Introduction...

[Guest guest]

karen,

welcome and congratulations to you, for being able to make that change,

especially after such a long time between children--i guess alot has changed

since you had your frist child... i hope you get as much from this group as

i have, and again welcome )

brigit

[Guest guest]

Hi ! I have a 6 week old daughter, and she will be starting her vax.

soon enough. I am only allowing her to be given her MMR, her OPV (I am a

carrier), her DTP, and a TB shot (I am a carrier). I am not giving her the

HIB or the Hep. B shot. I have no plans to give her the MMR booster. She

will get a tetanus booster, though.

I welcome all information about these vax. I am aware of the controversy

between the MMR and autism. I am planning to have Bri vaxed at 12 months for

her MMR. And, I have decided that under NO circumstances will she receive

more than one vax. on the same day. I don't see why the ped. should care...I

pay him $10 for every visit...so he'll be making money!

TIA

Jo

[Guest guest]

Hi ,

I am glad you joined. I have had a diagnosis for the better part of

a year now, and I have met face-to-face, but one other person with

psoriatic arthritis. This group has been great for me. Through coming

here, I have gotten to " know " many others (online - at least); I have

discovered many of the complexities of this auto-immune disease; and,

I have been enabled to give and to receive. Kathi F., the

editor/moderator of this group is a saint - though she will inevitably

deny this. Ha! Jack Nicolas, the Cornish Pro (another person of

virtue), has produced 100 newsletters that are published here every

month. These newsletters provide much useful info related our

disease. Warmest regards to you and your family - may your pains be

small and your joys be great. Brent

(Editor's Note: Brent, I'd comment but I seem to have misplaced my halo. Kathy

F.)

[Guest guest]

....welcome to the group. Being thankful for what you DO have is half

the battle. -Betz

Betsy Jack itsbetsy@...

[ ] introduction...

Hi all,

My name is and I am a 27 year old mother of three and a

college student. I was diagnosed with psoriatic arthritis in March. I

started methotrexate in may and have been put on the injectable version

of it because I was so nauseous on the pill form.

Anyhow, there is no joint damage so far, for that I am thankful. I

joined this group because I know noone else with PA and look forward to

getting to know you all.

[Guest guest]

Brent...I hearby nominate you as official " Meeter Greeter " for this group. You

do it so eleqeuntly. Kudos. -Betz

Betsy Jack itsbetsy@...

[ ] Re: introduction...

Hi ,

I am glad you joined. I have had a diagnosis for the better part of

a year now, and I have met face-to-face, but one other person with

psoriatic arthritis. This group has been great for me. Through coming

here, I have gotten to " know " many others (online - at least); I have

discovered many of the complexities of this auto-immune disease; and,

I have been enabled to give and to receive. Kathi F., the

editor/moderator of this group is a saint - though she will inevitably

deny this. Ha! Jack Nicolas, the Cornish Pro (another person of

virtue), has produced 100 newsletters that are published here every

month. These newsletters provide much useful info related our

disease. Warmest regards to you and your family - may your pains be

small and your joys be great. Brent

(Editor's Note: Brent, I'd comment but I seem to have misplaced my halo. Kathy

F.)

[Guest guest]

In a message dated 09/06/2006 11:14:06 GMT Daylight Time,

chrissell@... writes:

Anyhow, there is no joint damage so far, for that I am thankful. I

joined this group because I know noone else with PA and look forward to

getting to know you all.

Hi ,

Well, now you know 2700+ of us! lol Welcome to the group. I'm glad you found

us but sorry that you are in the position that you had to. Are you doing

better on the injectionable MTX?

I hope it works well for you.

I just read one of your later posts. I have been on MTX in pill form for

about three years and with me it didn't really help until they introduced

Enbrel.

As far as the pain moving about is concerned. That is certainly typical of PA

in my opinion

Take care,

[Guest guest]

Welcome, Rhonda. I was also diagnosed one year ago this month - we're

twins! Although, I'm twenty years older than you...

How have you responded to your treatment? Are you doing well?

warmest regards,

sherry z

>

> Hi! My name is Rhonda. I was Dx with PA a year ago this month at age

> 33. My current treatment is Hydroxychloroquine, Methotrexate (oral),

> Leflunomide, Folic Acid & Indomethacin. I do not have Psoriasis.

>

> I've been looking for a support group and just stumbled on this one

> today. (c:

>

[Guest guest]

Hi Rhonda,

Sorry ot hear about your p.a. but this means you do have psoriosis. If its

inside the joints and you can't see it you still have it.

twinangel_1 <lilangel@...> wrote:

Hi! My name is Rhonda. I was Dx with PA a year ago this month at age

33. My current treatment is Hydroxychloroquine, Methotrexate (oral),

Leflunomide, Folic Acid & Indomethacin. I do not have Psoriasis.

I've been looking for a support group and just stumbled on this one

today. (c:

[Guest guest]

Welcome Rhonda Saddened to hear about the dx with pa but glad you found

this group. I recd information, shared experiences and support here.

