Re: In Re: NYTimes article-didn't eat

[Guest guest]

That's kind of disturbing to let a child go without food for 3 days b/c they wouldn't finish what was on their plates?

"Over-optimism is waiting for you ship to come in when you haven't sent one out."

From: jmlrgs1870 <jmlrgs1870@...> Sent: Wed, November 25, 2009 9:57:34 PMSubject: ( ) In Re: NYTimes article-didn't eat

You mentioned that AS children can go up to three days without eating rather than giving in and eating what is on their plate. Can I assume the reason for this is because they have something else they are craving, or they have an aversion to the food being served (perhaps due to a sensory issue?)? Is it due to a bit of stubbornness (i.e.: 'I WON'T eat unless you let me have what I want right now.')? Or is it due to the caregiver refusing to give them an alternative, so although the child is hungry, the child is unable to eat the food served due to sensory problems or something (i.e.: 'I CAN'T eat this particular food, but is there something else that I could have instead?')? Thank you for clarifying the reason for choosing to not eat rather than 'give in'. --Kari>> Scared and Silent, Runaway, 13, Spent 11 Days in the Subways > Posted by: "" cyclist2006nz@ ... cyclist2006nz > Tue Nov 24, 2009 2:01 am (PST) Scared and Silent, Runaway, 13, Spent 11 Days in the Subways> By KIRK SEMPLE> The parents of Francisco Jr., who has > Asperger's syndrome, wonder how he went unnoticed for so > long despite police searches.> http://www.nytimes. com/2009/ 11/24/nyregion/ 24runaway. html?th & emc= th > > He lasted 11 days on the food he could buy in subway shops for $10. This brings out a characteristic of AS I don't usually see mentioned: they're not particularily motivated by hunger. I know of a couple of AS children who went up to 3 days without eating anything rather than giving in and finishing the food on their plates. > >

Buck>

[Guest guest]

Was he being stubborn? Or was it out of fear? We can go for a very very long time w/out eating...but only 3 days without water. I have to read this article as my husband had heard about it on the news. Was he threatened and afraid....what is this world coming to???

ja

From: jmlrgs1870 <jmlrgs1870@...> Sent: Wed, November 25, 2009 10:57:34 PMSubject: ( ) In Re: NYTimes article-didn't eat

You mentioned that AS children can go up to three days without eating rather than giving in and eating what is on their plate. Can I assume the reason for this is because they have something else they are craving, or they have an aversion to the food being served (perhaps due to a sensory issue?)? Is it due to a bit of stubbornness (i.e.: 'I WON'T eat unless you let me have what I want right now.')? Or is it due to the caregiver refusing to give them an alternative, so although the child is hungry, the child is unable to eat the food served due to sensory problems or something (i.e.: 'I CAN'T eat this particular food, but is there something else that I could have instead?')? Thank you for clarifying the reason for choosing to not eat rather than 'give in'. --Kari>> Scared and Silent, Runaway, 13, Spent 11 Days in the Subways > Posted by: "" cyclist2006nz@ ... cyclist2006nz > Tue Nov 24, 2009 2:01 am (PST) Scared and Silent, Runaway, 13, Spent 11 Days in the Subways> By KIRK SEMPLE> The parents of Francisco Jr., who has > Asperger's syndrome, wonder how he went unnoticed for so > long despite police searches.> http://www.nytimes. com/2009/ 11/24/nyregion/ 24runaway. html?th & emc= th > > He lasted 11 days on the food he could buy in subway shops for $10. This brings out a characteristic of AS I don't usually see mentioned: they're not particularily motivated by hunger. I know of a couple of AS children who went up to 3 days without eating anything rather than giving in and finishing the food on their plates. > >

Buck>

[Guest guest]

My son has a limited diet to, luckily for us it mainly consists of any kind of pasta, especially macaroni and cheese, cheese strings, cheese squares, baby bells etc. Apples and oranges. He won't touch any kind of junk, no chips (fries), burgers or anything that has breadcrumbs or a coating on it. He will take syrup of figs as he knows this stops his number 2s from being sore. So we have a balance, it seems to work, so far.

