seems to be friendly with more 7th graders than 6th. Some

> of the kids are in his special ed program. I have not decided if this

> is a good thing or a bad thing yet as I have no idea what these kids

> have or what kind of environment they come from.

It's a funny thing about our kids, or at least a lot of 'em. Our Louie,

once he finally got to meet other autistics, took a lot of them as his

friends. Of course, there were some he just didn't get along with for

one reason or another, but it seldom had to do with their autism. It

was usually just a personality thing, just like with the other student

body. Now, since he's moved out of our place and into assisted living,

all his friends are autistic. And all of them come from varied

backgrounds as well. He has very few close friends who are not

autistic, and they tend to be much older than Louie is (one of his

favorite people is an 80 yr. old lady in our church).

A lot of our kids start to blossom on the social skills end of things

when they make their first autistic friends. At least that's been our

experience with Louie.

Annie, who loves ya annie@...

--

Adversities are inevitable in life, but misery is a choice. --

Haigazian

October 17, 2005

A lot of our kids start to blossom on the social skills end of things

when they make their first autistic friends. At least that's been our

experience with Louie.

Annie, who loves ya

************The thing is Annie I don’t think these kids are other kids on

the spectrum. The problem with the school system is there is really no

place for Aspies themselves unless they have other issues like severe

learning disabilities. Instead of being placed with the **very few** kids

with Autism, because he is so high functioning, he is placed with the kids

with " other issues " . Some of these kids are just behavior and or emotional

problems. It really is a problem, I just don’t want him to start

socializing with kids he shouldn’t be mixed up with because he is so naïve

and innocent. There is only one other kid in the school with Asperger's and

he has several other issues and is in the lower functioning program. This

other boy needs tons of OT worked into his school day where as my son has

" some " OT interventions but no in school OT that he is pulled out of class

for. He goes to private OT every other week.

-Charlotte

October 17, 2005

Charlotte wrote:

> A lot of our kids start to blossom on the social skills end of things

> when they make their first autistic friends. At least that's been our

> experience with Louie.

>

> Annie, who loves ya

>

> ************The thing is Annie I don’t think these kids are other kids on

> the spectrum. The problem with the school system is there is really no

> place for Aspies themselves unless they have other issues like severe

> learning disabilities. Instead of being placed with the **very few** kids

> with Autism, because he is so high functioning, he is placed with the kids

> with " other issues " . Some of these kids are just behavior and or emotional

> problems. It really is a problem, I just don’t want him to start

> socializing with kids he shouldn’t be mixed up with because he is so naïve

> and innocent.

I think, and someone please correct me if I'm remembering this wrong,

that the law says the school system owes him an education in an

appropriate environment. And least that's what our school system said

before they put him in with the behavioral kids; he had behavior issues,

but most of them stemmed from the classroom teachers and/or aides not

following his IEP sensory requirements. So we turned it around, with

the help of an advocate from Child Protection and Advocacy here, and

proved to them that an autistic, particularly a highly functioning one,

did not belong in the behavioral/emotionally disturbed classroom. And

they put him with the other autistics, most of them low functioning or

with heavier issues than Louie had. After that, it became a matter of

getting him appropriate textbooks, and then getting him different ones

every school year (yes, they actually tried giving him the same books

two years in a row). And other things like that.

You might try taking this to the District if you can't get him moved to

a more appropriate educational placement through the school. After all,

they don't want to create another behavior problem themselves, do they?

If the District won't help you, go to the State Board of Education.

Good luck.

Annie, who loves ya annie@...

--

Adversities are inevitable in life, but misery is a choice. --

Haigazian

October 18, 2005

How do you know they are opening schools in MA? Could

you provide a link, I am very interested in this info!!

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of Randy

Sent: Sunday, October 16, 2005

12:13 PM

Autism and Aspergers Treatment

Subject: RE:

schools

has anyone had any experiences with the Summit Academies

http://www.summitacademies.com/default.htm

they are in Ohio

and are opening new schools in FL and MA and are looking at expansion and they

are free

Greta

RE:

schools

There is a school close to here called the Seacoast Learning

Collaborative and they have an autism/aspergers program at the school with

about 10 kids in it. I went to look at the school but all the kids were pretty

low functioning. Their ages were 8-13 and a good percent of them were non-verbal

or limited verbally

-Charlotte

******Hi Charlotte,

our boys seem to have a lot of similarities and it sure is tough finding the

right learning environment for them. Actually, I think I know the right

environment(besides Home

School) and it just

isn’t available around here or many places. thoroughly enjoys his

book group which is 4-7 Home Schooled kids 10-13 years old He also does

well with classes at the museum for Home Schooled kids, where there a dozen

kids and the class is an hour or so at a time. About a month ago he joined a

D & D group (Dungeons and Dragons) and is loving it. It is 4 kids and one

dad. The group is very orderly and the dad does a great job. It runs for 3

hours and loves every minute. does best with 5-7 bright kids ages

9-15 depending on the kid. I know ’s son is doing well in Ps. but I

do think this is rare. People were always telling me to

“advocate”…not one of my favorite words. In certain

situations you can “advocate” till the cows come home and the

environment is just wrong….We are really pleased with how our son is

doing compared to when he was 9 and 10 (now 13) Take care, Gail

October 18, 2005

I called them and they told me they were opening a school in Fl and one outside of Boston MA

call their toll free number for more info they are helpful and want to expand everywhere they are wanted it just takes time and people need to let them know where they are needed

I came across them from the CHADD group

-----Original Message-----From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ]On Behalf Of CharlotteSent: Tuesday, October 18, 2005 7:49 AMAutism and Aspergers Treatment Subject: RE: schools

How do you know they are opening schools in MA? Could you provide a link, I am very interested in this info!!