It's an awesome group!

wrote:

>

> Hi! My name is Rhonda. I was Dx with PA a year ago this month at age

> 33. My current treatment is Hydroxychloroquine, Methotrexate (oral),

> Leflunomide, Folic Acid & Indomethacin. I do not have Psoriasis.

>

> I've been looking for a support group and just stumbled on this one

> today. (c:

>

[Guest guest]

I'm doing well with the current treatment, but of course it's also

summer. (c:

>

> Welcome, Rhonda. I was also diagnosed one year ago this month - we're

> twins! Although, I'm twenty years older than you...

>

> How have you responded to your treatment? Are you doing well?

>

> warmest regards,

> sherry z

>

[Guest guest]

Hi Rhonda, I also have PA but no psoriasis. it was bought on by

trauma of an asthma attack which put me in a coma for 10 days. I am

41 and the PA began 4 years ago. I was on methotrexate but my liver

started playing up so now i am on arava. nice to meet you . Ally

[Guest guest]

My Rheumy isn't sure if mine was triggered by my hysterectomy or a

nasty viral infection. Or if I've had it for a while and it just

suddenly got debilitating (I've had joint pain since I was 5 years old).

>

> Hi Rhonda, I also have PA but no psoriasis. it was bought on by

> trauma of an asthma attack which put me in a coma for 10 days. I am

> 41 and the PA began 4 years ago. I was on methotrexate but my liver

> started playing up so now i am on arava. nice to meet you . Ally

>

[Guest guest]

I don't know enough about Iodine to help you here, others will. You might want

to think diet wise here. soy drags down your thyroid. We went gluten and dairy

free for other reason's, but I feel so amazing gluten, diary and soy free I no

longer need any forms of Iodine or thyroid help. It did take many months for

everything to fully kick in so you need to stick to it for 6-12 months or more.

Just some thoughts and if you want me to go further I will, but others will have

more.

Marcie

Marcie Dingerson

Burger Professionals REALTOR

Your Home Buying Specialist

www.MarcieDingerson.com

360-292-2569    http://threeboysandglutenfree.blogspot.com/   Check out my

monkey's

> From: tami65537748 <Nealsnews@...>

> Subject: Introduction...

> iodine

> Date: Sunday, March 15, 2009, 5:20 PM

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> Hi my name is Tami. I'm 53 years old.

> I have symtpoms of having hypothyroidism but always test in

> the normal range. I have had these symptoms for years but

> they've got much worse over the past few years.

>

> As a young woman I had a test in the hospital and I guess

> I passed out on them while they were doing it. They told me

> that I was allergic to iodine and not to eat saltwater fish

> or let any test be run on me that used iodine.

>

> I have accidentally got iodine since then and my symptoms

> were having a feeling a belch was stuck, nausea, finally

> feeling like I couldn't breathe and then almost passing

> out. If I could vomit it would seem to ease the symptoms.

>

> Because I knew I needed to get iodine from some source in

> my diet I used kelp. Then I began having the symptoms with

> kelp that I had with iodine. After stopping kelp I

> developed severe depression and weight gain.

>

> I am fighting the health battle of my life right now and

> feel like my underactive thyroid is part of my problem. I

> joined a thyroid group and mentioned that I didn't know

> how to get iodine in my diet because of being allergic to

> it. The owner recommended I join this group. He said the

> people here were very knowledgable.

>

> I would like any input anyone might have on this. The

> man on the other group mentioned painting yourself with

> iodine as a sort of self-test on your need for iodine, but I

> accidentally got iodine on myself one time when treating a

> kitten we had for a cut and got ill from that so I'm a

> little nervous.

>

> I've done some reading and wondered of your files,

> links, etc. and didn't know if my symtpoms would be

> considered a detox instead of an allergic reaction?

> However, passing out and not being able to breathe is rather

> scary so wouldn't I need to start out really small and

> maybe build up to iodine supplementation?

>

> Hope to learn a lot, just reading it's kind of

> overwhelming and I don't feel like I've quite caught

> on to the thinking concerning this. However, I'm quite

> willing to be educated:)

>

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> Tami

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[Guest guest]

Tami you sound like me. I was always told my thyroid #s were "normal" even after most of it was removed! I lost many years of my life. I was also in desperate need of iodine/iodide and now take 100MG per day. the advice you have been given is confused b/c allergy to iodine is very rare and you were reacting to medical dyes which are organic iodine and you need inorganic. also you may need a high dose of iodine and too low a dose is aggravating. have you read Brownstein's book on iodine? http://www.drbrownstein.com ? it is on sale right now! also more info on http://www.optimox.com