From: mimasdprofile <callis4773@...>Subject: ( ) In Re: NYTimes article-didn't eat Date: Thursday, 26 November, 2009, 21:47

My son starved himself when I didn't give him what he wanted. He developed a condition... I think it's Ketosis...he was consuming his own muscle to survive. Then he started peeing ALL the time and it had something to do with the ketosis. The doctor said, "Give him whatever he wants. Give him ice cream. He's not getting enough calories." That old thing about "give them what everyone else is eating" is complete crap for kids with sensory issues. will literally vomit at the table if made to put food in his mouth that bothers him. So, lots of PBJ (at least I've found a high fiber bread he'll eat) chicken nuggets (at least he eats store bought ones now instead of just mcdonalds) fries, grilled cheese, ramen noodles and plain pasta. He will sometimes eat apple and applesauce but often makes faces and has to gag a bit to get it down. He can do it, though, and seems willing to keep trying with that. He won't eat plain chicken or any other meats. Peanut

butter is a main source of protein for him. It's probably the closest thing to a vegetable that he'll eat unless you count popcorn or ketchup. Vitamins and fiber supplements help avoid ricketts, scurvy and constipation. Oh, he'll drink chocolate milk. I can put Benefiber in his chocolate milk and there isn't a change in taste or texture so he's okay with it.Miriam> >> > Scared and Silent, Runaway, 13, Spent 11 Days in the Subways > > Posted by: "" cyclist2006nz@ cyclist2006nz > > Tue

Nov 24, 2009 2:01 am (PST) Scared and Silent, Runaway, 13, Spent 11 Days in the Subways> > By KIRK SEMPLE> > The parents of Francisco Jr., who has > > Asperger's syndrome, wonder how he went unnoticed for so > > long despite police searches.> > http://www.nytimes. com/2009/ 11/24/nyregion/ 24runaway. html?th & emc= th > > > > He lasted 11 days on the food he could buy in subway shops for $10. This brings out a characteristic of AS I don't usually see mentioned: they're not particularily motivated by hunger. I know of a couple of AS children who went up to 3 days without eating anything rather than giving in and finishing the food on their plates. > > > > Buck> >>

[Guest guest]

I agree,my son is 17yrs old with all the senory issuses,it is hard with these kid somtimes i go with out just to get him what he will eat to surive,peanut butter & grape jelly ,ice cream,chill cheese,fries,chicken nuggets from burger king,I do all this on a partime job and no car ,walking to wok and stores We keep trying Angel Blessings

From: <kellypywtorak@...>Subject: ( ) In Re: NYTimes article-didn't eat Date: Friday, November 27, 2009, 2:23 PM

I have to agree...these aren't typical kids just being stubborn about food. Give 'em enough to get the calories into them, even if it's not your ideal diet that you would have chosen for a "typical" kid. We encourage our kids to try our well-balanced home cooked foods, but they can get extra bread and butter, yogurt, some cheese, some fruit. Having kids with Aspergers has changed my perspective as a dietitian. Sensory problems are hard to understand if you don't live with it.> > >> > > Scared and Silent, Runaway, 13, Spent 11 Days in the Subways > > > Posted by: "" cyclist2006nz@ cyclist2006nz > > > Tue Nov 24, 2009 2:01 am (PST) Scared and Silent, Runaway, 13, Spent 11 Days in the Subways> > > By KIRK

SEMPLE> > > The parents of Francisco Jr., who has > > > Asperger's syndrome, wonder how he went unnoticed for so > > > long despite police searches.> > > http://www.nytimes. com/2009/ 11/24/nyregion/ 24runaway. html?th & emc= th > > > > > > He lasted 11 days on the food he could buy in subway shops for $10. This brings out a characteristic of AS I don't usually see mentioned: they're not particularily motivated by hunger. I know of a couple of AS children who went up to 3 days without eating anything rather than giving in and finishing the food on their plates. > > > > > > Buck> > >> >>

[Guest guest]

I think syrup of figs is just a natural laxative that is ok for kids to take. G eats lots of pasta and bread while and wholemeal, so he doesn't seem to have a prob with fiber, but the only fruit he eats is apples so sometimes he had a bit of a problem with his stools being a bit too firm. We tried him with different types of drinks but he doesn't like them, so we just stick with this as it works for now.