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of RandySent: Sunday, October 16, 2005 12:13 PMAutism and Aspergers Treatment Subject: RE: schools

has anyone had any experiences with the Summit Academies

http://www.summitacademies.com/default.htm

they are in Ohio and are opening new schools in FL and MA and are looking at expansion and they are free

Greta

-----Original Message-----From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ]On Behalf Of Gail AfricaSent: Sunday, October 16, 2005 11:49 AMAutism and Aspergers Treatment Subject: RE: schools

There is a school close to here called the Seacoast Learning Collaborative and they have an autism/aspergers program at the school with about 10 kids in it. I went to look at the school but all the kids were pretty low functioning. Their ages were 8-13 and a good percent of them were non-verbal or limited verbally

-Charlotte

******Hi Charlotte, our boys seem to have a lot of similarities and it sure is tough finding the right learning environment for them. Actually, I think I know the right environment(besides Home School) and it just isn’t available around here or many places. thoroughly enjoys his book group which is 4-7 Home Schooled kids 10-13 years old He also does well with classes at the museum for Home Schooled kids, where there a dozen kids and the class is an hour or so at a time. About a month ago he joined a D & D group (Dungeons and Dragons) and is loving it. It is 4 kids and one dad. The group is very orderly and the dad does a great job. It runs for 3 hours and loves every minute. does best with 5-7 bright kids ages 9-15 depending on the kid. I know ’s son is doing well in Ps. but I do think this is rare. People were always telling me to “advocate”…not one of my favorite words. In certain situations you can “advocate” till the cows come home and the environment is just wrong….We are really pleased with how our son is doing compared to when he was 9 and 10 (now 13) Take care, Gail

October 18, 2005

RE:

schools

has anyone had any experiences with the Summit Academies

http://www.summitacademies.com/default.htm

they are in Ohio and are opening

new schools in FL and MA and are looking at expansion and they are free

Greta

********Very interesting Greta. I had never heard of Summit. However, this is

exactly what I am talking about to meet the needs of many of our kids. Thanks, Gail

October 18, 2005

You might try taking this to the District if you can't get him moved to

a more appropriate educational placement through the school. After all,

they don't want to create another behavior problem themselves, do they?

If the District won't help you, go to the State Board of Education.

******************I keep saying this over and over and over and over to

them.......I am just starting to feel beat up. There are NO schools around

here for kids with Asperger's or NLD. It is really a bummer.

-Charlotte

July 21, 2009

The Joy School

Subject: SchoolsTo: Texas-Autism-Advocacy Date: Tuesday, July 21, 2009, 7:46 PM

Hi,

We are from southern Louisiana and are considering a move to Texas or, actually, wherever we can find a good school for our son . He is 11 years old and has been attending a private school with a full-time shadow. He has an autism diagnosis but has some great strengths (music and math) and deficits (social and language, specifically reading comprehension) . We've done a lot of different types of therapy but our main focus now is the school setting and social deficits.

From reading the emails in this group, I am very hopeful about the services Texas has generally. Does anyone know of a good private school or public school district????

Thanks

Colleen

July 21, 2009

I'm from south Louisiana too. We are in Houston now and my 13 year old with aspergers attends the monarch school. They are especially strong with social communication/language skills. Email me if I can help. Are you moving to Houston or elsewhere? Sent via BlackBerry by AT&TFrom: "Colleen Hunter" Date: Tue, 21 Jul 2009 19:46:42 -0500 (Central Daylight Time)To: <Texas-Autism-Advocacy >Subject: Schools Hi,We are from southern Louisiana and are considering a move to Texas or, actually, wherever we can find a good school for our son . He is 11 years old and has been attending a private school with a full-time shadow. He has an autism diagnosis but has some great strengths (music and math) and deficits (social and language, specifically reading comprehension). We've done a lot of different types of therapy but our main focus now is the school setting and social deficits. From reading the emails in this group, I am very hopeful about the services Texas has generally. Does anyone know of a good private school or public school district????ThanksColleen

July 22, 2009

My twins used to attend Westview and I worked at both their middle school and

the elementary school. While they did a great job with my kids who are

mainstremed into public school now, I would not consider them for middle school.

None of the kids are on grade level academically if that is a concern with your

son. The school also has no licensed psychologist/psychiatrist on staff nor is

it run by one (at least not as of this past school year). They do place a large

emphasis on social skills but if your son is currently on grade level or close

to it I don't think that Westview would be appropriate for him.

July 22, 2009