Gracia

Hi my name is Tami. I'm 53 years old. I have symtpoms of having hypothyroidism but always test in the normal range. I have had these symptoms for years but they've got much worse over the past few years.As a young woman I had a test in the hospital and I guess I passed out on them while they were doing it. They told me that I was allergic to iodine and not to eat saltwater fish or let any test be run on me that used iodine. I have accidentally got iodine since then and my symptoms were having a feeling a belch was stuck, nausea, finally feeling like I couldn't breathe and then almost passing out. If I could vomit it would seem to ease the symptoms.Because I knew I needed to get iodine from some source in my diet I used kelp. Then I began having the symptoms with kelp that I had with iodine. After stopping kelp I developed severe depression and weight gain.I am fighting the health battle of my life right now and feel like my underactive thyroid is part of my problem. I joined a thyroid group and mentioned that I didn't know how to get iodine in my diet because of being allergic to it. The owner recommended I join this group. He said the people here were very knowledgable.I would like any input anyone might have on this. The man on the other group mentioned painting yourself with iodine as a sort of self-test on your need for iodine, but I accidentally got iodine on myself one time when treating a kitten we had for a cut and got ill from that so I'm a little nervous.I've done some reading and wondered of your files, links, etc. and didn't know if my symtpoms would be considered a detox instead of an allergic reaction? However, passing out and not being able to breathe is rather scary so wouldn't I need to start out really small and maybe build up to iodine supplementation? Hope to learn a lot, just reading it's kind of overwhelming and I don't feel like I've quite caught on to the thinking concerning this. However, I'm quite willing to be educated:)Tami

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.0.237 / Virus Database: 270.11.15/2003 - Release Date: 03/15/09 14:07:00

[Guest guest]

Tami,I just sent all this info below to a friend. Icut & paste it here for you but the single most helpful site is this onehttp://www.stopthethyroidmadness.com/Many of us had lots of symptoms & had doctors test our TSHfor them to tell us we were normal. Years passed, we got sicker. Now on dessiccated thyroid/Armour, and Iodoral (iodine & iodide)we are getting better.If you had side affects to iodine it was probably detox symptoms.Buy celtic sea salt and follow the salt loading protocol.Many of us do this every day for years as it help w/the detoxand alleviates those symptoms. (mIne were bad headache, itchy skin,foggy brain ).Here are a few articles I have.Basically, you can order the tests yourselfto see where your bromide & iodine levels are (about $100 from http://www.hakalalabs.com/services.The urine iodine loading test & the bromide test).Then, you can order iodoral fromhttp://www.breastcancerchoices.org/order.htmland you should take companion vitamins to help thebromide/bromine detox:http://www.naturalthyroidchoices.com/ThyroidNutrients.htmlAlso side affects often occur and then one s/do the salt loading protocol:http://www.naturalthyroidchoices.com/SaltAdrenal.htmlEveryone should take iodine!And it takes several years to completely detox.I would be happy to answer any questions you may have.Also the book Iodine, Why we need it. BY Dr Brownstein is a very informative book.https://www.drbrownstein.com/home.aspBe Well,AliOn Mar 15, 2009, at 5:20 PM, tami65537748 wrote:Hi my name is Tami. I'm 53 years old. I have symtpoms of having hypothyroidism but always test in the normal range. I have had these symptoms for years but they've got much worse over the past few years.As a young woman I had a test in the hospital and I guess I passed out on them while they were doing it. They told me that I was allergic to iodine and not to eat saltwater fish or let any test be run on me that used iodine. I have accidentally got iodine since then and my symptoms were having a feeling a belch was stuck, nausea, finally feeling like I couldn't breathe and then almost passing out. If I could vomit it would seem to ease the symptoms.Because I knew I needed to get iodine from some source in my diet I used kelp. Then I began having the symptoms with kelp that I had with iodine. After stopping kelp I developed severe depression and weight gain.I am fighting the health battle of my life right now and feel like my underactive thyroid is part of my problem. I joined a thyroid group and mentioned that I didn't know how to get iodine in my diet because of being allergic to it. The owner recommended I join this group. He said the people here were very knowledgable.I would like any input anyone might have on this. The man on the other group mentioned painting yourself with iodine as a sort of self-test on your need for iodine, but I accidentally got iodine on myself one time when treating a kitten we had for a cut and got ill from that so I'm a little nervous.I've done some reading and wondered of your files, links, etc. and didn't know if my symtpoms would be considered a detox instead of an allergic reaction? However, passing out and not being able to breathe is rather scary so wouldn't I need to start out really small and maybe build up to iodine supplementation? Hope to learn a lot, just reading it's kind of overwhelming and I don't feel like I've quite caught on to the thinking concerning this. However, I'm quite willing to be educated:)Tami

[Guest guest]

Hello everybody! I'm new to the group and look forword to the support and

information that I know I can find in this group. And maybe some friendships, as

I live an a small town.

A little about me and my family...

I'm a 23 yr old single parent of two children. I am in a relationship with a

wonderful man who brought along with him three other children.

DS - 12 ADD, on medication (step-son)

DD - 4 normal, but has behivoral issues (step-daughter)

DS - 4 HFA, beleived to be aspergers, ADHD, and appers to have sensory issues.

(biologial child)

DD - 3 normal, has speech impediment (step-daughter)

DD - 18 months normal, slightly advanced for age (biological child)

I am new to the group though not new to the problems my HF DS has. I have

supected it for about two years and only just now got a digonisis.