Lor b

From: mimasdprofile <callis4773@...>Subject: ( ) In Re: NYTimes article-didn't eat Date: Friday, 27 November, 2009, 14:58

We have a family history of diverticular disease as well as colon cancer. Fiber is extremely important to preventing these. So we give the benefiber for the "soluable fiber" which is important to avoiding the cancer and he eats whole grain bread and popcorn which both have soluable fiber which helps balance moister in the colon and keeps stools from getting painful as long as a reasonable amount of fluids are also consumed. This is good for avoiding diverticular disease. Does fig syrup have fiber in it or does it have a laxative effect? I've never heard of fig syrup! I have heard that figs have a laxative effect.> > >> > > Scared and Silent, Runaway, 13, Spent 11 Days in the Subways > > > Posted by: "" cyclist2006nz@  cyclist2006nz > > > Tue Nov 24, 2009 2:01 am (PST) Scared and Silent, Runaway, 13, Spent 11 Days in the Subways> > > By KIRK SEMPLE> > > The parents of Francisco Jr., who has > > > Asperger's syndrome, wonder how he went unnoticed for so

> > > long despite police searches.> > > http://www.nytimes. com/2009/ 11/24/nyregion/ 24runaway. html?th & emc= th > > >  > > > He lasted 11 days on the food he could buy in subway shops for $10. This brings out a characteristic of AS I don't usually see mentioned: they're not particularily motivated by hunger. I know of a couple of AS children who went up to 3 days without eating anything rather than giving in and finishing the food on their plates. > > >  > > > Buck> > >> >>

[Guest guest]

We knew Gregor was a little fussy with food, he would eat quorn mince bit not real mince because of "the bits", it wasn't until we had to take him to a dietician for his eczema we realised his food was all white-red-purple, and most of the savoury things he ate were all cheese or tomato flavour, note never cheese and tomato!

The only exception to the above is haribo. lol

From: <kellypywtorak@...>Subject: ( ) In Re: NYTimes article-didn't eat Date: Friday, 27 November, 2009, 19:23

I have to agree...these aren't typical kids just being stubborn about food. Give 'em enough to get the calories into them, even if it's not your ideal diet that you would have chosen for a "typical" kid. We encourage our kids to try our well-balanced home cooked foods, but they can get extra bread and butter, yogurt, some cheese, some fruit. Having kids with Aspergers has changed my perspective as a dietitian. Sensory problems are hard to understand if you don't live with it.> > >> > > Scared and Silent, Runaway, 13, Spent 11 Days in the Subways > > > Posted by: "" cyclist2006nz@ cyclist2006nz > > > Tue Nov 24, 2009 2:01 am (PST) Scared and Silent, Runaway, 13, Spent 11 Days in the Subways> > > By KIRK

SEMPLE> > > The parents of Francisco Jr., who has > > > Asperger's syndrome, wonder how he went unnoticed for so > > > long despite police searches.> > > http://www.nytimes. com/2009/ 11/24/nyregion/ 24runaway. html?th & emc= th > > > > > > He lasted 11 days on the food he could buy in subway shops for $10. This brings out a characteristic of AS I don't usually see mentioned: they're not particularily motivated by hunger. I know of a couple of AS children who went up to 3 days without eating anything rather than giving in and finishing the food on their plates. > > > > > > Buck> > >> >>

[Guest guest]

As I have mentioned it has been like a lightbulb coming on over some of the things on here, this is one of those things. since food and taste is a personal issue I've never had any reason to think the way I taste food is any different from anyone else, there are a few things I just cannot tolerate pineapple and grapefruit top the list and it is more for the texture than the taste, which I'm not keen on either, whether it is raw, cooked part of sweet and sour or pizza topping it makes me wretch. Other things on my list are things like tomato juice, smoothies, cooked apple. I'm a veggie have convinced myself over the years that it is a loathing of factory farming methods that made me veggie, but I must admit certain meats turned my stomach, I don't think I'm alone when its liver, but I found it difficult to eat chicken as well.

haha yes I guess I must be an Aspie too.

From: <kellypywtorak>Subject: ( ) In Re: NYTimes article-didn' t eat Date: Friday, November 27, 2009, 2:23 PM

I have to agree...these aren't typical kids just being stubborn about food. Give 'em enough to get the calories into them, even if it's not your ideal diet that you would have chosen for a "typical" kid. We encourage our kids to try our well-balanced home cooked foods, but they can get extra bread and butter, yogurt, some cheese, some fruit. Having kids with Aspergers has changed my perspective as a dietitian. Sensory problems are hard to understand if you don't live with it.> > >> > > Scared and Silent, Runaway, 13, Spent 11 Days in the Subways > > > Posted by: "" cyclist2006nz@ cyclist2006nz > > > Tue Nov 24, 2009 2:01 am (PST) Scared and Silent, Runaway, 13, Spent 11 Days in the Subways> > > By KIRK SEMPLE> > > The parents of Francisco Jr., who has > > > Asperger's syndrome, wonder how he went unnoticed for so > > >

long despite police searches.> > > http://www.nytimes. com/2009/ 11/24/nyregion/ 24runaway. html?th & emc= th > > > > > > He lasted 11 days on the food he could buy in subway shops for $10. This brings out a characteristic of AS I don't usually see mentioned: they're not particularily motivated by hunger. I know of a couple of AS children who went up to 3 days without eating anything rather than giving in and finishing the food on their plates. > > > > > > Buck> > >> >>

[Guest guest]

I think they do this in severe cases when trying to get them to eat

something else. If a child only eats a certain food, how do you change

that? I know people think it's a simple process of introducing new

foods or bribing or something...but I have one who does not eat but one

food and it is far beyond a typical problem. I don't know if I could

handle waiting around for him to eat something else. Obviously, we

can't. But I have heard of programs where they try to mimic the

sensory need via other foods and progress to opening a variety of food

options. It would seem to me a really difficult process.

Roxanna

" The only thing necessary for the triumph of evil is for good men to do

nothing. " E. Burke

( ) In Re: NYTimes article-didn't eat

 

You mentioned that AS children can go up to three days without eating

rather than giving in and eating what is on their plate. Can I assume

the reason for this is because they have something else they are

craving, or they have an aversion to the food being served (perhaps due

to a sensory issue?)?

Is it due to a bit of stubbornness (i.e.: 'I WON'T eat unless you let

me have what I want right now.')?

Or is it due to the caregiver refusing to give them an alternative, so

although the child is hungry, the child is unable to eat the food

served due to sensory problems or something (i.e.: 'I CAN'T eat this

particular food, but is there something else that I could have

instead?')?

Thank you for clarifying the reason for choosing to not eat rather than

'give in'. --Kari

>

> Scared and Silent, Runaway, 13, Spent 11 Days in the Subways

> Posted by: " " cyclist2006nz@ ...   cyclist2006nz

> Tue Nov 24, 2009 2:01 am (PST) Scared and Silent, Runaway, 13, Spent

11 Days in the Subways

> By KIRK SEMPLE

> The parents of Francisco Jr., who has

> Asperger's syndrome, wonder how he went unnoticed for so

> long despite police searches.

> http://www.nytimes. com/2009/ 11/24/nyregion/ 24runaway. html?th & emc=

th

>  

> He lasted 11 days on the food he could buy in subway shops for $10.

This brings out a characteristic of AS I don't usually see mentioned:

they're not particularily motivated by hunger. I know of a couple of AS

children who went up to 3 days without eating anything rather than

giving in and finishing the food on their plates.

>  

> Buck

>